I Found Cervivor One Day After My Hysterectomy

On April 2, 2018 I was diagnosed with cervical cancer stage IB2. 

I remember thinking something was wrong. When I woke up in the middle of the night, I discovered I had been bleeding through the overnight protection I was using during my menstrual cycle. It was awful. I was so scared. I went through five pads in one night. I really thought I was going to bleed to death. This is when I knew something was not right. 

My last normal cervical cancer screening was in 2016 when I was living in Florida. I had missed my gynecological appointment in 2017 because I had recently moved to Charlotte, North Carolina. However, that was no excuse. I am usually very proactive with my cervical cancer screenings and I never miss an exam. 

I went to see my doctor on February 1, 2018 and directly told her about my menorrhagia. She seemed concerned. She immediately scheduled an ultrasound and a uterine biopsy. These both came back positive. I was feeling uneasy at this point. She suggested a hysterectomy. I felt extreme sadness. 

I felt alone even though my husband was right by my side praying for me, and with me. He said, if this surgery will make you feel better, let’s do it. My prayer to God was Psalm 41:3 “The Lord sustains him on his sickbed; in his illness you restore him to full health”. 

Even after my hysterectomy was scheduled I kept wondering, ‘why me?’ But I remembered God had a plan. So I prayed, “Lord, you are the Great Physician. Please heal me.” I truly believe in the power of prayer. My faith is very important to me and it means everything. I lean on Him in times of trouble. 

March 23, 2018 was the day! The preparation went really fast. All I remember is the beach ball smell from the oxygen mask. My surgery went well according to my doctor. I woke up feeling groggy from the medicine. I went immediately into menopause. My husband stayed with me overnight at the hospital.

Amy after surgery

After I was comfortably at home, I started researching and I searched Google using “Hysterectomy Recovery Time.” Along with side effects like menopause, and a whole long list of other things, I found Cervivor. This was one day after my hysterectomy! I found women speaking openly about their journey having cervical cancer and about hysterectomies. I was quite interested.

I kept reading different survivor stories. I could see myself in all of their stories. I did not virtually meet anyone as of yet, but looked on from afar. It took me a few months before I joined my first Creating Connections gathering. I called in from my mobile phone because I wasn’t as familiar with Zoom as I am now. And I was so nervous.

I remember Tamika saying, ‘I see a phone number without a name. Does this person want to introduce themselves?’ She repeated my number out loud and I said to myself, ‘oh,  that’s me!’. I spoke up and said, “I am a survivor of cervical cancer”. I think my voice cracked. I was so nervous. I also shared that I had just had surgery, went through six rounds of chemotherapy and 30 rounds of radiation.

I received so much love and kindness from these ladies. They understood me. They made me feel safe sharing what I had been through. I felt I like was not alone. Many of these women had also been through hysterectomies. I had found my people. My community. 

Amy ringing the bell

What I have learned is I am able to tell my story and I am not afraid to do so. I had reached out to my local TV station during Cervical Cancer Awareness Month in January 2020. This was something totally outside of my comfort zone. A few days passed and my nerves got the best of me. It was the day of the interview.

During the interview I shared my diagnoses and the fear I had when I first heard the words ‘cervical cancer’. The reporter asked what treatments I had and I informed her that I had chemotherapy, radiation and a hysterectomy. The latter made me really sad because I always wanted to be a mother and still long for it someday. I shared that even though previous pap tests had been normal, I had missed my 2017 screening. I believe if I had gone to my appointment, all of this would have been prevented. I talked about the importance of not missing your cervical cancer screenings. I ended with telling others that ‘you are not alone’. This interview played an important part in helping me share my story on a larger platform. The support and love from other Cervivor community members has been wonderful. They are truly like my new family. 

Some of my symptoms of cervical cancer were abnormal bleeding and heavy bleeding during menstruation. Also, bad cramps and clotting. I thought this was all normal, but as it progressed, I knew this was unusual. Today, I am four years cancer free! And I am a Cervivor advocate. Cervivor helped me find my voice, and I know the importance of making my survivorship count. I want women to know cervical cancer is preventable.

Amy Knox is a wife and patient advocate based in North Carolina, who was diagnosed with cervical cancer at age 44. She is passionate about reminding women to get screened for cervical cancer. She supports Cervivor and its mission in many ways, including being a social media influencer for the organization, as well using her faith to serve as a praying partner for those seeking that level of support. Learn more about Amy, by reading her Cervivor story here.

In Memoriam

We have to talk about the other side of cervical cancer. The side of loss.

These are just some from our community and beyond who have died from cervical cancer. Their stories not only matter, they need to be perpetually in motion. Everything we do as an organization includes their footprint — their hope for a different future.

We met some of them from attending Cervivor Schools together, and others we got to know in virtual settings like Creating Connections and through our Facebook group I’m A Cervivor!. Some people come into our community seeking support from others who truly understand the burden of cervical cancer and others decide that patient advocacy is their calling.

It is truly our stories that connect us. These stories that we read and reread, often finding an intersection with so many of them. These stories continue to fuel us, inspire us and give us our wings, as Holly Lawson would often say.

Many of these women never hesitated in offering support to others. Each brought their own strength, humor and honesty to so many inside and outside of Cervivor. Like Grace, who found Cervivor in 2020 and was a huge presence within our virtual community. Many were also dedicated advocates who were shame resilient and knew they wanted to transform the narrative of cervical cancer.

Nothing about having or living with cervical cancer is easy and dying from it brings a great sadness that ripples through our community, leaving us devastated yet profoundly grateful for the experiences we shared. Together we find comfort and the strength to move forward with purpose.

The fact that our sisters, mothers, daughters, partners and friends continue to die from cervical cancer means our work and support is crucial. We will always remember those who sought connection, an understanding of their disease or the willingness to shine a light on cervical cancer.

Cervical cancer is the fourth most common cancer in women. In 2018, there were approximately 570,000 new cases of cervical cancer diagnosed globally and about 311,000 died from the disease. Cervivor wants to change these statistics.

By honoring these and so many other women, we make a promise to carry on their legacies in the work we do every day. Together. We will not stop.

Jeanette Acosta… We will not stop.

Grace Chantiam Bracci… We will not stop.

Laura Brennan… We will not stop.

Curtissa Clay… We will not stop.

Amanda Filkins… We will not stop.

Kristen Forbes… We will not stop.

Debbie Jane Forsyth… We will not stop.

Rebekah Elizabeth Fowler Griffin… We will not stop.

Dawn Fraga-Mejia… We will not stop.

Lisa Riebersal Moore… We will not stop.

Alissa Gores… We will not stop.

Elizabeth (Lizzi) Marie Haas… We will not stop.

Princess Ruth Joanna Howard… We will not stop.

Dr. Tessa Maria Klein… We will not stop.

Holly Latrelle Lawson… We will not stop.

Christine Lerch… We will not stop.

Heather Lyn Martin… We will not stop.

Angela Mckibben… We will not stop.

Catherine “Cat” Odderstol… We will not stop.

Iona Pierre… We will not stop.

Kelly Pozzoli… We will not stop.

Brittaini Qadri… We will not stop.

Nanette Quitanilla… We will not stop.

Teolita Rickenbacker… We will not stop.

Jillian Scalfani… We will not stop.

Erica Frazier Stum… We will not stop.

Brittany Wagner… We will not stop.

Mary Lucille Fuller Walker… We will not stop.

Becky Wallace… We will not stop.

Carneese J. Williams-Ackles… We will not stop.

If you would like to honor a loved one who has passed from cervical cancer, please fill out this form.