Pride and Survivorship: LGBTQ+ Voices in Cancer Care and the Power of Community 

By Cervivor Communications Assistant Kyle Minnis

Every June, Pride Month celebrates the resilience, diversity, and strength of LGBTQ+ communities while shining a light on the work that remains to achieve true equity and inclusion.

June is also National Cancer Survivorship Month, a time to honor survivors, caregivers, advocates, and loved ones whose lives have been shaped by cancer.

For LGBTQ+ individuals, the cancer experience can come with unique challenges, including:

  • Healthcare disparities, such as discrimination, financial barriers, and fear of being misunderstood, judged, or misgendered.
  • Finding safe and affirming care, where patients feel respected, supported, and able to be themselves.
  • Misinformation and lack of representation, which can create barriers to screening, diagnosis, treatment, and survivorship.

These barriers can have real consequences, contributing to missed screenings, delayed care, and poorer healthcare experiences. 

“At Cervivor, we believe every person affected by cancer deserves to be seen, heard, and affirmed exactly as they are, all year long,” says Tamika Felder, Cervivor Founder and Chief Visionary. “No one should have to choose between protecting their health and protecting their dignity.”

This Pride Month and National Cancer Survivorship Month, we’re sharing stories from LGBTQ+ cancer survivors and advocates whose experiences highlight the power of visibility, inclusive care, and community. 

LGBTQ+ Voices Across the Cancer Journey

One of the most powerful ways we can create change is by sharing our experiences. When LGBTQ+ cancer survivors and caregivers tell their stories, they help break down misconceptions, reduce stigma, and remind others that they are not alone.

Lea’s Story: When Care Includes Everyone

Lea Boone

For Lea Boone, a cervical cancer survivor and member of our Cervivor Pride community, one of the most important sources of strength throughout her cancer journey was the unwavering support of the people around her.

Family and friends rallied around her in meaningful ways, creating opportunities for connection and normalcy during a difficult time. “They planned weekly dinners, prayer sessions, game nights,” recalls Lea. “All of these gave me strength and encouragement.”

Her loved ones also helped her navigate the complexities of treatment by staying engaged in her care. They encouraged her to record medical appointments so they could listen, ask questions, and help her process information that might otherwise have been overwhelming.

Lea considers herself fortunate to have received care from providers who treated her and her partner with respect and inclusion. “Just because I am part of the LGBTQ+ community did not make me ‘different,'” she says. She appreciated that her healthcare team included her partner in conversations about recovery, aftercare, intimacy, and the physical and emotional changes that can follow treatment, recognizing the important role partners play in a patient’s healing and well-being. 

Her experience also highlights an often-overlooked aspect of cancer care: the needs of caregivers and family members. “Cancer affects everyone… the patient and the family,” she explains. She believes healthcare systems should do more to support the people who stand beside patients throughout treatment, recovery, and survivorship, as they often carry their own fears, questions, and emotional burdens along the way.

LaTasha’s Story: Creating Safer Spaces for Care

LaTasha Fisher

For LaTasha Fisher, an AYA Community & Remote Patient Navigator at the Ulman Foundation, creating spaces where people feel seen, supported, and safe is both a professional and personal mission.

As a queer woman working closely with young adults navigating cancer care, LaTasha understands the unique barriers LGBTQIA+ individuals can face when it comes to cervical cancer screening and treatment. She notes that transgender men are less likely to receive routine screenings due to concerns ranging from gender dysphoria to fear of discrimination.

“Healthcare spaces can feel isolating for LGBTQIA+ patients, and sometimes seeing someone who signals support and advocacy can make a difficult experience feel a little less overwhelming,” she says.

LaTasha believes affirming care starts with creating an environment where patients feel respected and understood. She encourages providers to use inclusive intake forms, respect chosen names and pronouns, and communicate clearly about procedures and care decisions.

“A few ways that healthcare professionals can show up better for this community are to make sure forms include space for chosen names and pronouns, ensure those preferences are updated across all systems, and train staff on the importance of using them correctly,” she explains.

For LaTasha, building trust and visibility within healthcare settings is everyone’s responsibility. “Everyone should be doing their part, and my hope is that in doing so, you will inspire others to do the same.”

Craig’s Story: Trust, Visibility, and Better Outcomes

Craig Lustig

For Craig Lustig, a long-term brain cancer survivor, advocate, and host of the podcast Cancer Rebranded, cancer has always been just one part of a much larger story. “Just because you have cancer doesn’t mean that you are cancer,” he says

Diagnosed with a rare brain tumor at age 27, Craig learned firsthand how difficult it can be when important parts of a person’s identity go unrecognized during cancer treatment. As a gay man undergoing treatment in the early 1990s, much of his care took place in pediatric oncology, where he was surrounded by children and teens and found few opportunities to discuss his experiences as a young adult or a member of the LGBTQ+ community. 

“This was a time when HIV/AIDS was a huge concern for gay men and the broader gay community,” Craig recalls. “While I wouldn’t say I experienced homophobia in a direct way, I felt uncomfortable in that environment when it came to my sexuality and being open about who I was. It was the right place for me to be treated, but it was very isolating.”  

That experience shaped his belief that trust is essential in cancer care, particularly for LGBTQ+ cancer survivors and patients. “When you have a life-threatening disease like cancer, being comfortable with your healthcare provider and able to be fully candid leads to better outcomes,” he says.

Craig recommends greater understanding among providers. “We need ongoing communication and education between the cancer care community and LGBTQ+ patients to build trust and ensure that queer cancer patients receive the same high-quality care — free from bias or judgment — that every patient deserves.”

Laura’s Story: Love, Advocacy, and Being Seen

Dr. Laura Porter in front of the Golden Gate Bridge

For Dr. Laura D. Porter, MD, FASCO, a Stage IV colon cancer survivor and Medical Affairs Consultant, survivorship and advocacy have been deeply intertwined since her own diagnosis.

Diagnosed with metastatic colon cancer in 2003 while completing her pediatric residency, her life and medical training were abruptly interrupted. After two recurrences, she became cancer-free in 2006 — a turning point that led her to patient advocacy and oncology research support work.

Looking back, Dr. Porter credits her chosen family and broader support network with helping her through treatment.

“I had an incredible support system… I was never alone the first year after my diagnosis,” she shares. “My family, including my extended family and friends from medical school, residency and from a 12-step program, all showed up to ease the burden of the diagnosis and treatments. I felt so loved and supported.”

As a member of the LGBTQ+ community, she also faced additional barriers while navigating cancer care with her partner at the time, now wife. “One of the most difficult parts of the journey was all the paperwork that was required for Bonnie to be considered my next of kin,” she recalls. “At times it was a burden, trying to explain why she should be able to stay and making sure all the correct paperwork was done.”

Her personal and professional experiences have deepened her commitment to ensuring patients feel seen, supported, and empowered throughout their care. “I have been very vocal and active in sharing my story, and my medical training and experience helped me support others going through the same process,” she says. “I have always been OUT and about, but when we were able to get married it legitimized our relationship.”

Today, as her wife faces her own battle with metastatic lung cancer, Dr. Porter sees firsthand how legal recognition can shape the caregiving experience. “I am her wife, and I am her next of kin. I have to manage everything… and on the days that it is difficult, I can rest in the knowledge that I am her wife and no one can take that away.”

Dr. Porter (right) and wife, Bonnie (left)

Resources and Community for LGBTQ+ Cancer Survivors

The stories shared here reflect the diversity of LGBTQ+ experiences across the cancer continuum. While some individuals face barriers to screening, treatment, or affirming care, others, like Lea and Laura, demonstrate what is possible when healthcare providers recognize and respect the whole person — including their identity, relationships, and support systems.

Finding Community Through Cervivor

If you’re an LGBTQ+ cancer survivor, patient, caregiver, advocate, or loved one, know this: Your story matters. Your experiences are valid. Your voice deserves to be heard.

We invite you to join our private LGBTQ+ Facebook group (for more info, contact Cervivor Pride Lead Karen North), or apply to attend our upcoming Gynecologic Cancer Survivors Retreat & Advocacy Training powered by Cervivor School.

Looking for more stories, insights, and resources? Explore these Cervivor articles and discussions focused on LGBTQ+ experiences in cancer care and survivorship:

While Pride Month shines an important spotlight on LGBTQ+ experiences, the work of creating welcoming, affirming spaces for people affected by cancer continues year-round. Whether you’re a healthcare provider, caregiver, advocate, survivor, or ally, you can help by:

  • Listening to and amplifying LGBTQ+ survivor and caregiver voices.
  • Respecting and using a person’s chosen name and pronouns.
  • Avoiding assumptions about someone’s gender, sexual orientation, relationships, or healthcare needs.
  • Using inclusive, person-centered language.
  • Advocating for healthcare environments where everyone feels safe, respected, and welcome.
  • Learning about the unique challenges LGBTQ+ individuals face in cancer care and survivorship.

Together, we can continue building a community where everyone affected by cervical cancer feels seen, supported, and empowered.

Because cancer doesn’t discriminate. And neither should support.

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera.
The man has dark skin and short, curly black hair.
His hair is cut close to his head, with a slight fade at the sides.
His eyebrows are thick and well-groomed.
He is wearing a blue collared shirt.
The shirt is a medium blue color and appears to be made of a lightweight material.
It has a relaxed fit and is buttoned up to the top.
He is also wearing black-framed glasses.
The frames are rectangular in shape and have a subtle curve at the temples.
The lenses are clear and do not appear to have any tint or coating.
The man is smiling at the camera.
His smile is wide and genuine, showing off his white teeth.
His eyes are crinkled at the corners, giving him a friendly and approachable appearance.
The background of the image is a plain gray color.
The gray is a medium tone, neither too light nor too dark.
It provides a neutral backdrop that allows the subject to stand out.
Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a recent graduate of Strategic Communications at the University of Kansas with a passion for digital media, storytelling, and audience engagement. He has experience in content strategy and media production. Kyle is especially interested in the intersection of media, branding, and digital growth.

20 Years Later: Celebrating the HPV Vaccine — and the Work Still Ahead 

By the Cervivor Communications Team

Today marks 20 years since the FDA approved the first HPV vaccine — a milestone that has prevented countless HPV‑related cancers and saved lives across the globe.

While this anniversary is worth celebrating (and we gushed about it on International HPV Awareness Day this March), leaders in cancer prevention agree: There is still significant work ahead to increase vaccine uptake, combat misinformation, and ensure equitable access to prevention.

A National Voice for HPV Cancer Prevention

One of those leaders doing the work is Cervivor’s Founder and Chief Visionary Tamika Felder.

Just last week, during a Senate Permanent Subcommittee hearing on vaccine safety and attacks on science research, she delivered a powerful message:

“As a cervical cancer survivor and advocate, I have seen both the devastating toll of cancer and the profound promise of prevention… We must continue to share science-based information openly, support rigorous safety monitoring, and ensure that every person has the opportunity to protect themselves and their families.”

Cervivor Founder Tamika Felder was one of seven witnesses invited to address U.S. Senators on vaccine safety during a June 3, 2026, hearing. (PBS screenshot)

In a recent article with the University of Minnesota’s Center for Infectious Disease Research and Policy (CIDRAP), Tamika added, “I know for a fact my parents would have vaccinated me.” The vaccine wasn’t available when she survived cervical cancer 25 years ago.

For Cervivor, HPV vaccine education isn’t limited to awareness days or anniversaries (though we do love celebrating those!). It is a year‑round commitment powered by cervical cancer survivors, researchers, healthcare providers, and public health leaders working toward the elimination of cervical cancer.

Below are upcoming events and recent content from Cervivor and our partners — all helping spread awareness of the life‑saving power of HPV vaccination along with regular screening. 

Upcoming Awareness Events

Whether online or in person, these upcoming events offer opportunities to learn, connect, and help advance the conversation around HPV prevention and cervical cancer elimination.

Celebrating 20 Years of HPV Vaccination in the U.S.

June 12, 2026 | Virtual Webinar | 12–1 PM CT

Hosted by the St. Jude HPV Cancer Prevention Program, this special webinar marks the 20th anniversary of the FDA approval of the first HPV vaccine. Cervivor Founder and Chief Visionary Tamika Felder, a co-chair of the National HPV Vaccination Roundtable, will join experts from across the cancer prevention community to discuss the future of HPV cancer prevention.

Gynecological Cancer Survivors Retreat and Advocacy Training

September 24–27, 2026 | Scottsdale, Arizona

Powered by the highly acclaimed Cervivor School, this immersive retreat welcomes survivors of all gynecologic cancers and equips them with skills to advocate for prevention, screening, and vaccination, amplifying awareness of HPV-related cancers and the tools available to prevent them.

2027 Cervical Cancer Summit Powered by Cervivor, Inc.

January 28–31, 2027 | Washington, D.C.

The Cervical Cancer Summit convenes survivors, advocates, clinicians, researchers, and policymakers to advance cervical cancer prevention and elimination. HPV vaccination remains a key focus, with experts addressing barriers to uptake and strategies to improve access. At the 2026 Cervical Cancer Summit, immunization expert Dr. Michelle Fiscus, MD, FAAP, emphasized that misinformation remains one of the biggest obstacles to vaccination. Save the date! 

Association of Immunization Managers’ CMO Michelle Fiscus, MD, FAAP, was a featured speaker at Cervivor’s 2026 Summit.

Must-Listen Podcasts

From a forthcoming anniversary special to a Cervivor classic, these episodes spotlight the science, stories, and advocacy driving HPV cancer prevention.

A Dose of Optimism Podcast: Celebrating 20 Years of HPV Vaccination

Hosted by Omkar Kulkarni, Chief Innovation & Transformation Officer at CHPA and Founder and Managing Director of KidsX, this special anniversary episode features vaccine expert Dr. Paul Offit and advocate Judy Klein. The conversation reflects on 20 years of HPV vaccination, ongoing challenges to vaccine uptake, and opportunities to prevent more HPV-related cancers. Expected to be released the week of June 15, stay tuned for the upcoming episode.

Cervivor Podcast: “All Your Questions Answered About the HPV Vaccine” with Guest Dr. Nathan Boonstra

Originally released in 2022, this episode remains an excellent resource for anyone seeking reliable information about the HPV vaccine. Cervivor Ambassador and host Joslyn Paguio sits down with Iowa pediatrician Dr. Nathan Boonstra to answer common questions about vaccine safety, effectiveness, and the importance of childhood immunizations.

Cervivors: In Their Own Words

These recent Cervivor Blog posts spotlight survivor experiences while championing leaders in HPV vaccination education, research, and advocacy — and providing actionable information to help prevent HPV-related cancers. 

Cervical Cancer Prevention: Real Survivor Stories, Real Lessons About Early Detection

Cervical cancer prevention graphic with teal ribbon and survivor portraits of Nia Casey, Ayanna Bass, and Trish Byerly, highlighting early detection awareness

Published during April’s National Cancer Prevention and Early Detection Month, this collection of first-person survivor stories demonstrates how prevention, screening, and early detection can save lives. 

Women Leading the Charge Toward Cervical Cancer Elimination

Women healthcare leaders on a purple banner with a graphic highlighting diverse women.

This Women’s History Month post highlights researchers, clinicians, and public health leaders driving progress in HPV vaccination, cervical cancer prevention, and elimination efforts. 

A Cervical Cancer Survivor’s Story: The Truth About the HPV Vaccine — And Why Every Parent Should Start at Age 9

Written by Cervivor Ambassador Ginny Marable (pictured) during Cervical Cancer Awareness Month 2026, this personal reflection explores why she wishes the vaccine had been available to her and why starting at age 9 offers children protection long before exposure to HPV. 

HPV Vaccine Facts: What Everyone Should Know

This accessible resource breaks down vaccine safety, effectiveness, and cancer prevention benefits while addressing common misconceptions. As Cervivor Ambassador Zuli Garcia shared during National Immunization Awareness Month in 2025: “I’m living proof of what happens when access comes too late. The HPV vaccine represents hope, protection, and equity.”

Preventing HPV-Related Cancers: Cervivor’s Urgent Call for Action This Women’s Health Month

Following the first-ever National HPV Conference last year, where Tamika participated as a panelist (above center), this article highlights practical steps individuals, healthcare providers, and policymakers can take to reduce HPV-related cancers through vaccination, prevention, and public health action.

The Work Continues

Twenty years after the HPV vaccine’s approval, progress is undeniable. Yet too many people remain unvaccinated, too many families lack access to accurate information, and too many HPV-related cancers still occur.

Published today, CIDRAP’s “Two Sisters, One Virus: A Family Devastated by HPV” tells the story of former Lead Cervivor Ambassador Erica Frazier Stum, who died of cervical cancer at age 33, and the legacy of advocacy she left behind. As her sister, Hallie Martin, reflected, “A vaccine could have saved her life.”

“Erica Frazier Stum learned to surf after being diagnosed with incurable cervical cancer,” wrote CIDRAP investigative reporter Liz Szabo, MA.

Stories like Erica’s remind us why this work matters, which is exactly what Cervivor Founder Tamika Felder told Senators last week:

“Too many lives are cut short by cervical cancer. Erica Frazier Stum, Teolita Rickenbacker, and Becky Wallace were more than diagnoses — they were mothers, sisters, friends, and contributors to their communities. Their stories remind us why prevention, vaccination, and continued research are essential to saving lives.”

That is why Cervivor remains committed to education, advocacy, and survivor-powered action — not just today, but every day. Through storytelling, partnerships, public education, and policy engagement, we will continue working toward a future where no one has to face a preventable HPV-related cancer, especially not alone.