Losing and Finding my Womanhood

When I think back to my life post cervical cancer treatment a nursery rhyme verse comes to mind, All the king’s horses and all the king’s men couldn’t put Humpty back together again. Just like in this nursery rhyme, sometimes when something is broken, it can’t be put back together again. My body was tattered, sense of peace shaken, stamina weakened, mind weary, and I was left with a struggling relationship. I had to find a new way to walk in my survivorship, with or without a partner by my side.

Cervical Cancer and HPV invaded my body in 2005. Surgery left my belly misshapen, and the physical pain was intense. Radiation left me feeling like knives were in my bladder and behind. My emotions were like raw hamburger – all vulnerable and exposed. Surgical menopause left me hormonal and exhausted. I didn’t like myself this way and I didn’t recognize the person I had become. I think the real Shawna was hiding behind depression, fatigue and trauma. I would cry at the drop of a hat and everything felt so difficult. I was looking for the fast forward button and I was navigating it in some ways, ALONE.

Cancer can bring you closer with your loved ones or pull you apart. When speaking of your relationship with your partner, sex is one of the bottles of glue that holds you together at times. Sure, some of us have our faith in God and our commitment to each other. Let’s face it–part of God’s design to share intimacy sexually, to experience a connection that transcends words. It takes you to a higher level and creates a magical intimacy. Guess what? Having a third of your vagina cut out, sewn like a sock, and radiated makes that very difficult, not to mention the bowel accidents and skin issues due to estrogen depletion and radiation damage. There is also that dreaded relationship you are to have with your vaginal dilators, doctor’s orders. Relating sexual desire to excruciating pain is not natural but it a challenge that must be faced.

I remember trying to be intimate, but it wasn’t working out because I was not the same. “Barbie was broken.” I was in pain and I was lacking confidence in myself. I felt ugly and was very angry at my body for failing me. There is nothing sexy about broken vaginas and bowel/bladder issues. I felt unlovable, and I had what I call “Sexual Stage Fright.” I was busy crying in my pillow or running to the toilet to keep from having another accident. This is hard on a partner as well. They can’t “fix it” and we all know how in a relationship our partner really wants to fix it.

“There is no book on how to handle a depressed wife recovering from cervical cancer.” I have heard this statement before. And in fairness–no there is not. One idea is, to above all, be a human being that offers empathy and support. Words of unconditional love, hugs with no strings attached, reassurance that they will not leave, compliments about one’s appearance, and a sense of humor go very far in helping a Cervivor find their way back to a new normal. There is grieving along the journey in spite of the celebration of overcoming this disease. Be a partner that is a safe place to fall, because it is so necessary to have that space to just be. This can’t be hurried, and there is no timeline to arrive at your new normal. The real question is, can a marriage withstand the wait? Cervical cancer was not in the plans and neither was navigating a marriage on life support.

Three years after the cancer, I divorced. Issues related to cervical cancer put the nail in the coffin in our marriage; the strain was too much.

I just remember sitting in a pile crying to my mom saying, “They might as well take the last letter of my name off and call me ‘Shawn’ instead of ‘Shawna,’ because I don’t feel like a woman anymore.”

I discussed with my mom my feelings that due to my post-treatment body, I probably would not have a boyfriend any time soon. I was okay with that, because I couldn’t handle the pressure. Those days were over, or so I thought. I was wrong. So. Very. Wrong. In walks my high school sweetheart, Aaron. In 1992, we met, and there was an instant connection. We were best friends above all else, and he always just got me. He says I was always “the one” even though we parted ways at age 19. When he came back into my life he hardly recognized the person I had become. He was astounded and wanted to know what happened. I was a lot like a whipped dog. Depression is funny like that. When you lack hope and joy–it seems like you are living on “Grey Street” (Dave Matthews Band song I love!) and you can’t dig yourself out of the well.  Together, over time, Aaron helped me introduce the New Shawna to the Old Shawna so they could learn to like and accept each other.

Aaron was a best friend that encouraged me through counseling and sat beside me while I gained my strength. He knew what I needed even when I didn’t. We eventually married. When we were first intimate, it didn’t quite go as planned; my vagina didn’t quite work right. He was patient with me, and he did not put me down or pressure me to be some sex goddess. I could relax and just be.

Being a teacher we joke that I have an IEP (Individualized Education Program) for my “Who Who” because my body has some special needs. That is okay. I am okay. My husband thinks I am more than okay. At almost 44-years-old, my post-cancer body is an amazing and miraculous thing. By God’s grace, it all works still, and my husband and I have found perfect harmony in the intimacy department. I am enough for him. I am enough for me. I was always enough.

Aaron once told me, “If the cancer comes back, and they have to sew you shut, I will love you anyway. I will never leave you.” I think those were words I really needed to hear. You can be broken. I will still be here. You can have bathroom accidents. We can laugh about it and I will still be here. You can be really tired and hormonal some days, and you can nap. I will still be here. You can have broken parts and scars inside and out. I will still be here, loving you. All of you. Cancer or no cancer.

Read more about Shawna here:  http://cervivor.org/stories/shawna/

Experiencing Cervivor School as a Cervivor Follower

Two years ago, I was reading an article during Cervical Cancer Awareness Month, about Tamika Felder and her organization Cervivor. I could not believe there was an entire group dedicated to cervical cancer awareness! I followed the link to Cervivor.org and read story after story of women like me. Women who’s bodies and lives had been forever changed.

As I read through the site, I saw something called Cervivor School: “A live event for anyone looking to become more involved in the cervical cancer movement”. This sounded perfect for me – I was already talking none stop about my cervical cancer, why not find out how I could make a difference. I happily submitted my Cervivor story and I was determined to get myself to the next Cervivor School.

About two months later, I received an email that Tamika was going to be at an event in San Francisco and would I be interested in attending as a Cervivor. I jumped at the chance to meet other Cervivors’ in my area, as well as meet Tamika herself. Along with Tamika, I met fellow Cervivors Cindy and Curtissa. Our stories shared similar threads and we seemed to have the same desire to change the perception of cervical cancer.

That event lead to another amazing event, Stirrup Stories. I saw firsthand Cervivor’s impact in the community. The outreach Cervivor does to educate and bring awareness to a cancer that gets very little positive acknowledgment. Fourteen of us shared our very personal stories. We shared with the audience that HPV and cervical cancer has a diverse voice, and the tears and cheers filled the theater that night.

Having been a part of Stirrup Stories, I knew that Cervivor School would be just as powerful. But I would have to wait a year before I could get to a Cervivor School. When I finally packed my bags and headed to Delray Beach, Florida for Cervivor School 2017, I was jazzed to finally be a part of this experience. I was really feeling like a Cervivor.

I got to meet women who I’d connected with through social media. Women who’s stories I knew and that were so similar to mine, that I found myself at ease almost immediately. We sat together in a conference room for four days, creatively writing, getting artistic, listening to impactful speakers and learning how we can take our HPV and cancer stories to the next level. Oh and the laughter! As a cancer patient and survivor, it isn’t always easy to laugh, especially at our cancer but Cervivor School is a safe, non-judgemental environment where we could just be ourselves.

After Cervivor School, I have refined my story and my purpose. I now have resources to support my HPV and cervical cancer advocacy as I reach out to my community. Like my Cervivor sisters, we want to be the last generation to face HPV and cervical cancer. We want our stories to matter. We want our Cervivorship to be impactful.

Apply to attend our upcoming 2018 Cervivor School here. Read more about my story here.