Finding My Cervivor Voice

It is day one of Cervivor School. I look around the room at 25 women who have all had the same diagnosis; cervical cancer. It feels like a family, but do I belong in this family? I mean, sure I was diagnosed with cervical cancer too; but mine was found early. I was easily treated with a hysterectomy. I didn’t endure chemotherapy or radiation. I haven’t gone into early menopause. I was lucky to have children before I had my fertility taken from me. This is a room of survivors. Women who have been through or are going through the real battle. Women who have lost their hair. Women who will never be able to have children. Women who are going into menopause in their 20’s. Do I belong in this room, with these women who I look at as warriors? I am no warrior. I was one of the lucky ones. This is not my place. I feel like a fraud.

Tamika, the founder of Cervivor, shows us women who have been in this room before us, some who were supposed to be here today; but cannot be because they are no longer with us. It brings me to tears. She tells us her story and it is heartbreaking. Tamika talks about our stories, and how every single one matters. We have all been through a cervical cancer diagnosis. We have all had different treatments. We have all made it to this room. She asks if anyone feels like they don’t belong here. I feel like I should raise my hand, but I don’t. I don’t want to call attention to the fact that I haven’t been through what all these women have been through. Maybe I can make it through the weekend without anyone figuring me out.

Now we take a break and reflect on what has just been said. We break into groups of four. I timidly walk around the room to find a group that doesn’t have four yet. I find a group with two women who are older than me and one much younger. I will let them do all the talking. Their stories matter, not mine. One of the older women starts to tell her story. It sounds familiar. Abnormal Pap, cervical cancer, hysterectomy, recovery. Wait, what? That is my story. The other woman begins to tell her story and again, it sounds familiar. Abnormal Pap, cervical cancer, hysterectomy, recovery. This can’t be right? These women’s stories are too similar to mine. And yet, as each of them tell their stories I feel connected. My heart breaks as they talk about being diagnosed. As they talk about all the time waiting between appointments, and all of the unknowns. These are all of the things that I went through. The pains and anxiety that I went through. The same surgeries that I went through, and the same guilt that I carry with me, as I feel unworthy of being called a survivor. Then there is the younger woman sitting across from me, I know her story is not like ours. I was with her the day before as she took off her wig and revealed her short hair that is growing back from her last rounds of chemotherapy. I do not know her story, but I know that it is not like mine. But here she is, sitting with the three of us. Listening to our stories and encouraging us to tell them. Asking questions about what we have been through and relating. She doesn’t tell us her story, and focuses on us. She is understanding and informative. She is passionate about what we have to say. I begin to feel like maybe I do belong here. Maybe this corner of the room with these 3 other women is exactly where I am supposed to be. Maybe this is precisely what I have been looking for over the last two years. Maybe my story is important, and powerful. Maybe my story can touch people’s hearts the same way these women’s stories just touched mine. And now our time is up. I walk back to my seat and a feeling of relief washes over me. I know that a shift has just been made. Something inside me has changed in these last 20 minutes with these 3 women.

Laura, the young woman who was just in our group walks to the front of the room to present her story to us. She is in her early 20’s. She is vibrant, and her smile lights up the room. Her story begins the same as many of ours. Cervical cancer, chemotherapy, radiation, no evidence of disease. But then her story changes. Recurrence, chemotherapy, terminal. My heart sinks. This woman is standing in front of us fighting a cancer that she knows is going to kill her. And I think, “What is her message to me?” That my fight is not as hard as hers? That I don’t belong here because I didn’t have to go through chemotherapy or radiation? No. Her message is that I need to tell my story. The world needs to hear my story. No one should have to die from this cancer, and the way to help make sure that happens is through my story. I do belong here in this room with these warriors, with these survivors. Not as an outsider, but as one of them. Chemotherapy and radiation are not what makes us a survivor. Cancer is what makes us a survivor. The fraud that was sitting in this same chair 20 minutes ago is gone. I am now sitting here as a Cervivor with a story to tell.

Keziah Corry is a 2-year Cervical Cancer Survivor. She lives in Seattle WA, with her incredibly handsome husband, two of the cutest kids the world has to offer and her sweet little pug. She spends most of her free time, with her feet in the sand and a glass of wine in her hand.  Read Keziah’s Cervivor story here.

That’s a Wrap!

Can you believe tomorrow is October 1? We can’t either! We have had such an amazing GCAM that we’re not sure we are ready for it to end! It has been an incredible month of advocacy and awareness here at Cervivor. Our community has been absolutely on fire with everything from table events and Cervivor School, to Capitol Hill meetings. We are so proud of all our Ambassadors have accomplished this month. Check it out!

Sarah at Athena’s Run

Cervivor kicked off Gynecologic Cancer Awareness Month events with Athena’s Run in Winston Salem, North Carolina. Cervivor Ambassador, Sarah Nielsen, generously hosted a table again this year for the expo. She provided their running community with info about cervical cancer prevention, screening, and of course Cervivor! We were also honored to be asked to be part of the Coming Full Circle Health Fair in New York, NY again! We love this event focused on health information and resources for the community in NYC. Ambassador, Vanessa Santiago, hosted a table and represented Cervivor, as she was able to share about HPV and cervical cancer.

Planting seeds year-round for events during awareness months is an important part of advocacy and something our community strives for. Kristine Sprigler has built a wonderful partnership with UPS and this GCAM was asked to host another Cervivor table at the UPS Employee Night Shift Health Fair! What a great way to advocate and get the word out! Paulette Apostolou is another Ambassador who has cultivated a partnership with her care team and area doctors over the years. This month she hosted a table at the University of Chicago for the Gynecologic Cancer Awareness Day for gyn cancer survivors. She has gone from patient to advocate right in her local community!

Kristine (left) on Capitol Hill

GCAM didn’t stop there. When Kristine wasn’t hosting table events she and Cervivor Ambassador Mary Baker were working with partner organizations, American Cancer Society and the Society of Gynecologic Oncology, to advocate for cervical cancer awareness, prevention, and gynecologic cancer research on Capitol Hill. Mary also participated and shared her Cervivor story as part of the Virginia HPV Leadership Summit at VCU. We are so proud! Way to go Mary and Kristine!

We closed out GCAM with a bang at Cervivor School Massachusetts. Our keynote speaker was the dynamic Nancy G. Brinker, founder of Susan G. Komen®. She has dedicated her life’s work to changing the narrative of breast cancer and bringing global awareness to women’s health. She found great inspiration with Cervivor and our stories touched her.

Cervivor School attendees with Nancy Brinker

Other fantastic speakers like Roshanda Pratt, who motivated everyone to find their why, and Dana D’Alessandro Haseotes who talked about our sexual health after cancer. We also met Laura Brennan, our International Cervivor Spotlight from Ireland, who shared how her one voice is making a huge impact in educating her country on the importance of the HPV vaccine. Laura brought her joy, passion and incredible advocacy voice to our weekend.  Rounding out the weekend were Chi Bahk who spoke about social media & vaccine confidence, as well as Jennifer Sienko with the National HPV Roundtable who dug deep on how we as advocates can respond with confidence to all things HPV. We began each day with Cervivor Wellness Instructor, Patti Murillo-Casa. Patti gave us a preview of the Survivor Slimdown project and inspired us to begin each day with movement and gratitude. The new attendees found their advocacy groove, new friendships, and left knowing that Cervivor support comes while we are in action. Cervivor is a movement and we are making a difference!

Cervivor School fun!

Cervivor is so thankful for such a productive GCAM. We have just enough time to catch our breath and start planning for CCAM in January! Stay tuned! Please make sure to sign up for our monthly newsletter and follow us on social media, to get the latest and greatest from our Cervivor Community.

Team Cervivor