The Ladies in the White Shirts

Cervivor is committed to making a difference by working to close disparity gaps that continue to plague Communities of Color. This commitment led Cervivor’s Founder and Chief Visionary, Tamika Felder, and Cervivor’s Chief Diversity Equity and Inclusion Officer, Kimberly Williams to unite community members this past weekend from around the world—Honduras, St. Lucia, and U.S. states like Texas, Maryland, California, Alabama, New York, North Carolina, Iowa, and more—to Cleveland, Ohio, for the Cervical Cancer Patient Advocacy Retreat for Communities of Color. This retreat wasn’t just a local event; it was a global movement. We had community members participating via Zoom from Mexico, the Caribbean, and Africa, emphasizing our commitment to advocating for change worldwide.

Empowering Knowledge
Renowned experts from the Cleveland Clinic and Langston Hughes shared their insights on cervical cancer prevention, treatment, and advocacy. Attendees gained a deeper understanding of the importance of:

  • Routine screenings and HPV vaccination.
  • The need for cultural competency in healthcare.
  • Ways for them to engage in community outreach and education.

After an expert-led panel, Chief Diversity Equity and Inclusion Officer, Kimberly Williams recapped the powerful message, “An educated patient takes action.”

Participants also had the opportunity to discuss self-collection cervical cancer screening and participated in discussions that answered questions about self-collection and its importance in eliminating cervical cancer. This discussion aided the advocates in understanding and promoting self-collection as a viable option for early detection when they return to their communities.

A special session with Dr. Leeya Pinder, who practices both in the United States and Africa, provided a global perspective on the issue of access (not just screening and treatment, but also clinical trials). Dr. Pinder explained the dire need for advocacy to end the disease, highlighting that many individuals with a cervix in these countries lack access to essential screening materials, leading to detrimental results. Her insights allowed participants to see the full circle of need in cervical cancer prevention and treatment.

Turning Knowledge into Action
On Saturday, Cervivor launched Cervivor Cares, which is our initiative to raise awareness about cervical cancer in communities through education, volunteering, and active presence. We engaged in community outreach, raised funds, and supported the mission to eliminate cervical cancer by providing essential resources and promoting access to necessary screening and treatment for all. 

What better way to launch Cervivor Cares, than a Cervivor in Action day after a full day of classroom training? That’s right, our retreat participants increased their advocacy footprint by putting their knowledge into action. They volunteered their time at a clinic hosted by Medworks and the Cleveland Clinic that provided preventative screenings to the underserved community of Cleveland, Ohio. 

It was not only an opportunity for preventive screenings, it was an opportunity for our participants to bring education and empowerment to all those who attended and were touched by our volunteers. Without hesitation, our retreat participants assisted by sharing their stories and expressing the importance of our mission. Our Cervivor Español, attendees translated to and for patients in every facet including the exam room so patients understood the physician’s questions and requests. This group put the information they learned into action immediately. Our participants met people where they were, in their daily routines —urging them to schedule their cervical cancer screenings, attend follow-ups, and the importance of HPV vaccination. 

As they shared their stories and stressed the importance of cervical cancer screenings and HPV Vaccination, the clinic was buzzing with excitement. Patients and staff alike began referring to them as “The Ladies in the White Shirts,” urging others, “You need to go talk to the ladies in the white shirts.”  These Cervivors were educating patients before they even walked through the door, helping them understand that regardless of their past, getting screened and following up on any abnormalities now is crucial. The retreat participants’ presence underscored the importance of the Cervivor mission and served as a reminder that their story mattered, and was already making a difference.

Embracing the Spirit of the Ladies in the White Shirts
As we reflect on this transformative event, we celebrate the spirit of “The Ladies in the White Shirts”—the Cervivor community. Each of you embodies this spirit by wearing your shirt, sharing your story, and advocating for screening. Your dedication makes you a vital part of the movement to end cervical cancer. In the words of Gwendolyn Jackson, “You have prepared me to go out into my community.” If you don’t feel prepared, we have programs available for you!

We encourage everyone to grab your Cervivor Spark, use the hashtags #Screen4Me and #Cervivor, and continue advocating for cervical cancer screenings. By sharing your story and spreading awareness, you become a powerful advocate, helping others access the screenings they need and contributing to a future free from cervical cancer. Together, as a community working to eradicate cervical cancer, let’s continue to make our voices heard, drive change, and support each other in this crucial mission.

Cervivor would like to extend its sincerest gratitude to our sponsors, including Pfizer, Genmab, Roche, and The Marchetta Family (Vince, Amanda, & William in honor of their late wife and mother, Betsy), as well as our in-kind donors, La Roche-Posay, Kafela, Lepley & Co., and Kesh the Creative, for their generous support and contributions to our mission.

Team Cervivor Attends ASCO 2024

The American Society of Clinical Oncology (ASCO) Annual Meeting is a premier event in the oncology community, gathering thousands of professionals from around the globe to discuss groundbreaking research, innovative treatments, and the future of cancer care. This year, Team Cervivor attended ASCO 2024, marking a significant milestone for our organization and highlighting the critical role of patient advocates in the fight against cancer.

What is ASCO?
ASCO, founded in 1964, is a leading professional organization for physicians and oncology professionals. Its mission is to conquer cancer through research, education, and the promotion of the highest quality patient care. The annual ASCO meeting is the largest of its kind, offering a platform for the latest scientific advancements, policy discussions, and networking opportunities. Attendees include oncologists, researchers, pharmaceutical representatives, and patient advocates, all united in their dedication to improving cancer care.

Our presence at ASCO 2024 was a testament to the growing recognition of the importance of patient voices in shaping cancer care and research. Here’s why our participation matters:

  1. Amplifying Patient Voices: As patient advocates, we bring the perspectives and experiences of those directly affected by cervical cancer. Our stories and insights are invaluable in guiding research priorities and improving patient care practices.
  2. Cultivating Collaboration: Attending ASCO allows us to collaborate with researchers, clinicians, and other advocacy groups. These interactions help us stay informed about the latest advancements and ensure that patient needs are at the forefront of scientific discussions.
  3. Promoting Awareness and Education: By engaging with the oncology community, we can spread awareness about cervical cancer, highlight the importance of prevention and early detection, and share our educational resources. Our presence at ASCO reinforces the message that cervical cancer is preventable and treatable when caught early.
  1. Influencing Policy and Research: Our participation at ASCO provides opportunities to advocate for policies that benefit cervical cancer patients and survivors. We can also contribute to shaping research agendas by emphasizing areas that require more attention, such as disparities in cancer care and the psychosocial impacts of the disease.

Team Cervivor Listed from Left to Right: Morgan Newman, MSW, Community Engagement Liaison; Tamika Felder, Founder & Chief Visionary; and Kimberly Williams, MHCM, Chief Diversity Equity & Inclusion Officer

Highlights from ASCO 2024
ASCO 2024 was a whirlwind of inspiring sessions, groundbreaking research presentations, and meaningful interactions. Here are some highlights from our experience:

Networking Opportunities: We connected with oncologists, researchers, and fellow advocates, nurturing relationships that will strengthen our advocacy efforts. These connections are crucial for creating a supportive network dedicated to cervical cancer eradication.

Media and Outreach: We participated in interviews, highlighting the importance of patient advocacy and the work we do. These media opportunities allowed us to reach a broader audience and amplify our message.

We also had the honor of having our Founder and Chief Visionary, Tamika Felder, speak on a crucial panel titled, “Bridging the Gap in Cancer Care for Adolescents and Young Adults” hosted by The Atlantic. This enlightening session shed light on the challenges faced by the nearly 1.5 million adolescents and young adults diagnosed with cancer each year. Addressing issues such as work, health insurance, school, fertility, and emotional distress, the panel explored the unique cancer biology of this age group and the lack of survival improvements compared to other age demographics. Tamika, alongside other survivors, oncologists, and advocates, shared her journey and insights, emphasizing the importance of tailored care and pioneering local programs that support the distinct needs of young cancer patients. Her participation underscored Team Cervivor’s commitment to advocating for comprehensive and compassionate cancer care for all age groups.

Attending ASCO 2024 was more than just an opportunity to learn and network; it was a chance to reaffirm our commitment to the mission to end cervical cancer. We left the conference inspired and energized, ready to continue our mission with renewed vigor. Our presence at ASCO underscores the vital role of patient advocates in the oncology community, and we are proud to be a voice for cervical cancer patients and survivors worldwide.

As we move forward, we will leverage the knowledge and connections gained at ASCO to enhance our educational programs, support initiatives, and advocacy efforts. Together, we can make a difference in the lives of those affected by cervical cancer and work towards a future free of this preventable disease. Stay tuned for more updates from Team Cervivor and join us in our journey to eradicate cervical cancer. Together, we are stronger, and together, we can achieve a world without cervical cancer.