We asked our I’m A Cervivor! community, “What was the best advice your doctor or medical team gave you?” Our community didn’t disappoint and they provided some fantastic responses. We’re thrilled to be sharing them here for Medical Team Monday.
I think the best advice I got was just to be prepared for the fact that once I went back to work, a lot of people were going to assume that I was fine and could work at full speed. That prepared me to be ready to set some boundaries. It turned out to be really true. Honestly, I even felt the betrayal by certain women that I thought for sure would understand that this had been a big deal physically. ~ Laurie
Best advice from my OB was to take the misoprostol orally not vaginally. Tastes AWFUL but she was right, it works better. Also, she told me she was happy I lost the crappy husband. “You deserve someone who will be there for you not when you need him to but for all the times when you don’t need him to.” ~ Sarah
“Learn as much as you can about your illness” – he pretty much empowered me to take charge. ~ Maria
“Rachel, drink the damn scotch.” ~ Rachel
We’ve all been through so much and we desperately want our doctors and medical teams to hear us. That includes listening to our concerns, helping us navigate through all the unknowns (we are not the experts), and ultimately be that credible resource. Communication is so important to everyone involved and it starts by meeting us where we’re at, building and leading with empathy and compassion, which in turn is improving our quality of life overall.
“Breathe, smile, do not give up on yourself.” “You are stronger than you think!” “Don’t be afraid to ask us anything.” haha I’ve made them wish they never said that last part. We’re like family now lol. ~ Re’gina
You got this. Just breathe and let’s move forward. I’ll give you meds when you feel it’s too much. (I love him for that!) ~ Karla
Our medical teams are our heroes, and, in a way, we can be theirs as well. By telling our stories, both medical and survivor, we can shape the narrative of how cancer is treated. It’s not just cancer, there is a person attached to that diagnosis. Together we can create a powerful partnership and make a difference.
It is surreal for me to think that I have been an advocate and sharing my story of cervical cancer for ten years. I say this because after treatment, I just wanted to stay quiet. Not talk about the whole ordeal and just move forward.
I am sure many survivors feel this way after treatment, but I have also met many that are very vocal about every single step of their journey. I was not one of them. I do not have any documentation about my journey. The only thing I have are 35 hospital bracelets for each time I had a radiation treatment.
It wasn’t until four months after treatment that my brother insisted on doing a cervical cancer walk. A coincidence? Perhaps. I will never know. At first, I did not want to do it, but he insisted so much that I gave in.
On September 19, 2009, at the Walk to Beat the Clock, I met Tamika Felder, a cervical cancer survivor and the founder of Tamika and Friends, which later rebranded to Cervivor. That day I met other survivors as well. They were sharing their cervical cancer stories. These stories were similar to mine and told with such heart, passion and confidence.
I was in awe. I was inspired and motivated but most importantly I did not feel alone anymore. At that moment, I made a decision that I wanted to join the cause and the movement. I wanted to share my own story and let other women know that my journey did not have to be theirs and that they were not alone.
My mission became even clearer when Tamika invited me to a Latino Summit in Washington D.C. It was there that I learned the statistics between cervical cancer and Latinas.
To be able to share my own story I needed to be authentic, open and be able to deliver it with an open heart. Tamika said to me at the very beginning “always tell your story from your heart, because when it comes from the heart people listen.” I have applied this statement to the hundreds of times I have told my story and I still do.
I still remember the first time I told my story. It was March 28, 2010 and it was a radio interview in Spanish for 95.9 FM El Poder Latino (The Latino Power). I was so nervous, my heart was pounding, but I remembered what Tamika had told me to do and I spoke from the heart.
On January 25, 2014, I attended the first Cervivor School, which took place in New York City. Cervivor School is a life-changing event. It is empowering, informational, educational and inspirational. We also get to share our views, our stories, our concerns, our goals, our obstacles and our strengths. It is so important that survivors who become advocates are educated and informed with the latest facts to be able to bring the proper message forward.
It has been a journey of highs and lows. The reality of things is that not everyone is going to be interested in listening to your story or anything you have to say and this had to be OK with me. I did not let this discourage me. As advocates, we set to save the world. Unfortunately, I came to the realization that I cannot save the world, I cannot even save New York City, where I reside, but if my message gets to one person in the crowd, I have completed my mission.
Through the years, there have been many ways I have advocated: free cervical cancer screening events, health fairs and interviews with different media outlets. Not every presentation or interview has been perfect, but I can honestly say that I never did it for the accolades. I do it to educate women that need to know that this cancer is preventable and treatable if found early. We lose over 4000 women every year in the United States alone. These women were someone’s wife, aunt, daughter, mother, grandmother and their lives matter.
I am very proud of the work I do as an advocate and I am humbled to say that my advocacy work has been recognized.
All the work has been important to me, but I hold two events dear to my heart. The first is the proclamation for my advocacy, given to me by the New York City Council on January 10, 2015. This was one of the proudest moments of my advocacy world.
The other was being invited to the Lasker Awards in 2017 where I met Dr. Douglas R. Lowy and Dr. John T. Schiller, the two scientists that were the recipients of that year’s award for their technological advances enabling the development of the human papillomavirus (HPV) vaccine which prevents cervical cancer and other tumors. So proud that my story was featured in their submitted video.
My advocacy journey has brought me full circle. Today I lead a survivor fitness group as the Cervivor Wellness Instructor. Survivor Slimdown is a Facebook group open to ALL CANCER SURVIVORS. It is a space for inspiration, motivation and accountability as we learn to navigate our way to health after a cancer diagnosis.
I must say that the best part of my advocacy has been meeting my wonderful and inspirational Cervivor sisters. Every single one of them has a story that matters. Stories that show resilience, courage and strength. Unfortunately, many of them are no longer here, but we keep them in our hearts. We honor them by continuing to share their stories and legacies because they did make a difference.
We all bond with the same mission to end cervical cancer and to make our generation the last one to fight this disease.
My heartfelt thanks to Tamika Felder and the Cervivor organization for giving me a voice and a platform to share my story. This organization has supported me on my way back. They have also supported so many other women fighting and surviving this disease. I will never feel alone again.
Patti is a Cervivor Ambassador and Cervivor’s Wellness Instructor who manages our Survivor Slimdown Facebook group. She is a retired NYPD police officer and an 11 year cervical cancer survivor. She resides in NYC with her husband of 21 years where she’s a Group Fitness Instructor and a Health Advocate.