Be Your Own Advocate

As we begin this new year, Cervivor, Inc. wants to empower you to take control of your health and well-being by being your own advocate. Advocacy comes in many forms, from lobbying on Capitol Hill to raise awareness about cervical cancer to supporting research and education initiatives. While grand, large-scale advocacy efforts are crucial in creating systemic change, it’s essential to remember that not all advocacy has to be big and bold. 

In fact, some of the most powerful forms of advocacy start with small, everyday actions, such as asking questions, seeking second opinions, and ensuring you receive the care and answers you deserve. By being your own advocate, you can take charge of your health, make informed decisions, and inspire others to do the same. We’re inspired by the stories of individuals within our Cervivor community, such as Patty Larson from Minnesota, who embodies the spirit of self-advocacy in her journey into survivorship after cervical cancer. Here is her journey in her own words:

Patty Larson, Cervical Cancer Survivor

“I was diagnosed with 1B2 clear cell adenocarcinoma of the cervix in September 2018. I did two types of treatment followed by two years of maintenance chemotherapy as prevention. I am now 4.5 years with no evidence of disease (NED) and I wake up every single morning feeling very blessed, but there are still some days I am not ok!

I don’t suffer from too many physical side effects. Once in a while, I have neuropathy in my left foot. Taking L-glutamine has really helped keep that at bay. Walking and being active is the real key, though. I am grateful that I am able to get in many steps while working as a part-time hairstylist. Once in a blue moon, I have digestive issues if I eat something too rich and I pay for it later by using the bathroom more than usual.

The biggest thing that just recently hit me is the long-term side effect of weight gain! The chemotherapy damaged my thyroid pretty badly, so I take a prescription thyroid medication. The struggle is real and lately, it is starting to affect my self-image. While I feel good physically for the most part, my endocrinologist does not listen to me. I have asked her to change my dose but because my bloodwork falls in the normal range, she said I am fine. 

But I don’t feel fine! I am gaining weight for no other reason; now, I weigh about what I did when I was pregnant. I am active between work and working out and I also have good eating habits. I recently brought up these issues and feelings with my oncologist. She listened better and has referred me to a weight management center! I am so happy! 

My biggest piece of advice for cancer patients and survivors is to advocate for your health and keep doing it until you finally find that person who will listen to you. Never stop trying and never stop fighting, even on your bad days.”

Empowering a Community of Advocates

As we reflect on the power of individual advocacy, we invite you to join the Cervivor community in sharing your own story of resilience and determination. By sharing your written narrative on our website, you can help inspire others to take control of their health and become their own advocates.

We also encourage healthcare providers, organizations, and individuals to partner with us in sharing crucial resources for education and support. Together, we can create a ripple effect of empowerment, ensuring that every person affected by cervical cancer has access to the care and information they deserve. 

Whether through sharing your story, volunteering, or simply spreading the word about our mission, every action counts, and every voice matters. Join us in amplifying the message of self-advocacy and helping to create a world where no one faces cervical cancer alone.

Patty Larson lives in Minnesota. She is a self-employed hairstylist who works part-time. Her clients and team were a big part of staying positive during cancer treatment. Patty is excited to get involved with cervical cancer advocacy. 

Mind, Body, & Spirit: The Importance of Self-Care

As a cervical cancer patient and survivor, you’ve shown immense strength, resilience, and courage, but your self-care journey doesn’t end with a cancer diagnosis or even at the end of treatment; it’s a continuous life path toward self-discovery and healing.

Self-care is essential to help you heal physically and nurture your mental and emotional well-being. Check out these five practices for cervical cancer patients and survivors that promote self-care.

Prioritize Mental Health and Wellness

Your mental health is just as important as your physical well-being. After enduring something like cervical cancer, you may experience a wide range of emotions, including anxiety, fear of the unknown or the “new normal,”, and even survivor’s guilt. Prioritizing your mental health is crucial to help you navigate these complex feelings. 

You can accomplish these things by: 

  • Seeking Professional Help: Reach out to a therapist or counselor who specializes in cancer survivorship. They can provide valuable guidance and support as you process your emotions and concerns.
  • Joining a Support Group: Connecting with other cervical cancer patients and survivors can be incredibly healing. Sharing your experiences and hearing others’ stories can reduce feelings of isolation and provide a sense of community. Cervivor offers a virtual online support group on the second Tuesday of each month. Sign up on our events page here.
  • Practicing Mindfulness: Mindfulness meditation and deep breathing exercises can help you stay present and reduce anxiety. Apps and online resources make it easy to get started.

Read for Healing

Reading can be a powerful form of self-care for cervical cancer survivors. It allows you to escape into different worlds, gain knowledge, and find solace in the written word. Start by: Choosing some inspirational memoirs. Many cancer survivors have shared their experiences in memoirs or self-help books. Reading these can provide you with insight, inspiration, and a sense of connection. Or explore fiction and fantasy. Sometimes, losing yourself in a good novel or immersing yourself in a fantasy world can provide a much-needed break from reality. Reading fiction can be a great way to relax and recharge. We strongly believe knowledge is power. Take some control back by learning about nutrition after cancer. Reading about nutrition can help you make informed choices about your diet and overall health. Jump in and join the Cervivor Book Club!

Get Creative

Engaging in creative activities can be therapeutic and fulfilling. It allows you to express your emotions and discover new passions. Start a journal to help you process your feelings and reflect on your journey as a cervical cancer survivor. It’s a safe space to express yourself freely. Exploring art therapy with drawing, painting, or crafting as it can be immensely cathartic. You don’t need to be a professional artist; the act of creating can be a soothing and expressive outlet. Or considering learning a new skill or hobby. Whether it’s playing a musical instrument, cooking, or dancing, mastering something new can boost your self-esteem and provide a sense of accomplishment.

Get Physically Active

Maintaining a regular exercise routine is essential for physical and emotional well-being. It helps with managing stress, improving mood, and maintaining a healthy weight. Depending on your physical condition, start with gentle exercises like yoga or walking. These activities can improve flexibility and strength without putting too much strain on your body. To ensure your safety and well-being during and post cancer treatment, look for cancer-specific exercise programs and classes designed to address the unique needs and concerns of cancer patients and survivors. These classes often provide a supportive and understanding environment along with modifications to fit your physical limitations. Survivor Slimdown is powered by Cervivor, Inc. and lead by Cancer Exercise Specialist and cervical cancer survivor, Patti Murillo-Casa.

Cultivate a Supportive Environment

Surrounding yourself with a supportive and caring community is vital for your healing journey. Connect with friends and family who offer encouragement and empathy. Start by communicating your needs. A lot of us fear being seen as weak or a burden when we ask for help. We’re here to say don’t. Don’t be afraid to communicate your needs with your loved ones. Let them know how they can support you on your path to recovery.

Another way to cultivate a supportive environment is to get involved with your local community and beyond. Many organizations and hospitals host events specifically for cancer patients and survivors. Attending these gatherings can provide you with opportunities to connect, share, and celebrate your journey as well as discuss the hard things you face on a daily basis. Connect with Cervivor at upcoming events or consider hosting your own MeetUp on behalf of Cervivor! (Email us for more information).

Remember, self-care is a lifelong commitment to nurturing your physical, mental, and emotional well-being. Prioritizing your mental health, finding peace in reading, and expressing yourself through creativity can all be powerful tools in your healing journey. Additionally, staying physically active and cultivating a supportive environment can further contribute to your overall well-being. And as another reminder, you are never alone. There are many resources and communities ready to offer support and encouragement. Embrace these self-care practices and various programming put on by Cervivor. Together they will help you thrive as a cervical cancer patient and survivor and continue your journey towards a healthier and fulfilled life.