Honduras

The Ladies in the White Shirts

Cervivor is committed to making a difference by working to close disparity gaps that continue to plague Communities of Color. This commitment led Cervivor’s Founder and Chief Visionary, Tamika Felder, and Cervivor’s Chief Diversity Equity and Inclusion Officer, Kimberly Williams to unite community members this past weekend from around the world—Honduras, St. Lucia, and U.S. states like Texas, Maryland, California, Alabama, New York, North Carolina, Iowa, and more—to Cleveland, Ohio, for the Cervical Cancer Patient Advocacy Retreat for Communities of Color. This retreat wasn’t just a local event; it was a global movement. We had community members participating via Zoom from Mexico, the Caribbean, and Africa, emphasizing our commitment to advocating for change worldwide.

Empowering Knowledge
Renowned experts from the Cleveland Clinic and Langston Hughes shared their insights on cervical cancer prevention, treatment, and advocacy. Attendees gained a deeper understanding of the importance of:

  • Routine screenings and HPV vaccination.
  • The need for cultural competency in healthcare.
  • Ways for them to engage in community outreach and education.

After an expert-led panel, Chief Diversity Equity and Inclusion Officer, Kimberly Williams recapped the powerful message, “An educated patient takes action.”

(From Left to Right: Dr. Goje, Dr. Beffa, Dr. Amarnath, Dr. Sutherland of the Cleveland Clinic, and Kimberly Williams, Chief DEI Officer, Cervivor, Inc.).
(Ms. Chantel Wilcox of Langston Hughes shared the mission-driven work in the community).

Participants also had the opportunity to discuss self-collection cervical cancer screening and participated in discussions that answered questions about self-collection and its importance in eliminating cervical cancer. This discussion aided the advocates in understanding and promoting self-collection as a viable option for early detection when they return to their communities.

A special session with Dr. Leeya Pinder, who practices both in the United States and Africa, provided a global perspective on the issue of access (not just screening and treatment, but also clinical trials). Dr. Pinder explained the dire need for advocacy to end the disease, highlighting that many individuals with a cervix in these countries lack access to essential screening materials, leading to detrimental results. Her insights allowed participants to see the full circle of need in cervical cancer prevention and treatment.

(Cassie Ricci, Roche Diagnostics, discusses the latest for self-collection).
(Dr. Leeya Pinder pays acknowledgment to Mrs. Henrietta Lacks during an impactful session).

Turning Knowledge into Action
On Saturday, Cervivor launched Cervivor Cares, which is our initiative to raise awareness about cervical cancer in communities through education, volunteering, and active presence. We engaged in community outreach, raised funds, and supported the mission to eliminate cervical cancer by providing essential resources and promoting access to necessary screening and treatment for all. 

What better way to launch Cervivor Cares, than a Cervivor in Action day after a full day of classroom training? That’s right, our retreat participants increased their advocacy footprint by putting their knowledge into action. They volunteered their time at a clinic hosted by Medworks and the Cleveland Clinic that provided preventative screenings to the underserved community of Cleveland, Ohio. 

(Cervivor Español and Latinx Attendees).
(Dr. Mary Sia Uy-Kroh, MedWorks Board Member, sharing how Cervivor was making a world of impact).

It was not only an opportunity for preventive screenings, it was an opportunity for our participants to bring education and empowerment to all those who attended and were touched by our volunteers. Without hesitation, our retreat participants assisted by sharing their stories and expressing the importance of our mission. Our Cervivor Español, attendees translated to and for patients in every facet including the exam room so patients understood the physician’s questions and requests. This group put the information they learned into action immediately. Our participants met people where they were, in their daily routines —urging them to schedule their cervical cancer screenings, attend follow-ups, and the importance of HPV vaccination. 

As they shared their stories and stressed the importance of cervical cancer screenings and HPV Vaccination, the clinic was buzzing with excitement. Patients and staff alike began referring to them as “The Ladies in the White Shirts,” urging others, “You need to go talk to the ladies in the white shirts.”  These Cervivors were educating patients before they even walked through the door, helping them understand that regardless of their past, getting screened and following up on any abnormalities now is crucial. The retreat participants’ presence underscored the importance of the Cervivor mission and served as a reminder that their story mattered, and was already making a difference.

Embracing the Spirit of the Ladies in the White Shirts
As we reflect on this transformative event, we celebrate the spirit of “The Ladies in the White Shirts”—the Cervivor community. Each of you embodies this spirit by wearing your shirt, sharing your story, and advocating for screening. Your dedication makes you a vital part of the movement to end cervical cancer. In the words of Gwendolyn Jackson, “You have prepared me to go out into my community.” If you don’t feel prepared, we have programs available for you!

Lindsay Gullatte-Lee (Mentor) and Gwendolyn Jackson (Attendee) in their white Cervivor Cares tees.
(A snapshot of programming Cervivor offers).

We encourage everyone to grab your Cervivor Spark, use the hashtags #Screen4Me and #Cervivor, and continue advocating for cervical cancer screenings. By sharing your story and spreading awareness, you become a powerful advocate, helping others access the screenings they need and contributing to a future free from cervical cancer. Together, as a community working to eradicate cervical cancer, let’s continue to make our voices heard, drive change, and support each other in this crucial mission.

Cervivor would like to extend its sincerest gratitude to our sponsors, including Pfizer, Genmab, Roche, and The Marchetta Family (Vince, Amanda, & William in honor of their late wife and mother, Betsy), as well as our in-kind donors, La Roche-Posay, Kafela, Lepley & Co., and Kesh the Creative, for their generous support and contributions to our mission.

Reflections From World Health Day: Bridging The Gap in Cancer Across The Globe

On World Health Day, April 7th, we came together under the banner of “My Health, My Right,” echoing a fundamental truth: access to quality healthcare is a basic human right. However, as we reflect on the day’s theme, it’s clear that this right is far from being universally realized, as disparities persist not only on a global scale but also within communities, even in countries like the United States, Canada, Scotland, and across Central America and Africa.

The fight against cervical cancer serves as a poignant example of the multifaceted challenges in healthcare accessibility. In Africa, the lack of resources, including broken machines and long waits for vital screenings, creates barriers to early detection and treatment. Despite the personal choices individuals may make regarding their health, they are often hindered by the absence of necessary tools and infrastructure. Jane was a patient seeking care for a routine physical. She happened to find a free screening clinic being offered at her local hospital. Her cervical cancer was detected and treated early due to access and timely screening. 

In the Caribbean, where the scenery is picturesque, the reality is harsh: limited access to comprehensive treatment options forces individuals to endure costly and emotionally draining journeys for essential treatments like radiation therapy. Countries like St. Lucia face the added burden of relying solely on chemotherapy, necessitating patients like Nymphia to seek radiation treatment abroad, adding layers of complexity to an already challenging situation.

Even in countries like Canada, where universal healthcare is a cornerstone, significant barriers persist, particularly for marginalized communities. Poverty, homelessness, and racism contribute to late-stage cancer diagnoses, resulting in poorer outcomes. Addressing modifiable barriers such as housing instability and limited health literacy is essential to ensure timely access to treatment for all Canadians.

Similarly, in Central America, including countries like Honduras, World Health Day serves as a reminder of the inherent right to healthcare. Despite recent progress, many barriers continue to hinder vulnerable groups and rural communities from accessing essential cervical cancer screenings. Challenges such as lack of awareness, stigma, financial constraints, and inadequate family support contribute to low screening rates, highlighting the need for targeted interventions. Karla is a cervical cancer survivor and patient advocate working to change the narrative.

Even in Scotland, a country with a robust healthcare system, cancer inequalities persist, with higher incidence and mortality rates in deprived areas. The disparity is stark, with cancer death rates being 74% higher in the most deprived populations compared to the least deprived. Urgent action is needed to dismantle barriers to early diagnosis and ensure equitable access to high-quality care across all communities. Cara was diagnosed with stage II cervical cancer after several doctors appointments originally addressing gastrointestinal and stress-related symptoms.   

As we reflect on World Health Day 2024, it’s evident that the journey towards equitable healthcare is ongoing and multifaceted. It requires not only addressing systemic issues but also dismantling barriers rooted in social determinants of health. Together, we must continue to advocate for universal access to quality healthcare, ensuring that “My Health, My Right” is a reality for all, regardless of geography or socioeconomic status.

To get involved and make a difference, community members and allies can:

  1. Advocate for policy changes that prioritize healthcare equity and address social determinants of health.
  2. Support organizations like Cervivor and initiatives working to improve access to healthcare services for underserved communities.
  3. Educate others about the importance of health equity and the impact of social determinants on health outcomes.
  4. Engage in community outreach and support initiatives that address healthcare disparities and promote wellness.
  5. Stay informed and involved in local and global health issues, amplifying the voices of marginalized communities.

Together, we can create a future where everyone has equal access to the healthcare they need and deserve. Let’s work towards a healthier, more equitable world for all.