Above the Waist, Below the Waist: Why Breast Cancer Awareness Matters to Cervivors

By Kyle Minnis, Cervivor Communications Assistant

October is Breast Cancer Awareness Month, and you might wonder why a cervical cancer community like Cervivor cares so much. The answer is simple: Our stories don’t fit neatly into one diagnosis, one organ, or one month on the calendar.

Many cervical cancer survivors — a.k.a. Cervivors — have lost mothers, grandmothers, sisters, and friends to breast cancer. Some have faced both cancers themselves. And many of the same barriers that can stand between someone and a Pap or HPV test — including cost, lack of insurance, and distance to care — can also keep them from getting a mammogram.

In 2026, an estimated 321,910 women in the U.S. will be diagnosed with invasive breast cancer, while an estimated 13,490 women will be diagnosed with invasive cervical cancer. Behind every one of those numbers is a person, a family, and a community. This month, we’re sharing the stories of Cervivors whose lives have been touched by both cancers, along with resources that can help you or someone you love access screening and care.

Where Our Stories Intersect

For some Cervivors, the connection to breast cancer is another diagnosis. For others, it’s a genetic risk, a family history, or an unexpected moment when cervical cancer care opens the door to breast care. Their stories show just how differently — and deeply — these cancer communities intersect.

Karen’s Story: Breast and Cervical Cancer

Karen North

Cervivor Ambassador and SGM/LGBTQIA+ Lead Karen North, BSN, RN, was 46 when a routine mammogram found her breast cancer. She chose a double mastectomy and didn’t need further treatment. Eighteen months later, she was diagnosed with cervical cancer.

Having faced both, Karen believes cancer communities need to show up for one another. “There are too many people being diagnosed, in treatment, dying, and scared of a recurrence,” she said.

For her, October should focus on what matters most: “prevention, screening, access to treatment and aftercare.”

Karen also wants cancer awareness to include everyone it affects, including people with a cervix who don’t identify as female. “Everyone deserves to feel seen, respected, and included when it comes to cancer awareness, prevention, and care,” she says. “There are too many barriers with cancer and gender shouldn’t be one of them.”

Kadiana’s Story: Survivor to Previvor

Kadiana Vegee

In 2020, Cervivor Ambassador and Caribbean Liaison Kadiana Vegee was in treatment for cervical cancer when her doctor suggested genetic testing because of her family history. She learned she carries a BRCA1 mutation, increasing her breast cancer risk.

“It was a lot to take in because I was already dealing with cervical cancer,” she says, noting her 32 rounds of external radiation, 6 rounds of brachytherapy, and 6 cycles of chemotherapy. “But at the same time, I’m grateful I had that information because it gave me the opportunity to make decisions about my health instead of waiting for something to happen.”

Kadiana ultimately chose a preventive double mastectomy without reconstruction. “I didn’t want to live constantly wondering if breast cancer was going to be the next thing I had to face,” she says. “I chose my health and my peace of mind.”

Today, she is both a cervical cancer survivor and a breast cancer “previvor.” Her advice to others who learn they carry a BRCA mutation is to give themselves time, ask questions, and make the choice that is right for them.

Lillian’s Story: Loss, Survival, and Advocacy

Dr. Lillian Walker Shelton

Mental health therapist Dr. Lillian Walker Shelton, Ed.D., LPC, LCPC, ACS, lost her mother to cervical cancer in 1996, when the disease and its connection to HPV were still widely misunderstood. Lillian recalls a doctor asking whether her mother had been a prostitute — a question so disturbing that her grandmother filed a formal complaint.

Years later, after moving to Washington, D.C., Lillian met Cervivor Founder and Chief Visionary Tamika Felder and trained as a cancer advocate through Tamika & Friends, as the organization was originally named. That training became vital when Lillian was diagnosed with breast cancer in 2020 and again in 2022. Today, she is living with metastatic breast cancer.

Her mother, she says, never felt empowered to advocate for herself. Lillian approaches her own care differently: “I know that my life depends on my advocacy.”

After her cancer spread to her bones, Lillian experienced two broken legs and a hip replacement between 2022 and 2025. She has learned to ask for help and lean on family, friends, and therapy. Her message to other survivors is simple: “You can’t do cancer alone.”

Lauren’s Story: When Screening Connects

Lauren Lastauskas

Cervivor Program Coordinator Lauren Lastauskas is a cervical cancer survivor with a strong connection to breast cancer: Her maternal grandmother died of a recurrence, and Lauren later helped care for a sister-in-law diagnosed with stage 3 HER2-positive breast cancer.

When Lauren was uninsured, she received her cervical cancer follow-up care through Take Charge, Oklahoma’s branch of the National Breast and Cervical Cancer Early Detection Program. At one visit, a provider asked whether she had noticed any breast changes. Lauren mentioned a new nipple discharge. “Through my own cervical cancer experience and many friends and family dealing with breast cancer, I knew I had to speak up!”

The provider referred the then-32-year-old Lauren for a diagnostic mammogram, which came back clear. “I only got that clear result because of my cervical cancer screening and the federally funded breast and cervical program,” she says.

Access wasn’t easy: Lauren drove about an hour and a half for her Pap test and another hour and a half for the mammogram. The experience, she says, “reiterated the importance of advocating for yourself and mentioning any and all problems to a health provider.”

The Program Behind Lauren’s Story: The NBCCEDP

The CDC’s National Breast and Cervical Cancer Early Detection Program (NBCCEDP) provides free and low-cost breast and cervical cancer screening and diagnostic services to people with low incomes who are uninsured or underinsured.

Early detection can make a profound difference: Five-year relative survival is more than 99% for localized breast cancer and 91% for localized cervical cancer. That makes access to screening especially important for people who might otherwise go without it, like Lauren.

The program works through state, tribal, and territorial public health departments across the country, so the name and the places you can go will vary by state. Since 1991, it has served more than 6.7 million women and provided more than 16.8 million breast and cervical cancer screening exams. Those exams have found more than 82,000 invasive breast cancers and 5,400 invasive cervical cancers, plus more than 259,000 cervical precancers caught before they could become cancer.

If cost or insurance is standing between you and a mammogram or a Pap/HPV test, visit the CDC’s NBCCEDP page (link above) to find your state or tribal program. 

Partners in the Work: The Promise Fund

Some organizations already see breast and cervical cancer as one fight. The Promise Fund, based in West Palm Beach, FL, works to increase survivorship from both cancers. It was founded in 2018 by former U.S. Ambassador Nancy G. Brinker, who also founded Susan G. Komen after losing her sister to breast cancer.

Promise Fund Navigators provide women with one-on-one guidance from screening through diagnosis, treatment, and completion of care. They help remove barriers by arranging transportation, providing translation, answering insurance questions, and connecting women with mammograms, Pap tests, HPV testing, and other essential services at little or no cost. Through partnerships with health-care providers and community organizations, the Promise Fund serves women across Palm Beach, Broward, and Martin counties.

Ambassador Brinker is also a 2024 Cervivor Champion Award recipient and shared her insights with our community at the 2025 Cervical Cancer Summit Powered by Cervivor, Inc. Watch her talk here — it’s a good one!

Cervivor’s Commitment

Cervivor was built to give a voice to people affected by cervical cancer. That mission has never meant caring about only one part of a person’s health. Our community members are whole people, with whole bodies and whole families, and the cancers that touch them don’t respect boundaries.

As our founder Tamika explains: “At Cervivor, we care about the cancers above the waist just as much as the ones below it. So many of our members have watched breast cancer take someone they love, or have faced it themselves. Breast Cancer Awareness Month is our month too.”

Throughout October, we’ll be sharing stories, resources, and reminders to help our community stay informed and screened.

What You Can Do This Month

Awareness means the most when it turns into action. This October, we’re asking our community to:

  • Schedule your mammogram, and check whether your Pap or HPV test is due too.
  • Speak up about any changes you notice, even if you’re at an appointment for something else.
  • Look up free or low-cost screening through the NBCCEDP if cost is a barrier.
  • Share this post with someone who may be putting off screening.
  • Tell us your story if breast cancer has touched your life.

Informed. Empowered. Alive. That applies to every part of us. 

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera.
The man has dark skin and short, curly black hair.
His hair is cut close to his head, with a slight fade at the sides.
His eyebrows are thick and well-groomed.
He is wearing a blue collared shirt.
The shirt is a medium blue color and appears to be made of a lightweight material.
It has a relaxed fit and is buttoned up to the top.
He is also wearing black-framed glasses.
The frames are rectangular in shape and have a subtle curve at the temples.
The lenses are clear and do not appear to have any tint or coating.
The man is smiling at the camera.
His smile is wide and genuine, showing off his white teeth.
His eyes are crinkled at the corners, giving him a friendly and approachable appearance.
The background of the image is a plain gray color.
The gray is a medium tone, neither too light nor too dark.
It provides a neutral backdrop that allows the subject to stand out.
Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a recent graduate of Strategic Communications at the University of Kansas with a passion for digital media, storytelling, and audience engagement. He has experience in content strategy and media production. Kyle is especially interested in the intersection of media, branding, and digital growth.

“My Aunt Showed Up for My Cancer. Now I’m Showing Up for Hers.”

By Virginia “Ginny” Marable

If you came to Susie’s house, you didn’t just arrive. You arrived at a plan.

There was a custom menu. A printed itinerary. A guest room ready before you’d unpacked. Your favorite beverage waiting in the perfect vessel. She thought about what you’d need before you knew you needed it.

Aunt Susie brought the party. She brought the fun. She knew how to make people feel special, and she was fully, authentically herself. She didn’t take any nonsense.

She was my aunt, and she was like a second mom to me. She spent nearly four decades in Washington public schools, from teacher to superintendent. On August 2, 2026, she died of clear cell uterine cancer. She was 67.

This September, for Gynecologic Cancer Awareness Month, I’m asking you to learn the name of the cancer that took her.

Know the Name

Clear cell uterine cancer is rare, making up fewer than 5 in 100 uterine cancers. It tends to occur in older women, often at a later stage, and is an aggressive subtype.

Susie’s story began in November 2024 with bloating and swelling in her belly. She knew something wasn’t right. She didn’t wait. That instinct sent her to the ER to have fluid drained and set off weeks of tests and biopsies. In the first week of January 2025, she was diagnosed with Stage IV cancer.

The warning sign most often linked to uterine cancer is abnormal vaginal bleeding. Susie’s first sign was bloating and swelling. Every body tells its story in its own way. Listen to your body. When something changes, say something.

Her Journey

Horses were part of Susie’s life from the time she was 14.

At first, doctors thought it was ovarian cancer. Months of testing and imaging pointed elsewhere, and her April 2025 hysterectomy confirmed clear cell uterine cancer.

Chemo brought her numbers down. She lost her hair but felt pretty good. Immunotherapy slowed things. Then, in December, she joined a clinical trial. That meant a new lead oncologist, rather than the gynecologic oncologist who had treated her from the start. Answers became harder to find. She felt more like a number than a person with real concerns.

In January 2026, her numbers were the lowest they’d ever been. She wasn’t cancer-free, but there was real hope. The side effects were brutal, though — cystic acne, nausea — and she felt worse than she had on chemo. Cancer also kept showing up in her lymph nodes.

In March, she rode her horse and realized the neuropathy in her feet had become a safety issue. Horses had been part of her life since she was 14, so she boarded him elsewhere to make sure he got the exercise he deserved. Even then, she was thinking about him.

By April, her left eye was blurry, she was nauseous, and she had no appetite. She stopped the trial. Procedures were lined up one by one, starting with eye surgery on May 5. We got an appointment at MD Anderson in Houston and felt hopeful, but radiation for a new tumor on her liver came first, and she couldn’t make the trip.

In July, she checked into the ER on a Monday. By Wednesday, she learned her cancer was terminal. It had compromised her liver, and there were no treatment options left. By Friday, she was discharged. In true Susie form, she wanted every i dotted and every t crossed, and she started making her end-of-life plans.

She began hospice. Eighteen days later, she died.

My Perspective

I’m a gynecologic cancer survivor, too. I had cervical cancer. Watching Susie go through her cancer stirred up everything from my own journey. It felt unfair, painful, and devastating.

When it was my turn, Susie showed up. Weekly care packages. Constant check-ins. Tremendous support. She bought me every pineapple-printed piece of clothing and every accessory she could find. She couldn’t relate to what I was going through, but she made sure I never felt alone anyway.

Susie and Ginny sharing one of many joyful moments together. When Ginny was going through cervical cancer, Susie made sure she never felt alone.

Then it flipped. My experience gave her someone to confide in differently during her own treatment. It brought us closer than we’d ever been.

In her last weeks, I felt hopeless and helpless. I couldn’t take her pain away. But I got to spend days with her on hospice, and I’ll cherish every one.

I’m angry at cancer. It took my dear aunt at 67, and she had so much more life to live.

What Susie Would Ask

Susie’s guiding question was: Is this helpful or hurtful?

So here’s what I think is helpful. Learn the name: clear cell uterine cancer. Know your body, and speak up when something changes. Keep asking questions until you get answers.

Susie planned everything down to the last detail. She showed up fully, every time.

This September, in her honor, I hope we all do the same — for ourselves and for each other.

About the Author

Virginia “Ginny” Marable is an eight-year Stage 2B Cervical Cancer Survivor and a health & wellness enthusiast. As a Cervivor Ambassador and Patient Advocate, she loves giving back to the cervical cancer community and beyond by sharing what she’s learned about taking charge of your health, alternative paths to parenthood, and surrogacy.

She is the founder of VM Helm, an executive coaching and HR consulting practice helping leaders move from overwhelm to opportunity with clarity, confidence, and momentum. She is particularly passionate about helping leaders navigate health crises with grace.

Virginia believes kindness is a superpower, loves to cook and travel, and is happiest spending time with her family on a beach. A Seattle native and University of Puget Sound graduate, she now calls Portland, OR home, where she lives with her husband, twin boys, and dog, Bear.