How Cervivor is Making a Difference

At Cervivor, we believe that advocacy is a crucial step towards creating change and improving the lives of those affected by cervical cancer. Our community members are empowered to make a difference through various advocacy levels, from individual to policy-level efforts. In this blog post, we’ll highlight examples of how Cervivor has participated in different types of advocacy.

Individual or Self Advocacy

  • Sharing personal stories and experiences to raise awareness about cervical cancer and its impact.

  • Encouraging friends and family to get screened for cancer and vaccinated against HPV.
  • Educating those impacted by cervical cancer to:
    • Seek a second opinion when needed.
    • To be aware of and engage in shared decision-making with their healthcare providers to ensure informed and empowered medical choices.

Organizational and Community Advocacy

  • Partnering with cancer and health-mission organizations to amplify our message and expand our reach.
  • Collaborating with healthcare providers to improve access to cervical cancer screening, vaccination, treatment, and survivorship phases throughout the continuum of care.

  • Organizing local events and fundraisers to support cervical cancer awareness.
  • Building relationships with community leaders to promote education and screening initiatives like our Black Cervix Chat and #Screen4Me. 

Policy and Legislative Advocacy

  • Supporting legislation that funds research and education initiatives related to cervical cancer.
  • Creating awareness through city and state awareness proclamations.

  • Advocating for policies that increase access to cervical cancer screening and HPV vaccination like Representative Kathy Castor’s “PREVENT HPV Cancers Act” in 2021 and again with its expansion in 2023.
  • Leading the discussion at the Biden Cancer Moonshot White House Cervical Cancer Forum during Cervical Cancer Awareness Month (and beyond) to:
    • Raise awareness about the importance of education, prevention, early detection, and treatment.
    • Spur action among policymakers, healthcare providers, and the general public to prioritize cervical cancer prevention and care.

Support Advocacy

  • Creating a safe and supportive community for individuals to share their experiences and connect with others through various intersectionalities. 

Through these various levels of advocacy, Cervivor is making a tangible impact in the mission to end cervical cancer. By empowering our community members to take action, we are creating a ripple effect of change that will ultimately lead to a future where cervical cancer is a thing of the past. Won’t you join us in our mission to make a difference?

The Living Life List

Today, we introduce the Living Life List– a powerful spin on the traditional bucket list. Inspired by the remarkable Erica Frazier Stum, our late Lead Cervivor Ambassador. This list is not about checking off experiences before a looming deadline, but about living a purposeful, meaningful, and passionate life. Period.

Erica, who lived with cancer from age 27 to 33, rejected the notion of a “bucket list.” Instead, she created a vibrant, active list of experiences she wanted to have and things she wanted to achieve in her lifetime. She embraced life with intention and joy, refusing to be defined by her cervical cancer diagnosis. Erica would have been celebrating her 39th birthday today.

This list is a testament to Erica’s spirit and a reminder that life is precious, valuable, and worth living to the fullest. It’s a call to action to:

  • Pursue your passions: Whether it’s writing, art, or advocacy, make time for what brings you joy and fulfillment.
  • Connect with others: Build meaningful relationships with loved ones, fellow advocates, and those who understand your journey.
  • Travel and explore: Discover new places, cultures, and experiences that broaden your perspective and nourish your soul.
  • Make a difference: Use your voice, share your story, and advocate for others impacted by cancer.
  • Practice self-care and self-love: Prioritize your physical, emotional, and mental well-being.

Take a moment to reflect on what YOU want to achieve, experience, or add to your Living Life List:

  • What brings me joy and fulfillment?
  • How can I make a positive impact in the lives of others?
  • What experiences do I want to have in the next year, five years, or decade?
  • How can I prioritize my well-being and self-care?
  • What legacy do I want to leave for others?

In addition to living a fulfilling life, many patient advocates are driven to make a difference in the lives of others. Here are some questions to help you amplify your advocacy:

  • What specific issues or causes do I want to champion?
  • How can I share my story to inspire and educate others? 
  • What organizations or initiatives align with my values and goals? 
  • How can I mobilize others to join me in advocacy efforts?
  • What policy changes or legislative actions can I support to drive meaningful progress? 

The Living Life List is a celebration of life, hope, and resilience. It’s a reminder that every day is precious and that we all have the power to live with purpose and passion, just like Erica. We can expand the Living Life List to include our advocacy efforts and increase the impact we have every day. So, take the first step today – start your Living Life List and begin living the life you deserve.

Erica’s impact extends far beyond this blog post. To further celebrate and honor her life, explore the following resources: