What Is Knowledge?

Knowledge is ________.  

You fill in the blank! 

You can always go with the first word that likely pops into your mind – POWER – but I encourage you to think outside the box a bit and go with something different…for now…

Here’s what comes up for me!

Knowledge is CONNECTION.

Anyone who is involved with Cervivor knows that connection is a huge part of “who we are.”  It is through our shared experiences that we connect via social media, Cervivor events, and relationships.  This connection is rooted not only in experience but also in the knowledge of those experiences and the important information that we come to learn because of it all.  Information about HPV, cervical cancer, prevention.  Information that, combined with connection, tends to result in “power by numbers” as a collective force of advocacy and change.  

Which leads me to my next word…

Knowledge is ACTION.

I’ve seen it happen a lot – and it’s so exciting to witness.  Once people have reliable and important information, they usually can’t help but DO something. Knowledge spurs action in some way or another.  Whether it is action for self by scheduling exams or staying on top of screening, action for others by encouraging friends and family or sharing information, or action for the cause and greater good by sharing personal stories as an advocate and impacting change in the HPV and cervical cancer space. At Cervivor, we see this continually in our patient advocates – working hard to take the information they have to “go and do” and make an impact in so many ways. 

Knowledge is PREVENTION.

Whether you’re a cervical cancer patient/survivor or not – being armed with important knowledge about HPV and cervical cancer can ultimately lead to prevention and help towards eliminating this disease that we now know is preventable.  Knowing what causes cervical cancer, being up-to-date on current screening guidelines and practices, being informed about vaccination all affect the impact that this disease can have.  When we’re informed, we can advocate for our own preventative health or that of a loved one.  When we’re informed, we know what to look for and ask for at the physician’s office.  When we’re informed, we can make decisions to reduce disease.  When we’re informed we know the importance of prevention.  

So now, I’ll circle back to the one “go-to” word that fills in that blank…

Knowledge is POWER.  

Knowledge does lead to connection, action, and prevention – but all of those add up to POWER.  Power that can save lives and impact change. As patient advocates, this informed power is a driving force of what we do, how we lead, and the change we make at Cervivor.  

I’ve seen this power firsthand at Cervivor School – one of our main outreach programs that educates and trains cervical cancer patients and survivors to become patient advocates.  It’s wonderful to witness so many at Cervivor School realize the impact they can have as we empower them with information and support. As patients and survivors, they realize the unique platform and influence they have. That combined with relevant information, their personal stories are perhaps the most potent force they hold.  

Your turn!  Knowledge is ___________.

Heather Banks is Cervivor’s Lead Advocacy Educator and recipient of the 2016 Cervivor Champion Award. As a 13-year cervical cancer survivor, she is an active advocate for HPV and cervical cancer awareness and prevention. Heather’s advocacy efforts have included testifying to the FDA in 2013 for co-testing efforts, speaking to government representatives in DC, and becoming a member of Cervivor’s Leadership Team. Heather lives in Indianapolis, Indiana where she is an Instructional Coach and Specialist at the elementary level. She loves spending time with her husband and two children; ages 16 and 13.

2019 Cervivor Champion Maria Franklin infuses her work with passion & fun

Cervical cancer survivor Maria Franklin, recipient of the 2019 Cervivor Champion Award, is BUSY – during Cervical Cancer Awareness Month, and all year long!

She embodies everything Cervivor and the “Cervivor Spark” stands for. Informed. Empowered. Alive.

She mentors other cervical cancer survivors. She hosts MeetUps. She fundraises – via social media, in her community, wherever and whenever she can. She runs the Cervivor Español Facebook group. She helped organize and co-facilitate a Spanish-language Cervivor School in Puerto Rico. She leads initiatives to help ensure that cervical cancer screening, vaccination and prevention messages reach the Latina community in the U.S., and in Central and South America.

Maria, and fellow Latina Cervivor Karla

She even used her birthday as an opportunity for education and fundraising by creating a campaign and rallying her friends to “Help celebrate my 48th birthday by joining me in walking, running or cycling a total of 48 miles during the month of October!#48MilesToEndCervicalCancer

She embodies support and advocacy. She brings her passion to everything she does. She is making her survivorship count, day in and day out. Mobilizing. Advocating. Educating.

Initially diagnosed with cervical cancer in 1999, Maria is a 20+ year survivor who started advocating for cervical cancer prevention and helping to forge a cervical cancer community of women “before there was social media” and before there was Cervivor. She has never slowed down.

Maria has a particularly busy January planned to support and harness Cervical Cancer Awareness Month in her home state of Wisconsin. She’s planned:

  • A “proclamation” from the Governor’s office to officially recognize the importance of January as Cervical Cancer Awareness Month in Wisconsin.
  • Interviews with Telemundo Wisconsin and radio stations in Puerto Rico to talk about cervical cancer awareness and prevention
  • “Teal & White Days” at work
  • A patient reception for Cervical Cancer Awareness Month, in partnership with a local  gynecologic oncology clinic
  • A Cervivor MeetUp to connect in-person with women in her community who are battling cervical cancer or dealing with the after-effects

“Every single one of us has to do our part. We have to do our part so we can make this a reality for the next generation. Nobody else should have to go through what we went through,” says Maria.

What is your part? What are you doing over CCAM in your local community?

Let us know in the comments below. We’d love to feature you and your work on our blog, if you are interested!

Watch Maria’s powerful Cervivor Champion Award acceptance speech at the 2019 Cervivor School awards ceremony, or read her remarks below.

Maria’s Award Acceptance Speech:

I truly believe in Cervivor. I truly believe in what we do here. I know we can end cervical cancer. This is why we are here. Every single one of us has to do our part. We have to do our part so we can make this a reality for the next generation. Nobody else should have to go through what we went through.

The story is different for every single one of us. It wasn’t easy for any of us. No one else should have to go through what we went through. So we are here today to take this responsibility seriously. Because ending cervical cancer is our job. We have to do it because we have to honor what we went through, and also because of the people we have lost.

Today when you leave here [Cervivor School], you start your work and you start your mission. And if and when you’re feeling you may be a little burnt out, you reach out to one of us and we will help you. We will support you. Because we need to do this for the next generation!

Thanks, Maria, for all that you do for Cervivor, for women today and for the next generation who  – with your help – may live in a world free from cervical cancer.

Maria Franklin is a 20-year cervical cancer survivor who heads Cervivor’s Latina advocacy efforts.

Read her original Cervivor story and her blog post reflecting on 21 years post-cancer.

Watch her story and advice on Cervivor TV.