Advocating For Health Equity: National Minority Cancer Awareness Week

In the landscape of healthcare, awareness, and action are essential to address disparities that disproportionately affect marginalized communities. National Minority Cancer Awareness Week serves as a poignant reminder of the health inequities faced by populations historically marginalized, discriminated against, and excluded in American society. It’s a time to not only acknowledge these disparities but also to highlight organizations dedicated to promoting health equity. Among them is Cervivor, Inc., providing education, empowerment, and walking in purpose through advocacy to end cervical cancer.

A Call to Action: Under-represented communities in the United States often experience higher rates of cancer incidence and mortality, coupled with lower survival rates compared to the general population. These disparities are multifaceted, stemming from various factors such as socioeconomic status, lack of access to healthcare, cultural barriers, and systemic discrimination. National Minority Cancer Awareness Week, observed annually in April, provides an opportunity to shed light on these issues and mobilize efforts toward change. During this week, conversations around cancer prevention, early detection, and access to quality care are amplified, with a specific focus on underserved and under-represented communities. It’s a time for education, outreach, and advocacy to address the root causes of health disparities and ensure that all individuals, regardless of race, ethnicity, or socioeconomic background, have equitable access to healthcare resources.

Championing Health Equity: At the forefront of the mission to end cervical cancer and to close the gap in health disparities is Cervivor, Inc. Founded by 23-year cervical cancer survivor Tamika Felder, Cervivor is a non-profit organization dedicated to cervical cancer advocacy, support, and education. What sets Cervivor apart is its commitment to addressing the unique needs of marginalized communities, including communities of color, LGBTQIA+ individuals, rural residents, young adults, and those facing socioeconomic challenges.

Cervivor’s mission extends beyond raising awareness about cervical cancer; it’s about empowering individuals to become advocates for their own health and well-being. Through a combination of educational resources, support networks, and community outreach initiatives, Cervivor works tirelessly to ensure that no one is left behind in the mission to end cervical cancer. One of the cornerstones of Cervivor’s approach is its emphasis on health equity. Recognizing that marginalized communities often face barriers to accessing healthcare, Cervivor strives to bridge these gaps through targeted outreach programs, culturally sensitive resources, and partnerships with organizations that share its commitment to diversity, equity, and inclusion.

Embrace Inclusion: In addition to its focus on cervical cancer advocacy, Cervivor is also actively involved in promoting diversity, equity, and inclusion (DEI) within the healthcare sector.

Kimberly Williams

Through its DEI programming, Chief Diversity Equity and Inclusion Officer, Kimberly Williams and Team Cervivor aim to create a more inclusive healthcare environment where all individuals feel seen, heard, and valued. This includes initiatives to address disparities in cancer care, such as advocating for culturally competent healthcare providers, promoting LGBTQIA+ inclusivity in cancer support services, and raising awareness about the unique needs of minority communities. By spotlighting DEI issues within the healthcare sector, Cervivor is helping cultivate a more equitable and compassionate approach to cancer care. Through collaboration, education, and advocacy, Cervivor is making strides toward a future where everyone has equal access to the resources and support they need to live healthy, fulfilling lives.

Towards a Future of Health Equity: As we observe National Minority Cancer Awareness Week and shine a spotlight on organizations like Cervivor, Inc., it’s crucial to recognize that achieving health equity is a collective responsibility. It requires ongoing commitment, collaboration, and action at all levels of society – from policymakers and healthcare providers to community organizations and individuals. By raising awareness about health disparities, advocating for marginalized communities, and promoting diversity, equity, and inclusion in healthcare, we can work towards a future where everyone has the opportunity to thrive, regardless of their background or circumstances.

Let’s honor the spirit of National Minority Cancer Awareness Week by redoubling our efforts to create a world where health equity is not just a goal, but a reality for all.

Empowering Communities of Color: A Recap of the Fall Virtual Advocacy Retreat

The Fall Virtual Cervical Cancer Patient Advocacy Retreat for Communities of Color, held on October 28th, was an inspiring and informative event that brought together cervical cancer survivors and speakers dedicated to closing the gap in cervical cancer disparities. The retreat aimed to provide a platform for empowering and educating communities of color across the globe to become advocates in the mission to end cervical cancer. With a dynamic lineup of speakers, engaging and impactful conversations, and a clear advocacy action list, the retreat left attendees feeling empowered and equipped to make a difference in their communities and beyond.

The retreat’s success was undoubtedly due to the incredible speakers who graced the virtual stage. Each speaker brought unique insights and experiences to the table, making the event an unforgettable experience for all who attended:

  • Kimberly Williams, Cervivor’s Chief Diversity Equity and Inclusion Officer gave the opening remarks, shared how her personal journey has progressed over the last several years, and discussed the unwavering commitment Cervivor, Inc. has to diversity, equity, and inclusion in the mission to end cervical cancer.
  • Tamika Felder, Founder and Chief Visionary of Cervivor, Inc. inspired attendees to define their ‘why’ while sharing her personal experience of building what she didn’t have, the vision turned into a reality with the creation of the Cervivor, Inc. organization of nearly 19 years ago.
  • Nancy Peña, ONP-CG, CMI, BS, Director and Founder of Navegación de Pacientes Internacional, Inc. (NPI), was our morning keynote to share the important work to end cancer disparities by identifying and providing cancer patients support resources throughout the continuum of their care.
  • A Cervivor-filled panel moderated by Tiera Wade included the voices of Joslyn Paguio, Kadiana Vegee, and Karla Chavez to show their journeys from cervical cancer survivors to Cervivors.
  • Chicago-based duo, Dr. Nita Karnik Lee and Dr. Paris Thomas teamed up to share the importance or representation in clinical trials, how to access the opportunities available, and advocate for others to seek the care they deserve.
  • Dr. Jennifer Cunningham Erves, PhD, MPH, MAEd, MS, CHES, Director of Community Engaged Research at Vanderbilt-Ingram Cancer Center shared what attendees needed to know about the human papillomavirus (HPV) and the importance of cancer prevention through vaccination.
  • Dr. Jane Montealegre, Baylor College of Medicine, was the closing keynote to address the unique opportunities and challenges we face in eliminating cervical cancer.

Throughout the retreat, attendees from across the globe engaged in meaningful conversations and breakout discussions that shed light on various aspects of cervical cancer and advocacy. Several survivors logged in from islands in the Caribbean and a large group of survivors gathered together in Milicent Kagonga’s home, a Cervivor Africa Ambassador, to learn more about patient advocacy. 

But the retreat didn’t just stop at discussions; it moved the speakers and empowered attendees with a clear action list to ensure that the knowledge gained translated into impactful change:

  • Advocate for Improved Access to Healthcare: Support initiatives to increase access to cervical cancer screenings and vaccinations within communities of color.
    • Attendees expressed the importance of holding workshops to share screening and vaccination information not only for the public but to bridge the gap between patients and providers.
  • Education and Awareness Campaigns: Join Cervivor, inc. and participate in community-driven awareness campaigns to educate individuals on the importance of cervical cancer prevention, early detection, and self-advocacy.
    • Attendees expressed the need to bring men into the discussion as cervical cancer impacts the entire family structure and the very virus that causes 5 more cancers.
  • Community Engagement: Strengthen partnerships within their communities and collaborate with local organizations to promote cervical cancer awareness and advocate for accessible healthcare services.
    • Community outreach days with mobile screening and vaccination clinics are necessary to communities who do not have regular access.

In closing, the Fall Cervical Cancer virtual retreat has been a powerful journey of connection, support, and empowerment. As we reflect on the stories, insights, and shared strength of our attendees, we are reminded of the urgency to end cervical cancer once and for all. Together, we can make a difference. Whether you’re a cervical cancer patient, survivor, caregiver, or an ally in this fight, your voice and your actions matter. Join us in raising awareness, advocating for regular screenings and vaccinations, and supporting research for better treatments. Let’s unite to ensure that one day, cervical cancer is a thing of the past. Together, we can make this vision a reality. Join us in our mission by visiting cervivor.org, and together, we can help end cervical cancer.

Lastly, Cervivor, Inc. would like to thank our generous sponsors for supporting our mission of educating and empowering individuals impacted by cervical cancer to take action and create change in their local communities and beyond. Thank you to SeagenGenmab, Roche Diagnostics, St. Jude Children’s Research Hospital HPV Cancer Prevention Program, and Genentech.