Losing Your Uterus, Losing Your Mind: Scientific Validation for Memory Loss After Cancer

When Samantha R. stumbled across a study suggesting that hysterectomies may cause memory problems, she clicked, read, and shared on our I’m A Cervivor Facebook group, kickstarting a dynamic discussion. Samantha shares her experience, her relief in finding the article, and the community of support that her post generated:

“Chemo brain gets a lot of discussion and attention, but not the topic of woman who had a hysterectomy or who have early onset menopause and who have similar fogginess. I actually did not have a hysterectomy but rather chemo-rad-brachy (stage 2b), which was oh so fun.  As radiation and chemo essentially killed my uterus and ovaries, this study about hysterectomies and memory loss caught my eye and resonated.

A wildlife ecologist, Samantha was diagnosed with cervical cancer at age 36 while in the midst of her postdoctoral research. The stress of the diagnosis and treatment on top of research and academics were brutal.

“After cancer, I couldn’t handle stress like I used to. I used to be able to do the cramming and the crunch time. But after treatment, I had really bad ‘chemo brain’ for at least a year until it finally started getting better. I still don’t feel as sharp as I was before, even though it’s been eight years since my diagnosis. As an academic with a master’s degree and a PhD, this had been really hard for me because my work, at the end of the day, depended on my brain. And of course brain fog doesn’t just impact work, but so many parts of life. My recall is slower. My short-term memory is slower. Things take me longer. It’s been hard for me to accept that my brain now functions differently. I used to be quick and make witty remarks. Now three days later, I come up with a response!”

Samantha was poking around online when she stumbled upon the article, New research suggests hysterectomies may cause memory problems.

“It’s about a first of its kind study conducted in rats (not humans), but the implications that our uterus plays a role in memory is just really interesting. I found it worth sharing because having an explanation gives women like us validation for having memory loss. It is nice to have some scientific acknowledgement of what we are going through.”

Newly published research has challenged a long-standing belief in the medical community that uteruses serve no purpose in the body except pregnancy. When researchers at Arizona State University performed hysterectomies on rats, the animals’ memory suffered.

Samantha’s Solutions: Coping Skills and Lessons Learned

Samantha now works for the federal government to protect and rebuild habitats for sea birds and sea ducks, specializing in restoration after oil spills. She shares some of the memory loss coping skills that she employs:

  1. Become a note taker: I take a lot of notes. I use a bullet journal. I now have a huge collection of hundreds of notebooks I’ve filled and it keeps growing, but it’s working for me.
  2. Keep a “done” list: Every day I write down not just to do lists, but “done” lists – so I remember that I did something. I capture calls I made, e-mails I sent, discussions and conversations I had.  My “done” list is my biggest coping strategy. My short term memory was really impacted from my chemo and the early menopause that resulted, so my journals and my “done” list are my recall mechanism. 
  3. Be proactive when it comes to therapy: My therapist has been amazing in coaching me to not beat myself up and to move forward and to be okay with not being okay. I had a hard time being weak – not just physically, but mentally weak. I’m a huge advocate of starting therapy early, when starting treatment, to get ahead of the roller coaster ride. I’d fallen into a severe depression after treatment was over, and I wish I’d started therapy earlier. 
  4. Don’t be afraid of medication: Medication has helped me battle my depression and panic attacks. My body doesn’t create estrogen and progesterone anymore. That makes a person crazy! It is not in your head! 
  5. Find your escape: I read a lot to escape. I’ve started meditating. I also started art therapy and do woodworking and jewelry making. I recently learned how to weld. I’ll never forget when I was in treatment and a social worker was trying to talk to me about art therapy and painting. I was like ‘screw you, I’m dying here.’ But now, years later, art has been my coping mechanism. It has become my sanity. (But I will never tell someone that during treatment! Only after!)

Eight year cancer survivor Samantha is a wildlife ecologist in San Diego, CA. When she is not protecting sea birds and restoring habitat for sea ducks injured by coastal oil spills, she volunteers with Burning Man and has attended the art festival 5 times. Learn more about Samantha’s Cervivor Story here.

Happy Birthday in Heaven, Teolita

In My Heart Always to Stay

Loved and Remembered Every Day …

Happy Birthday in Heaven

Teolita Schenese Rickenbacker

September 19, 1980 – August 24, 2019

You left this world long before I had planned for you to go,

Our time to say goodbye came way to soon.  

After being diagnosed with Stage 4 Cervical Cancer,

Teolita welcomed life with open arms and met all challenges head on.

Teolita had such drive, resilience, passion and determination.Nothing could stop her when she set her mind on something.

Our time to say goodbye came way to soon.

Teolita was relentless in her effort to become knowledgeable about cervical cancer, not just for herself, but to help raise awareness about this type of cancer and the importance of women’s health screenings. She became an Ambassador with Cervivor, a nonprofit organization that brings cervical cancer survivors together and helps to spread awareness, education, support and more. Whenever or wherever Teolita was given an opportunity to speak, she would use that time to raise awareness about cervical cancer – considered a silent killer! 

In her speeches, Teolita would say, “What I want all women to know is make sure you listen to your body and seek medical attention if something isn’t right. You must be your own Advocate. Make sure you are following the guidelines regarding cervical cancer screening because it is preventable. Always follow-up with your doctor, if advised to do so. Do not let stigmas, lack of knowledge, or shame, prevent you from taking care of yourself.”

To all cancer survivors or those fighting to recover from a cancer diagnosis, she would tell them “you are braver than you believe, stronger than you seem, smarter than you think, and twice as beautiful as you would ever imagine. Never give up, never give in. You had cancer; cancer didn’t have you.”

As days and weeks passed, Teolita and I started feeling all alone. Then she reminded me of the words of encouragement that she got from my mother and her grandmother all through her life. We took everything to God in prayer. In my listening role, I heard Teolita say she needed God more at that time in her life, than ever before. She was able to find hope and encouragement, knowing that she did not have to deal with the challenges alone.  Through prayer, meditation, and support from family, church family, friends, and an amazing medical team, she found the strength to fight for life. 

During Teolita’s cancer journey, I reflected on the many roles that Teolita said I had in her life. She said I showed her many things that only best friends showed. I was her doctor, teacher, preacher, chastiser but most all, I was her mother and best friend. Later during Teolita’s journey, I had to add the role of caregiver. I had to support and care for my daughter who was independent, brave, strong and ready to meet the challenges before her, but her physical health was waning!  

Now, I have taken on two more roles. My new roles are to facilitate the completion of the book Teoltia started to write and to keep Teolita’s mission going. Her mission was to raise awareness about HPV and cervical cancer. She was committed to helping others by speaking, educating and advocating for HPV and cervical cancer!

Teolita orchestrated the life she loved and lived. Teolita did it well!

Love Always and Missing You,  
“Mommy” (Nina Rickenbacker Edwards)

If you would like to make a donation in memory of Teolita to help other Cervivors attend Cervivor School, please click here.