Happiness Through Hair Loss

I have cancer and treatment is taking my hair. Do I have to suffer? Absolutely not! Personally, in the first few months of my cancer treatment, I surely would have liked to suffer by myself and not burden anyone by experiencing me bald and sickly. We are humans and I believe we are living to experience human emotion through connection. The saddest and most down I have felt in the past year of having cancer was when I felt alone and absent of connection. So, suffering at the hand of hair loss, in my opinion is avoidable. To share how I avoided the deep hurt from losing my hair, connect with me and join in on the journey of near waist length blond locks to bare, bald, and beautiful. 

Jodi with her long locks

I am a cosmetologist by trade, though I certainly prefer the title “Hair Artist.” I have been in the industry since 2010, but cut back to only styling friends and family after having the second of my two children. I entered the beauty industry to bring to surface my clients’ natural beauty, as well as highlight and enhance them. Hair has been my passion and always fascinated me from the way it grows to how we approach changing color and textures. I have had a handful of clients come to me after their chemo hair had grown out and I never thought that I would be experiencing what they had to endure. The strength they showed is completely magnified now that I am in the trenches that they had to wade through to get to that post grow out perm. 

Donation for Wigs for Kids

It just so happened that I was near my hometown and with my entire family when I was told that the three month post radiation/chemo scan showed residual and new spots of cancer and the new chemo I was about to start would take my hair. I sectioned my hair into eight small sections (it would have been twelve, but I was rocking an undercut), had my mom and sisters braid them, and each member of my family was able to cut one. I was very excited so the sadness that occurred took my breath away a little further with each tear. I felt the hurt in each of my family members now that my diagnosis was a lot more real to them more than my own hurt. I did not plan for heavy emotions, but I also didn’t plan for cancer. I went to a friend’s salon where she sculpted the remaining hair into a spunky alternative pixie and gave me a kick-ass pastel pink color job. I mailed the braids off to Wigs for Kids on the way. 

I stripped the color every week and replaced it with whatever I had in the color cache in my garage. From soft pink to day glow neon pink. I also took that time to document and demonstrate how devastating bad shampoo and hot showers were to fashion colors. Each color lost all of its shine within a shower or two, which made stripping them with direct dye removers very easy. After neon pink I had a pastel teal. Then I started chemo. I colored it again to deepen the teal to a truer variation to more accurately depict half of the colors for cervical cancer awareness. White was out of the question at this point. 

A week after that first infusion, I started seeing teal hair shed off on various surfaces. I was able to pull small amounts out when I ran my hands through it, but I had a request from a special niece to get to purple. I was scared to drag color through all of it, so I added a splash of violet to my bangs. Being able to play with my color and have that to look forward to made it easy to let it go. Possibly because by the time it started coming out, I was getting sick of the work it took to change color or keep it up.

I was in my pickup on the way to spend a weekend with my mom on a trail ride when running my hands through my hair resulted in a handful of fallout. I had another four hours on the road and keeping my hands off it was torture. I pick and I pull as I fidget, so it was incredibly difficult. We had family pictures planned a week from then and I really hoped to have hair for them. At one point on our trail ride, a friend rode up and rubbed her hand over my hair as she complimented it. All I saw was a huge chunk of my hair flying away in the wind and I kept a hat on after that. 

Jodi’s three year old showing his barber skills

When we got back from the ride, I decided it was time. I was tired of seeing my hair attach itself to everything but my head, and I didn’t think it would survive a much-needed washing before pictures. We headed to my sister’s house and she took photos while my husband and three year old took my brother’s terrible beard clippers to my head. It was a mess and a struggle and hilarious. I ended up pulling out the remaining strands and then going over it with his clippers. It was incredibly satisfying and this time, I didn’t feel sadness. I felt free. Our pictures turned out gorgeous and I am very happy to have done the chop before them.

That was five months ago, and I still catch myself wanting random cool hair trends I see on Instagram for an instant before I remember that one must first have hair. I do have two wigs that I was so graciously given by my infusion center’s recourse center. I rarely wear them because my head has always been so sensitive to pressure. I will endure them if an occasion calls for it, but honestly, I am much more comfortable bald. Wigs are not cheap, rightly so, as the time and talent it takes to create them is unfathomable. Some insurance does pick up the cost and there are many programs available to patients to be able to afford it.

There are more than a few options when it comes to picking out a wig. Synthetic wigs are a bit more affordable than human hair and have come leaps and bounds in appearance. Lace front and lace tops offer beautiful parts and hairlines. I prefer my lace top over the other any day, as it is much cooler and not nearly as heavy. The styles offered are infinite! I had a blast trying on some within my scope and at least one that was the furthest out of my style spectrum I could get. Curly, straight, long, short, any color under the sun, wigs are a blast! Now I don’t have to deal with the bulging of natural hair underneath. Small wins do add up, you know. 

I know plenty of people who would agree that losing their hair is a huge amount of stress and suffrage. It seems to grind mud into the never-ending wounding of cancer and treatment side effects. The vast majority of women see it as a direct hit to their femininity, especially those with a diagnosis that effects their reproductive system, such as cervical cancer. Many treatment options for cervical cancer leave the patient sterilized and slingshot into menopause, like myself, diagnosed at 29. There are incredible numbers of young women navigating this hell. But your perception of this hell 100% affects how terrible it actually is. I honestly had a lot of fun losing my hair! By taking it on my terms and in my own plans helped, and it takes so much time out of my showers and getting ready not having to worry about my mop. Not everyone has accessibility to products to change their hair every week before it falls out, but I guarantee if you ask your stylist to grab the products and give you a small lesson on how to apply, they would gladly set you up. If they don’t, reach out to me at [email protected]. I’ve got your back! 

Before I lost my hair, I heard about an organization called Bald is Beautiful and their mission to normalize women with hair loss sang to my heart. They have many resources to aid your path to being bare. I also highly recommend seeking out the resource center wherever you are receiving treatment. Local salons may also have a good idea about wig and hair replacement options in your area. I have not met a soul involved in the wig community that wasn’t completely ecstatic to help make your transition to being bald an easy one. So, whether you’re like me and bear the bare or you like to switch up your wig and hat styles every other day, know that you are gorgeous and absolutely killing it! Slay girl, slay!

Jodi slaying it

Jodi is a Cervivor community member who lives in North Dakota with her husband of five years and two small children and they spend most of their time outdoors. Jodi started a blog shortly after her diagnosis to bring awareness to the world of cervical cancer as well as share her progress with friends and family in one central location. Cervivor found their way into Jodi’s life in October 2021 during her second treatment regimen. She hopes to give other women in similar situations a sense of community by offering her story to bring to light that life with cervical cancer can have just as many highs as lows.     

Being a Support within the Cancer Community

It takes a village.

When someone you care about is dealing with cancer it is hard to know what to say or do. Cancer brings on all sorts of emotions and stressors from depression to anger, to concerns about finances. Remember, cancer goes well beyond just the patient and affects friends, family, coworkers and other acquaintances. Fact is cancer can make you feel pretty low! Although no cancer journey is the same, we can all benefit from support, and sometimes it takes a village. Here are some ways to reach out and support others fighting cancer.

Meals – One of the first things I think of when I want to help support a cancer patient or a family going through a major life event is organizing meals. It’s a nice way to make life easier when times get tough. Meals don’t have to be home-cooked; restaurant delivery, snacks and gift cards work too.

A 5k race to raise funds for Erin’s sister Amy

Financial Support – Let’s be real, cancer is expensive! Cancer means lots of medical bills and lost time at work. A quick and simple method to raise funds for someone with cancer is to use a crowd-funding platform. There are many to choose from and they only take a few minutes to set up. Crowd funding is a great way to tell your story and rally the troops. Financial support goes a long way, even if you don’t think you need it now, you might need it later and if you don’t, you can always pay it forward.

Emotional Support – People with cancer may feel stressed and overwhelmed. Asking for help is not easy for everyone, REACH OUT! Volunteer to decorate for the holidays, grocery shop, babysit kids, start a ride sharing program to get your friend/loved on to their appointments or simply schedule time to sit and visit. Believe it or not the simple gift of TIME means a whole lot!

Erin with her cancer bag and her husband

Another way to help someone cope with cancer is to offer encouragement. Encouraging a loved one to join a support group and to stay active can provide an emotional boost. Simple notes and cards of encouragement give a personal touch. Gift baskets, blankets, journals and books can bring comfort. A little joy and laughter provides a distraction from pain and anxiety about the future. As you can see, a little positivity goes a long way.

Patient Advocate – Advocacy is not for everyone but I’m sure we can all agree navigating insurance and the medical field can be a nightmare! Having someone on your side that acts as a patient advocate is essential. This person helps coordinate care, schedule appointments, speak with insurance companies, researches treatment options and can explain complex medical diagnoses. Whether this is a loved one, friend or professional with knowledge of the healthcare system having extra support helps the cancer patient feel empowered and reduces feelings of isolation.

You don’t have to have all the right answers or advice but being there and reaching out makes a difference. Everyone, especially cancer patients want to feel loved and cared for. So, no matter what you choose to give, know that your TIME is appreciated.

If you are a cancer patient or a caregiver, it’s okay to ask for help. We already know that cancer gave you super powers but believe me, having support makes those bad days manageable.

Mostly, cancer takes a village.

Erin is a Cervivor diagnosed in 2018. She was also a cancer caregiver to her sister who passed away in 2014 from neuroendocrine gastric carcinoma. Erin works in healthcare and is passionate about prevention and education. In her free time she enjoys art, running, spending time with her family and caring for her many farm animals. Learn more about Erin by reading her Cervivor story.