Clinical Trial Awareness Month: Cervical Cancer Needs YOU!

That first season of a TV, Netflix, or cable series is a total experiment. Producers wonder how the characters will resonate with the target audience. Advertisers are hopeful that their two-minute commercials and ads are crafted well enough to bring in sales. And actors cross their fingers that fans love each episode more and more, and demand a second season. The result: a cult following of a show that lasts for years, providing viewers the comfort of entertainment and solace.

While it may be a stretch, we can think about clinical trials in the same way. This method of medical research, is in fact, a pilot program for scientists to experiment, test, and prove what works, and what can result in medical breakthroughs – again, for the comfort and solace of those impacted by health challenges like cervical cancer.

You may have heard us at Cervivor championing the dire importance of clinical trials. We continue to stress the importance as this is the only way we can pave a way toward slowing down the loss of members in our community, thriving without having to lose parts of our bodies, and ultimately eliminating cervical cancer.

We said it before:

  • We need clinical trials to drive progress.
  • We need trials to determine the safety and effectiveness of every type of treatment.
  • And in order to determine that safety and effectiveness, we need volunteers.

We choose not to subscribe to the stigma around being a “guinea pig” or a “test dummy.” Without clinical trials, treatment, diagnosis, and prevention efforts are slowed down. The effectiveness of new medication, treatment, and therapy can only be proven through trial – and yes, error. Take a look at the thousands of trials around the globe currently recruiting patients, in addition to those that are active, completed, and terminated with results. Thanks to people including several of our Cervivor community members like Teolita, Erica, Jenn, and Linda much more work is being done daily to make sure our community – and the generation after us, and after them – can thrive.

“I decided that if this clinical trial was good enough for Jimmy Carter, it was good enough for me!” – Teolita Rickenbacker

It’s important to note that Cervivor advocates for cultural competence throughout our medical journey, including in the clinical trials process – and we should all be looking out for this. This means, making sure that the medical community understands, and is intentional about how they communicate with a diverse audience of women, whether Black, Brown, young, mature, and those who speak a language not native to their medical team. It is super important that the medical community, including those coordinating trials, speak different languages, and understand the experience of those who are part of a focus group. This important aspect aids in building and maintaining trust with those participating, which, in turn, helps us trust in both the process and the expertise of trial organizers.

This process takes a lot of teamwork: scientists work on hypotheses, patients report on progress and challenges, and doctors monitor outcomes. The result: an increase in clarity, more answers, more awareness, more options, and longer lives. Have a discussion on clinical trials with your care team and support system. Learn more with these recommended resources:
https://www.webmd.com/cancer/cervical-cancer/cervical-cancer-clinical-trials
https://www.clinicaltrials.gov/ct2/home

If you have experience with a clinical trial and want to share it with us, contact us at info@cervivor.org.

Cancer Can Go Fly a Kite!

Cancer Can Go Fly a Kite is a virtual cancer awareness event to do just that – to tell people ‘why’ cancer sucks. But it’s so much more than that.

A cancer diagnosis sucks. 
Cancer treatment sucks. 
The aftermath of cancer sucks. 
And losing friends and loved ones sucks too.

It’s also a chance to celebrate milestones no matter where you are in your cancer experience. 

Did you make it out of bed this morning? Celebrate it. 
Did you have a day or two without experiencing post treatment side effects? Celebrate it. 
Have you made it to a benchmark milestone? Let’s celebrate it together!

Do it for yourself or include your friends, family, pets, or even a group of coworkers. There’s no shame in this kite flying game!

This is an opportunity for caregivers, care team members, and community partners to show support and join forces in cancer awareness and prevention so that others do not have to stand where their loved ones, patients, and colleagues once were.

This event is in support of all cancers, not just cervical cancer. Join us in raising awareness on November 13th. 

We would like to thank our generous sponsors, Rubius Therapeutics for helping make this event happen.

Click here to order your kite. If you would like to participate but are unable to purchase a kite, please reach out to us at info@t0g.ce7.mywebsitetransfer.com

We look forward to your participation.