HPV related cancer Archives - Page 2 of 4

Cervivor’s 12th patient advocacy training event in Chicago was one for the books! We had some of the most inspiring and informative speakers during our 2-day event, along with memory-making fun.

We kicked it off with our Welcome Reception that featured comedian and cervical cancer survivor Lisa Gopman. This wonder women powerhouse made her below-the-belt cancer funny and oh-so relatable, especially to a crowd of Cervivors! Lisa was so inspired by our program and the women she met that she stayed with us for the entire weekend.

Day one was our Wellness Day where Tamika and Lead Advocacy Educator Heather Banks share the importance of growing Cervivor’s footprint and the power of our stories. Honing in on those important messages, we heard from Cervivor Ambassador’s Emily Hoffman and Morgan Newmann on how they found their collective Cervivor voice. In between our sessions, we practiced mindful awareness, restful restoration and reclaimed our Yin energy with Lauren Mansell.

Cervivor Ambassador’s Paulette Apostolou and Carol Lacey presented an interactive session, Healing Through Writing, started by our very own Erica Frasier Stum. We had a another impactful session with Dr. Amy Siston on living through the emotional trauma that is cancer. And for the second year, we heard from the dynamic Roshanda Pratt who talked about knowing our why and how that can propel us in the work we do as Cervivors.

“I’m forever impacted by Cervivor School. I knew it would be inspiring and educational, but I did not expect it to be life changing in terms of how my story goes. I feel braver, stronger and more confident with my story then I ever have been before. I’m no longer leaving it buried like it has been for the last 6 years. Speaking about it in a way that can help educate others makes me feel powerful over cancer. It doesn’t scare me anymore!”
– Cervivor Amy Dent, Australia, Diagnosis: stage 1b1 cervical cancer

We ended the evening with dinner together and our Pajama Jam, where Dr. Siston lead us through a discussion on our bodies after cancer and how that can effect our sexual health. Girl talk after cancer looks and feels different and there is something safe and sacred about being in a room with women who truly ‘get it’.

Day two is our Medical Day where we get the latest and greatest on HPV, the HPV vaccine and cervical cancer screening. Dr. Sherrie Wellington started the day talking about cervical cancer disparities and thinking beyond our own communities. Cervical cancer is global issue, and even in our own communities there are so many who do not have access to proper screening or are uninformed about the HPV vaccine. Dr. Wellington used the term, “knowledge gap” and how we as patient advocates can fill that much needed knowledge gap.

Dr. Nita Lee, who was instrumental in helping with this year’s speaker lineup, talked about HPV and it’s connection to cervical cancer. Dr. Lee and Paulette also talked about how Cervivors’ and their oncology team can make the best partnership when it comes to reaching more women in one’s own community. We also heard from Dr. Andrea Loberg and Dr. Marielle Fricchione on cervical cancer screening guidelines and vaccination as presentation.

*“I just can’t stop telling people how life changing and powerful it was for me.”*
*– Cervivor Becky Wallace, California, Diagnosis: Adenosquamous carcinoma stage 1BII*

Jennifer Sienko with the American Cancer Society & the HPV Roundtable joined us again this year to talk about being armed and compassionate advocates when it comes to talking about HPV facts. We also heard from Cervivor Ambassador’s Maria Franklin and Tina Vetreno who talked about contributing to Cervivor’s footprint and the importance that the tile ‘Cervivor Ambassador’ holds.

We closed out the weekend with Tamika presenting the 2019 Cervivor Champion Award to one of our Leadership team members, Maria Franklin. A much deserved accolade to a woman who tirelessly works in and outside our Latinx community, educating and guiding, as well as managing our Cervivor Espanol site. Congratulations Maria!

Our newest Cervivor School graduates hold the promise of making their survivorship count by using their newfound Cervivor knowledge to educate their communities and beyond. As Maria so passionately said, “Every single one of us has to do our part. Ending cervical cancer is our job.”

“Cervivor school showed me what I really have to offer as an ambassador and how to come out of my shell. I left knowing that I was not alone. I learned way more about myself and what I can offer. I felt like I now I am part of something that is going to be a part of changing lives. Cancer will not stop me and that I will be a voice to educate others. I am a fighter and Cervivor School showed me no one is alone. It was the best time and the best learning experience I have had. It definitely changed my life.”
– Cervivor Tracy Jimenez, Colorado, Diagnosis: Stage 2b

Team Cervivor wishes all our new and returning Ambassador’s much success and wellness as you move through your journey with Cervivor.

Every year, as my birthday approaches, I go into reflection mode and start thinking about life. Life as it was. Life as it is. Life that almost wasn’t.

My life was forever altered by a diagnosis of cervical cancer at the age of 27. The days following the diagnosis were rough. Within a month of my diagnosis I landed in the hospital with shortness of breath and blood counts so low I needed my first blood transfusion. I spent exactly 30 days in the hospital, not sure if I was coming out alive. If you were around me at that time, you know how terrifying this period was, you know that my coming out of that hospital alive was nothing but a miracle (those were my pneumologist’s actual words). So here I am, celebrating #48 (or the 21st birthday I get to celebrate post diagnosis).

Survival… Life after cancer… This is something that doesn’t happen to many of the women diagnosed with cervical cancer. Within the last year my Cervivor community lost 4 beautiful women in the prime of their lives as a consequence of cervical cancer. In the USA, where approximately 13,000 women are diagnosed with cancer in the last year, 4,200 women will die due to this cancer. Some people may look at these numbers and think they are small (I’ve been told that before); well let me tell you this: These numbers matter. These numbers matter to the women diagnosed with cancer, hoping they are on the right side of this statistics. These numbers matter to the families of the women who die each year, to the young children that will grow up without their mom… These numbers matter to those of us who survive this disease, because we know how close we cut it, how nerve wracking every follow up is, because the cancer may be gone, but the damage it did to our bodies is permanent (think of infertility, ostomies, lymphedema, neuropathy, bladder problems, just to mention a few). Most importantly, these numbers matter because we can change them. We can change the statistics because we have the means to prevent cervical cancer: The HPV vaccination is the #1 way to prevent cervical cancer. Plain and simple. A vaccine can prevent cervical cancer. I don’t think it can be any easier than that.

We can literally protect our next generations from cancer-causing HPV strains by simply vaccinating our children (as early as 9yrs. old). It is an important vaccine because it would protect them from the high risk strains that are linked to cervical cancer (and cancer of the vulva, vagina, anus, penis, oropharyngeal (back of the throat). Cervical cancer will be like polio; gone, a thing of the past. I would love to see cervical cancer disappear and I believe that is possible with this vaccine.

So each year, around this time, that sense of duty to those who did not make it demands that I tell you to vaccinate your children. That 27 yr. old Maria, terrified at hearing the news that would change her life forever demands that I tell you to vaccinate your children. It is imperative that you do because this is the one cancer we can basically eradicate. Every now and then I see these prayer chains pop up in social media asking you to share a prayer to find a cure for cancer; well, we now have a vaccination that can prevent a cancer and that is an answered prayer.

Celebrate my 48th birthday with me by scheduling your well-woman exam and vaccinating your children against HPV. Maria Franklin is a 20-year cervical cancer survivor who is also a part of Cervivor Leadership, and heads our Latina advocacy efforts. She was awarded our 2019 Cervivor Champion Award. Watch her story here.