Over 80% of people will be infected by HPV, at some point in their life. It’s been shared billions of times. While some HPV infections may not cause harm, there are a few that can hurt us and our loved ones. The most harmful HPV types cause vaginal/vulvar, cervical, anal, penile, and oropharyngeal cancers. The good news is that there are solutions. By increasing awareness and HPV vaccination we can make the world a safer place for everyone.
Cervivor is honored to participate in a global day to ensure that people around the world understand HPV prevention, screening and management of HPV related diseases. We will continue to share our stories to end the stigma of HPV.
I started journaling through my diagnosis with cervical cancer at 3am. It was the day after I found out that the traumatic LEEP procedure I’d just endured to remove persistent high-risk HPV lesions ended up revealing early stage cervical cancer that signaled I would need a hysterectomy. My husband said, “You should write about this.” He knows it’s how I process everything, so when I couldn’t shut my brain off in the early hours of the morning, I got out of bed, sat on the couch under a blanket and stared into the blue light of my laptop for the next two hours, unloading every fear, checklist item, angry rant, and heartbroken realization onto a bright white page.
That night, I wrote the following:
“I’ve known that I have cervical cancer for 24 hours now and I’m already unable to sleep, pouring over the mental checklist I need to attack in order to get to the place I want to be more than anywhere else– Living a life that isn’t entirely consumed by the word that has run through my brain and stumbled off my lips constantly for the past day–adenocarcinoma. On repeat.
I have to inform so many people. Family. Close friends. I have to figure out how to tell my bosses that I have cancer. What a fun three words those are to drop into a room. I’ve done it 6 times now in 24 hours and my heart doesn’t race any less with each chance I get to practice.
I have to figure out how to take time off from work to recover from two upcoming surgeries. What’s FMLA? Short-term disability? PTO? Can I trust HR? Will they hire a temp who will somehow phase me out of my position? Gotta worry about all of those things until I have an ulcer. Added to checklist.”
A cancer diagnosis gives you two choices: A) Pull inward and isolate or B) Open up and be vulnerable. At first, my inclination was to go with option A. I was uncomfortable with getting attention, especially for something like cervical cancer. It’s happening in a really private area! Literally. So revealing this diagnosis feels a little like baring everything. Not to mention that there’s widespread misinformation in our culture about how HPV and cervical cancer happen, and it rarely paints the women who’s suffering in a positive light. It’s unfair and overwhelming.
I’d been working at my Graphic Design job for just over 2 years when I was diagnosed. Before that, I worked at a large, multi-site church in the Communications and Marketing department for about 4 years. The office culture there was familial. We let ourselves be seen and known, supported and loved by one another. It was a nurturing, one-of-a-kind work environment. When my time ended at the church, I had a lot of fear about going back to corporate work. I had worked as a Graphic Designer for corporations in years prior to my time at the church, and I remembered the facade of professionalism that seemed to be required to fit in and excel. I personally found it exhausting and often wished I could just be myself at the office. Church work gave me that freedom and I knew I’d miss it.
So far at my new job, I had made several friends in my department but there was still an element of guardedness in how we related to one another. There’s nothing wrong with this at all. In fact, it’s to be expected in an office environment. We have important work to focus on and personal time is for happy hour, right?!
But after journaling through the weekend, I decided that when I went back to work on Monday, I would choose option B and bring the honesty and transparency of the church environment into my corporate job. I’d be real and open and let myself be seen. I felt like keeping up the facade was going to be too exhausting for me, so I needed to face the fear of being known head-on.
It wasn’t easy. Vulnerability never is. I set my bag down on my chair in my cubicle, set up my laptop, grabbed my coffee and marched over to my boss’s office. I asked him if he had a moment, I shut the door, sat down on the other side of his desk and told him that I had a health update. My heart was racing. I could feel it in my stomach.
He stopped me right away, because he’s a fantastic boss, and said, “Before you say anything, I want you to know that you don’t have to tell me anything. You’re not required to.” I was grateful that he said that. But I still chose to share. “As you know, I had a biopsy done a few days ago, and unfortunately it revealed that I have cervical cancer.” Long pause. Dropping that bomb into rooms is like cruel, undeserved punishment for someone who just got The Call. Cancer is a job you didn’t sign up for and blowing up people’s emotions is your first order of business.
I told him I’d need a hysterectomy soon and hoped he could help me figure out what I needed to do about benefits and medical leave. He was immediately understanding and empathetic, offered to help however I needed, and told me about how he supported a former employee as he was battling cancer years ago. In the weeks to come, he even lobbied with upper management to get a contract production designer hired to help cover my workload throughout this time and when I’m recovering from surgery.
At 10am, I had my weekly email design and strategy meeting. We usually spend a few minutes catching up with one another. On this day, we’d learned that one of our coworkers had gone into labor the night before. Everyone in the meeting was so excited for her and I really was too! As the happy chatter continued, I knew the conversation would circle over to me soon and it would be time again for me to blow everyone’s joy into oblivion. Even though our friend was having her first baby, I had just learned that my husband and I would likely never get to have one of our own. I also knew the coworker sitting next to me lost his partner to cancer a few years ago, and I didn’t want to trigger grief in him. But I remembered the promise I made to myself. Option B. Vulnerability.
So when the meeting leader turned to me and asked about my weekend, with everyone’s eyes on me, I said, “Well, I don’t want to bring the room down. But this weekend I found out that I have cervical cancer.” Sucked the joy right out. I fielded a few questions to the room, and each person responded with empathy and kindness. A few colleagues sent me emails later that day with supportive messages, too. After that meeting, I asked another coworker that I spend quite a bit of time with to have lunch with me on a picnic table behind our office building. I quickly shared the news with her and she teared up and asked if she could hug me. She asked a lot of questions and was more supportive than I could have ever dreamed.
When something like this happens to you, you want everything to stop–but the world keeps spinning. It’s hard to care about the little issues that arise at work. Your perspective is widened, and suddenly the hangups of work projects become annoyingly miniscule worries to you. It’s hard to care enough. It can be draining and so frustrating. You constantly ask yourself, “But does any of this REALLY MATTER?” But your job remains as important as it was before you had cancer, so you learn to do whatever it takes to keep doing your best.
Vulnerability has been a large part of that for me.
As time passed between my diagnosis and my hysterectomy, my coworkers often asked me how I was doing, which gave me permission to remove the corporate mask and be real. They left cards and notes and chocolate on my desk. We went to lunches together where I could share what was going on. My hysterectomy is coming up in just a week, and at the end of a really low couple of days this week, a sweet coworker popped into my cubicle and dropped off a prayer shawl, coloring books and pencils, a heartfelt card, and some snacks to help brighten up my recovery time. I have been so overwhelmed by the kindness these people have shown me. It’s really made going to work with this cancer cloud over my head so much easier than it could have been, if I’d kept it all to myself and continued to put vague appointments in my Outlook calendar.
Being completely real is a freedom we deserve, while we hold down our 9-5s and simultaneously do the work to get through a cancer diagnosis and all the darkness it can bring with it. For all the things I feared about how my vulnerability would be received in a professional corporate environment, the way my coworkers responded squelched every bit of insecurity. Choosing vulnerability forces you to learn to receive love and to accept yourself as you are, wherever you are in the process. It took courage to be real, but the payoff was priceless.
Andrea Bonhiver is a graphic designer and writer living in Minneapolis, MN with her husband of 2.5 years Justin and their dog-son, Louis. She was diagnosed with cervical adenocarcinoma in 2018. She’ll undergo a hysterectomy on March 7, 2019.