cervical cancer summit

Embracing Fearlessness After a Cervical Cancer Diagnosis

Life often takes unexpected turns, and sometimes these twists reveal a sense of fearlessness we never knew we had. For many in the Cervivor community, this unexpected resilience and strength begins with one of the scariest challenges to confront: a cervical cancer diagnosis. The experience forces us to confront our deepest fears – which some of our Cervivors share below – and find the courage that changes our lives forever.

The Diagnosis

Receiving a cervical cancer diagnosis shakes your world. Fear of the unknown, anxiety about treatment, and worries about the future overwhelm your mind. Initially, many of us feel powerless against this invasive disease. The thought of surgery, chemotherapy, and the potential long-term effects are daunting. 

But let Julie Groob, a survivor who volunteers with Cervivor and attended the 2024 Cervical Cancer Summit, explain how the cervical cancer diagnosis was for her:  

“It’s weird to be relieved to hear the words, “You have cancer,” but that was my reaction. After eight years of recurrent cervical dysplasia, finally, the world of cancer support and services was open to me. Those eight years were lonely, but with a cervical cancer diagnosis, I found the Cervivor community as well as cervical cancer patient advocacy and purpose. Cervivor connected me with women on a very similar journey, who embraced me completely. By meeting them in person, I connected with them beyond our shared cancer diagnosis. Cervivor taught me that my voice, my humor, just being me, and sharing my story could change and save lives. Cancer let me in on a little secret, life is precious, so live life fiercely and joyfully, always.” 

Discovering Cervivor, Inc.

Like Julie, other Cervivor community members often find solace in shared experiences and strength in unity, from attending our monthly virtual cervical cancer support group, Creating Connections, to attending live events like the Cervical Cancer Summit, Communities of Color Retreat, and the premiere cervical cancer patient advocacy training program, Cervivor School. (Read about the recent Cervivor School Minneapolis, which marked the 10th year of the unique program.) 

Here’s how Sara Johney, who graduated from the aforementioned Cervivor School, found her way to Cervivor’s cervical cancer support organization: 

“It was early in my cancer journey, just around the time I was diagnosed, when I found Cervivor. As I developed recurrences and challenges, I never knew how much I would come to depend on my Cervivor sisters. The strength and resilience I learned from these women have helped me in the last few years and even today. I know I will not go down without a fight and anything is possible with God, my family, and the Cervivor community.” 

Empowerment Through Community

Through Cervivor, Inc., many in our community members discover that fearlessness is not about the absence of fear but the courage to act in spite of it. By participating in cervical cancer awareness campaigns, advocacy, and support groups, our members often transform their fear into fuel for change.

Gwendolyn Jackson, who was recently given the Erica Frazier Stum Living Life with Cancer Award and is currently going through cervical cancer treatment, shares: 

“I was looking for a support group for cervical cancer and when I did a Google search, Cervivor came up. Since then, Cervivor has taught me that my story matters and the true definition of advocating for myself and others. I am living fearlessly with stage IVB cervical cancer because of my relationship with Cervivor, which connected me to a clinical trial when I needed it most. The organization also taught me that I’m more than a cancer patient and that I have a voice that can change lives, heal others, and prevent this from happening to anyone else. Cervivor has equipped me to be informed, to feel empowered, and to be alive.”

Finally Finding Fearlessness

A cervical cancer diagnosis can shape your story, but – as Gwendolyn pointed out – it doesn’t have to define you. Fearlessness isn’t something achieved overnight; it’s a journey. Embracing a fearless mindset happens through support, education, and collective strength. 

Here are some ways that you can make a difference in your life and others:  

Together, let’s break the silence surrounding cervical cancer and cultivate a community of powerful patients, survivors, and advocates.

Pioneering Moments in Cervical Cancer with Tamika Felder

Cervical cancer is a global health problem that disproportionately affects Black women. Statistics reveal that Black women are twice as likely to be diagnosed with and die from cervical cancer than White women. This disparity underscores the urgent need to address the systemic issues that contribute to unequal access to care and preventive screening that is necessary to eliminate cervical cancer.

In honor of Black History Month, we celebrate Cervivor Founder and Chief Visionary, Tamika Felder’s pioneering moments in cervical cancer awareness and advocacy. As a long-time cervical cancer survivor and internationally recognized patient advocate for cervical cancer prevention, Tamika has been a driving force in the fight against this disease. Her journey and advocacy have left an indelible mark on the cervical cancer community, inspiring change, health equity, access to care, and the creation of a community of patients and survivors sharing their lived experiences with others. 

Tamika’s tireless efforts have significantly contributed to the mission of ending cervical cancer once and for all. Founding Cervivor 19 years ago has not only brought survivors together but has also played a pivotal role in spreading awareness, providing education, and offering support to those impacted by this disease. Through her advocacy, she has amplified the voices of survivors and thrivers, ensuring that their stories are heard and their needs are addressed.

The recent Cervical Cancer Summit powered by Cervivor, where Tamika’s presence was felt, served as a testament to the impact of her advocacy. The summit brought together experts, researchers, healthcare professionals, family members, and patient advocate voices to discuss the latest advancements, challenges, and strategies in the cervical cancer space. The discussions and initiatives that emerged from this event have the potential to shape the future of cervical cancer awareness and prevention.

Tamika’s advocacy has also been instrumental in addressing the disparities in cervical cancer education, treatment, and prevention among Black women. Her commitment to empowering individuals with knowledge and resources, promoting early detection, and reducing the burden of cervical cancer in Black communities won’t stop.

Tamika’s story is a part of cervical cancer history. Her advocacy has not only raised awareness but has also paved the way for a future where cervical cancer is eradicated. As we share our stories we stand in solidarity with Tamika and work towards this shared mission.

Her story, your story, and our stories matter. Together, we can make a difference and create a world free from cervical cancer as we know it.