Every September, Gynecologic Cancer Awareness Month (GCAM) sheds light on a group of diseases that affect millions of women worldwide. With over 100,000 new cases diagnosed annually in the U.S. and more than 30,000 lives lost each year, raising awareness is crucial. One of the biggest challenges in combating gynecologic cancers is education. These cancers are often diagnosed at advanced stages, making awareness and early detection vital for improving outcomes. Knowledge is power, after all! 

At Cervivor, Inc., our mission is to empower women through education, support, and advocacy. This GCAM, we aim to break the silence surrounding gynecologic cancers by providing comprehensive information, dispelling myths, and fostering a strong support community. Read on to learn how to join the movement!

What Are Gynecologic Cancers?

Gynecologic cancers affect the female reproductive organs, including the cervix, ovaries, uterus, vulva, and vagina. Depending on the diagnosis, these cancers can lead to challenging fertility journeys or rigorous treatments for survival.

Cervivor’s founder, Tamika Felder, went through this journey firsthand. After surviving cervical cancer in her twenties, she transformed her personal struggle into a powerful advocacy platform. “I felt a deep depression, heartbroken about the loss of a child I never had and the loss of everything I thought that made me a woman,” Tamika shares in her Cervivor Story. Her experience and that of too many women underscores the need for continued awareness about cervical cancer and other gynecologic cancers and support for those impacted by them.

While significant progress has been made, particularly in cervical cancer prevention, there is still much work to be done to further women’s health awareness.

Types of Gynecologic Cancers

Understanding the different types of gynecologic cancers is essential for awareness and prevention. Here’s what to know about…

Cervical Cancer

Begins in the cervix, the lower part of the uterus that opens into the vagina.

• New Diagnoses Annually: Approximately 13,820 in the U.S. and 604,000 globally
• Deaths Annually: About 4,360 in the U.S. and 342,000 deaths globally
• Common symptoms: Abnormal bleeding, pelvic pain
• Diagnosis: Pap test, HPV testing
• Treatment: Surgery, radiation, chemotherapy
• Prevention: HPV vaccination, routine screenings

Ovarian Cancer

Develops in the ovaries, responsible for producing eggs and hormones.

• New Diagnoses Annually: Around 19,680 in the U.S. and more than 300,000 globally
• Deaths Annually: Roughly 12,740 in the U.S. and roughly 200,000 globally
• Common symptoms: Bloating, pelvic pain, frequent urination
• Diagnosis: Ultrasound, CA-125 blood test
• Treatment: Surgery, chemotherapy
• Prevention: Risk-reducing surgery for high-risk women

Uterine Cancer (Endometrial Cancer)

Starts in the lining of the uterus.

• New Diagnoses Annually: Approximately 67,880 in the U.S. and more than 400,000 globally
• Deaths Annually: Around 13,250 in the U.S. and about 97,000 globally
• Common symptoms: Abnormal vaginal bleeding, pelvic pain
• Diagnosis: Endometrial biopsy, imaging tests
• Treatment: Surgery, radiation, hormone therapy
• Prevention: Maintaining a healthy weight, managing diabetes

Vulvar Cancer

Affects the vulva, the outer part of the female genital organs.

• New Diagnoses Annually: Around 6,900 in the U.S. and over 45,000 globally
• Deaths Annually: About 1,630 in the U.S. and roughly 17,000 globally
• Common symptoms: Itching, pain, sores or lumps on the vulva
• Diagnosis: Biopsy, imaging tests
• Treatment: Surgery, radiation therapy
• Prevention: HPV vaccination, routine check-ups

Vaginal Cancer

Occurs in the vagina, the canal leading from the cervix to the outside of the body.

• New Diagnoses Annually: Roughly 1,890 in the U.S. and more than 14,000 globally
• Deaths Annually: About 500 in the U.S. and roughly 8,000 globally
• Common symptoms: Abnormal vaginal bleeding, discharge, or a lump
• Diagnosis: Pelvic exam, biopsy
• Treatment: Surgery, radiation, chemotherapy
• Prevention: HPV vaccination

What is Causing the Rise in Certain Gynecologic Cancers?

Several factors contribute to the rising incidence of specific gynecologic cancers:

• Obesity: A significant risk factor, particularly for uterine and ovarian cancers. Rising obesity rates have been linked to increased cancer risk.
• HPV Infection: Persistent HPV infection is a major cause of cervical, vulvar, and vaginal cancers. In regions with lower vaccination rates, the prevalence of HPV-related cancers is increasing.
• Reproductive and Hormonal Factors: Delayed childbirth, fewer pregnancies, and the use of hormone replacement therapy have been associated with an increased risk of some gynecologic cancers.
• Screening Practices: Variations in screening rates and practices can influence trends in the incidence of gynecologic cancers.

Dispelling Myths About Gynecologic Cancers

Part of education involves debunking common fallacies including these four myths.

Myth 1: Gynecologic Cancers Only Affect Older Women

Morgan Newman, Cervivor’s Community Engagement Liaison, challenges this misconception. Diagnosed with metastatic and recurrent cervical cancer at just 24, Morgan emphasizes that gynecologic cancers can impact women of any age. “Being diagnosed with cervical cancer or any gynecologic cancer at any age can be an isolating experience, which is why I value Cervivor and the work they do,” she says. Her story highlights the importance of awareness and support for younger women facing these cancers.

Myth 2: Only Women with a Family History of Cancer Are at Risk

While genetic predisposition can play a role in some gynecologic cancers, such as ovarian cancer, lifestyle and environmental factors are also significant contributors. Many gynecologic cancers, including cervical, vulvar, and vaginal cancers, are primarily caused by human papillomavirus (HPV) infection, which is not related to family history. It’s important to understand that not all gynecologic cancers are linked to genetics.

Myth 3: Symptoms of Gynecologic Cancers Are Always Obvious

Contrary to popular belief, gynecologic cancers don’t always present obvious symptoms. For example, ovarian cancer is often called the “silent killer” because it may not cause noticeable symptoms until it has reached an advanced stage. When symptoms do occur, they are often vague – such as bloating or abdominal pain – and can easily be mistaken for other conditions.

Similarly, cervical, vulvar, and vaginal cancers, often linked to high-risk HPV strains, may not show obvious early symptoms. While some symptoms, like abnormal vaginal bleeding or discharge, can be more apparent, others may be subtle, such as pelvic or abdominal pain, bloating, nausea, appetite changes, or alterations in bowel or bladder habits.

Dr. Allison E. Garda, M.D., a radiation oncologist at the Mayo Clinic, underscores the importance of being proactive about your health: “I would encourage people to be advocates for their health as they know their bodies best. If they’re not getting the answers to their concerns or questions, they should find a physician who is willing to work with them to address their concerns.” Routine screenings remain crucial for early detection and improving treatment outcomes.

Myth 4: Gynecologic Cancers Are Always Fatal

Gynecologic cancers, including cervical cancer, don’t have to be fatal if detected and treated early. Many women not only survive but thrive after treatment. Julie Groob, a member of the Cervivor community, is a testament to this resilience. She shares, “As a recurrent cervical cancer survivor, I know firsthand that survival is linked to early detection. I’m monitored every three months for recurrence, and that close monitoring has caught recurrences at their earliest stages, saving my life. It hasn’t been easy, but early detection is key to positive outcomes. It’s been 12 years of battling both non-invasive and invasive cancer, but I’m still here, enjoying every special moment life has to offer.” The mission is clear: to make cervical cancer and other gynecologic cancers increasingly rare diagnoses.

Supporting Fertility Rights for Gynecological Cancer Patients

Gynecological cancer can have a profound impact on fertility, making it essential to support various pathways to parenthood. Halley Pollack, Co-Founder and Executive Director of the Bright Spot Network, highlights the importance of supporting families navigating cancer diagnoses. “According to the American Academy of Child and Adolescent Psychiatry, 1 in 5 newly diagnosed cancer patients has a minor child, and there are approximately 3 million U.S. minors living with a parent who has or had cancer,” explains Haley. She adds, “Cancer is on the rise among 18- to 49-year-olds, an age demographic that spans childbearing years.”

Tamika further emphasizes the importance of normalizing different fertility journeys. “As someone who advocates for the fertility rights of cancer patients, I want to normalize different fertility journeys, including gestational surrogacy, embryo donation, and adoption. Cancer takes so much from us – it shouldn’t close off the pathways to parenthood as well.”

Aiding families affected by cervical cancer in building their families is crucial. That’s why we’re proud to support The Virginia “Ginny” Marable Cervivor Baby Gift Fund, which provides a financial gift to cervical cancer patients and survivors seeking to grow their families through their pathway to parenthood. Your contribution can help make it a reality for them. Join us in empowering Cervivor community members to build their families and create a brighter future.

Saying Goodbye to Gynecological Cancer Stigmas

“As a Cervivor myself, I’ve witnessed firsthand the devastating impact of stigma surrounding gynecologic cancers. For too long, shame and silence have prevented women from seeking life-saving medical attention and support. But we’re changing that narrative,” states Cervivor’s Chief Diversity Equity and Inclusion Officer Kimberly Williams.

Twenty years ago, Cervivor founder Tamika Felder dared to speak out against the status quo, creating Cervivor to shatter stigmas and cultivate a supportive community for survivors. Her courage sparked a movement. Today, through our Cervivor Schools, we’ve empowered hundreds of Ambassadors to amplify awareness and eliminate stigma.

It’s time to say goodbye to the silence and hello to a future where everyone impacted by gynecological cancers and cervical cancer, in particular, feels empowered to prioritize their health, free from fear and judgment. Join Cervivor in this critical mission.

Join the Movement to End Gynecologic Cancers this GCAM (and Every Month)!

Cervivor plays a pivotal role in the fight against gynecologic cancers. We are not just a support network; we are a community that empowers survivors, advocates for change, and educates the public about the importance of prevention and early detection. Here’s how we’re making a difference:

Support and Empowerment

Cervivor provides a safe space for survivors to share their stories, connect with one another, and find solace in knowing they are not alone. Through our online platforms, events, and resources, we empower individuals to take control of their health and well-being.

Education and Awareness

Our organization is dedicated to spreading awareness about gynecologic cancers, with a special focus on cervical cancer prevention. We offer educational resources, campaigns, and outreach initiatives to ensure that women and individuals are informed about the risks, prevention, and early detection methods. Help Cervivor in spreading the word by utilizing the 2024 GCAM Social Media Toolkit.

Advocacy

Cervivor is at the forefront of advocating for policy changes and improved access to healthcare services. We work tirelessly to promote HPV vaccination, regular screenings, and equitable healthcare for all. Dr. Gabby Darville–Sanders, our Strategic Director of the National HPV Vaccination Roundtable, emphasizes the importance of our advocacy efforts: “Raising awareness and promoting prevention strategies are essential steps in reducing the burden of gynecologic cancers.”

If you or someone you know has been affected by gynecologic cancer, join our community. Breaking the stigma on gynecologic cancers starts with awareness, education, and community support. This GCAM, help Cervivor in our mission to empower those impacted by cervical cancer, advocate for better healthcare, and eliminate the stigmas surrounding these cancers. Together, we can make a lasting impact and pave the way for a healthier, more informed future for all.

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Sources:
[American Cancer Society]
[Centers for Disease Control and Prevention (CDC)]
[World Health Organization (WHO)]
[Mayo Clinic]
[American Academy of Child and Adolescent Psychiatry]