Reflections From World Health Day: Bridging The Gap in Cancer Across The Globe

On World Health Day, April 7th, we came together under the banner of “My Health, My Right,” echoing a fundamental truth: access to quality healthcare is a basic human right. However, as we reflect on the day’s theme, it’s clear that this right is far from being universally realized, as disparities persist not only on a global scale but also within communities, even in countries like the United States, Canada, Scotland, and across Central America and Africa.

The fight against cervical cancer serves as a poignant example of the multifaceted challenges in healthcare accessibility. In Africa, the lack of resources, including broken machines and long waits for vital screenings, creates barriers to early detection and treatment. Despite the personal choices individuals may make regarding their health, they are often hindered by the absence of necessary tools and infrastructure. Jane was a patient seeking care for a routine physical. She happened to find a free screening clinic being offered at her local hospital. Her cervical cancer was detected and treated early due to access and timely screening. 

In the Caribbean, where the scenery is picturesque, the reality is harsh: limited access to comprehensive treatment options forces individuals to endure costly and emotionally draining journeys for essential treatments like radiation therapy. Countries like St. Lucia face the added burden of relying solely on chemotherapy, necessitating patients like Nymphia to seek radiation treatment abroad, adding layers of complexity to an already challenging situation.

Even in countries like Canada, where universal healthcare is a cornerstone, significant barriers persist, particularly for marginalized communities. Poverty, homelessness, and racism contribute to late-stage cancer diagnoses, resulting in poorer outcomes. Addressing modifiable barriers such as housing instability and limited health literacy is essential to ensure timely access to treatment for all Canadians.

Similarly, in Central America, including countries like Honduras, World Health Day serves as a reminder of the inherent right to healthcare. Despite recent progress, many barriers continue to hinder vulnerable groups and rural communities from accessing essential cervical cancer screenings. Challenges such as lack of awareness, stigma, financial constraints, and inadequate family support contribute to low screening rates, highlighting the need for targeted interventions. Karla is a cervical cancer survivor and patient advocate working to change the narrative.

Even in Scotland, a country with a robust healthcare system, cancer inequalities persist, with higher incidence and mortality rates in deprived areas. The disparity is stark, with cancer death rates being 74% higher in the most deprived populations compared to the least deprived. Urgent action is needed to dismantle barriers to early diagnosis and ensure equitable access to high-quality care across all communities. Cara was diagnosed with stage II cervical cancer after several doctors appointments originally addressing gastrointestinal and stress-related symptoms.   

As we reflect on World Health Day 2024, it’s evident that the journey towards equitable healthcare is ongoing and multifaceted. It requires not only addressing systemic issues but also dismantling barriers rooted in social determinants of health. Together, we must continue to advocate for universal access to quality healthcare, ensuring that “My Health, My Right” is a reality for all, regardless of geography or socioeconomic status.

To get involved and make a difference, community members and allies can:

  1. Advocate for policy changes that prioritize healthcare equity and address social determinants of health.
  2. Support organizations like Cervivor and initiatives working to improve access to healthcare services for underserved communities.
  3. Educate others about the importance of health equity and the impact of social determinants on health outcomes.
  4. Engage in community outreach and support initiatives that address healthcare disparities and promote wellness.
  5. Stay informed and involved in local and global health issues, amplifying the voices of marginalized communities.

Together, we can create a future where everyone has equal access to the healthcare they need and deserve. Let’s work towards a healthier, more equitable world for all.

Finding My Footing After Cervical Cancer

In 2019, my beautiful son was born. I had my first abnormal pap a month after his birth.

A year and a half later, with multiple colposcopies, I was finally told to have a LEEP. A month later, I got a phone call from my gynecologist while at work. It was the phone call that changed my life; I was told that I had adenocarcinoma of the cervix.

I rushed home with tears in my eyes. Not wanting to tell my husband or, for that matter, my mother. She had just started feeling better after her own treatments and a stem cell transplant. Her hair was finally growing back. How can I share this news with her, that I, too, have cancer? My brother was diagnosed with testicular cancer in 2018, my mom was diagnosed with multiple myeloma in 2019, and then a year after her diagnosis, I was told I had cervical cancer. How can this be happening to one family? What did we do wrong?

The very next day, I distinctly remember asking myself, “How did I not know what HPV was? How did I not know there is a vaccine to prevent my cancer?”. I needed to create awareness for my fellow lady friends. We need to be made aware of what our pap tests are looking for. 

Being a new mom is already a challenge. Your whole world has turned upside down for this beautiful little creature who never sleeps, constantly eats, and cries all the time. I was already drowning. I absolutely love my son, but at that moment in time, I felt like I lost a part of who I was. Now, I’m just a mom, not Victoria.

Then a cancer diagnosis slaps you in the face.

My Family

Surviving cervical cancer gives you a whole new perspective on life. My attitude towards living and being a part of my family has changed dramatically.

My son, Jude, is now three years old. Knowing that cancer was in my body and knowing that if I didn’t find it or treat it, he would have been left without a mom; tears up my heart. I cherish every moment I have with him. Yes, even the crazy tantrums and the days I want to pull out my hair!

When my mom had her stem cell transplant, I was one of her caregivers. I saw firsthand what it was like to watch your mom fight for her life. I was fortunate enough to not have to go through radiation or chemotherapy; my son only knew mommy was “ouchie” (after my radical trachelectomy) and to let me heal.

I am here for my family. I am present in all things good and bad.

Being shown that cancer doesn’t discriminate on your age, really made me appreciate life and live it to the fullest. No more saying “well, maybe one day, I’ll do it” – now is the time!

My Friends

Explaining to my friends that I had cervical cancer truly felt like an out-of-body experience.

Like me, they were very uneducated on what HPV was and how it can cause cancer. My goal at the time wasn’t to create awareness, but more to let them know what was discovered and my treatments. My friends are the family I chose, and they needed to know.

Having this conversation and sharing everything with my friends is really what drove my desire to get involved in advocacy.

Creating Awareness

Bringing awareness to cervical cancer has been the biggest part of making my survivorship count.

As I mentioned, I had no idea what they look for during my pap test and just how important that truly is. How science and researchers have discovered a vaccination that can prevent certain HPV cancers.

During this cancer journey, I have found my voice. I need people to hear it, and not just hear it, listen! Educating my friends & family became my priority.

Originally, I shared my story and created awareness through social media. I attended a conference held in Toronto, Ontario, called “Health eMatters”. Here I met other advocates and heard about their journies. I have learned tips/tricks and other resources/tools to engage with more people.

My mom and I have started an Instagram account about a mother and daughter duo fighting cancer together. This is a newly formed platform and I’m excited about the possibilities and the number of people we can reach!

Being a survivor of cervical cancer, I find it is my responsibility to share my story and create awareness of cervical cancer. Don’t ignore the uncomfortable five minutes of a pap test! Get your vaccination!

If I help just one person or encourage just one person to get their pap test, I have done my job as a cervical cancer survivor and advocate.

Ending the Stigma

I, along with a lot of my Cervivor friends, have taken the challenge of stimga head-on.

We all know that cervical cancer has a stigma with it because it is related to HPV. So, it must be a “dirty” cancer. Educating the world about how common HPV is and how most people will have it at one point in their lives. Most immune systems are able to fight it off, while some aren’t so lucky and it can turn into cancer.

I was told I had cervical cancer caused by HPV and I automatically went to the thought of, “How? I’ve been with my husband for over ten years!”. I had no idea HPV could lay dormant for years!

So, back to educating because this is important. Everyone needs to know that just because you have cancer caused by HPV, it does NOT mean you “sleep around” or that you are “dirty”. It only takes one encounter!

We must end this stigma. I am not ashamed of it. I am not embarrassed. I will voice it loud and clear that I had cervical cancer and that you can prevent yourself from getting it.

TOGETHER, LET’S END THE STIGMA around cervical cancer!

Future

Looking towards the future, I would love to be able to connect with other cervical cancer survivors in Canada and truly make a support group here.

I want to be able to help those who have been newly diagnosed and be able to provide them with as much information and support as humanly possible.

I want to share my story with media outlets and really create awareness here in Canada. I’ve been talking with my local MPP about getting the Gardasil vaccination a priority and covered by our OHIP here in Ontario.

There are many steps left in my future of making my survivorship count. I am only two years out from being cleared of cancer and I’m just getting started on my advocacy!

Victoria Falla is born and raised in Hamilton, Ontario, Canada. She is a 33-year-old cervical cancer survivor. She was diagnosed with stage IB2 cervical cancer in 2020. Victoria is an active cervical cancer advocate who will make her survivorship count with every breath she takes.