We Are the Legacy: Black Survivor Voices Shaping a Future Without Cervical Cancer

By Kyle Minnis, Cervivor Communications Assistant

When we talk about Black History Month, we often focus on the names everyone knows: movement builders, artists, scientists, and changemakers whose impact is still felt today. In cervical cancer, there is another history — one often unnamed: a history of medical mistrust that continues to shape what Black individuals with a cervix experience in exam rooms and oncology wards.

At Cervivor School Kansas City, Tiera was named a 2025 Cervivor Champion.

Cervivor Ambassador and Lead of Cervivor Noir Tiera Wade, who recently wrote a blog post celebrating Black physicians addressing cervical cancer disparities, says this reality shaped her own experience. Many Black women report that their pain and symptoms are minimized or dismissed.

“I was experiencing back pain, vaginal bleeding, and pain during intercourse, but I didn’t realize it was all preventable,” says the Akron, Ohio, resident, who was diagnosed during COVID after waiting months to be treated. “If I had been properly educated and prioritized as an African American woman — made aware of what HPV was — I would have been more proactive.”

During a recent panel Tiera moderated at the 2026 Cervical Cancer Summit Powered by Cervivor, Inc., Dr. Paris Thomas, PhD, MS, of Equal Hope in Chicago, shared how her grandmother often told the story of why her own mother never delivered her children in a hospital. After losing a baby there, she believed hospitals were unsafe and never returned. That pain carried across generations.

“Trust starts in our homes,” Dr. Thomas explained. And rebuilding it requires working within communities — asking what they need and creating care that feels familiar and respectful.

Tiera (second from left) moderated a Community In Action panel at the 2026 Cervical Cancer Summit featuring public health experts, including Dr. Thomas (at right). 

For Tiera, navigating treatment alone during the pandemic became an unexpected source of strength. “Because my treatment happened in the middle of COVID, I really had to use my voice,” she said. “I had to show up for myself. It gave me my power back.”

This February, Cervivor honors Black History Month by centering the voices of Black survivors — like Tiera and her fellow Black Cervivor community members featured below — while advancing its critical work to address persistent inequities and support individuals of color affected by cervical cancer.

From History to Right Now

Cervical cancer’s story cannot be told without Black women. In the 1950s, Henrietta Lacks, a young Black mother treated for cervical cancer, had her cells taken without her consent. Those cells became the first immortal human cell line and helped pave the way for countless scientific breakthroughs, including research that ultimately contributed to HPV vaccines.

Henrietta Lacks

Enslaved Black women, often called the “Mothers of Gynecology,” were also subjected to experimentation without anesthesia or consent. That lingering mistrust still echoes today, shaping how safe it feels to seek care, ask questions, or advocate for oneself.

The disparities persist. Black women are more likely to die from cervical cancer than any other racial or ethnic group. They are more often diagnosed at a later stage, even though screening rates are often similar to or higher than those of white women. The issue is not simply whether a Pap or HPV test is done. It is what happens before and after: whether symptoms are taken seriously, abnormal results are followed up on, and treatment is accessible and affordable.

Barriers extend beyond the exam room — insurance gaps, transportation, childcare, time off work, and broader systemic inequities all affect access.

At the Summit, Dr. Thomas highlighted a stark example from Chicago. Brachytherapy centers — critical for cervical cancer treatment — are not located in the neighborhoods with the highest mortality rates. In Washington Park, a predominantly Black neighborhood with a lower median income, women are about 1.5 times more likely to die from cervical cancer than women in neighboring Hyde Park, just across the street and home to the University of Chicago.

“The difference isn’t distance,” Dr. Thomas said. “It’s economics. It’s access. It’s whether the system is designed with you in mind.”

 At the 2026 Summit, Dr. Thomas shared insights on Chicago communities and the disproportionate cervical cancer outcomes they face.

We Are the Legacy: Black Cervivor Stories that Tell the Truth

Every statistic about cervical cancer has faces and families behind it. Here are just some stories from Black members of the Cervivor community: 

Shondria’s Story

Shondria Vaughns’s cervical cancer diagnosis forced her to make an unimaginable choice: giving up her dream of having more children to save her life. In 2008, she underwent a radical hysterectomy after a 1-centimeter tumor was discovered. Later, she learned that several women in her family had faced gynecologic cancers, underscoring the importance of knowing your medical history. Today, she shares her story to stress that awareness and regular Pap tests can protect lives.

Tukesia’s Story

At 44, Tukesia’s life changed suddenly when a severe hemorrhage led to a Stage IV cervical cancer diagnosis. After coding in the hospital from blood loss, she endured weeks of radiation, chemotherapy, and brachytherapy while fighting to stay strong for her family. The journey tested her physically and emotionally, but it also strengthened her faith and resolve. Now a 2025 Cervivor School graduate, she advocates for vaccination and reminds women that they are never alone. Watch this recent video on CervivorTV about Tukesia’s cervical cancer journey.

Urika’s Story

Urika Fraser faced not only cervical cancer, but also insurance barriers that delayed her treatment. Her doctor ultimately admitted her to the hospital to begin chemotherapy, even arranging radiation at no cost. She spent more than six weeks hospitalized and later underwent lung surgery after the cancer spread. Through it all, Urika remained determined to fight for her life and her three children.

Felicia’s Story

Felicia Fe Fea endured years of severe bleeding and repeated dismissal of her concerns, despite a history of abnormal Pap tests. After months of hemorrhaging and a blood transfusion, she underwent a hysterectomy, only to learn she had stage 2B cervical cancer. Her cervix was overtaken by a tumor that had gone undiagnosed. Today, she speaks out about the importance of self-advocacy and making sure patients are truly heard.

Each of these stories reveals something the data alone cannot convey. They reveal the emotional labor of self-advocacy, the exhaustion of navigating systems not designed with Black women in mind, and the resilience of survivors pushing forward — not only for themselves, but for those who will come after them.

Finding Community through Cervivor

Healing from cervical cancer and navigating survivorship are deeply emotional and cultural experiences. For Black women, that means having spaces where they do not have to explain or downplay who they are to be heard.

That is why Cervivor Noir exists. Our community for Black women impacted by cervical cancer creates space to speak openly about racism and bias in healthcare, fears around family and fertility, and the role faith, culture, and community play in survivorship. There is a private Facebook group, and virtual Cervivor Noir meetups are every third Saturday of the month at 2 p.m. EST (register for the next one here).

Tiera (top right) and members of Cervivor Noir at this month’s virtual meetup.

“It’s a place where someone can say, ‘This happened to me,’ and hear, ‘I believe you — I’ve been there,’” says Cervivor Founder and Chief Visionary Tamika Felder, who launched the organization 21 years ago after her own diagnosis. “When I went looking for support, I found no voices that looked or sounded like mine.”

Recently, Tamika reflected on this early journey in an interview with ESSENCE, sharing the very real barriers to care she faced as a freelance TV producer in Washington, D.C., without health insurance — circumstances that led her to put off regular screenings.

Cervivor Founder Tamika during her time as a freelance TV producer, when she was diagnosed with cervical cancer.

“I thought, ‘I don’t need it… if I get sick, I’ll just go to the emergency room,’” she told ESSENCE. As a result, she went several years without routine screenings and only discovered her cancer after a doctor treating her for a painful boil under her arm asked when she had last had a Pap test. By then, treatment was urgent. She needed a hysterectomy immediately, leaving no time — and no financial flexibility — to pursue fertility preservation.

For much of her adult life, Tamika believed that meant she would never have children. Since then, she has spoken openly about normalizing all fertility journeys — including what it’s like to be a Black mom to a non-Black toddler, her son, Chayton, the original “Cervivor Baby,” who was born through embryo donation and gestational surrogacy in November 2022.

Tamika’s lived experience — along with that of so many Black women and other women of color — is exactly why Cervivor’s events and programs are intentionally designed to center them, not merely include them. Through retreats, advocacy training, and community conversations, Cervivor is building spaces where Black survivors feel seen, supported, and empowered.

This Black History Month, we honor the Black women whose bodies and lives shaped modern gynecology and cancer research, often without consent or recognition. We also honor today’s Black Cervivors —Tiera, Shondria, Tukesia, Urika, and Felicia Fe Fea — who are turning their stories into blueprints for change and their communities into sources of strength.

When Black survivors’ voices are prioritized, we move closer to a future where cervical cancer is not another chapter in injustice, but a story of collective courage, community, and change.

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera.
The man has dark skin and short, curly black hair.
His hair is cut close to his head, with a slight fade at the sides.
His eyebrows are thick and well-groomed.
He is wearing a blue collared shirt.
The shirt is a medium blue color and appears to be made of a lightweight material.
It has a relaxed fit and is buttoned up to the top.
He is also wearing black-framed glasses.
The frames are rectangular in shape and have a subtle curve at the temples.
The lenses are clear and do not appear to have any tint or coating.
The man is smiling at the camera.
His smile is wide and genuine, showing off his white teeth.
His eyes are crinkled at the corners, giving him a friendly and approachable appearance.
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The gray is a medium tone, neither too light nor too dark.
It provides a neutral backdrop that allows the subject to stand out.
Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a recent graduate of Strategic Communications at the University of Kansas with a passion for digital media, storytelling, and audience engagement. He has experience in content strategy and media production. Kyle is especially interested in the intersection of media, branding, and digital growth.

Ain’t No Stoppin’ Us Now: Cervivor’s 2026 Cervical Cancer Summit Ignited Advocacy and Elevated Survivors

By Sara Lyle-Ingersoll, Cervivor Communications Director

On January 23, 2026—the day after the United States formally completed its withdrawal from the World Health Organization (WHO)—survivors, clinicians, advocates, researchers, and policy leaders gathered at the historic National Press Club in Washington, D.C. for the 2026 Cervical Cancer Summit Powered by Cervivor, Inc.

The timing was not lost on anyone in the room.

For decades, the WHO has played a central role in advancing global cervical cancer elimination. As the Summit began, speakers acknowledged the moment with clarity and resolve: Global collaboration still matters, science still matters, and the work does not stop.

As Ebony Hoskins, MD, gynecologic oncologist at MedStar Washington Hospital Center, said during her morning session, “That makes it even more important that we continue to use global standards for elimination and rely on organizations like Cervivor to get the word out and engage our community navigators.”

Mission accepted, Dr. Hoskins.

At the top of the agenda, Cervivor Ambassador and Cervivor Español Co-Lead Karla Chavez welcomed both in-person and virtual attendees with a heartfelt message from Siguatepeque, Honduras. Having previously shared her lived experience as part of the WHO’s Cervical Cancer Elimination Day of Action, her perspective carried particular significance.

In-person and virtual attendees turned their attention to a welcoming message from Cervivor Ambassador Karla Chavez, joining from her home country of Honduras.

If you were in the room, you could feel the momentum already building toward elimination. If you weren’t, here’s what you missed.

Cervivor’s Founder: “We Make the Data Come Alive”

The packed speaker slate began with Cervivor Founder and Chief Visionary Tamika Felder’s annual State of Cervical Cancer address, reflecting on the organization’s 21 years of impact—and the work still ahead. Taking the stage to the iconic 1979 anthem “Ain’t No Stoppin’ Us Now,” she wove together her personal journey as a young cervical cancer survivor, the evolution of Cervivor from a grassroots support network into a global advocacy organization, and the power of community to transform isolation into action.

Cervivor’s founder and 24-year cervical cancer survivor Tamika Felder kicked off the Summit with a powerful mandate for change.

“We make the data come alive,” Tamika reminded the audience. Survivor voices give meaning to the numbers and urgency to the mission.

She challenged attendees not only to absorb the information shared throughout the Summit, but to carry it forward into their communities, healthcare systems, and policy spaces—reminding the audience that the work doesn’t end when the Summit does. “Whatever we talk about today, let’s not leave it here at the National Press Club,” she urged. “Let’s make sure everyone is talking about cervical cancer.”

An Emphasis on Evidence

Several early sessions reinforced a critical truth: We already know how to prevent cervical cancer, but access, trust, and implementation are uneven. Distinguished speakers grounded their messages in data, making the point unmistakable.

Dr. Hoskins highlighted both advances and persistent gaps, including the reality that a significant number of cervical cancer diagnoses still occur later in life and among people who were told screening was no longer necessary.

Dr. Ebony Hoskins gave an in-depth presentation on cervical cancer advances and gaps.

Her message was direct and evidence-based: Cervical cancer screening saves lives, innovation matters, and patients must be empowered to actively engage in their care. Her advice to patients: “Bring your questions written down. Bring a support person to be a second set of ears. Anxiety can make it hard to process information and support matters.”

That emphasis on evidence continued with Silke Schoch, MA, of the National Health Council, who showed how patient experience mapping becomes more meaningful when patients themselves help shape it. Through a striking comparison, she contrasted a “before” dry, clinically driven journey map with an “after” redesigned version that was more accessible and genuinely useful to those navigating care. Schoch also credited the launch of a tool to help organizations, academic institutions, and nonprofits equitably compensate patients for their time and expertise, saying, “Patients are all experts, and they should be compensated as experts and treated as experts.”

Silke Schoch with the aforementioned revised patient experience map on the screen behind her.

Next, speaking directly to the many cervical cancer patients and survivors in the audience, research expert Irene Aninye, PhD, reframed the role of lived experience in advancing change. “You are a data point—but you are more than a statistic,” she said. “When your story is paired with the numbers, people remember. That’s how progress happens.” Through interactive polling, she led the audience in discussion about the importance of prioritization and coalition-building to compel policy and systems change.

“The data is in the room,” said Irene Aninye, referring to the lived experience of patients and survivors in attendance.

Later in the day, Michelle Fiscus, MD, FAAP, Chief Medical Officer of the Association of Immunization Managers, shed light on more solid evidence: HPV vaccination prevents cancer. Walking participants through the complex history of the HPV vaccine—with some levity along the way—she explained how what should have been a public health success story when it was introduced in 2006 instead became a breeding ground for misinformation and vaccine hesitancy. “We’ve been able to prevent cancer for 20 years,” she said, “and yet this vaccine became a firestorm almost from the moment it was introduced.”

Michelle Fiscus’s information-packed session paired evidence with wit.

She emphasized that strong, consistent recommendations remain essential. “The problem isn’t the science. It’s how unevenly it’s been implemented—and how easily trust can be undermined.”

From Awareness to Action

That call-to-action energy carried through every session at the century-old club. In a purposeful discussion on the impact of proclamations, Cervivor Ambassador Christy Basa Chambers captured the urgency felt across the room: “This should be called Cervical Cancer Action Month, not just Cervical Cancer Awareness Month,” she said.

Cervivor Ambassador Christy Basa Chambers joked she is the “self-proclaimed Proclamation Queen.”

A Cervivor Community Vision and Impact session demonstrated what is possible when survivors turn pain into purpose. Moderated by Cervivor Ambassador and Program Coordinator Lauren Lastauskas and featuring Cervivor Ambassadors Trish Byerly, Claudia Pérez-Favela, and Joslyn Chaiprasert-Paguio, the panel traced each speaker’s unique journey from diagnosis to advocacy—and how reclaiming one’s voice can break stigma, close equity gaps, and save lives locally, nationally, and globally.

During the Cervivor Community Vision and Impact panel, Cervivor Ambassador Joslyn Chaiprasert-Paguio (center) explained how she shares her story to ensure others get the information and support she did not.

Joslyn, who hosts the Cervivor Podcast, spoke about fertility loss, nearly losing her life during childbirth, and the realization that “you’re never really done with cancer,” adding, “That’s when I knew this had to be my path—to speak up for people who don’t always have that option.”

The session concluded with an emotional moment of recognition, when Trish presented Tamika with a flag flown in her honor—at the request of Senator Tim Kaine of Virginia—on the 74th anniversary of Henrietta Lacks’s passing, October 4, 2025.

Cervivor Ambassador Trish Byerly (right) reads from the flag’s dedication, honoring founder Tamika “in recognition of her unwavering commitment to ending cervical cancer” and for inspiring and empowering “women to find strength from within.”

Later, in a Community In Action session, moderated by Cervivor Ambassador Tiera Wade, panelists Adana Llanos, PhD, MPH (Columbia University), Brooke Stewart, MPH (Louisiana Cancer Prevention), and Paris Thomas, PhD, MS (Equal Hope), explored how community-rooted partnerships are critical to advancing equity. “Equity work requires sustainability,” Paris noted, reflecting her nuanced understanding of the Chicago communities she serves. “That means supporting the people doing the work so they can continue showing up without burning out.”

Brooke shared a powerful example from a recent partnership with Cervivor’s 2025 Communities of Color initiative in New Orleans, where HPV self-sampling was brought directly to a neighborhood parade and dozens of women were tested on the spot. “It was just beautiful,” she said.

Brooke Stewart (left) spoke about a successful community outreach collaboration with Cervivor in New Orleans this past November 2025.

Treating Patients as Stakeholders

Ahead of the Summit, keynote speaker Matthew Zachary, founder of Stupid Cancer and We the Patients and longtime Cervivor ally, reflected publicly on why the gathering mattered. In a LinkedIn post, he wrote:

“Cervical cancer exposes the system in plain sight. Prevention exists. Screening exists. Treatment exists. People still die because access collapses along lines everyone pretends not to see.”

Zachary carried that clarity into his highly anticipated session, speaking candidly about survivorship, power, and the role of organized patient voices in shaping systems change. He also read publicly for the first time from the acknowledgments and foreword of his upcoming book, We the Patients: Understanding, Navigating, and Surviving America’s Healthcare Nightmares, offering a deeply personal reflection on the influences that shaped his work—including his younger self, who survived brain cancer in his early twenties, and those who did not make it.

Making his first public book reading at the Summit, keynote speaker Matthew Zachary is also the host of the longest-running independent healthcare podcast, Out of Patients (formerly The Stupid Cancer Show).

Following, Cervivor Ambassador Kate Weissman slipped into glittery “teal heels” on stage before sharing her cervical cancer story and how it propelled her into legislative advocacy. Diagnosed at age 30, Kate detailed how an insurance denial forced her family to pay $100,000 out of pocket—an experience that later led her to become the lead plaintiff in a historic, multi-year class action lawsuit and policy changes that closed loopholes insurers used to deny care.

“You don’t have to be a policy expert to advocate,” she encouraged fellow survivors in the audience while demystifying lobbying. “You just need to show up, tell the truth about your experience, and connect it to why change is needed. Lawmakers remember stories. They remember faces.”

Cervivor Ambassador Kate Weissman asserted, “Survivors belong in legislative spaces,” grounding the message in her own patient advocacy journey.

Kate also announced a new Cervivor Survivor Policy and Advocacy Working Group she is spearheading to equip survivors with the tools, training, and support needed to engage lawmakers and advance policies that improve outcomes for patients and families. Sign up here.

During the following Advancing Patient Advocate Voices panel, moderated by Citseko Staples Miller of FTI Consulting, with Matthew, Kate, and Taylor Hosier, Director of Patient Navigation for the Ulman Foundation, the panelists examined how patient advocacy shapes cancer systems and why cross-sector collaboration is essential to lasting change. As Citseko emphasized, “Patients are not an afterthought—they are stakeholders.”

Virtual attendees, shown here on a laptop monitor during the Advancing Patient Advocate Voices panel, shared insightful and poignant perspectives during Q&A and other interactive moments through Team Cervivor’s moderators.

Holding Space for the Full Survivor Experience

The Summit made room for honesty—not just about prevention and policy, but about survivorship itself.

In a heart-centered session, motivational speaker Dr. Stephanie Broadnax Broussard, LCSW-S, APHSW-C, named what many survivors carry quietly: Grief exists alongside survival. Placing a hand over her chest, she reminded the room that grief “exists here,” within the body and the lived experience of being human: chronic pain, neuropathy, changes in identity, intimacy, fertility, and confidence in the future. Community, she said, doesn’t remove grief, but it can help carry it.

Dr. Stephanie Broadnax Broussard opened her session with characteristic humor, noting, “This isn’t a session where we won’t laugh—because I’m funny—but it may be a little heavier than you expected.”

That candor carried into Dr. Stephanie’s “Both/And Reality” exercise, inviting survivors and advocates to name two truths they were holding at the same time. The responses captured the complexity of the task in minimal words:

“Grateful and grieving.” – Yvette Torres, Cervivor Ambassador

“Healing and hurting.” – Carol Lacey, Lead Cervivor Ambassador

“Exhausted and resilient.” – Linda Eckert, ObGyn professor and book author

Linda Eckert, author of Enough: Because We Can Stop Cervical Cancer, was one of many engaged audience members at the Summit.

From there, Team Cervivor’s Christina Turpin led an interactive session reminding attendees that while this work is a marathon, the Summit itself was a sprint—an opportunity to capture momentum and turn it into action. Joining virtually, Cervivor community member Leanne offered a simple but resonant affirmation: “I am the positive ripple.”

The Summit’s final speaker was Beth Battaglino, RN-C, CEO of HealthyWomen, whose remarks cut directly to the heart of the moment. “We have the science, we have the tools—and yet,” she said, “every year in the U.S., more than 13,000 people are diagnosed with cervical cancer, and over 4,000 still lose their lives.”

HealthyWomen CEO Beth Battaglino encouraged attendees, “Your voice belongs in healthcare decisions.”

“The gap between what we know and what we do is where your voice matters,” Battaglino continued. Education, she reminded the audience, “doesn’t move on its own. Policy does not change on its own, and access doesn’t expand on its own. People move them forward.”

To close the Summit on a heartfelt note (well, several notes), Cervivor Ambassador and New York music teacher Yvette Torres took the stage to sing the room out with a live rendition of “We Are Cervivor,” a song she wrote and recorded to uplift the cervical cancer survivor community. 

Cervivor Ambassador Yvette Torres led the audience in singing, “We Are Cervivor.”

Our Heartfelt Thanks—And the Work Continues

To everyone who joined us in Washington, D.C., or followed along online, we offer our sincere gratitude for another successful Summit. A special thank you to our presenting sponsor, Hologic; partnering sponsor, Roche; supporting sponsor, Merck; and our valued in-kind partner, St. Jude HPV Cancer Prevention Program.

We are also deeply grateful to our exhibitors, who made the Summit even more enriching for attendees. We appreciate all that they brought (literally!) to the event: the National Foundation for Infectious Diseases (NFID), Ulman Foundation, Hopewell Cancer Support, ACHIEVE (The ACHIEVE Study), and KickIt Pajamas, co-founded by Cervivor Ambassador Cindy Trice. As always, we thank our dedicated volunteers who made this Summit possible.

But, as Cervivor’s founder Tamika reminded attendees at the outset, the work doesn’t end with the Summit. The 2026 Cervical Cancer Summit reaffirmed what Cervivor has known for 21 years: We have the data, lived experience, community, and a clear understanding of what works. Ending cervical cancer now requires sustained investment in prevention, survivor leadership, and community-rooted action.

Thank you to everyone whose participation and partnership made the 2026 Summit a success.

As Cervivor marks 21 years of impact, the Tell 21, Give 21 campaign supports survivor education, advocacy, research engagement, and prevention efforts. It saves lives every day.

We’re grateful to have already surpassed $30,000 toward our goal, and there is still more to do.

Tell your story.
Support the work.
Share the mission.

Together, we can continue building a future where cervical cancer is prevented—and survivors are heard. Save the date for the 2027 Summit!

All images courtesy of Portia Wiggins Photography.

About the Author

SARA LYLE-INGERSOLL is a seasoned content and communications expert dedicated to transforming lived experiences into impactful stories. Her award-winning magazine feature about a close friend who passed from cervical cancer in their twenties led her to connect with Cervivor’s founder, Tamika Felder, and solidified her commitment to cervical cancer awareness and prevention. Now, as Cervivor’s Communications Director, Sara brings this mission full circle.