Cervivor Stories

Global Cervical Cancer Awareness: Survivors’ Stories from Every Corner of the World

As we celebrate International Women’s Day on March 8 and Women’s History Month throughout March, Cervivor, Inc. is proud to share the unique perspectives and experiences of cervical cancer survivors worldwide. These courageous women have bravely shared their stories, highlighting the diverse challenges and triumphs in the mission to end cervical cancer – one of the world’s most preventable cancers. 

Learn about the state of global cervical cancer awareness and support services in each country and be inspired by the patients and survivors who live there. Sadly, one of the women featured is no longer with us, but her legacy continues to make an impact.

United States of America

The State of Cervical Cancer 

In the United States, cervical cancer remains a significant health concern, with 13,360 new cases diagnosed annually, resulting in 4,320 deaths (ACS). According to MedPage Today,  despite the importance of early detection, cervical cancer screening rates have been declining, dropping from 46.8% in 2019 to 40.4% in 2021 before slightly increasing to 40.9% in 2023. 

There are some promising trends: Among women ages 20 to 24 who were screened from 2008 to2022, cervical precancer rates decreased by about 80%. HPV vaccination efforts are also paying off, with 61.4% of adolescents aged 13 to 17 being up-to-date on their vaccinations. Notably, HPV vaccination rates vary significantly by state, ranging from 39% in Mississippi to 85% in Rhode Island. Some states, including Hawaii, Rhode Island, Virginia, and D.C., have implemented laws requiring HPV vaccination for school entry, while others, like California, have enacted laws promoting vaccine education and recommendations (KFF).

Marlene’s Story

Marlene, a cervical cancer survivor from California, shares how her life was forever changed when she was diagnosed with stage IB2 cervical cancer at the age of 33. With a family history of cervical cancer, Marlene was already on high alert, but nothing could have prepared her for the shock and fear that came with her own diagnosis. Throughout her journey, Marlene found strength in her faith, family, and friends, and underwent a radical hysterectomy, external radiation, and chemotherapy. Today, Marlene is passionate about using her experience to help others, emphasizing the importance of regular Pap tests and self-care. Her message to other women is one we all need to hear: “You did nothing wrong… focus on yourself and on what you need.” Read Marlene’s full story.

Support for Survivors

Cervical cancer patients and survivors have access to a range of support resources. The National Cervical Cancer Coalition (NCCC) provides education, advocacy, and support through online forums, local chapters, and a helpline. The American Cancer Society (ACS) offers free resources, including transportation to treatment, lodging, and emotional support. Cervivor focuses on advocacy, education, and support for those impacted by cervical cancer and their families. Additionally, the National Cancer Institute’s (NCI) Cancer Information Service provides information and support via phone, email, and online chat. These organizations, along with others, provide a comprehensive network of support for cervical cancer patients and survivors.

Kenya

The State of Cervical Cancer

According to the World Health Organization, Sub-Saharan Africa, where Kenya is located, bears a disproportionate burden of cervical cancer, with 34.8 cases per 100,000 women diagnosed annually, and 22.5 deaths per 100,000 women. In Kenya, it remains the second most common cancer in women (HPV Information Centre). The region’s low screening rates exacerbate this issue, with only 10 to 12% of women in sub-Saharan Africa accessing screening services (Djibril et al.). HPV vaccination rates vary widely across countries. Some nations like Eritrea, Rwanda, Ethiopia, Mauritius, and Mozambique have made significant strides, achieving vaccination rates of over 70% (Kenya’s is about 44%). However, other countries, such as South Africa and Nigeria, still struggle with vaccination rates as low as 3% (World Bank).

Jane’s Story

Jane, a cervical cancer survivor from Nairobi, Kenya, shares her powerful story of resilience and advocacy. Diagnosed with stage IB2 cervical cancer in 2014 at age 41, Jane’s life was forever changed. After a hysterectomy and 25 sessions of radiotherapy, Jane remained optimistic and prayerful, despite facing challenges like severe diarrhea, lymphedema, and high blood pressure. Now an 11-year cancer survivor, Jane advocates for cervical cancer awareness, emphasizing the importance of regular screening and encouraging women to take control of their health. She believes cancer is treatable if diagnosed early and spreads this message through speaking engagements and advocacy work. Read Jane’s full story.

Support for Survivors

In Africa, support for cervical cancer patients and survivors is primarily driven by initiatives focused on increasing access to screening, early detection, and treatment. Organizations like the World Health Organization, national resources like the Kenyan Network of Cancer Organizations (KENCO), , local Non-Governmental Organizations (NGOs), as well as Cervivor Africa offer a range of services, including patient education, counseling, support groups, and access to affordable treatment options.

Scotland

The State of Cervical Cancer 

In Scotland, cervical cancer affects a significant number of women, with 326 new cases diagnosed each year, translating to approximately 11.7 cases per 100,000 women (Cancer Research UK). Fortunately, the country has made notable progress in cervical cancer prevention, with 68.7% of eligible women aged 25 to 64 up-to-date on their screening (Public Health Scotland). Additionally, Scotland’s HPV vaccination program has shown promising results, with 71.5% of first-year secondary school students receiving at least one dose of the HPV vaccine in the 2023-2024 school year (Public Health Scotland).

Cara’s Story

At 33, Cara was diagnosed with stage II cervical cancer after experiencing symptoms like excessive bloating and abdominal pain.  Initially in shock and afraid, Cara underwent fertility treatment to preserve her eggs, followed by 25 rounds of radiotherapy, six chemotherapies, and three rounds of brachytherapy. Throughout her treatment, Cara practiced self-care, exploring mindfulness, meditation, and other calming activities to cope with the emotional and physical challenges. Now, Cara is out of treatment and shares her message to other women: “You are powerful. You have got this. You matter. Keep up with your routine check-ups. Put your health first.” Read Cara’s full story.

Support for Survivors

In Scotland, organizations offer a range of support services to help recently diagnosed patients navigate their journey. Macmillan Cancer Support provides dedicated nurses, a support line, online forums, and information regarding the disease. Cancer Research UK also has a helpline with specialist nurses to discuss concerns and access information about cervical cancer. Additionally, The Eve Appeal, a UK-based charity, provides specialist support and information for anyone affected by gynecological cancers, including cervical cancer. Their expert nurses and information team are available to answer questions, offer emotional support, and provide guidance on treatment options and living with the disease.

Philippines

The State of Cervical Cancer 

The Philippines faces significant challenges in combating cervical cancer, with 8,549 new cases and 4,380 deaths reported annually (International Agency for Research on Cancer). A major contributor to these alarming numbers is the country’s low cervical cancer screening rate, with fewer than 1 in 10 women screened in the last five years (Philippine Institute for Development Studies). Efforts to vaccinate girls against HPV are underway, but coverage remains limited, with only 60% of provinces participating in a school-based program. This lack of access has led to the Philippines ranking last in HPV program coverage among low-middle-income countries (BMJ Global Health).

Hazel’s Story

Diagnosed with stage IV cervical and ovarian cancer at 37, Hazel’s life was forever changed. Despite the initial shock, fear, and pain, Hazel underwent surgery, homeopathic and alternative treatments, and one session of chemotherapy. Throughout her journey, Hazel found strength in prayer, adopting the mantra “P.U.S.H. – Pray Until Something Happens.” Now, Hazel lives a stress-free life, prioritizing a healthy lifestyle, organic living, and her faith. Her message to other women is one of caution and empowerment: “Cervical cancer is a silent killer… Visit your doctors regularly, be cautious, eat right, exercise daily, and pray always for a stress-free life.” Read Hazel’s full story.

Support for Survivors

In the Philippines, cervical cancer patients and survivors can access support through various organizations. The Philippine Cancer Society (PCS) provides education, screening, and support services, while the Cancer Warriors Foundation offers support, education, and advocacy. International organizations with Philippine chapters, such as the International Union Against Cancer (UICC), also provide support and resources for cervical cancer patients and survivors in the Philippines.

Italy

The State of Cervical Cancer 

In Italy, cervical cancer affects a significant number of women, with 3,105 new cases and 1,011 deaths reported annually (HPV Information Centre). However, the country has made notable strides in cervical cancer screening, with 77.5% of women aged 25-64 undergoing screening within the past three years (Statista). Additionally, Italy has implemented HPV vaccination programs, with 38.8% of 12-year-old girls and 31.81% of 12-year-old boys receiving the vaccine in 2022 (Statista).

Stefania’s Story 

Diagnosed with stage I adenocarcinoma at 33, Stefania’s life was turned upside down. After undergoing a trachelectomy, chemotherapy, radiotherapy, and brachytherapy, Stefania faced numerous challenges, including exhaustion, fear, and a painful breakup with her boyfriend. Despite these obstacles, Stefania found strength in writing, psychological support, and healthy eating. Afterwards, Stefania started rebuilding her life, including a new job, and advocating for cervical cancer awareness, particularly among young adult women. Her message is one of hope and support: “I am here for any kind of support I can give… I want to spread the word about HPV, cervical cancer, and the importance of knowing your rights during and after cancer.” Read Stefania’s full story.

Support for Survivors

In Italy, cervical cancer patients and survivors can access support through various organizations. The Italian Cancer Society (Associazione Italiana per la Ricerca sul Cancro, AIRC) and the Italian Association for Cancer Research (AIRC) provide information, resources, and support for cancer patients, including those with cervical cancer. The Italian League Against Cancer (Lega Italiana per la Lotta contro i Tumori, LILT) also offers support services, including counseling, financial assistance, and access to screening programs.

Japan

The State of Cervical Cancer 

Cervical cancer remains a public health concern in Japan, with 12,785 new cases and 4,213 deaths reported annually (HPV Information Centre) – comparable to U.S. rates, but with a much smaller population. One reason: The country’s cervical cancer screening rate is relatively low, at around 43% for women aged 20 to 69, compared to other developed countries. However, efforts to prevent cervical cancer through HPV vaccination are underway, with 30.1% of eligible individuals having received at least one dose of the HPV vaccine as of April 2022 (Global Health & Medicine).

Ryoko’s Story

At 38, Ryoko was diagnosed with cervical cancer after experiencing watery discharge with blood.  Having to navigate the diagnosis and treatment alone because her mother was in a nursing home and Ryoko lived alone, she underwent a total hysterectomy and lymph node removal. Fortunately, there were no remaining cancer cells, and Ryoko was able to recover without further treatment. She highlights the cultural challenges in discussing cervical cancer. “I do not want any other woman to have this kind of hardship,” Ryoko explains. “I want to get rid of the stigma surrounding this disease. I hope one day, no women suffer from cervical cancer.” Read Ryoko’s full story.

Support for Survivors

In Japan, cervical cancer patients and survivors can access support through various organizations. The Japan Cancer Society and the Japanese Cancer Association provide information, resources, and support for cancer patients, including those with cervical cancer. NGOs like Cancer Support Community Japan provide emotional support and counseling for women with gynecologic cancers, including cervical cancer.

Qatar

The State of Cervical Cancer 

According to the HPV Information Centre, Qatar has only 23 new cases and 11 deaths reported annually. However, the country’s cervical cancer screening rate is also relatively low, at 17.2%, according to Sidra Medicine. Additionally, Qatar has a current HPV vaccination rate of 5.8% as of October 2024. This rate lags behind neighboring countries like the UAE, which boasts a vaccination rate of 18.9%. Currently, the vaccine is available upon request, but Qatar’s Supreme Immunization Committee is reviewing the incorporation of the HPV vaccine into the country’s childhood immunization schedule (BMC Public Health).

Valerie’s Story

Valerie was no stranger to gynecologic issues such as abdominal pain and a history of ovarian cysts, but when she was diagnosed with stage IB2 adenocarcinoma at 38, her life was turned upside down. She underwent chemotherapy, radiotherapy, and brachytherapy. She is now NED (no evidence of disease). Throughout her journey, Valerie has emphasized the importance of self-advocacy, persistence, and seeking medical attention when something feels off. Her message to other women is one of empowerment: “Never ignore your symptoms. Get your kids vaccinated against HPV, and find a gynecologist that listens to you.” Valerie continues to share her story, support others, and advocate for women’s health, inspiring countless individuals along the way. Read Valerie’s full story.

Support for Survivors

Individuals affected by cervical cancer can find support through the Qatar Cancer Society (QCS), a charity dedicated to providing care and resources for those living with cancer. The QCS has launched the “Women’s Cancer Support Groups” program in collaboration with the Women’s Health and Research Centre and the National Centre for Cancer Care and Research. This initiative offers psychosocial and community support specifically tailored for women with cancer, including those with cervical cancer, providing a safe space for connection, sharing, and healing.

Canada

The State of Cervical Cancer 

In Canada, cervical cancer is still a concern, with approximately 1,550 new diagnoses and 400 deaths reported in 2023. Despite the importance of early detection, screening rates fall short, ranging from 60% to 75% in 2022, with about 37% of diagnosed individuals having never been screened or not screened in the previous five years. To combat this, Canada aims to have 90% of eligible individuals up-to-date with cervical screening by 2030. While HPV vaccination rates vary from 57% to 91% across provinces, there is a focus on continued awareness, education, and advocacy efforts to create a future where cervical cancer is rare and manageable (Canadian Partnership Against Cancer).

Grace’s Story

Unlike the other global survivors featured here, Grace is no longer alive, but she left a lasting mark on the lives of those who knew her. Diagnosed with stage II adenocarcinoma at 40, Grace faced her journey with resilience and determination. During the challenges posed by the COVID-19 pandemic, Grace underwent radiation therapy, chemotherapy, and brachytherapy, all while sharing her story to raise awareness about cervical cancer and the importance of screening. Through her blog, Gracie’s Cancer Journey, she inspired countless individuals with her courage, humor, and advocacy. Her legacy reminds us that cervical cancer is preventable through screening and that sharing our stories can make a profound difference. Read Grace’s full story.

Support for Survivors

The Canadian Cancer Society offers a comprehensive support system, including a helpline, online community, and community services locator. Additionally, CancerCare Ontario provides valuable resources for individuals with cancer, their families, and their caregivers. The Canadian Foundation for Women’s Health also plays a vital role in supporting women’s health, funding research that improves sexual and reproductive health, backing international women’s health programs, and advocating for increased funding for women’s health research. These organizations provide a safety net of care, guidance, and community for those navigating cervical cancer.

Guyana

The State of Cervical Cancer 

In Guyana, cervical cancer is the second leading cause of cancer deaths among women, with 121 new cases and 63 deaths annually. To combat this, Guyana has implemented a national program aiming to eliminate cervical cancer by 2030. The Ministry of Health’s Package of Essential Health Services includes cervical cancer prevention, screening, and treatment. Guyana was a pioneer in the Caribbean in introducing the HPV vaccine in 2012 and expanding it to both males and females aged 9 to 16 in 2017. Unfortunately, COVID-19 disruptions, including school closures, hindered efforts to sustain and increase HPV vaccination rates, which are now lower than desired (PanAmerican Health Organization).

Davina’s Story

Davina, who lives in  Georgetown, Guyana, was a radiation therapist when she was diagnosed with stage II cervical cancer at age 39. Struggling with the initial shock and anger, Davina underwent 25 sessions of external beam radiation, 5 cycles of chemotherapy, and 3 sessions of brachytherapy. Throughout her journey, Davina found strength in her faith, family, and positive thinking. Today, Davina is a dedicated advocate, raising awareness about cervical cancer and the importance of early detection, screening, and vaccination. Her message is clear: “Get informed, get tested, get vaccinated. Early detection will save your life.” Read Davina’s full story.

Support for Survivors

Cervical cancer patients and survivors can access various support services in Guyana to aid in their journey. Cervivor offers a virtual support group, Cervivor Caribbean, for cervical cancer patients and survivors throughout the region to connect and gain support. The Guyana Cancer Institute offers medical treatment, counseling, and support services. Additionally, organizations like the Guyana Cancer Foundation and The Guyana Cancer Prevention Society also promote cancer awareness, public health education, early detection, and palliative care.

Turn Experience into Action

As the stories of Marlene, Jane, Cara, Hazel, Stefania, Ryoko, Valerie, Grace, and Davina show, each journey with cervical cancer is uniquely personal yet universally impactful. But one pressing issue remains: We must end cervical cancer both in America and around the world. The good news? We have the tools to do it. With increased awareness, improved access to screening and vaccination, and continued advocacy, we can create a future where no woman has to face this disease. 

Let the experiences of these global cervical cancer patients and survivors inspire us to take action, educate ourselves and others, and demand a world where cervical cancer is a thing of the past. 

Get involved by:

  • Sharing these stories on social media using the hashtags #Cervivor #EndCervicalCancer #CervicalCancer #InternationalWomensDay #WeAreCervivor.
  • Learning more about cervical cancer and its impact around the world, and advocating for policies and programs that prioritize women’s health and well-being.
  • Supporting organizations, like Cervivor, who are working to improve access to cervical cancer screening, treatment, and survivorship. It’s as simple as giving a one-time donation or becoming a monthly donor at your preferred amount. Remember, every dollar matters!

We can make this vision a reality.
We can ensure that no one with a cervix dies from cervical cancer.
We can make a difference.

Black Communities and Cervical Cancer: Breaking the Silence for a Healthier Future

Cervical cancer affects thousands of women in the United States each year, hitting Black communities particularly hard. Of the estimated 13,360 new cases in 2025, the American Cancer Society projects 2,180 will be in Black women, with 610 deaths – a higher incidence rate than their share of the general population. Black women are 19% more likely to develop cervical cancer and nearly 65% more likely to die from it than white women. Systemic health disparities, medical mistrust, and cultural barriers both create and widen this gap. 

While other groups – such as Indigenous women, Latinas, and LGBTQ+ individuals – face similar challenges, Black women experience them at disproportionately higher rates. Kimberly Williams knows this firsthand. 

Kimberly’s Story

A headshot of Kimberly Williams, who has long black hair and is wearing a teal turtleneck sweater. She looks directly at the camera with a slight smile.
Kimberly Williams

“I had never heard of cervical cancer before. I thought I was the only person in the world with it,” recalls the Houston mother of two, who was diagnosed with cervical cancer in February 2018 after visiting a doctor for irregular menstrual cycles in late 2017. She felt blindsided, like many who receive a late-stage diagnosis – a trend that is on the rise, with Black women having the highest number of these cases.

Kimberly was taught to keep family matters private, especially health issues. “Growing up, my mother would say, ‘What goes on in the house stays in the house.'” But staying silent only made her feel more isolated.

After a radical hysterectomy in March, her surgeon informed her that all of the cancer wasn’t gone and she would need radiation and chemotherapy. When her insurance repeatedly denied PET scan authorization – an imaging test crucial for assessing her condition – she became discouraged.  “After a couple of months, I thought, ‘Forget it. I’m fine. I’m healed,’” she shares in this new CervivorTV video.


But she wasn’t fine. A recurrence in 2019 forced Kimberly to undergo treatment. Her oncologist’s dismissive approach almost made her walk away again.

“She just said, ‘You’re starting chemo tomorrow,’ without explaining anything. I had to say, ‘Talk to me like I’ve never had cancer before,’” says Kimberly, who holds a master’s degree and has been a social services worker for over 20 years. “Some people would stop their treatment right there. Not being respected enough to have things explained properly is a major barrier to care.” 

Fortunately, Kimberly’s story has a happy ending. Now cancer-free, she is committed to speaking out to help others avoid the struggles she faced.

“As a Black woman, I realized that other Black people listen to other Black people. That’s just how it is,” says Kimberly, who now serves as the Chief Diversity, Equity, and Inclusion (D.E.I.) Officer at Cervivor, Inc. and was recently named to the Steering Committee of the American Cancer Society National Roundtable on Cervical Cancer. “I had to make the hard decision to share my story.” 

‘Holes’ in the Healthcare System

Kimberly’s experience underscores the need for shared stories to drive change in cervical cancer outcomes. Yet, significant healthcare disparities and barriers to care persist. 

Despite recent reports that some public health officials are being discouraged from using terms like “health equity” and “disparities,” Cervivor Founder and Chief Visionary Tamika Felder warns against brushing aside the research fueling life-saving progress. “Health equity is more important than ever. Ignoring the reasons behind disparities only makes the gaps wider,” says Tamika, a member of the National Cancer Advisory Board (NCAB) and co-chair of the National HPV Vaccination Roundtable. “We know where the inequities exist and why. Trying to erase or undermine the incredible work being done to close these gaps is deeply troubling. If we continue down this path, it will be even harder to repair.”

Tamika Felder, Founder and Chief Visionary of Cervivor, welcomes attendees at the 2025 Cervical Cancer Summit during her annual State of Cervical Cancer speech. She wears a long-sleeve, colorful striped dress, glasses, and a long braided ponytail while speaking at the lectern.
Cervivor Founder Tamika Felder gives her annual State of Cervical Cancer speech at the Summit.
Dr. Lynn Richards McDonald, Clinical Program Director for cervical cancer screening at Johns Hopkins Hospital, speaks at the 2025 Cervical Cancer Summit, wearing a black suit jacket. The Summit logo is visible on the lectern as she addresses the audience through a microphone.
Dr. Lynn Richards McDonald of Johns Hopkins Hospital shares her expertise with attendees.


Dr. Lynn Richards McDonald, Clinical Program Director for cervical cancer screening at Johns Hopkins Hospital, is a leading expert on health equity. She has dedicated her career to advancing it through advocacy, collaboration, and community outreach. Dr. McDonald identifies critical “holes” in the healthcare system that contribute to higher cervical cancer mortality rates in the Black community: “These ‘holes’ – cost, lack of knowledge, embarrassment, clinical bias, cultural differences, and fear – prevent timely screenings and treatment,” explains Dr. McDonald, who spoke about strategies for inclusive cervical cancer care at last month’s Cervical Cancer Summit Powered by Cervivor, Inc.

Key Disparities in Diagnosis and Treatment

One striking paradox: Although Black women have higher rates of initial Pap testing (64% in the past two years compared to 59% of white women, 60% of Hispanic women, and 57% of Asian women), they still face disproportionately high cervical cancer rates. This disparity is largely due to lower follow-up rates after abnormal Pap results and later-stage diagnoses. A 2020 systematic review of 34 studies involving over 1.2 million patients found that even a three-week delay in cancer treatment, including cervical cancer, significantly impacts survival rates.

Dr. Andrea Stubbs, Administrative Director for the St. Jude HPV Cancer Prevention Program, emphasizes how poor communication by medical professionals can affect follow-up after an abnormal Pap or positive HPV test: “Patients of color often receive vague explanations, like ‘dirty cells’ or ‘a little virus,’ which downplay the urgency of follow-up. For many, missing work for appointments means losing money, adding another layer of difficulty.” 

Julia Brown, MPH, and Andrea Stubbs, MPA, of St. Jude accept the Cervivor Champion Award for their dedication and contributions to ending cervical cancer.
St. Jude Children’s Research Hospital recently received the Cervivor Champion Award for its dedication to ending cervical cancer. Dr. Andrea Stubbs (on the right) and Julia Brown accept the award on behalf of the organization at the 2025 Summit.

Where people live and insurance coverage affect outcomes, too. In 2022, Human Rights Watch reported that rural Black women face a cervical cancer rate nearly 50% higher than rural white women and are more likely to be diagnosed at later stages with lower survival rates. A 2023 study also confirmed that Black women have 18% higher odds of receiving a advanced-stage diagnosis compared to white women, largely due to health insurance access. 

When it comes to enrollment in cutting-edge clinical trials, the gap is even wider – less than 5% of participants are Black, limiting how applicable the results are to diverse populations. Barriers such as travel distance to research centers and a lack of transparency in trial processes add to this underrepresentation.

“Many Black women hesitate to participate in clinical trials due to distrust of the medical community,” explains Tiffany Drummond, a clinical research expert who spoke on the topic at the recent Summit. “Patients are smart, but they don’t know what they don’t know until the research and data are shared with them. Why can’t that information be shared?”

Tiffany Drummond of Opinionated STEM speaks during the "Empowering Informed Decisions: Navigating Clinical Trials for Cervical Cancer" panel at the 2024 Cervical Cancer Summit, alongside Lynda Ryan, a cervical cancer survivor and patient advocate.
Tiffany Drummond (right) highlights the importance of informed decision-making in clinical trials with survivor and advocate Lynda Ryan.
Gwen Jackson, wearing a black and white plaid sweater and a Summit lanyard, holds a microphone while asking a question from the audience at the 2025 Cervical Cancer Summit.
Clinical-trial participant Gwen Jackson takes part in a Q&A session at the Summit.


Cervivor Ambassador Gwendolyn “Gwen” Jackson, who was diagnosed with Stage 4 cervical cancer in 2020, credits clinical trials for extending her life. “I’m still alive because of clinical trials,” says the Texas grandmother of three. However, she initially had concerns about participating: “In the African-American community, there’s a deep-rooted distrust of clinical trials,” she shared with The Patient Story last December. “It goes back to when they were using African Americans for experiments and really being the ‘guinea pigs.’”

Medical Mistrust: A Barrier Rooted in History

Gwen’s insight on the roots of medical mistrust in the Black community is spot-on. As Dr. Wendy Kline shares in the latest Cervivor Podcast about her new book Exposed: The Hidden History of the Pelvic Exam, the gynecological abuse of Black women in America dates back over 200 years. It began with James Marion Sims, often called the “father of modern gynecology,” and has persisted through generations.

“The origins of gynecology date back to the 19th century with the invention of the speculum,” Dr. Kline, a Historian of Medicine at Purdue University, explains, referring to the familiar tool used for pelvic exams. “Sims built gynecology on the bodies of enslaved women, three of whom underwent multiple procedures without anesthesia. These non-consensual experiments perfected techniques that defined the field, raising ongoing questions about consent and ethical treatment.” She adds, “Although not every gynecologist is abusive, the history is inherently problematic.” (Read more about the three enslaved women – Anarcha, Betsy, and Lucy – and what they endured in the name of “science” in this powerful retelling by Women & the American Story.)


Another example is Henrietta Lacks, a now-celebrated Black woman who sought treatment at Johns Hopkins in 1951 for abnormal vaginal bleeding. A tobacco farmer and mother of five, she was admitted to the “colored ward,” as a recent St. Jude Research article recounts. After eight months of radiation treatment, Henrietta died at 31, but her cancer cells were taken without consent, leading to the development of HeLa cells that advanced cervical cancer research. (To learn more about Henrietta’s impact on medical ethics, check out last month’s Cervivor Podcast with her great-granddaughter, Veronica Robinson, and Johns Hopkins’ Dr. McDonald.)

The article summarizes, “The medical mistrust generated by historical mistreatments has been passed down over time. Avoiding regular gynecological care makes Black women more likely to be diagnosed with advanced cervical cancer, decreasing survival.”

Breaking the Cycle: How Awareness Can Save Lives

St. Jude highlights another critical factor contributing to higher cervical cancer mortality rates among Black women: lack of awareness about the human papillomavirus (HPV) and the HPV vaccine, in particular. Data from the Office of Minority Health (OMH) indicates that in 2022, non-Hispanic Black females aged 19 to 26 were 20% less likely to have ever received an HPV vaccine than non-Hispanic white females in the same age group.

The Centers for Disease Control and Prevention (CDC) reports that vaccine uptake among all children is still quite low, with only 38.6% of children aged 9 to 17 receiving at least one dose in 2022. While there is no significant statistical difference between Black and white children, health insurance status is a key factor. A February 2024 CDC report found that children with private health insurance (41.5%) were most likely to have received one or more HPV vaccine doses, compared with children with Medicaid coverage (37.0%), other government coverage (30.2%), and those without insurance (20.7%). Despite initial gains in coverage from the Affordable Care Act (ACA), Black people remain 1.5 times more likely to be uninsured than white people, according to a February 2025 report looking at health coverage by race and ethnicity between 2010 and 2023.


But awareness and access aren’t the only barriers. As with avoiding gynecological check-ups or low participation in clinical trials, medical mistrust contributes to some Black parents’ hesitancy or refusal to vaccinate their children against HPV. A 2023 Journal of Pediatric Health Care study led by Ariel Washington, Ph.D., MSSW, of the Barbara Ann Karmanos Cancer Institute found that concerns ranged from vaccine safety to the recommended age, noting that, “Some believed their children were being offered the vaccine at a younger age than most because the health care provider believed the child would become sexually active earlier.” 

In an article about the study on the cancer institute’s website, Dr. Washington shared, “One recurring theme was that parents often felt unheard and unable to ask questions about HPV vaccination.” The study reinforces St. Jude’s recommendation that clear, direct communication from healthcare providers is key to increasing vaccination rates in Black communities.

For Black cervical cancer survivors like Kimberly, who remembers not knowing anything about HPV or cervical cancer when she was diagnosed, spreading awareness in the Black community is imperative. “I realized I had to make sure others knew about the resources out there to prevent cervical cancer: screening and vaccination. By keeping quiet, we risk lives.”

If you feel unheard by your medical providers, Gwen offers this advice: “When you go to the doctor’s office, they are working for you. You are not working for them. So, it’s okay to use your voice. If something feels wrong, speak up. If there’s a treatment you don’t want, say that.”

Find Your Community and Take Action

Most importantly, you don’t have to go through this alone. For many, finding community is life-changing. Kimberly describes discovering Cervivor as a turning point in her recovery. Gwen was surprised by the sense of solidarity she found: “I thought it was just Black women who went through this. But now, being in the teal-and-white community, the Cervivor community, we chat with each other. It’s all of us, as women.”

Cancer survivor Bikira Radcliffe, who founded United Colors of Cancer in 2020 to ensure optimal cancer care for Black, Indigenous, and People of Color (BIPOC), also highlights the growing role of faith-based organizations in supporting mental health and cancer care in communities of color. “In Black and Brown communities, mental health is only now becoming a common discussion,” she shared during a panel at the Summit. “Many people turn to churches and similar institutions for support, and we’re seeing these organizations begin integrating cancer care and mental health resources into their missions.”

Esra Urkmez Uzel, Lilly Stairs, and Bikira Radcliffe speak on a panel about patient advocacy and cancer burnout prevention at the 2025 Cervical Cancer Summit. Bikira, wearing a bright pink shirt and matching head wrap, is seated on the left.
From left, Esra Urkmez Uzel, Lilly Stairs, and Bikira Radcliffe discuss patient advocacy and preventing cancer burnout at the 2025 Summit.

Ultimately, the story of cervical cancer in the Black community isn’t just about statistics – it’s about lived experiences that highlight the urgent need for change. At Cervivor, we are committed to ending cervical cancer through:

  • Education: Providing accurate, accessible information on HPV, cervical cancer risks, and the importance of regular screenings.
  • Advocacy: Amplifying voices to break the stigma and silence surrounding these issues.
  • Empowerment: Encouraging individuals to take charge of their health by advocating for themselves, asking questions, and demanding timely, respectful care.

Consider these ways to connect with other Black cervical cancer patients and survivors through Cervivor:

Cervivor community members of color, wearing Cervivor Cares shirts, smile together at the 2024 Communities of Color Retreat in Cleveland, OH. Tamika Felder has her arm around Gwen Jackson.
Participants at Cervivor’s 2024 Communities of Color Retreat in Cleveland, OH.
  • Communities of Color Retreat – A training to support and empower individuals from diverse communities who have been impacted by cervical cancer, the retreat aims to provide a platform for sharing experiences, connecting with others, and promoting health equity and awareness about cervical cancer. Learn more about the most recent retreat.
  • Cervivor Noir – A private group reserved for cervical cancer patients and survivors who identify as African American or Black. Join today and connect with others in the community!
  • Black Cervix Chat – An event that aims to bridge gaps in healthcare access and provide a supportive space for discussions related to cervical health, screenings, and general well-being for those in the Black community. Watch now on CervivorTV!
  • Cervivor Stories – Visit the Cervivor website to read the testimonies of others impacted by cervical cancer and share your story with an easy-to-follow template. 

By advocating for awareness, equitable healthcare, and open conversations, the Black community can break the silence and move toward a healthier cervical-cancer-free future.