clinical trials

Amplifying Our Cervivor Footprint on National Patient Advocacy Day

Today, we celebrate National Patient Advocacy Day, recognizing the profound impact of patient advocacy in improving healthcare outcomes and advancing policy and research. At Cervivor, we’re proud of our organization’s commitment to empowering patients and families affected by cervical cancer. Through our work, we’ve partnered with esteemed organizations like The National Cancer Institute and The National HPV Vaccination Roundtable, and hold positions on leading coalitions such as The American Cancer Society National Roundtable on Cervical Cancer (ACS NRTCC). 

We’re highlighting the remarkable work of our community members, who have shared their stories, volunteered their time, and mobilized their networks to drive change. Together, we’ve raised awareness, promoted education, and advocated for policies supporting cervical cancer prevention and treatment, as well as HPV vaccination access. Our collective efforts – our “Cervivor footprint” – have led to:

  • Influencing policy changes, such as advocating for expanded HPV vaccination access through the PREVENT HPV CANCERS ACT and ensuring sustained funding for cervical cancer screening services like Medicaid and CHIP funding for Pap tests and HPV testing plus increased support for The National Breast and Cervical Cancer Early Detection Program (NBCCEDP).
  • Contributing to research initiatives like providing patient perspective and expertise to studies focused on cervical cancer prevention, treatment, and survivorship; and supporting the development of new diagnostic tools and treatments, including participation in advisory boards for clinical trials and innovative technologies.
  • Providing trusted resources and support programming for patients and families through social media content, community outreach initiatives, virtual and in-person programming, and patient advocacy trainings. 

As we acknowledge the power of patient advocacy, we’re reminded that our work doesn’t stop here. We’re urging our community to take an essential step further with a simple call-to-action: share Cervivor with your local healthcare provider and cancer center. By doing so, you’ll help ensure that those affected by cervical cancer have access to our trusted resources, support programming, and advocacy efforts.

We also acknowledge the dedicated healthcare professionals who partner with us to amplify our mission. Together, we have achieved more. We invite professionals to join us in our purpose by:

  • Partnering with Cervivor on local initiatives, such as immunization coalitions, advisory boards, and research projects
  • Hosting a Cervivor speaker at a local event or virtual gathering
  • Collaborating on a fundraiser to support Cervivor’s mission
  • Sharing expertise through a guest blog post or being a featured guest on Cervivor platforms
  • Joining the Cervivor directory to become a potential speaker for upcoming events like the Cervical Cancer Summit Powered By Cervivor, Cervivor School, or the Cervical Cancer Patient Advocacy Retreat for Communities of Color

Simply submit your information by becoming a Partner in Purpose here. Together, we can accelerate progress toward our mission of ending cervical cancer. Join us in continuing to amplify patient voices, drive research, and support those impacted by this disease.

Uniting to End Cancer Disparities for All

Every year, during the third week of June, communities across the United States come together to observe National Black Family Cancer Awareness Week. This important week, spearheaded by the U.S. Food and Drug Administration’s (FDA) Oncology Center of Excellence, aims to raise awareness about the disproportionate impact of cancer on Black families and to promote cancer prevention, screening, and treatment within this community.

Understanding the Disparities
Cancer affects all demographics, but statistics reveal a troubling disparity: Black Americans are more likely to develop and die from cancer compared to other racial and ethnic groups.

The reasons for this disparity are multifaceted, involving socioeconomic factors, access to healthcare, environmental exposures, and genetic predispositions.

National Black Family Cancer Awareness Week is designed to address these disparities by:

  1. Promoting Education and Awareness: Increasing awareness about the higher cancer risks faced by Black families encourages proactive health measures. Understanding the importance of early detection and regular screenings can significantly improve survival rates.
  1. Highlighting Preventative Measures: Educating the community about lifestyle choices that can reduce cancer risk, such as maintaining a healthy diet, regular physical activity, and avoiding tobacco and excessive alcohol use, is crucial.
  1. Encouraging Participation in Clinical Trials: There is a significant underrepresentation of Black Americans in clinical trials, which can hinder the development of effective treatments for this demographic. National Black Family Cancer Awareness Week seeks to increase awareness and participation in these trials, ensuring that new treatments are tested for efficacy across diverse populations.

Community Engagement
One of the most impactful aspects of National Black Family Cancer Awareness Week is its focus on community involvement.

Tamika Felder, Founder & Chief Visionary and Kimberly Williams, Chief Diversity Equity and Inclusion Officer, Charleston, SC
Tiera Wade, Cervivor Ambassador, Akron, OH

Local organizations, healthcare providers, and advocates host a variety of events and initiatives to engage the community, such as:

  • Health Fairs and Screenings: Offering free or low-cost cancer screenings and health check-ups to encourage early detection.
  • Educational Workshops: Providing information on cancer prevention, treatment options, and the importance of regular medical check-ups.
  • Support Groups and Counseling Services: Creating spaces for those affected by cancer to share their experiences, receive support, and find resources.

Real Stories, Real Impact
Hearing from individuals who have been affected by cancer can be incredibly powerful. Testimonials from cancer survivors, family members, and healthcare providers highlight the real-life impact of cancer within the Black community. These stories create solidarity and provide hope, reminding us that we are not alone in this fight.

Taking Action
Here are some ways you can get involved in National Black Family Cancer Awareness Week:

  1. Spread the Word: Use social media platforms to share information and resources. The hashtags #Cervivor #CervivorNoir #BlackFamCan #EndCervicalCancer are a great way to join the conversation and reach a wider audience.
  2. Participate in Local Events: Attend health fairs, workshops, and other events in your community. Encourage friends and family to join you.
  1. Volunteer: Offer your time to local organizations that are hosting events or providing support services.
  1. Get Screened: If you haven’t already, schedule a cancer screening. Encourage your loved ones to do the same. The hashtag #Screen4Me is a great way to spread awareness and share the importance of screening.

National Black Family Cancer Awareness Week is more than just a week of activities; it’s a call to action for year-round commitment to addressing and reducing the impact of cancer on Black families. By coming together, we can make significant strides in education, prevention, and treatment, ultimately saving lives and creating healthier communities.

Cervivor Community Members and Cervical Cancer Survivors (Left to Right): Keesha Carter, Gwendolyn Jackson, and Lindsay Gullatte-Lee

As we observe National Black Family Cancer Awareness Week, let’s remember that awareness and action go hand in hand. Together, we can create a future where cancer disparities are a thing of the past, and every family has the knowledge and resources to fight cancer effectively.