A Lifetime of Cancer Prevention Gains – and Still Counting

In the 1970s, the White House made a concerted effort to research, educate and make gains around the prevention of cancer. President Nixon signed The National Cancer Act in 1971. State health departments began to receive grants to research ovarian cancer screenings in 1974. By 1979, the surgeon general published diet guidelines that aided in cancer prevention.

This was happening in my lifetime – well, some of it. I’m younger than I look (well, I’d like to think so), but I want to point out that while the study of cancer as an epidemic began in the 18th century, it has only been about 50 years that we’ve committed time, research, funds and our stories to help find a cure.

And there’s still work to do!

For Cervivor, cancer prevention is a daily endeavor. We host discussions, connect with cervical cancer patients and their families, and advocate for health policies. But in February, National Cancer Prevention Month, we go full force with our partners to shine a light on the need for more attention, research, and cures for the numerous cancer categories that continue to take away beautiful lives from our families, circles of friends, and networks.

Need some ideas on how to observe the month with Cervivor? We’ve got ideas but would love to hear yours too. Your voice matters in this community.

Tamika Felder and fellow “Cervivors”.

I’m passionate about using my voice to prevent not only cervical cancer but all types. Cancer in too many forms has touched my life, my parents’, immediate family, distant family, and people in my community. Cancer is a horrific thing, and I want to be a part of the movement. While we can’t prevent all cancers, cervical cancer has a first-line to prevention. I hope in the future we have more preventive ways to save people from all cancers, and I’m ecstatic to know that the White House continues to support and rally to “end cancer as we know it.” 

Earlier this month on February 2, 2022, President Biden committed to reducing the death rate from cancer by at least 50% over the next 25 years. YES! He published a statement of support vowing to improve the experience of people and their families living with and surviving cancer and eradicate the disease. This commitment further propels me to do this work with our members and our partners.

In the words of President Biden this month, “It’s bold.  It’s ambitious.  But it’s completely doable.”

Interested in learning more?

Tamika Felder is a 20-year cervical cancer survivor, an award-winning television producer, author, blogger, podcaster, mentor, motivational speaker, and nonprofit founder. By telling her story, Tamika inspired other women to start speaking about HPV and cervical cancer, which led to a network of survivors supporting each other and educating each other. From this network, Cervivor was born.

Black Women Take On Cervical Cancer

Teolita and her mom, Dr. Nina Rickenbacker Edwards

Teolita repeatedly told other women, “Do not let stigmas, lack of knowledge, or shame, prevent you from taking care of yourself. What I want all women to know is make sure you listen to your body and seek medical attention if something isn’t right.” She was a staunch believer that being assertive and advocating for yourself was half the battle around cervical cancer. Her mother, Nina, now carries on Teolita’s message. Teolita passed away in August 2019, after a five-year fight with stage 4 cervical cancer. 

Despite the fact that cervical cancer is preventable and treatable, the National Cancer Institute (NCI) estimated that 4,290 women would die of cervical cancer in the United States in 2021. As the country observes Black History Month, it is especially poignant to recognize the fact that Black women throughout the U.S. are dying from cervical cancer at a disproportionate rate, according to a January Human Rights Watch report entitled We Need Access.


Getting to the root of health disparity 

This difference, linked with social, economical or environmental disadvantage, or health disparity, is posing a major concern for Black women in the state of Georgia, like Teolita who was never screened for cervical cancer, diagnosed at a later stage, and had a lower than five-year survival rate. 

While we at Cervivor are hellbent on focusing on surviving cervical cancer and thriving, we must look at the barriers, challenges and be laser-focused on the points that make some of us uncomfortable. Yes, we’re talking about economic, historic, and structural or institutional racism.

Here’s the breakdown of how Black women are impacted, disenfranchised, and disproportionately impacted: 

  • Healthcare affordability and access
  • Lack of comprehensive sexual health education
  • Historic mistreatment of people of color, particularly Black people, by the healthcare community

HRW women’s rights researcher Annerieke Daniel, said, “We really have to look at the result of racism and discrimination in the health care field and especially looking at gynecological care, which we know is rooted in abuse and exploitation of Black people, of Black women, of Black bodies.”

How can we make a meaningful difference?

  1. Help increase screening rates. Increasing screening rates could greatly reduce deaths from cervical cancer among Black women, Hispanic women, and other underrepresented communities. This requires the delivery of interventions directly to underserved women such as screenings based at accessible locations closer to their places of residence – such as via mobile vans and/or screening locations at local community centers instead of medical clinics. This can substantially lower cervical cancer mortality rates through early detection.
  2. Encourage HPV vaccination. (Watch and Share Chellese’s Video: https://youtu.be/2ORHPF6lcBk).
  3. Encourage clinical trial participation.A lack of racial and ethnic diversity in both cancer research and the healthcare workforce is one of the major factors contributing to cancer health disparities, according to the American Association of Cancer Research. Clinical trials lead to the development of new interventions and new drugs. They are used to make better clinical decisions, but there is often a significant underrepresentation in clinical trials by non-White races and ethnicities. With a focus on targeted therapies and precision medicine, representation in clinical trials is increasingly important so that research includes and reflects all groups. Where to start? Share links to www.clinicaltrials.gov – where clinical trials are listed and searchable by location, disease, medicine, etc.

Gladys knows all too well the struggle of health care challenges as a Black woman. Before she was diagnosed with stage one squamous cell carcinoma in 2013, she had to demand medical attention, she said.

“I went to have my annual physical exam and requested to have a Pap smear. The physician did not want to give me one, according to the guidelines, stating that I was not required to have a Pap smear,” said Gladys. “I insisted that I have one and reluctantly, he gave me one. A few days later, the physician called to tell me that I needed to see a gynecologist. My test came back abnormal. I made an appointment to see my gynecologist. He did an exam and told me I needed to see an oncologist. The oncologist said I had stage I cervical cancer.”

The advocacy and support required is the very reason Cervivor exists. It also exists to educate everyone – whether they are diagnosed or not, whether they know someone with cancer, or not, and no matter how they identify – about cervical cancer and its prevention.

Black women helping to change the course and legacy of cervical cancer

One of those lessons includes the impact of Henrietta Lacks whose cells were used in groundbreaking cancer research. Lacks, a Black woman, was 31 when she lost her battle with cervical cancer in 1951. Despite her passing, she posthumously helped advance cancer research. Her cells, referred to in the medical field after Lacks as “HeLa” cells were cultured from her tumors, survived and multiplied outside her body thus contributing to medical breakthroughs including the development of several treatments and vaccines, including the HPV vaccines. Despite the fact that doctors did not tell Lacks’ family that her cells were being cultured, the groundbreaking effort is a notable moment in Black history. 

Chellesse Parker, was diagnosed at 29 and years later is thriving. One thing she made sure of during her own journey, was to ensure her daughter is armed against cervical cancer despite the challenges facing Black women. 

“There are a lot of things I can’t protect her against but this is something that I can prevent,” she said.

Research tells us that when cervical cancer is detected and treated early enough, women have a 93 percent five-year survival rate. We like these numbers and must rid ourselves of the disparate stats harshly impacting Black women. Every woman deserves to be screened, to receive equitable treatment, and to know they have a fighting chance at being a Cervivor! Let’s fight collectively to protect, prevent and prevail!

Read more about Black women cervical cancer survivors who we honor, celebrate and appreciate. For more resources on cervical cancer, awareness, and representation connect with us on our social media platforms and Cervivor.org.