Surviving Cervical Cancer: Tips from Our Community

We develop tools to navigate through life’s rough waters but when you’re on the receiving end of a cervical cancer diagnosis, it’s like your toolbox is suddenly empty.

Something that almost everyone in our Cervivor community has said is that no one ever wants to be in a ‘cancer club’ but when you do find your community, things feel less scary. Now you can share coping and wellness tools, help others and find support from those who ‘get it’.

To provide that support, our community is sharing their tips for coping through a cancer diagnosis.

Keep a box of cards/letters/hospital bracelets/etc. This can be a vital way of processing through your emotions every now and again. You can reflect on the support you received and everything you survived. ~ Morgan N.

During treatment, sleep when you’re tired and eat when you’re hungry. Keeping your body well rested and nourished is a priority. ~Emily H.

I had to learn to say, “NO!” and to take time for myself to rest. Morning and evening meditation really helped me and art is my escape from it all. ~ Tasha B.

Yoga and meditation and eating clean! Meditation helped me focus on one thing. Eating clean gives me advantage on fighting back with nutrient vitamins to restore and help my body and digestive system. ~ Re’gina P.

I schedule time to rest. Be it meditation, reading, sitting in the sun, even aimlessly scrolling – just to be still for 30 mins or 1 hour during the day. I say I’m busy. Busy resting. ~ Samantha R.

Not only are our bodies going through so much with side effects, treatments and surgeries but cancer takes a toll on our spirit and mental health. Taking time to rest and reset, however that looks to you, is so important. Maybe this means reaching out and asking for help. Maybe it’s calling that friend who always knows how to make you laugh, or maybe it’s lying in bed and just crying. Creating space for ourselves is healing. Self-care comes in many forms and none of it is selfish.

Getting outside, even if it was just to walk to the mail box or sitting in my backyard. A little vitamin D always makes me feel better. ~ Carol L.

For me, it’s always been; yoga, meditation, walking/hiking, a religious sleep schedule, cooking/baking, time with friends, music, and quiet time reading. ~ Tracy C.

Listen to your body and resting whenever needed. This was very hard for me because I was so used to go, go, go but it’s so important to let your body rest and repair. ~ Gracie C.

There was overwhelming gratitude from survivors for their medical providers. From amazing Gynocological Oncology teams, Infusion and Radiation teams, to PA’s, RN’s and everyone who works hard to keep us alive to live. When you have a good oncology team, it’s a game changer.

Eating healthy food and sessions with my Oncology Physical Therapist to help with hip pain, regular varied movement, and journaling. ~ Christina B.

Finding my ‘safe spot’ to mentally escape for a bit. Learning to let others take care of me. Coloring and enjoying nature. I’m very tactical and the ears on my dog help soothe me.  ~ Karen N.

I learned to create boundaries from negative things/people. Using no, for my own wellbeing is essential. ~ Lorie W.

Another common thread we heard from you was the support you received from family and friends. Being surrounded and supported by people who put care into action means so much. Whether this comes in the form of prayer circles, meals being delivered or being that person holding our hand, all are great acts of loving kindness. And who doesn’t need more of that?

As cervical cancer patients, survivors and thrivers we have a special community. One that feels tight-knit because we know that through our voices we have the power to ignite a conversation and to help others. We know that our stories can have an impact on someone else’s life. That, through those stories, ending cervical cancer can be reached.

What are some tips you used to get through your diagnosis or life-changing event? How does wellness play a part in survival today?

Breathe in Self-love, Exhale Gratitude

These words will be in the forefront of my mind as I continue through Cervical Cancer Awareness Month.  We welcomed Deb Jennings of Sounds for the Soul to lead us in our first Self-Care Sunday session. It was a self-guided meditation with singing bowls, flutes, and chimes. I’ve had some experience with meditation and used to practice it quite frequently. However, like most things in 2020, I fell out of habit.

Starting the session, I was eager, slightly nervous, yet super excited. I haven’t hosted many virtual events in my lifetime. I wasn’t sure how I was going to be able to relax but I would quickly be proven wrong. In fact, I was not expecting my body to react the way it did in today’s session. 

Deb started in with her singing bowl and what felt like a gentle nudge into a guided meditation. A few minutes passed by as we were breathing in a self-love affirmation and breathing out another affirmation of gratitude.There were several pitches and frequencies starting to awaken my heart and my mind. My body was resting. I was overcome by a chill as we welcomed in the helping energy of our higher selves. It was then I heard the sound of a flute and a beautiful song voice. The mantra stated, “I release control and surrender to the flow of love that will heal me.” It was exactly what I needed in that moment. I felt the tears welling up, pooling, then releasing a stream ever so gently down my face. Relief, probably the first I have felt that in many months and I’m not the only one.

Re’gina, a cervical cancer survivor located in Wisconsin shares, “This session also allowed me to remember a place I loved as a child, fond memory of San Bernardino mountains, Lyttle creek, pine trees, river rocks and mountain water… ahh. I’ll be keeping this memory alive for future meditation and happy placeness.”

Lorie, another cervical cancer survivor located in Michigan shares, “Her soothing voice, emotive language, and sound bowls brought me to a place of peace, so much so that I liked her page immediately when the session ended. The moderator and guide made my morning more peaceful.”

As you can see, spiritual things are felt and experienced when we give ourselves permission to receive those messages. Some trigger a release of emotions we didn’t know were even there. We cannot ignore the incredible messages embedded into Deb’s guided meditation, the ones that resonated with our community were anywhere from self-love and gratitude to forgiveness and healing and last but not least, leaning into our community for support.

Sunday evening proved to be yet another important lesson in self-care, love, and gratitude for many who attended. Cervical cancer survivor and yoga/meditation teacher, Tara Casagrande, led a candlelight foot scrub and meditation.  It was the perfect way to round out a self-care Sunday.

Tara’s words were effective.  She explained the root chakra and its connection to the area where the cervix is located.  Tara emphasized how this small act of self-compassion could have a lasting impact.  She taught us how to appreciate the relationship between one’s self and their feet.  It was imperative to understand just how much work they’ve been through in the past year.  This was a moment to give appreciation and gratitude for them. 

Tamika, Cervivor founder and 19-year survivor, described the sensory experience from the texture of the scrub, to the warmth and the wetness of the water, and then catching the sweet, familiar scent of vanilla. She is adding the mantra of the evening into her daily affirmations: “I feel safe.  I’m at home in my body.”

Tasha, a cervical cancer survivor in Florida, stated how before the COVID pandemic hit, it was a regular thing for her and her daughter to go have spa days.  She has made a goal to practice the self-care routine once a week with her daughter using the recipe provided.  She also enjoyed playing some smooth jazz while unwinding during the event.  In her own words, “I love it!”

Emily, a cervical cancer survivor in Iowa says, “I didn’t have the ingredients for this scrub tonight, but I went through the motions anyways and it felt like a foot massage. Connecting with my feet and my toes, it felt good. A few weeks from now when I’m with my parents, I can see my mom and I sitting on the edge of the bathtub and doing this together as a little foot massage/girl time.”

Self-care is not selfish. In fact, without experiences like this to make us more self-aware, we often jeopardize our health and well-being while running ourselves ragged. Most of us that know how hard we can be on our own self.  We can be our own worst critics, but we need to allow some grace.  We see the incredible emotional support we receive every day within our community, and we want to encourage all of us to take it a step further. Let’s hold each other accountable in developing good habits including self-care.  

Stay tuned as we have more opportunities throughout the month of January with our Wellness Wednesdays and our virtual Pap Rally & Run. Join us and treat yourself to some self-care!

Morgan Newman is a metastatic cervical cancer survivor, a Cervivor Ambassador, the 2018 Cervivor Champion recipient, 2019 Iowa American Cancer Society Action Network advocate and the 2020 Advocate of the Year by Above & Beyond Cancer.