“We’re In!”

I started treatment for cervical cancer in spring of 2016. One of the first things I did was start searching for those with my cancer. When I found Cervivor, I immediately knew it was special.  It was a sisterhood of survivors, but they were also advocates! Cervivor was dedicated to eradicating our cancer. It wasn’t just a group of women looking for support, but it was a group of women who had been through it and were DOING something! I like to say that joining Cervivor and being trained at Cervivor School has given me advocacy wings.  I have had many opportunities both in my community and on the national level to participate in events as a Cervivor Ambassador. Most recently I was asked to represent our organization at the National HPV Vaccination Roundtable, in Atlanta. I had interacted on the Roundtable’s Facebook page, and felt like I had working knowledge of the collaboration. They are about stopping HPV…sign me up!

The Roundtable meeting began with a lunch. I arrived alongside Tamika Felder, Cervivor’s founder. The first thing I noticed was that we could hardly get to a spot at a table because everyone was wanting to speak with Tamika. They would greet her, as lifelong friends. Many of them had questions about Cervivor and other projects Tamika has in the works. Attendees were quickly inquiring about me and my role. They were interested in me as a Cervivor Ambassador and very excited to meet an HPV cancer survivor. I began to realize what it meant to be at this meeting. These were the countries top doctors, healthcare professionals, and researchers who had worked in this space for years! These were representatives from other organizations, our (Cervivor’s) partners in eradicating HPV and HPV related cancers! Tamika and Cervivor had been part of this collaborative group since it’s inception! I was so proud to be a part of a cancer nonprofit that is so well respected in this space. It further affirmed my initial feeling that when I found Cervivor, I found something special.

“Empowering Parents and Allies” task group

The meeting was an exciting two days packed with a lot of information and a lot of work! Each organization that is part of the Roundtable sends at least one representative. Those representatives are broken into task groups of their choosing. The task groups are just that, groups with an assigned task to help advance vaccination rates in the U.S. and spread awareness, education, and facts about HPV and the vaccine. The public educator in me was drawn to the “Empowering Parents and Allies” task group, as reaching families with knowledge is at the heart of many things I do. Most of the first day was spent in our task groups, reviewing previous work and annual goals, as well as setting new goals and collaborating with other task teams that may be partner groups in reaching these milestones. Our first evening was full of dinner presentations with updates from each task group and a celebration of the hard work and victories achieved by the Roundtable throughout the year.

The second day of the meeting was just as full. Each moment was packed with presentations from medical teams who are on the front line of vaccinating in the family practice setting, to panel discussions from research scientists on how the social media statistics can work in favor of our messaging. We had a working “Jeffersonian Lunch,” ensuring that time was purposeful and well spent. Every second was full of collaboration, information, and getting to the center of how we can change the HPV vaccination narrative in our country and strive to significantly reduce HPV cancer rates.To be honest there was so much information, that I joked with one of the other attendees at our table about how absolutely full my brain was by the end of lunch on day two. It felt as though it could not hold one more piece of information, fact, or even tidbit. I had officially hit my limit and the “meeting glaze” took over. You know, the glaze you get when the presenter’s voice starts sounding like the Charlie Brown teacher?

It was an honor to work with such an amazing group of professionals. My eyes were opened and faces were given to the people who are diligently working to spread the truth about HPV and a vaccine that is cancer prevention. How exciting to see the position that Cervivor holds among the nations top scientists, doctors, and cancer organizations. We are part of that! We are on the front lines of eradicating HPV! Cervivor is right there, side by side, elbow to elbow! We are rolling up our sleeves and deep into the space of changing the narrative on this virus and educating the public on how acting now can impact generations to come! I was so proud to be a part of this National Roundtable, but I was even prouder to be representing Cervivor. We’re in!

 

Holly Lawson is a two year cervical cancer survivor. Cancer has left her with many challenges, including Chronic Kidney Disease, but she is fighting for her survivorship and currently training with the Ulman Cancer Fund in the Cancer to 5K Program. She is an active Cervivor Ambassdor, who is finding healing in advocacy and sharing her story.

Parents Deserve to Know

Parents Deserve to Know

By Kate Yglesias Houghton, President & CEO
Critical Mass: The Young Adult Cancer Alliance

Each year 70,000 teens and young adults will be diagnosed with cancer in the United States. We make up 8% of all cancer diagnoses. But young Americans impacted by cancer have seen little to no improvement in survival rates over the last four decades even as older adult mortality rates have declined by 25% since the 1990s.

Recently I joined a meeting in Washington, DC with Cervivor and other cervical cancer advocacy organizations. They shared some exciting news: we are on the brink of eliminating all deaths from cervical cancer.

My heart skipped a beat but my head reminded me of the cold, hard facts: cervical cancer is the second leading cause of cancer-related death for young women between 20 and 39.

The human papillomavirus (HPV) has been identified as the cause of 90% of cervical cancers and 70% of oral cancers found in the throat, neck, and tongue. The Centers for Disease Control and Prevention (CDC) report, “about 39,800 HPV-associated cancers occur in the United States each year: about 23,300 among women, and about 16,500 among men.”

Like polio, we can protect our children and grandchildren from HPV and HPV-related cancers. It is not only a vaccine recommended by countless public and private organizations, but available at no additional cost to the patient or state.

Unfortunately, parents still do not know that this vaccine is available and most effective given to children between the ages of 11 and 14. The American Cancer Society noted in their Cancer Facts & Figures 2018 report, “immunization rate remains low in the US; in 2016, 50% of girls 13-17 years – and only 36% at age 13 – were up to date with the HPV vaccination series.”

Legislation to require the HPV vaccine for school admission has been signed into law in Virginia and District of Columbia. In Rhode Island, the HPV vaccine was added to the list of immunizations needed for school entry and now 70% of children in that state are protected against this incurable, cancer-causing virus.

Parents deserve to know that they can protect their children from an incurable, cancer-causing virus. Adding the HPV vaccine to the list of immunizations needed to attend school is a seamless and already regulated way to get the information in the hands of parents.

Recently  I got to stand with Florida state Senator Jose Javier Rodriguez, Florida state Representative Amy Mercado, and Moffitt Cancer Center AYA Program Director Dr. Damon Reed in support of SB 1558 & HB 1343, the Women’s Cancer Prevention Act. This bill would add the HPV vaccine to the Florida list of required immunizations.

It is hard to explain, as a cancer survivor who grew up in South Florida, how it feels to know speaking up for young men and women in my home state could protect them from ever battling a disease that nearly took my life away. Please join me by adding your name to our petition. Let’s end cervical cancer for good.

About the author:

Kate Yglesias Houghton is President and CEO of Critical Mass: The Young Adult Cancer Alliance. Prior to joining Critical Mass, Kate served a senior staff member to a Chief Deputy Whip in the U.S. House of Representatives and leader of the national Democratic Party. In 2011, she served on President Barack Obama’s re-election campaign, promoting the benefits of the Affordable Care Act. While on the campaign trail, Kate was diagnosed with acute myeloid leukemia at just 27 years old. She successfully completed treatment over four months before rejoining the campaign. Kate teamed up with Critical Mass in 2013 and is now focused on ensuring the unique needs of Americans diagnosed with cancer between 15 and 39 years of age are fully recognized by decision makers from hospital administrators to policymakers in Washington, DC.

 

 

References:

“HPV and Cancer.” Centers for Disease Control and Prevention, Centers for Disease Control and Prevention, 6 Mar. 2017, www.cdc.gov/cancer/hpv/statistics/index.htm.
“The HPV Vaccine: Access and Use in the U.S.” The Henry J. Kaiser Family Foundation, 19 Oct. 2017, www.kff.org/womens-health-policy/fact-sheet/the-hpv-vaccine-access-and-use-in/.
Cancer Facts & Figures 2018. Atlanta: American Cancer Society; 2018. https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/annual-cancer-facts-and-figures/2018/cancer-facts-and-figures-2018.pdf
“Cancer statistics, 2018.” Siegel, Rebecca L., et al. CA: A Cancer Journal for Clinicians, 4 Jan. 2018, onlinelibrary.wiley.com/doi/10.3322/caac.21442/full
“HPV Vaccine: State Legislation and Statues.” National Conference on State Legislatures, 10 July 2017. http://www.ncsl.org/research/health/hpv-vaccine-state-legislation-and-statutes.aspx
“Despite benefits, vaccination rate for HPV remains low in Florida.” Girona, Jose Patino. Tampa Bay Times. 25 January 2017. http://www.tbo.com/news/crime/despite-benefits-vaccination-rate-for-hpv-remains-low-in-florida-20150125/Parents’ Support for School-Entry Requirements for Human Papillomavirus Vaccination: A National Study
William A. Calo, Melissa B. Gilkey, Parth D. Shah, Jennifer L. Moss and Noel T. Brewer
Cancer Epidemiol Biomarkers Prev August 19 2016 DOI: 10.1158/1055-9965.EPI-15-1159 http://cebp.aacrjournals.org/content/early/2016/08/16/1055-9965.EPI-15-1159