Breaking the Silence: Cervical Cancer Awareness in the Hispanic Community

As Hispanic Heritage Month ends, I find myself reflecting not just on our vibrant culture and history but also on an issue that deeply affects our community—cervical cancer. This preventable disease continues to claim the lives of too many Latinas, both in the United States and across Latin America. As a survivor, advocate, and member of the Cervivor community, this is personal to me, and it’s personal to so many of us.

Cervivor Español members during the 2024 Communities of Color Cervivor Care’s community outreach day

Cervical cancer is one of the few cancers that can be prevented through vaccines and regular screenings like Pap tests and HPV tests. Yet, Hispanic women in the U.S. face alarming disparities when it comes to this disease. We are diagnosed with cervical cancer at higher rates than non-Hispanic women and are more likely to die from it. The reasons for these inequities are complex, but they are deeply rooted in unequal access to healthcare, language barriers, lack of information, and cultural stigmas.

The Disparities We Face

Did you know that Hispanic women in the U.S. are 40% more likely to be diagnosed with cervical cancer than non-Hispanic white women? And tragically, we are 26% more likely to die from it. This isn’t because the disease is more aggressive in our community—it’s because many of us aren’t getting the preventive care we need. Whether it’s due to lack of insurance, language barriers, or even the stigma surrounding gynecological health, too many Latinas are falling through the cracks.

Gilma Pereda, a fellow Cervivor Ambassador, puts it perfectly: “Cervical cancer affects many Latinxs in the U.S. This illness is pretty much preventable with vaccination and regular screenings. Still, many people don’t have enough information to care for their health properly.” 

Patti Murrillo-Casa, another Cervivor Ambassador, emphasizes the importance of advocacy: “It gives me the opportunity to give a voice to the voiceless, especially those who are underrepresented.” 

This lack of information and access to care is something we must change—not just for ourselves, but for future generations. Our community faces unique challenges, and many of us don’t feel comfortable talking about things like HPV or cervical cancer. But these conversations are crucial if we want to save lives. Our mission is clear: we need to bring education and awareness to every corner of our community, in every language, and through every platform.

The Power of Prevention

What makes this so heartbreaking is that cervical cancer is largely preventable. The HPV vaccine can protect against the virus that causes cervical cancer, and regular Pap tests and HPV tests can catch abnormal cells before they become cancerous. Yet, many women in our community don’t know this. The lack of education and language barriers are major issues that prevent the information from getting out, compounded by the stigma in our community.

Yvette Torres, shares: “I advocate because I’m still here!! After being diagnosed 11 years ago, I want to help end cervical cancer and educate others by sharing my story.” 

Dulcely Tavarez brings a different perspective to this: “I promote cervical cancer prevention to help ensure that other women can maintain their chances of motherhood.” 

This passion and determination reflect the heart of our advocacy. We are survivors, and we share our stories because we don’t want anyone else to feel alone on this journey. For many women, cervical cancer doesn’t just threaten their lives—it can also take away their ability to have children. These words remind us of what’s at stake.

Ending the Stigma

One of the biggest barriers we face in the Hispanic community is the stigma around cervical cancer and HPV. Many of us grew up in households where talking about sexual health was taboo, and for some, the idea of getting an HPV vaccine or a Pap test feels uncomfortable or even shameful. But here’s the truth: HPV is incredibly common, and getting tested or vaccinated isn’t something to be ashamed of—it’s a form of self-care, a way to protect yourself and your loved ones.

Karla Chavez

I’ve experienced this firsthand. As a survivor, I’ve seen the way stigma and fear can prevent women from getting the care they need. But I’ve also seen the power of community, of sharing our stories and breaking the silence. That’s why I advocate: because I don’t want my story to repeat itself in others. I don’t want anyone to feel alone.

A Call to Action

So, what can we do? First and foremost, if you have a cervix, make sure you’re getting your regular cervical cancer screenings. These screenings can literally save your life. The HPV vaccine is safe, effective, and a powerful tool in preventing cervical cancer. Talk to your doctor about getting vaccinated.

For healthcare providers, we need you to help break down the barriers that prevent our community from accessing care. Provide information in Spanish, offer culturally sensitive care, and work to make sure that every woman—regardless of her background—feels safe and empowered to take control of her health.

And for everyone else, let’s end the stigma. Talk about cervical cancer. Talk about HPV. Share your story or information with your friends, your family, and your community. The more we normalize these conversations, the more lives we can save.

KARLA CHÁVEZ, a civil engineer and amigurumi enthusiast from Honduras, is a seven-year cervical and thyroid cancer survivor and proud ostomate. As a Cervivor Ambassador and co-lead of the Cervivor Español community, Karla is dedicated to making a difference for women both in her country and globally. She was honored with the 2020 Brittany Wagner Social Media Advocacy Award and was named a Cervivor Champion in 2022. Karla represents Cervivor, Inc. on the World Health Organization (WHO)’s Advisory Panel for Living Recommendations and Systematic Reviews on Screening and Treatment to Prevent Cervical Cancer.

Teal Blue Japan: An Interview with Michiyo Namba

May is Asian American Pacific Islander Month! As we continue to celebrate, check out this interview between Cervivor Ambassador and Cervivor Japan Liaison, Anna Ogo, and Ms. Michiyo Namba from Japan. Anna met Michiyo through Tamika Felder, Founder & Chief Visionary of Cervivor during Cervivor School Nashville. In this article, Michiyo shares her story with cervical cancer and the challenges the Japanese community face with this disease. 

Anna: Can you start by telling us a little more about yourself?

Michiyo: My name is Michiyo Namba, President of Think Pearl. I started my own PR and event casting company for women when I was 29 years old, got married at 31, and had a baby at 33. In 2009, I was diagnosed with cervical cancer at 36 years old. I wish I had known more about cervical cancer, vaccines, and screening before I got cancer; and this was my reason I started an organization called Think Pearl. That was right before my hysterectomy surgery in December of the same year, 14 years ago. Our mission is to make everyone healthier and happier both physically and mentally, through our education and advocacy on cancer prevention and women’s health including cervical cancer awareness.

Anna: Tell me about your cancer journey in Japan. How does your story begin? How did you feel about your diagnosis?

Michiyo: In the summer of 2009, I had a routine pap test, which came out abnormal. I had no symptoms at that time. In January 2010, I underwent a radical hysterectomy, and it was confirmed that I had stage 1A1 cervical cancer. I had the option of preserving my uterus, but I chose to have a hysterectomy because of the size of my tumor. I immediately thought “Cancer = death” as I didn’t have any knowledge about it. I asked a friend of mine, who was a gynecologist, for explanations about my diagnosis, which helped to sort out my feelings. As I researched cervical cancer more, I learned that this disease was not uncommon, and it didn’t make sense to me that  I had never heard of this disease before.

Anna: How did you share the news with your family and friends? What was their response and what kind of support did you have?

Michiyo: I informed my family and friends after I had come to terms with the situation. It was reassuring to hear that they would support me no matter what happened during treatment, as long as my life was not in danger. The doctor had told me that I could continue with my usual routine until the surgery, which made me feel conflicted. However, my family and friends were there for me as usual, and their constant presence made it easier for me to share my troubles without feeling like a burden.

Anna: Can you share with us about your treatment? What were the most difficult things? How are you doing now? Has your life changed after treatment?

Michiyo: I underwent a radical hysterectomy and was hospitalized for three weeks (which is longer than the current average for this procedure at the time of my surgery in 2009). I did not undergo any other treatments, such as chemotherapy or radiation. Realizing that people can die young and unexpectedly and that the risk of death can be so close, was the most difficult and challenging aspect for me. It has been about 14 years since my surgery, and I am in remission. There were not many physical changes in my daily life. However, my perspective on life has changed as I feel like I have been given a second chance, and I want to contribute to society in any way I can.

Anna: Let’s talk about the Teal Blue Japan project. What was your inspiration for the project?

Michiyo: In 2020, the World Health Organization (WHO) announced a global strategy to eliminate cervical cancer and an event was held on November 17 each year to light up landmarks around the world in the teal blue color associated with cervical cancer elimination efforts. The event was organized by WHO, and it was first held in Kyoto in 2020. In 2021, the Teal Blue Japan campaign was launched nationwide to promote cervical cancer screening and to improve understanding of the proper knowledge about the HPV vaccine in cooperation with local communities. The campaign is hosted by Think Pearl, but doctors and physicians across Japan are actively working on educating and raising awareness in their respective communities. The success of the campaign is due to the support and contributions of like-minded individuals who believe that doing good for society is important, rather than just the know-how of organizing campaigns, which is the core business of Think Pearl.

Anna: What challenges do you see regarding cervical cancer in Japan? What would you like to see for the future of cervical cancer in Japan?

Michiyo: In order to make impactful communication, I believe that all stakeholders, including the government, education, healthcare, and media, need to work together. While each is working to improve the situation in their own position, it seems that information has not yet reached people all over Japan. Everyone has knowledge about cervical cancer and its risks, and everyone is properly informed about the choice of getting vaccinated against HPV.

Anna: Looking back at your cancer journey, what are some of the cultural obstacles you had to overcome? What advice do you have for other women diagnosed with cancer in Japan?

Michiyo: Since the primary cause of cervical cancer is the HPV infection and that is related to sex, I think that stigma towards sex are similarly present in many cultures and maybe cannot be erased. However, in Japan, we have various projects in progress to promote cervical cancer prevention, early detection, and so on, and to implement those systems into society and educational systems. I believe that if we continue to progress in this direction, we can definitely overcome these barriers. In Japan, there are many fellow cancer survivors around you, even if you don’t know it. I think there may be times during treatment when it is very difficult and you feel hopeless. However, I hope you won’t hesitate to rely on those around you and ask for help. Japan has some of the world’s best treatment options available. Trust in reliable medical professionals, take your time and try to find happiness in even the smallest things every day.

Cervivor would like to extend our deepest gratitude to Michiyo for sharing her cervical cancer journey from patient to advocate with us and to Anna for her dedication to bringing more awareness globally to cervical cancer awareness and prevention.