clinical trials

Honors in Advocacy for our Leaders in the Mission to End Cervical Cancer

In the relentless mission to end cervical cancer, every victory, every recognition, is a puzzle piece of hope, a testament to the dedication of those who tirelessly advocate for progress. Today, we are honored and humbled to celebrate the remarkable achievements of three extraordinary individuals who have devoted their lives to championing the cause of cancer patients, survivors, and advocates.

Tamika Felder, Founder & Chief Visionary

At the forefront of our celebration is Tamika Felder, our Founder and Chief Visionary, whose journey from patient to nonprofit founder has been nothing short of inspiring. In 2001, Tamika faced a daunting diagnosis of cervical cancer, a moment that would change her life forever. Determined to turn her personal struggle into a source of strength for others, Tamika founded Cervivor in 2005, an organization dedicated to educating and empowering cervical cancer patients and survivors to share their stories and make a difference.

For the past 19 years, Tamika has been a trailblazer in the mission to end cervical cancer, always advocating for the voices of patients and survivors to be heard. Her commitment and relentless efforts have earned her the incredible honor of being appointed to the National Cancer Advisory Board by President Joe Biden. This appointment is not only a testament to Tamika’s extraordinary leadership but also a recognition of the vital role that she and Cervivor play in shaping the future of cancer research, treatment, and prevention.

The National Cancer Advisory Board plays a crucial role in guiding the Director of the National Cancer Institute in setting the course for the national cancer research program. As we work towards President Biden’s ambitious goal of ending cancer as we know it through initiatives like the Cancer Moonshot, Tamika’s appointment ensures that the voices of cervical cancer patients and survivors will be heard loud and clear at the highest levels of decision-making.

Morgan Newman, MSW, Community Engagement Liaison

We are also thrilled to celebrate the achievements of Morgan Newman, our Community Engagement Liaison, who has been selected as a patient advocate member for the National Cancer Institute (NCI) Gynecologic Cancer Steering Committee (GCSC) Cervical Task Force (CTF). Morgan’s dedication to ensuring that patient voices are integrated into the development and evaluation of clinical trials is truly commendable. Through her involvement in these committees, Morgan is helping to shape the future of gynecologic cancer research and treatment, ensuring that the needs and perspectives of patients are always front and center.

Kimberly Williams, MHCM, Chief Diversity Equity & Inclusion Officer

Last but certainly not least, we extend our heartfelt congratulations to Kimberly Williams, our Chief Diversity Equity and Inclusion Officer, for her continuous role as a patient advocate member for the Cervix/Vulva Cancer Committee for NRG Oncology. Kimberly’s tireless advocacy efforts have been instrumental in improving the clinical research process and ensuring that patient perspectives are always prioritized. Her recent appointment to the Diversity, Equity, and Inclusion Committee further underscores her commitment to advancing equity and inclusion in cancer research and treatment for all.

As we celebrate these remarkable achievements, we are reminded of the power of advocacy and the incredible impact that individuals like Tamika, Morgan, and Kimberly can have in the mission to end cervical cancer. Their dedication, passion, and advocacy serve as an inspiration to us all, and we are proud to stand alongside them in the quest for a world free from cervical cancer.

To learn more about Tamika Felder’s appointment to the National Cancer Advisory Board, please see the official press release from the White House [here].

We’re Part of the Process

Kimberly Williams, Cervical Cancer Survivor

In July 2022, I was invited to my first NRG Oncology semi-annual conference as a newly appointed Patient Advocate. Many of you might be wondering, who NRG Oncology is and what they do?

NRG Oncology comprises the National Surgical Adjuvant Breast and Bowel Project (NSABP), the Radiation Therapy Oncology Group (RTOG), and the Gynecologic Oncology Group (GOG). Together they have more than 150 years of cumulative experience in conducting practice-defining, multi-institutional phase II and III trials sponsored primarily by the National Cancer Institute (NCI).

I’ve never had the opportunity to attend a large oncology conference like this before. There were so many emotions that ran through my head as my colleague and I rushed hurriedly through the building to locate our next sessions to attend. One thought that came to mind was “the why,” like why am I here? After attending the Patient Advocates forum I found that my why never changed. It was for the patients and for our community.

Sitting in the meeting encouraged me and helped me realize that all the patient advocates desire the same thing: we want change. We are equipped with the knowledge to make a difference. We have lived through this experience personally. This meeting was easy (at least easier than I anticipated) as I spoke about my cervical cancer story and my “why” for patient advocacy.

Just as I thought, “This is simple,” the next morning I sat on the panel for the Cervix and Vulva Sub-Committee with physicians, researchers, and so many more experts. I sat down next to the committee chair, Dr. Charles Leath. It was at that moment I said, “This is not simple.”

I was overwhelmed with emotion but soon felt confident because I understood the presentations as they related to clinical trials because I went through treatment as a patient. This one moment shifted my thoughts from ordinary to extraordinary. I realized that my voice mattered and it was important. The NRG Oncology semi-annual meeting was an opportunity I will never forget because it was a reminder that your “why” should be at the forefront of your patient advocacy.

Morgan Newman, Community Engagement Liaison

I was a patient advocate that was chosen on the other side of the NRG Conference with the GOG Foundation patient advocacy efforts. To understand their organization, let’s look at the history behind the Gynecologic Oncology Group:

  • It was founded in 1970 at the American College of Obstetricians and Gynecologists.
  • In 1993, the GOG Quality of Life Committee was formed and patient-reported effects of chemotherapy was the main protocol for their clinical trial development to continue to improve patient quality of life. 
  • And in 2014, their trial GOG-240 showed improved survival rates when bevacizumab was added to chemotherapy for advanced cervical cancer.

Now, this is only a brief glimpse into what this group has accomplished. I was incredibly fortunate to have the opportunity to be one of two Mary “Dicey” Scroggins Patient Advocacy Travel Award recipients. Through this scholarship, I was honored at the GOG Foundation dinner, attended working committee meetings, and learned from the dedicated professionals leading the work in developing clinical trials.

What I learned during this conference was that the GOG has set the standards for cervical, endometrial, and ovarian cancers. They continue in partnership with NRG Oncology to strive for a better future for patient care and outcomes in clinical trials. This experience has made me feel like I was truly part of that process.

When I was diagnosed with a metastatic recurrence of cervical cancer in 2016, I never would have imagined being where I am today as a patient advocate. I really didn’t understand or know how my voice could help make a difference but every time I have an opportunity to attend and interact with experts in the field, I am quickly reminded just how important it truly is and how far I have come since then. Sometimes these feelings are hard to put into words. It can be overwhelming to experience this as a survivor and a patient advocate but it’s something I appreciate and I am forever grateful for.

Kimberly Williams and Morgan Newman are both cervical cancer survivors turned patient advocates. Kimberly represents her state of Texas while Morgan is in Iowa. They are both passionate about making sure the patient voice is heard.