We Are the Legacy: Black Survivor Voices Shaping a Future Without Cervical Cancer

By Kyle Minnis, Cervivor Communications Assistant

When we talk about Black History Month, we often focus on the names everyone knows: movement builders, artists, scientists, and changemakers whose impact is still felt today. In cervical cancer, there is another history — one often unnamed: a history of medical mistrust that continues to shape what Black individuals with a cervix experience in exam rooms and oncology wards.

At Cervivor School Kansas City, Tiera was named a 2025 Cervivor Champion.

Cervivor Ambassador and Lead of Cervivor Noir Tiera Wade, who recently wrote a blog post celebrating Black physicians addressing cervical cancer disparities, says this reality shaped her own experience. Many Black women report that their pain and symptoms are minimized or dismissed.

“I was experiencing back pain, vaginal bleeding, and pain during intercourse, but I didn’t realize it was all preventable,” says the Akron, Ohio, resident, who was diagnosed during COVID after waiting months to be treated. “If I had been properly educated and prioritized as an African American woman — made aware of what HPV was — I would have been more proactive.”

During a recent panel Tiera moderated at the 2026 Cervical Cancer Summit Powered by Cervivor, Inc., Dr. Paris Thomas, PhD, MS, of Equal Hope in Chicago, shared how her grandmother often told the story of why her own mother never delivered her children in a hospital. After losing a baby there, she believed hospitals were unsafe and never returned. That pain carried across generations.

“Trust starts in our homes,” Dr. Thomas explained. And rebuilding it requires working within communities — asking what they need and creating care that feels familiar and respectful.

Tiera (second from left) moderated a Community In Action panel at the 2026 Cervical Cancer Summit featuring public health experts, including Dr. Thomas (at right). 

For Tiera, navigating treatment alone during the pandemic became an unexpected source of strength. “Because my treatment happened in the middle of COVID, I really had to use my voice,” she said. “I had to show up for myself. It gave me my power back.”

This February, Cervivor honors Black History Month by centering the voices of Black survivors — like Tiera and her fellow Black Cervivor community members featured below — while advancing its critical work to address persistent inequities and support individuals of color affected by cervical cancer.

From History to Right Now

Cervical cancer’s story cannot be told without Black women. In the 1950s, Henrietta Lacks, a young Black mother treated for cervical cancer, had her cells taken without her consent. Those cells became the first immortal human cell line and helped pave the way for countless scientific breakthroughs, including research that ultimately contributed to HPV vaccines.

Henrietta Lacks

Enslaved Black women, often called the “Mothers of Gynecology,” were also subjected to experimentation without anesthesia or consent. That lingering mistrust still echoes today, shaping how safe it feels to seek care, ask questions, or advocate for oneself.

The disparities persist. Black women are more likely to die from cervical cancer than any other racial or ethnic group. They are more often diagnosed at a later stage, even though screening rates are often similar to or higher than those of white women. The issue is not simply whether a Pap or HPV test is done. It is what happens before and after: whether symptoms are taken seriously, abnormal results are followed up on, and treatment is accessible and affordable.

Barriers extend beyond the exam room — insurance gaps, transportation, childcare, time off work, and broader systemic inequities all affect access.

At the Summit, Dr. Thomas highlighted a stark example from Chicago. Brachytherapy centers — critical for cervical cancer treatment — are not located in the neighborhoods with the highest mortality rates. In Washington Park, a predominantly Black neighborhood with a lower median income, women are about 1.5 times more likely to die from cervical cancer than women in neighboring Hyde Park, just across the street and home to the University of Chicago.

“The difference isn’t distance,” Dr. Thomas said. “It’s economics. It’s access. It’s whether the system is designed with you in mind.”

 At the 2026 Summit, Dr. Thomas shared insights on Chicago communities and the disproportionate cervical cancer outcomes they face.

We Are the Legacy: Black Cervivor Stories that Tell the Truth

Every statistic about cervical cancer has faces and families behind it. Here are just some stories from Black members of the Cervivor community: 

Shondria’s Story

Shondria Vaughns’s cervical cancer diagnosis forced her to make an unimaginable choice: giving up her dream of having more children to save her life. In 2008, she underwent a radical hysterectomy after a 1-centimeter tumor was discovered. Later, she learned that several women in her family had faced gynecologic cancers, underscoring the importance of knowing your medical history. Today, she shares her story to stress that awareness and regular Pap tests can protect lives.

Tukesia’s Story

At 44, Tukesia’s life changed suddenly when a severe hemorrhage led to a Stage IV cervical cancer diagnosis. After coding in the hospital from blood loss, she endured weeks of radiation, chemotherapy, and brachytherapy while fighting to stay strong for her family. The journey tested her physically and emotionally, but it also strengthened her faith and resolve. Now a 2025 Cervivor School graduate, she advocates for vaccination and reminds women that they are never alone. Watch this recent video on CervivorTV about Tukesia’s cervical cancer journey.

Urika’s Story

Urika Fraser faced not only cervical cancer, but also insurance barriers that delayed her treatment. Her doctor ultimately admitted her to the hospital to begin chemotherapy, even arranging radiation at no cost. She spent more than six weeks hospitalized and later underwent lung surgery after the cancer spread. Through it all, Urika remained determined to fight for her life and her three children.

Felicia’s Story

Felicia Fe Fea endured years of severe bleeding and repeated dismissal of her concerns, despite a history of abnormal Pap tests. After months of hemorrhaging and a blood transfusion, she underwent a hysterectomy, only to learn she had stage 2B cervical cancer. Her cervix was overtaken by a tumor that had gone undiagnosed. Today, she speaks out about the importance of self-advocacy and making sure patients are truly heard.

Each of these stories reveals something the data alone cannot convey. They reveal the emotional labor of self-advocacy, the exhaustion of navigating systems not designed with Black women in mind, and the resilience of survivors pushing forward — not only for themselves, but for those who will come after them.

Finding Community through Cervivor

Healing from cervical cancer and navigating survivorship are deeply emotional and cultural experiences. For Black women, that means having spaces where they do not have to explain or downplay who they are to be heard.

That is why Cervivor Noir exists. Our community for Black women impacted by cervical cancer creates space to speak openly about racism and bias in healthcare, fears around family and fertility, and the role faith, culture, and community play in survivorship. There is a private Facebook group, and virtual Cervivor Noir meetups are every third Saturday of the month at 2 p.m. EST (register for the next one here).

Tiera (top right) and members of Cervivor Noir at this month’s virtual meetup.

“It’s a place where someone can say, ‘This happened to me,’ and hear, ‘I believe you — I’ve been there,’” says Cervivor Founder and Chief Visionary Tamika Felder, who launched the organization 21 years ago after her own diagnosis. “When I went looking for support, I found no voices that looked or sounded like mine.”

Recently, Tamika reflected on this early journey in an interview with ESSENCE, sharing the very real barriers to care she faced as a freelance TV producer in Washington, D.C., without health insurance — circumstances that led her to put off regular screenings.

Cervivor Founder Tamika during her time as a freelance TV producer, when she was diagnosed with cervical cancer.

“I thought, ‘I don’t need it… if I get sick, I’ll just go to the emergency room,’” she told ESSENCE. As a result, she went several years without routine screenings and only discovered her cancer after a doctor treating her for a painful boil under her arm asked when she had last had a Pap test. By then, treatment was urgent. She needed a hysterectomy immediately, leaving no time — and no financial flexibility — to pursue fertility preservation.

For much of her adult life, Tamika believed that meant she would never have children. Since then, she has spoken openly about normalizing all fertility journeys — including what it’s like to be a Black mom to a non-Black toddler, her son, Chayton, the original “Cervivor Baby,” who was born through embryo donation and gestational surrogacy in November 2022.

Tamika’s lived experience — along with that of so many Black women and other women of color — is exactly why Cervivor’s events and programs are intentionally designed to center them, not merely include them. Through retreats, advocacy training, and community conversations, Cervivor is building spaces where Black survivors feel seen, supported, and empowered.

This Black History Month, we honor the Black women whose bodies and lives shaped modern gynecology and cancer research, often without consent or recognition. We also honor today’s Black Cervivors —Tiera, Shondria, Tukesia, Urika, and Felicia Fe Fea — who are turning their stories into blueprints for change and their communities into sources of strength.

When Black survivors’ voices are prioritized, we move closer to a future where cervical cancer is not another chapter in injustice, but a story of collective courage, community, and change.

About the Author

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Kyle Minnis is a recent graduate of Strategic Communications at the University of Kansas with a passion for digital media, storytelling, and audience engagement. He has experience in content strategy and media production. Kyle is especially interested in the intersection of media, branding, and digital growth.

Cultural Perspectives: Understanding the Impact of Cervical Cancer on Black Women

Cervical cancer is a global health concern that affects women of all races and ethnicities. However, when we look into the cultural nuances surrounding healthcare, it becomes evident that certain communities face unique challenges. 

Black women, despite advancements in healthcare, continue to face disproportionate rates of cervical cancer. The reasons behind these disparities are complex and rooted in a combination of socioeconomic factors, healthcare access, and cultural considerations. To truly understand the impact, we need to listen to the stories of Black women who have faced the challenges of cervical cancer head-on.

Impactful Stories of Black Cervical Cancer Survivors

Shondria’s Journey: Navigating Societal Norms: “Giving up my dream of having children with the man I loved and giving Romeo a sibling was one of the hardest things to deal with. After Matt and I got married, people automatically asked when were we going to have a baby. My son was from a previous relationship and Matt didn’t have any kids and I was hoping that later down the line if we were still together we would be able to have a child or 2. I even told my doctor that I didn’t want to give up my reproductive rights but I still chose the supposed better option. On March 27, 2008, I had my radical hysterectomy where they removed my cervix, the top part of my vagina, my uterus, my Fallopian tubes, and about 20 lymph nodes. I requested a copy of my surgery report that showed that the cancer was about 1 cm. Everything else was negative for cancer. Raising awareness is so important and I don’t know how many times at work I hear my female coworkers say they don’t think they need a Pap or they’re too afraid to find out if it’s bad news. Also, knowing your family’s medical history is so important! My mom never told me that other women in our family have had cervical cancer, ovarian cancer, and vulva cancer, which is extremely important to know. Knowledge is power!”

Urika’s Story In Overcoming Systemic Barriers: “Before starting my chemo treatments, my doctor at the time was having issues with my insurance to get my treatment started. She was beginning to get frustrated with my health insurance company because she wasn’t able to begin my treatments without approval. I received a call one day from my doctor saying, “Ms. Fraser. you are young and you have three kids to live for. I can no longer wait for your insurance to be approved. So my next step is to have you come into the emergency room and be admitted into the hospital.” At this point, I had no other choice but to believe in my doctor and do as I was told. I was checked in and admitted. I was mighty scared. My doctor came in and explained to me my chemo plan. She informed me the only way for me to begin treatment was for her to keep me in the hospital and bill my insurance later. After talking to me about my treatments, she brought in the doctor who would be doing my radiation treatments and he informed me he would be doing my radiation treatments for free. I stayed in the hospital for over a month and a half. I even celebrated my birthday in the hospital all while doing chemo and radiation. Eventually, I was released from the hospital and able to go home – not to my kids but instead to a family member’s house because my house was over an hour away from the hospital. I continued my treatments and eventually the tumor was no longer there. However, the cancer had spread to my lungs. I had to have a small piece of my lung removed and started chemo all over again – and this time I lost my hair.”

Felicia Fe Fea’s Advocacy: Empowering Through Education: “I had been experiencing heavier periods for numerous years, but thought nothing of it until in 2017 when the bleeding turned into flowing out like a water fountain and giant blood clots that would randomly fall out. I had gotten to the point of having to wear Depends. I was pale and weak. I kept advocating for myself by asking questions to my OBGYN and my advocating and questioning were ignored and minimized. I was told it may be hormonal and I might be going through menopause. Even though I had been with the same OBGYN for over ten years, who knew my history of abnormal paps and who had performed two LEEPs on me which supposedly burned off the precancerous cells, had never checked for cervical cancer. Instead, they told me to eat rare steak and liver to raise my iron levels, shot me up with hormones, and conducted an ablation on me going straight through my cervix. During my ablation, the OBGYN talked about how she had not seen anyone bleed so much during this procedure but when I questioned her she stated how much experience she had and how she had done 100’s of these. As I bleed I was sent home with no answers. I continued to basically hemorrhage for months. I couldn’t work because large blood clots would just fall out randomly and the Depends could not even hold them. The doctor kept trying to force me back to work and kept suggesting a hysterectomy with no real diagnosis other than the heavy bleeding. I was so weak and tired of wearing Depends so I decided to go along with the hysterectomy. I had labs done and my numbers were so low I had to have a blood transfusion before I could have surgery. Not once did my OBGYN say “Let’s check for cancer”; even knowing my history, as if I were an experiment (much like the Mothers of Gynecology Anarcha, Lucy, and Betsey). I had my transfusion and was off to surgery in March 2018. The surgeon contacted me and stated she would be sending my cervix and uterus to pathology because it was “torn up”. After that, I got the ‘you have cancer’ call. My entire cervix was a tumor and I had stage 2B cervical cancer that had moved into my uterus.”

Moving Forward

Understanding the impact of cervical cancer on Black women requires a holistic approach that addresses cultural, social, and systemic factors. It’s crucial to amplify these stories, cultivate open dialogue, and promote education within communities. By acknowledging the unique challenges faced by Black women, we can work towards creating a healthcare landscape that is inclusive, equitable, and supportive for all. We can break the barriers and ensure that no one is left behind in the fight against cervical cancer.

Are you a cervical cancer patient, survivor, or thriver that identifies as Black? Share your story at Cervivor.org! Then join our private group, Cervivor Noir to gain support and learn how your story can create change.