PRESS RELEASE: Cervical Cancer Survivors Train for Advocacy at “Cervivor School”

 

Cervical Cancer Survivors Train for Advocacy at “Cervivor School” During Gynecologic Cancer Awareness Month

Susan G. Komen founder Nancy Brinker to speak to cervical cancer survivors about strategies that drive awareness and impact policy

Sept. 17, 2018 – Timed to Gynecologic Cancer Awareness Month, cervical cancer patients and survivors from across America and Europe will come together Sept. 20-22 in Cape Cod, Mass., to learn how to leverage their own personal stories to become advocates for cervical cancer education, prevention and policy change. Convened by Cervivor, the “Cervivor School” will feature Nancy G. Brinker, founder of Susan G. Komen and the regarded global leader of the breast cancer / women’s cancer awareness and prevention movement.

“I look forward to sharing my story and more importantly, communicating to these brave women the power of their own stories, and how they can make a positive impact in their communities, this country and around the world,” said Ms. Brinker. “I am honored and excited to speak to the Cervivor School, which is doing great work in helping to organize and support women with cervical cancer.” Her talk is the featured keynote address on Sat., Sept. 22 at 8:30am.

Ms. Brinker will discuss the power of women’s stories as a key tool in cancer advocacy, share how she helped build one of the world’s largest cancer advocacy organizations, and share where she believes America as a whole – and cancer advocates individually and communally – should focus next in combatting cancer deaths.

Cervivor School is a networking, educational and motivational event that brings together and mobilizes cervical cancer patients and survivors to become more involved in the cervical cancer awareness and prevention movement. It supports women with training and tools to powerfully tell their stories to a range of audiences – including legislators and policy makers.

Falmouth, Mass.-based Team Maureen is co-hosting the event with Cervivor.org. More than 40 women are expected to attend the Cervivor School – Cervivor’s 10thsuch training. More than 600 women have attended Cervivor School and similar trainings offered by Cervivor’s predecessor organization, Tamika & Friends.

“The more we are willing to share our stories, the lives we can save. We can support women diagnosed with cervical cancer. We can educate about effective prevention with Pap testing, HPV testing and HPV vaccination. And, importantly, we can elevate our voices together to reach policy makers to ensure that cervical cancer screening and prevention programs are funded and implemented,” said Cervivor’s founder Tamika Felder.

“It is often personal stories that can most inspire people to take steps toward change,” highlighted Team Maureen’s founder Eileen Lind.

Cervivor School will be held at the Sea Crest Beach Hotel in North Falmouth, Mass., with sponsorship from Cape Cod Health Care, Hologic, BD, Genentech and Roche.

About Cervivor

Cervivor builds a community for cervical cancer survivors, family members, educators and caregivers to advocate for HPV awareness, cervical cancer prevention, to create meaningful networks across survivors and experts in the field; and to ultimately change the future of women’s health.

About Team Maureen

Falmouth, Mass.-based Team Maureen was founded in memory of Maureen E. Russo, a loving sister, daughter, wife and mother who passed away from relapsed cervical cancer at the age of 37. Team Maureen’s mission is to end cervical cancer by educating about the HPV cancer connection and the importance of prevention and early detection.

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Interested in attending or receiving photos of the event? Contact:page2image1633392

Shelley Ducker

[email protected]

202.255.0561

Parents Deserve to Know

Parents Deserve to Know

By Kate Yglesias Houghton, President & CEO
Critical Mass: The Young Adult Cancer Alliance

Each year 70,000 teens and young adults will be diagnosed with cancer in the United States. We make up 8% of all cancer diagnoses. But young Americans impacted by cancer have seen little to no improvement in survival rates over the last four decades even as older adult mortality rates have declined by 25% since the 1990s.

Recently I joined a meeting in Washington, DC with Cervivor and other cervical cancer advocacy organizations. They shared some exciting news: we are on the brink of eliminating all deaths from cervical cancer.

My heart skipped a beat but my head reminded me of the cold, hard facts: cervical cancer is the second leading cause of cancer-related death for young women between 20 and 39.

The human papillomavirus (HPV) has been identified as the cause of 90% of cervical cancers and 70% of oral cancers found in the throat, neck, and tongue. The Centers for Disease Control and Prevention (CDC) report, “about 39,800 HPV-associated cancers occur in the United States each year: about 23,300 among women, and about 16,500 among men.”

Like polio, we can protect our children and grandchildren from HPV and HPV-related cancers. It is not only a vaccine recommended by countless public and private organizations, but available at no additional cost to the patient or state.

Unfortunately, parents still do not know that this vaccine is available and most effective given to children between the ages of 11 and 14. The American Cancer Society noted in their Cancer Facts & Figures 2018 report, “immunization rate remains low in the US; in 2016, 50% of girls 13-17 years – and only 36% at age 13 – were up to date with the HPV vaccination series.”

Legislation to require the HPV vaccine for school admission has been signed into law in Virginia and District of Columbia. In Rhode Island, the HPV vaccine was added to the list of immunizations needed for school entry and now 70% of children in that state are protected against this incurable, cancer-causing virus.

Parents deserve to know that they can protect their children from an incurable, cancer-causing virus. Adding the HPV vaccine to the list of immunizations needed to attend school is a seamless and already regulated way to get the information in the hands of parents.

Recently  I got to stand with Florida state Senator Jose Javier Rodriguez, Florida state Representative Amy Mercado, and Moffitt Cancer Center AYA Program Director Dr. Damon Reed in support of SB 1558 & HB 1343, the Women’s Cancer Prevention Act. This bill would add the HPV vaccine to the Florida list of required immunizations.

It is hard to explain, as a cancer survivor who grew up in South Florida, how it feels to know speaking up for young men and women in my home state could protect them from ever battling a disease that nearly took my life away. Please join me by adding your name to our petition. Let’s end cervical cancer for good.

About the author:

Kate Yglesias Houghton is President and CEO of Critical Mass: The Young Adult Cancer Alliance. Prior to joining Critical Mass, Kate served a senior staff member to a Chief Deputy Whip in the U.S. House of Representatives and leader of the national Democratic Party. In 2011, she served on President Barack Obama’s re-election campaign, promoting the benefits of the Affordable Care Act. While on the campaign trail, Kate was diagnosed with acute myeloid leukemia at just 27 years old. She successfully completed treatment over four months before rejoining the campaign. Kate teamed up with Critical Mass in 2013 and is now focused on ensuring the unique needs of Americans diagnosed with cancer between 15 and 39 years of age are fully recognized by decision makers from hospital administrators to policymakers in Washington, DC.

 

 

References:

“HPV and Cancer.” Centers for Disease Control and Prevention, Centers for Disease Control and Prevention, 6 Mar. 2017, www.cdc.gov/cancer/hpv/statistics/index.htm.
“The HPV Vaccine: Access and Use in the U.S.” The Henry J. Kaiser Family Foundation, 19 Oct. 2017, www.kff.org/womens-health-policy/fact-sheet/the-hpv-vaccine-access-and-use-in/.
Cancer Facts & Figures 2018. Atlanta: American Cancer Society; 2018. https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/annual-cancer-facts-and-figures/2018/cancer-facts-and-figures-2018.pdf
“Cancer statistics, 2018.” Siegel, Rebecca L., et al. CA: A Cancer Journal for Clinicians, 4 Jan. 2018, onlinelibrary.wiley.com/doi/10.3322/caac.21442/full
“HPV Vaccine: State Legislation and Statues.” National Conference on State Legislatures, 10 July 2017. http://www.ncsl.org/research/health/hpv-vaccine-state-legislation-and-statutes.aspx
“Despite benefits, vaccination rate for HPV remains low in Florida.” Girona, Jose Patino. Tampa Bay Times. 25 January 2017. http://www.tbo.com/news/crime/despite-benefits-vaccination-rate-for-hpv-remains-low-in-florida-20150125/Parents’ Support for School-Entry Requirements for Human Papillomavirus Vaccination: A National Study
William A. Calo, Melissa B. Gilkey, Parth D. Shah, Jennifer L. Moss and Noel T. Brewer
Cancer Epidemiol Biomarkers Prev August 19 2016 DOI: 10.1158/1055-9965.EPI-15-1159 http://cebp.aacrjournals.org/content/early/2016/08/16/1055-9965.EPI-15-1159