Preventing HPV-Related Cancers: Cervivor’s Urgent Call for Action This Women’s Health Month

At Cervivor, Inc., every month is Women’s Health Month. But this May, we’re taking the opportunity to spotlight a critical public health issue that disproportionately impacts women: HPV-related cancers. 

HPV, or human papillomavirus, is an extremely common virus. According to the Centers for Disease Control and Prevention (CDC), approximately 85% of people will be exposed to the virus at some point in their lives. While many HPV strains are essentially harmless, high-risk strains are responsible for more than 37,000 new cancer cases each year in the U.S., including about 21,800 cases in women and 16,000 in men. 

These cancers include vaginal, vulvar, anal, oropharyngeal, penile, and cervical cancer—what Cervivor is dedicated to eliminating. Cervical cancer remains the most common HPV-related cancer in women, with more than 11,000 new cases diagnosed annually.

The good news? Nearly all HPV-related cancers are preventable with tools like vaccination, regular checkups, and early treatment. Just last month, National Cancer Institute researchers reported “phenomenal” new data that a single dose of the HPV vaccine is just as effective as the two doses currently recommended for people aged 9 to 25!

This recent CDC infographic illustrates how effective the HPV vaccine can be in preventing over 90% of related cancers including cervical cancer.

“Knowledge is power—but it’s only the start,” says Tamika Felder, Cervivor’s Founder and Chief Visionary. “Preventable cancers like cervical cancer are on the rise because of complacency, stigma, and misinformation. Up-to-date cervical screenings have dropped over the past two decades, and HPV vaccine uptake was ‘flat’ from 2021 to 2023,” she says, citing an alarming recent report from the American Cancer Society. “The time to prevent suffering—and save lives from cervical and other HPV-related cancers—is now.”

The National HPV Conference: A Gathering of the Minds

Fortunately, Tamika and Cervivor aren’t the only ones prioritizing women’s health and tackling the ongoing challenges of HPV-related diseases. Over 400 attendees gathered with the same mission at the recent National HPV Conference in Indianapolis from April 15 to 17, 2025. Bringing together leading experts, healthcare professionals, researchers, policymakers, and survivors, the conference aimed to facilitate networking, collaboration, and resource sharing like “never done before” in the U.S. 

The National HPV Conference unites leaders toward their shared mission.

Representing Cervivor, Tamika took part in a panel discussion moderated by Dr. Rachel Katzenellenbogen and included other HPV cancer and disease survivors, including recurrent respiratory papillomatosis survivor, Kim McClellan, anal cancer survivor Lillian Kreppel and tonsil cancer survivor Jason Mendelsohn, that underscored the human impact of HPV-related cancers. Later, she and Community Engagement Liaison, Morgan Newman, MSW—a metastatic and recurrent cervical cancer survivor—co-presented with leading global expert and author Dr. Linda Eckert in a session titled “Beyond the Data,” highlighting the power of personal narratives in advocacy.

Cervivor’s founder, Tamika, shared her experience and expertise alongside other HPV cancer survivors, emphasizing the importance of the patient voice.

A few other program highlights from the National HPV Conference: 

  • Keynote Addresses: Dr. Susan Vadaparampil, Associate Center Director of Community Outreach, Engagement, and Equity at Moffitt Cancer Center, delivered a keynote about the importance of advocacy and gave a special shoutout to the Cervivor community. Dr. Michelle Fiscus, Chief Medical Officer for the Association of Immunization Managers and Co-Chair of the National HPV Vaccination Roundtable, also gave a dynamic presentation on the current state of vaccination.
  • Policy and Advocacy Discussions: Dr. Heather Brandt, Director of the St. Jude HPV Cancer Prevention Program, alongside Martha Nolan, Senior Policy Advisor at HealthyWomen, highlighted the critical role of legislative action and community engagement in HPV prevention efforts.
  • Storytelling Session: Sally Perkins, a professional storyteller and cancer survivor, demonstrated the transformative power of storytelling in advocacy.

What’s Next: Challenges and Opportunities

“HPV-related cancers are still a greater threat in the developing world, but it’s alarming that preventable cancers are increasing here in the U.S.—especially as funding from the National Institutes of Health (NIH) and other public and private sources shrinks,” shares Morgan. 

Cervivor Morgan Newman at National HPV Conference
Cervivor’s Community Engagement Liaison Morgan explained how personal narratives can change minds.

Fresh from the National HPV Conference, Morgan outlines several pressing challenges facing the HPV prevention movement:

Vaccine Hesitancy: Despite strong scientific evidence that the HPV vaccine is both safe and effective—and promising news that a single dose may be enough in the future—misinformation and mistrust persist. Disinformation campaigns and cultural stigmas around vaccines continue to suppress vaccination rates, particularly in vulnerable communities. 

Policy and Funding: Sustained progress in HPV prevention relies heavily on legislative support and adequate funding. Cuts to public health budgets and shifting policy priorities threaten access to the HPV vaccine, routine screenings, and treatment services—especially in underserved areas. 

Healthcare Access: Longstanding disparities in healthcare access, insurance coverage, and provider availability mean that too many people—especially in rural, low-income, and marginalized communities—still face barriers to prevention and early detection. Expanding equitable access to care remains a critical need. 

Cervivor’s Response: Advocacy in Action

These challenges fuel our ongoing commitment to protect every person with a cervix from HPV-related cancers. Here’s how Cervivor is responding:

Cervivor School 2024 Graduates and Team Cervivor
Cervivor’s commitment to HPV prevention advocacy includes organizing the annual Cervivor School, where patients and survivors are equipped with the knowledge and tools to advocate for better women’s health care. Shown here is the graduating class of the 2024 school.
  • Enhanced Education Campaigns: Cervivor is tackling vaccine hesitancy through culturally relevant messaging and resources via initiatives such as the Cervical Cancer Summit and Cervivor School, which aims to equip participants with the knowledge and confidence to advocate for HPV prevention within their communities.
  • Empowering Survivors: Through our growing collection of Cervivor Stories, we amplify the lived experiences of patients and survivors to raise awareness, break stigma, and drive meaningful change.
  • Advocacy and Policy Engagement: Members of Cervivor’s team and community proudly contribute to national coalitions including the National HPV Roundtable, National Roundtable on Cervical Cancer, HealthyWomen HPV Coalition, HPV Cancers Alliance, and the St. Jude HPV Cancer Prevention Program, helping shape policies that support prevention, access, and care.
  • Addressing Disparities: Through grassroots, community-led conversations like DEI MeetUps, Black Cervix Chat, Cervivor Español, and international groups like Cervivor Africa and Cervivor Caribbean, we’re ensuring underrepresented voices are heard. (Visit our Events to see if there is a meetup or group that you’d like to join.) We also serve on advisory boards and research committees, championing patient advocacy in clinical trials, screening, and vaccination efforts. 

This Women’s Health Month, we urge our Cervivor community and its allies to recommit to action. Preventable HPV-related cancers shouldn’t still be claiming lives. While cancer doesn’t discriminate, the systems surrounding it often do. It’s time to break down the barriers that stand in the way of prevention, early detection, and treatment.

If you believe in Cervivor’s mission to end cervical cancer and ensure that no one has to face it alone, please consider making a tax-deductible contribution today. Your support helps us continue our lifesaving work.

Breaking the Silence: The Powerful Connection Between Breast and Cervical Cancer

This month, Cervivor is shining a spotlight on the critical link between breast and cervical cancer, by highlighting the importance of awareness, early detection, and collective action. Many individuals in our community have bravely faced both cancers or carry the gene that increases their risk. By sharing their inspiring stories, expert insights, and vital information, we aim to break the stigma surrounding these diseases and empower you to take control of your health – above or below the belt!

The Intersection of Breast and Cervical Cancer
Did you know that some individuals carrying the gene that increases breast cancer risk can still be diagnosed with cervical cancer? This surprising connection underscores the significance of regular screenings and open conversations. By understanding the importance and similar benefits of breast and cervical cancer screenings, we can harness the power of prevention and early detection.

Key Similarities in Breast and Cervical Cancer Screening

  1. Purpose: Screening and early detection help identify cancer or cancerous cells before symptoms appear.
  2. Benefits: Both improve survival rates, lower healthcare costs, and reduce the need for more extensive treatments.
  3. Effectiveness: Regular mammograms find breast cancer early, while cervical cancer screenings can prevent or detect cancer at an early stage.

The Power of Awareness and Action
Awareness is not just the first step toward change—it’s the spark that ignites transformation. By educating ourselves and others, we can:

  1. Break the stigma surrounding breast and cervical cancer fostering open conversations that empower and heal.
  2. Encourage regular screenings for early detection giving ourselves and our loved ones the best chance for successful treatment.
  3. Support research and advancements in cancer prevention paving the way for a healthier future for all.

But awareness goes beyond statistics and medical facts; it’s about the power of storytelling. Sharing our stories reminds us that we are not alone—it connects us, inspires us, and strengthens our community. Stories have the power to heal, to motivate, and to bring hope to those who need it most.

In the spirit of unity and empowerment, we’re honored to share the journeys of Kadiana and Karen, two Cervivor Ambassadors who were directly impacted by cervical and breast cancer:

Meet Kadiana, Cervivor Ambassador

Meet Kadiana, Cervivor Ambassador from St. Lucia, who faced a cervical cancer diagnosis at 37 while visiting her sister. Diagnosed with Stage III squamous cell carcinoma, she endured through 32 rounds of external radiation, 6 rounds of brachytherapy, and 6 sessions of chemotherapy. Her journey took a pivotal turn when she tested positive for the BRCA1 gene mutation, leading to preventative surgery, including a double mastectomy. Despite the trials, Kadiana continues to spread awareness of HPV, HPV vaccine, cervical cancer screening, and genetic testing. Read more about Kadiana here.

Meet Karen, Cervivor Ambassador

Karen’s journey is a testament to resilience and advocacy. After being diagnosed with early-stage breast cancer, she received a cervical cancer diagnosis just 18 months later. Despite facing immense challenges, Karen has become a proud Cervivor Ambassador, spreading awareness about HPV prevention and cervical cancer. Read Karen’s inspiring story on the blog.

Take Action Today
The National Breast and Cervical Cancer Early Detection Program (NBCCEDP) is a crucial initiative by the Centers for Disease Control and Prevention (CDC) aimed at providing life-saving breast and cervical cancer screenings to underserved women. Since its inception in 1991, the program has screened over 5.6 million women, detecting more than 57,000 cases of breast cancer and 12,000 cases of cervical cancer. The NBCCEDP provides free or low-cost mammograms and Pap tests to eligible women who lack health insurance or cannot afford screening services.

The program operates in all 50 states, the District of Columbia, and several US territories, partnering with local health organizations to deliver these vital services. By targeting women who are most vulnerable to delayed or foregone care, the NBCCEDP helps bridge the gap in cancer screening disparities, reducing mortality rates and improving health outcomes for thousands of women each year. To learn more about eligibility and program locations, visit the CDC website at https://www.cdc.gov/breast-cervical-cancer-screening/.  

Here are some tips on how you can help us increase screening rates:

  1. Schedule your preventative screenings now, and encourage your friends to do the same.
  2. Share Kadiana’s video, and Karen’s story with someone and encourage them to share as well.
  3. Explore our featured Cervivor store items or donate to support our mission.
  4. Join upcoming events to connect with others and stay informed.

Together, We Can Make a Difference
By acknowledging the screening similarities  between breast and cervical cancer, we can:

  1. Save lives through early detection.
  2. Break the stigma surrounding these diseases.
  3. Empower future generations with knowledge and awareness.

This is more than a movement—it’s a collective mission. Share your story, your story has the power to inspire. Help us spread awareness, and work together to eliminate cervical cancer. Together, our collective strength is unstoppable.