The Power of Community

Every January, our community commits to bringing their global voices together in unison to talk about and bring awareness to cervical cancer and what it means to be a Cervivor.

Cervivor is a movement and a community. A community of people who find themselves holding on together because of the most life-shattering circumstance possible — a cervical cancer diagnosis.

As we say so often, we are in a club that no one wants to be in but having found each other brings us hope, support, and a platform to bring the visibility needed for cervical cancer prevention and awareness.

We come from everywhere. Urban cities, rural communities, countries across the globe, suburbs, and everywhere in between. Our diagnosis, treatment plans, and the way we move within our cancer is different for each of us yet when we arrive at Cervivor we realize we have a collective voice that is unstoppable.

Maybe you took that first step and shared your cervical cancer story. You typed out the nitty gritty of being diagnosed with a cancer that is rarely talked about and far too often stigmatized. And then you went on to read the stories of other women, some so similar that you immediately felt connected. That’s where it begins, this community of Cervivors.

These are your words, our collective voice, and this is what being a part of the Cervivor community means to you.

THANK YOU CERVIVOR TEAM @iamcervivor for your eyes to see, your ears to listen, and your hearts to heal. Let’s keep spreading awareness and support our fellow CERVIVORS who need us the most! ~ Arlene

This came just in time to accompany to my first chemo (this time around) tomorrow. Bring on healing and killing cancer with strength. ~ Laura W

I just got the sweetest note in the mail. Totally lifted me up. Love all my Cervivor sisters! And you’re right, with having all of you in my corner, I’ve totally got this! This is just a small bump in the road, but onwards and upwards! ~ Tammy

I just came home from my nephrostomy tube exchange to this amazing gesture that brought tears to my eyes. Team Cervivor you all are amazing, your support and kindness goes beyond anyone’s expectations and I am eternally grateful to be part of this group. Thank you! ~ Carmen

Today I’m very grateful for this beautiful card! Words can’t describe how thankful I am for finding out about this group  I wish I could have found it earlier! ~ Alexia

Thank you, Team Cervivor, for making a rough week a little better today! I’ve been down with the flu all week, and solo parenting on top of it. This was such a sweet delivery today. ~ Anne Z

So much love! Thank you, Cervivor, for always being there! ~ Joanna

Team Cervivor is truly the best; sitting here crying… thank you. People don’t understand the milestone this means… but it is so wonderful to be a part of this group who really do get the relief we have for making it to this one-year mark! Thank you for all your hard work behind the scenes and for us! ~ Victoria

Thank you Cervivor for giving me this opportunity to be among this great and strong team. ~ Milicent 

Thank you, Team Cervivor for the birthday card. I have been feeling down because I was a little bit under the weather but this card made my day. You guys are awesome and thank you to everyone in this group for making this community wonderful. ~ Anna

I came home yesterday to goodies and a nice book after a trip with my mom to the oncologist. I felt really down that I couldn’t do as much as I wanted to during last month and I was hard on myself, so when I received this from CERVIVOR, I was happy for the uplifting and encouragement. Cervivor is amazing for all that they do to assist all of us in being empowered and also caring for ourselves. ~ Kyana 

We are Cervivor. You make this a community by uplifting each other with grace and compassion. You share the difficulties cervical cancer can bring yet you always make sure to check in with each other. Thank you for being here, for sharing your stories, and making this a safe place for all.

Not yet a part of the Cervivor community? Join our Facebook group I’m A Cervivor!, Cervivor Español, or Cervivor Noir. Do you identify as Asian or Pacific Islander? A private group will be coming soon. To be in the know, send us an email at [email protected].

Do you have a cervical cancer story to share? Visit cervivor.org/stories and share yours today. 

Cervivor School Nashville Was Outstanding

The 13th patient advocacy training known as Cervivor School was held in Music City U.S.A. or better known as Nashville, Tennessee. This was an intimate group, made up of first-time and returning attendees and we hosted some of the most dynamic speakers to educate and empower our 2022 class.

Like any other Cervivor School, we kicked it off with a special Welcome Reception where attendees were able to mingle and get to know each other right off the bat. We heard inspiring words from Heather Banks, Lead Advocacy Educator, and Tamika Felder, Cervivor Founder and Chief Visionary.

Tamika and Heather kicked off the first day with a dedication to and moment of silence for those who have died from their cervical cancer and are no longer able to share their stories. It was a powerful reminder that our mission to end cervical cancer is not over and there is still much work to do. Tamika also shared how putting a human face to cervical cancer is a critical part of our cause and why we should share our stories.

Later we heard from Community Engagement Liaison, Morgan Newman, Lead Cervivor Ambassador, Carol Lacey, and Cervivor Ambassadors, Karla Chavez and Karen North. They shared what it means to be a patient advocate, how they fulfill the role to make an impact, and what advice they have for others in mastering survivorship and advocacy. Then we heard from Michelle Whitlock, author of  “How I Lost My Uterus and Found My Voice,” and how she decided to use her voice after cervical cancer followed by empowerment groups and a session on life during and after treatment with Heather.

Cervivor Ambassadors Carol Lacey and Morgan Newman led an interactive session, Healing Through Writing, in honor of Erica Frazier Stum who thought of and led the session in the years prior. After listening and sharing each others’ creative writing, we ended the day by creating an individualized advocacy action plan to be put in place after leaving Cervivor School.

Day two is our Medical Day where we get the latest and most advanced information on the human papillomavirus (HPV), the HPV vaccine, and cervical cancer screening. We started the day by understanding cervical cancer screening guidelines, the impact of the patient perspective, and how important it is in our advocacy work. It was a great reminder from Dr. Lia Bos that our stories are powerful and when we partner our voices with physicians and clinicians in the field, we leverage our impact even more. We also heard from Andrea Stubbs, MPA, representing our community partner, St. Jude, and their HPV Cancer Prevention Program. She shared her work and provided ideas and information about supporting HPV vaccination efforts so we can powerfully advocate for vaccination as prevention!

We were inspired by Catherine Tyler as she led us through a discussion on living with and through significant illness and treatment while staying true to our aspirations and our authentic selves. And Tamika and Heather helped our attendees practice potential advocacy scenarios, establish advocacy norms, and finalize our advocacy action plans to put in place after leaving Cervivor School.

Lastly, we rounded out the Cervivor School weekend with a graduation ceremony for our attendees and Tamika awarded not one but two Cervivor Champions for 2022!

Jenn Myers and Kimberly Williams have both embodied what a Cervivor Champion is.

Jenn is a metastatic and recurrent cervical cancer patient currently undergoing treatment and is still leading and advocating despite it all and Kimberly continuously shares the importance of vaccination and cancer screening when it comes to HPV, cervical cancer, and communities of color.

Our newest Cervivor School graduates are empowered, ready to share their stories, and eager to connect with leaders in their local communities. Team Cervivor cannot wait to see their advocacy in action and how they decide to make their survivorship count!

We would like to extend our gratitude to our Cervivor School Sponsors Hologic, Seagen, Genmab, and Genentech.