cervical cancer survivor

Being a Support within the Cancer Community

It takes a village.

When someone you care about is dealing with cancer it is hard to know what to say or do. Cancer brings on all sorts of emotions and stressors from depression to anger, to concerns about finances. Remember, cancer goes well beyond just the patient and affects friends, family, coworkers and other acquaintances. Fact is cancer can make you feel pretty low! Although no cancer journey is the same, we can all benefit from support, and sometimes it takes a village. Here are some ways to reach out and support others fighting cancer.

Meals – One of the first things I think of when I want to help support a cancer patient or a family going through a major life event is organizing meals. It’s a nice way to make life easier when times get tough. Meals don’t have to be home-cooked; restaurant delivery, snacks and gift cards work too.

A 5k race to raise funds for Erin’s sister Amy

Financial Support – Let’s be real, cancer is expensive! Cancer means lots of medical bills and lost time at work. A quick and simple method to raise funds for someone with cancer is to use a crowd-funding platform. There are many to choose from and they only take a few minutes to set up. Crowd funding is a great way to tell your story and rally the troops. Financial support goes a long way, even if you don’t think you need it now, you might need it later and if you don’t, you can always pay it forward.

Emotional Support – People with cancer may feel stressed and overwhelmed. Asking for help is not easy for everyone, REACH OUT! Volunteer to decorate for the holidays, grocery shop, babysit kids, start a ride sharing program to get your friend/loved on to their appointments or simply schedule time to sit and visit. Believe it or not the simple gift of TIME means a whole lot!

Erin with her cancer bag and her husband

Another way to help someone cope with cancer is to offer encouragement. Encouraging a loved one to join a support group and to stay active can provide an emotional boost. Simple notes and cards of encouragement give a personal touch. Gift baskets, blankets, journals and books can bring comfort. A little joy and laughter provides a distraction from pain and anxiety about the future. As you can see, a little positivity goes a long way.

Patient Advocate – Advocacy is not for everyone but I’m sure we can all agree navigating insurance and the medical field can be a nightmare! Having someone on your side that acts as a patient advocate is essential. This person helps coordinate care, schedule appointments, speak with insurance companies, researches treatment options and can explain complex medical diagnoses. Whether this is a loved one, friend or professional with knowledge of the healthcare system having extra support helps the cancer patient feel empowered and reduces feelings of isolation.

You don’t have to have all the right answers or advice but being there and reaching out makes a difference. Everyone, especially cancer patients want to feel loved and cared for. So, no matter what you choose to give, know that your TIME is appreciated.

If you are a cancer patient or a caregiver, it’s okay to ask for help. We already know that cancer gave you super powers but believe me, having support makes those bad days manageable.

Mostly, cancer takes a village.

Erin is a Cervivor diagnosed in 2018. She was also a cancer caregiver to her sister who passed away in 2014 from neuroendocrine gastric carcinoma. Erin works in healthcare and is passionate about prevention and education. In her free time she enjoys art, running, spending time with her family and caring for her many farm animals. Learn more about Erin by reading her Cervivor story.

What Is Knowledge?

Knowledge is ________.  

You fill in the blank! 

You can always go with the first word that likely pops into your mind – POWER – but I encourage you to think outside the box a bit and go with something different…for now…

Here’s what comes up for me!

Knowledge is CONNECTION.

Anyone who is involved with Cervivor knows that connection is a huge part of “who we are.”  It is through our shared experiences that we connect via social media, Cervivor events, and relationships.  This connection is rooted not only in experience but also in the knowledge of those experiences and the important information that we come to learn because of it all.  Information about HPV, cervical cancer, prevention.  Information that, combined with connection, tends to result in “power by numbers” as a collective force of advocacy and change.  

Which leads me to my next word…

Knowledge is ACTION.

I’ve seen it happen a lot – and it’s so exciting to witness.  Once people have reliable and important information, they usually can’t help but DO something. Knowledge spurs action in some way or another.  Whether it is action for self by scheduling exams or staying on top of screening, action for others by encouraging friends and family or sharing information, or action for the cause and greater good by sharing personal stories as an advocate and impacting change in the HPV and cervical cancer space. At Cervivor, we see this continually in our patient advocates – working hard to take the information they have to “go and do” and make an impact in so many ways. 

Knowledge is PREVENTION.

Whether you’re a cervical cancer patient/survivor or not – being armed with important knowledge about HPV and cervical cancer can ultimately lead to prevention and help towards eliminating this disease that we now know is preventable.  Knowing what causes cervical cancer, being up-to-date on current screening guidelines and practices, being informed about vaccination all affect the impact that this disease can have.  When we’re informed, we can advocate for our own preventative health or that of a loved one.  When we’re informed, we know what to look for and ask for at the physician’s office.  When we’re informed, we can make decisions to reduce disease.  When we’re informed we know the importance of prevention.  

So now, I’ll circle back to the one “go-to” word that fills in that blank…

Knowledge is POWER.  

Knowledge does lead to connection, action, and prevention – but all of those add up to POWER.  Power that can save lives and impact change. As patient advocates, this informed power is a driving force of what we do, how we lead, and the change we make at Cervivor.  

I’ve seen this power firsthand at Cervivor School – one of our main outreach programs that educates and trains cervical cancer patients and survivors to become patient advocates.  It’s wonderful to witness so many at Cervivor School realize the impact they can have as we empower them with information and support. As patients and survivors, they realize the unique platform and influence they have. That combined with relevant information, their personal stories are perhaps the most potent force they hold.  

Your turn!  Knowledge is ___________.

Heather Banks is Cervivor’s Lead Advocacy Educator and recipient of the 2016 Cervivor Champion Award. As a 13-year cervical cancer survivor, she is an active advocate for HPV and cervical cancer awareness and prevention. Heather’s advocacy efforts have included testifying to the FDA in 2013 for co-testing efforts, speaking to government representatives in DC, and becoming a member of Cervivor’s Leadership Team. Heather lives in Indianapolis, Indiana where she is an Instructional Coach and Specialist at the elementary level. She loves spending time with her husband and two children; ages 16 and 13.