Pride in Diversity, Equity, and Inclusion for Cancer Care

Inclusivity is the buzzword of our times right now, and Cervivor is here for it! It’s our hope that the practice of being inclusive doesn’t fizzle out like a trend, and that cancer survivors are included in the inclusivity population.

This hope also rings true when it comes to LGBTQIA issues, rights, and the cancer community. We are bringing this up during Pride Month (Happy Pride!) because many LGBTQIA+ community members who have and have had cancer do not feel welcome or understood in mainstream support groups, and transgender survivors have been specially excluded, according to the Cancer Network.

During a Cancer Network podcast interview, Dr. Don Dizon, who works on ensuring higher levels of gay and transgender participation in clinical cancer trials said, the medical community needs to “[support] people who have felt misaligned in medicine—people who have been the subjects of discrimination. Honestly, you hear the anecdotes of people who are treated unkindly, not to put it mildly.” 

Many of us know the host of feelings that drench our minds the moment we hear a cancer diagnosis. The days, weeks, months, even years after, we are still overcome with scores of emotion including isolation, and feelings of not wanting to belong, are natural and to be expected. However, the actual act of being excluded – even if just a feeling of not being considered – is unacceptable and can be detrimental to our psyche, which, in turn, impacts physical health.

The 2018 LGBTQ Health in Iowa report tells us that scientific evidence has shown that sexual and gender minority individuals are more likely to smoke, be overweight, and have a greater risk of certain cancers. Further, this group is less likely to receive appropriate health care than heterosexual and cisgender peers. We’re not having it!

That’s why we are happy to boast a few organizations and individuals whose missions include providing equitable resources, highlighting the voices of LGBTQIA+ survivors, offering a sense of community, and training caregivers to medical staff on inclusivity and its importance including Cancer Network, Escape, and One Iowa.

Photo Courtesy of Globeathon

“We need to do better for those individuals, so that they’re not delaying access to care [and] that they are participating in our screening programs,” continued Dr. Dizon, who is also director of women’s cancers at the Lifespan Cancer Institute, director of medical oncology at Rhode Island Hospital, and professor of medicine at the Warren Alpert Medical School of Brown University in Providence. 

“At the end of the day, we as oncologists all want to do the right thing. This is part of doing the right thing.”

Clinical Trial Awareness Month: Cervical Cancer Needs YOU!

That first season of a TV, Netflix, or cable series is a total experiment. Producers wonder how the characters will resonate with the target audience. Advertisers are hopeful that their two-minute commercials and ads are crafted well enough to bring in sales. And actors cross their fingers that fans love each episode more and more, and demand a second season. The result: a cult following of a show that lasts for years, providing viewers the comfort of entertainment and solace.

While it may be a stretch, we can think about clinical trials in the same way. This method of medical research, is in fact, a pilot program for scientists to experiment, test, and prove what works, and what can result in medical breakthroughs – again, for the comfort and solace of those impacted by health challenges like cervical cancer.

You may have heard us at Cervivor championing the dire importance of clinical trials. We continue to stress the importance as this is the only way we can pave a way toward slowing down the loss of members in our community, thriving without having to lose parts of our bodies, and ultimately eliminating cervical cancer.

We said it before:

  • We need clinical trials to drive progress.
  • We need trials to determine the safety and effectiveness of every type of treatment.
  • And in order to determine that safety and effectiveness, we need volunteers.

We choose not to subscribe to the stigma around being a “guinea pig” or a “test dummy.” Without clinical trials, treatment, diagnosis, and prevention efforts are slowed down. The effectiveness of new medication, treatment, and therapy can only be proven through trial – and yes, error. Take a look at the thousands of trials around the globe currently recruiting patients, in addition to those that are active, completed, and terminated with results. Thanks to people including several of our Cervivor community members like Teolita, Erica, Jenn, and Linda much more work is being done daily to make sure our community – and the generation after us, and after them – can thrive.

“I decided that if this clinical trial was good enough for Jimmy Carter, it was good enough for me!” – Teolita Rickenbacker

It’s important to note that Cervivor advocates for cultural competence throughout our medical journey, including in the clinical trials process – and we should all be looking out for this. This means, making sure that the medical community understands, and is intentional about how they communicate with a diverse audience of women, whether Black, Brown, young, mature, and those who speak a language not native to their medical team. It is super important that the medical community, including those coordinating trials, speak different languages, and understand the experience of those who are part of a focus group. This important aspect aids in building and maintaining trust with those participating, which, in turn, helps us trust in both the process and the expertise of trial organizers.

This process takes a lot of teamwork: scientists work on hypotheses, patients report on progress and challenges, and doctors monitor outcomes. The result: an increase in clarity, more answers, more awareness, more options, and longer lives. Have a discussion on clinical trials with your care team and support system. Learn more with these recommended resources:
https://www.webmd.com/cancer/cervical-cancer/cervical-cancer-clinical-trials
https://www.clinicaltrials.gov/ct2/home

If you have experience with a clinical trial and want to share it with us, contact us at [email protected].