Navigating the Unseen Battle of Mental Health in Cervical Cancer

By Morgan Newman, MSW, Community Engagement Liaison

As the Community Engagement Liaison for Cervivor, Inc., I’ve had the privilege of supporting many individuals through their cervical cancer journeys. While treatment and physical recovery often take center stage, it’s crucial to recognize the profound mental, emotional, and psychological impact of cervical cancer, which can be overwhelming, isolating, and frightening.

Janice Le-Nguyen

At Cervivor—founded 20 years ago to support those affected by the disease—we don’t shy away from facing these challenges head-on. Many in our community say that the been-there-done-that understanding and solidarity they find here play a vital role in their healing.

Janice Le-Nguyen, a Cervivor celebrating four years of being NED (no evidence of disease) after Stage 1A2 cervical cancer, shares: “I am appreciative of finding the Cervivor community and finding pathways to not feel ashamed and that I can freely discuss HPV, the cervix, and all the ‘fun’ I went through.”

I felt the same way after surviving Stage III at 24. Getting involved with Cervivor and advocating for fellow survivors helped me reclaim my voice and purpose.

But the cervical cancer journey is complex. Emotional highs and lows are part of the experience. Here are some of the most frequent mental health concerns our community members face—and why it’s so important we talk about them openly, without judgment or fear.

Survivor’s Guilt

Feeling grateful to be alive while struggling with the aftermath of treatment can bring on guilt and self-doubt, especially when others faced tougher outcomes or didn’t survive. On average, about 10 women from our immediate Cervivor community die each year—and it never gets easier to say goodbye.

Cervivor’s “In Memoriam” graphic is a solemn tribute to many of the lives lost since the organization’s start.

These losses weigh heavily, but they keep us grounded in our mission to eradicate the disease. Rather than staying stuck in cycles of guilt, many of us find healing through action. 

That’s been true for Janice. “Through Cervivor, I realized that by sharing my story, I could inspire others to get screened, ask questions, and take charge of their health,” says the quiet but fierce advocate, who started local community outreach with Cervivor a few years back.

We encourage all survivors to share their Cervivor Stories when they feel ready—each one adds powerful momentum to our mission and gives hope to others. If you’d like to share your experience, consider filling out this questionnaire and submitting a photo.

Scanxiety and Fear of Recurrence

Scanxiety—a term widely used in the cancer community—describes the intense anxiety and fear that can build up around follow-up scans and tests.

Me during my metastatic recurrence.

As a metastatic/recurrent survivor, I know this feeling all too well. Nine years ago, I was given just a 7–9% chance of ever being cancer-free—and yet, here I am. Still, every new ache, pain, or side effect can feel like a potential sign of recurrence.

A supportive community makes a difference. In our Cervivor Facebook group, for example, many members openly share their experiences with scanxiety and offer practical ways they’ve learned to cope. Just knowing you’re not the only one feeling this way can bring relief. And as always, consult your health provider if symptoms arise.

Body-Related and Intimacy Issues

Changes to the body can deeply affect self-esteem and relationships. Radiation side effects, like needing a cane or wheelchair, can be life-altering. Invisible disabilities like lymphedema, ostomies, and hearing loss require constant management.

Survivors in our community, including Lead Cervivor Ambassador Carol Lacey and others like Lorie Wallace, Sara Johney, Gabrielle McCord, Mary Clarkson-Grubb, Sally Kwenda, Maria Franklin, Julie Groob, Karla Chavez, and Talitha Stempin, navigate these challenges with strength and grace. Tools like lymphatic compression gear, ostomy bags, and hearing aids become part of daily life and symbols of resilience.

These survivors’ courageous approach to life after cancer, despite visible and invisible disabilities, shows the strength and resilience within our community. Clockwise from top left: Carol, Lorie, Gabrielle, Karla, Mary, Talitha, Julie, Sara, Maria, and Sally.

Body changes can also affect physical and emotional intimacy. Survivors have bravely opened up about their experiences on the Cervivor Blog, and a recent CervivorTV video, hosted by Founder and Chief Visionary Tamika Felder and featuring Dr. Christina Wilson, a board-certified women’s health nurse practitioner, dives into navigating body image and sexual health. It’s a must-watch.

Depression

The trauma of a cancer diagnosis and treatment can trigger depression—a reality that affects up to 25% of cancer patients, according to the National Cancer Institute (NCI). Yet, only a fraction receive the mental health support they need. Left unaddressed, depression can slow recovery, weaken the immune system, and negatively impact survival.

Kyana Johnson

Cervivor community member Kyana Johnson, diagnosed with Stage IIIB cervical cancer at 26, has shared her mental health struggles on the blog. She found comfort in self-care practices like journaling, meditation, coloring, and listening to music. Seeing a therapist at least twice a week was especially transformative.

“It was some of the best conversations I’ve ever had,” recalled Kyana, now seven years in remission. “My therapist helped me make sense of a lot of my emotions.”

And she offers this encouragement to others: “Remember that you are worth it. You shouldn’t be ashamed to seek mental health advice when your anxiety or stress feels too heavy.”

I’m also inspired by survivors like Danielle Glick and Jessica Martin, who have become psychotherapists since their cervical cancer experience. Their journeys show how healing mental and emotional health can lead to purpose, helping others find strength during the most difficult times.

You Are Never Alone

Because cervical cancer’s link to HPV can carry stigma, many feel isolated. But within Cervivor, we work to break that silence. We notice when someone goes quiet, we reach out, and we hold space for each other—without pressure to always “be okay.”

Ultimately, connection is essential to mental health recovery. Healing requires both safety and vulnerability. By naming and normalizing our struggles, we build resilience—and a supportive community that truly sees us. As Kyana put it, joining support groups like Cervivor helped her mental well-being because “they got it.”

Our mantra is simple: You are never alone. Whether through private groups, monthly support meetups, or personal check-ins, there is always a place for you here.

Ready to build meaningful relationships and support others in their cancer journeys? Join our monthly Creating Connections virtual meetup, designed for cancer patients, survivors, and thrivers. This supportive community is a safe space to share experiences, find resources, and connect with others who understand. Register for our next virtual meetup today.

About Morgan Newman, MSW

A resilient young adult (AYA) cervical cancer survivor, social worker, and dedicated patient advocate, Morgan has transformed her experience into a powerful force for change. After overcoming metastatic and recurrent cervical cancer at 24, she became a Cervivor Ambassador in 2017 and has since led global advocacy efforts. Her leadership roles include Community Engagement Liaison at Cervivor, board member for Above and Beyond Cancer and the Iowa Cancer Consortium, and Iowa State Lead Ambassador for the American Cancer Society Cancer Action Network (ACS CAN). She also serves on the Iowa Immunizes Coalition and as a patient advocate for the NIH’s Enduring Guidelines and Extended Genotyping Panels, and the NCI’s Patient Advocacy Steering Committee and Cervical Task Force. Morgan’s work has earned her awards and recognition, solidifying her as a leading voice in the fight against cancer.

Educate to Eliminate: Amplifying the Global Call to End Cervical Cancer 

Cervical Cancer Elimination Day of Action is this Sunday, November 17. It marks the global goal set by the World Health Organization (WHO) to eliminate cervical cancer by 2030. Since the WHO announced its strategy in 2020, nearly 200 countries have committed to the mission, and numerous global and national groups have joined the call.

But we won’t reach this goal if we don’t roll up our collective sleeves and do the work. Cervical Cancer Elimination Day of Action is an important reminder that the fight is still on. It is especially meaningful to many in our Cervivor community, including Cervivor Ambassador and Cervivor Español Co-Lead Karla Chavez.

Karla Chavez

“As a cervical cancer survivor, this day hits close to home. It’s not just about setting targets – it’s about making sure the tools to prevent and treat cervical cancer reach women everywhere,” says Karla, who will give remarks at a WHO-hosted virtual webinar on Monday, November 18, about frontline workers and the cause. “I know firsthand how life-changing these resources are, and it means so much to see us actively working to make sure no one else has to endure this disease.”

So, what are the targets?

Global Guidelines to End Cervical Cancer

The WHO’s “90-70-90” strategy to eliminate cervical cancer by 2030 includes these key global targets:

  • HPV Vaccination Rate: 90% of girls get the HPV vaccine by age 15. Doing so protects them against high-risk HPV strains that can cause cancers in the cervix, vagina, vulva, head, neck, mouth, and anus (the last four in men as well).
  • Improved Screening: Make sure 70% of women get screened for cervical cancer by age 35 and again by age 45. Pap tests find abnormal cells that can become cancerous, while HPV tests check for the virus – aiming to catch risks early.
  • Better Access to Treatment: 90% of women with early signs of cervical cancer receive treatment, and 90% of women with invasive cancer get the care they need to manage and treat the disease effectively.

Is it possible to eliminate cervical cancer completely? The WHO estimates that cervical cancer will become a rare disease – rather than a common health threat – when fewer than 4 cases per 100,000 women are diagnosed each year.

How Are We Doing? 

Globally, approximately 350,000 women continue to die each year from cervical cancer. When the WHO set its guidelines in 2020, the number was around 311,000, which shows the significant challenges in meeting the targets, particularly in economically disadvantaged countries. It also highlights the ongoing need for global action to end cervical cancer.

The outlook in the U.S. is encouraging. This year, approximately 4,360 women are expected to die from cervical cancer, a significant decrease from the 1970s and ’80s when annual deaths reached up to 10,000. The U.S. is getting closer to meeting the WHO’s targets, thanks to rising HPV vaccination rates, although it still falls short of the 90% goal. According to the CDC, in 2023, 76.8% of adolescents had received at least one dose of the HPV vaccine, and 61.4% were fully vaccinated. While access to screening and treatment is strong in many regions around the country, disparities persist.

Educate to Eliminate Cervical Cancer

How can the Cervivor community support the global mission to end cervical cancer? One powerful way is by sharing life-saving information to “Educate to Eliminate,” starting with these 4 Crucial Facts about HPV and Cervical Cancer.

Just as important, continue sharing your Cervivor Stories – because you never know who needs to hear them. Stories like U.K. Cervivor Samina Cepal, whose cervical cancer was detected during a routine Pap test, or Washington-based Pamela Akers, who had regular Pap tests but still had “below the belt” issues. The lessons learned? Regular screenings are key to preventing cervical cancer, but it’s also essential to listen to your body beyond routine exams so you can seek care early, as the WHO advocates.

This also requires frontline healthcare workers to have the resources needed for accurate screenings and proper treatment. Cervivor Ambassador Karla, a patient advocate on the WHO’s Living Guidelines team for Cervical Cancer Screening, emphasizes these medical professionals’ important role in ending cervical cancer. “I deeply appreciate the struggles frontline workers face. They’re dedicated but need our support – whether for tools, training, or recognition – to make a real difference in women’s lives.”

Or, you could decide to be a frontline worker yourself like Anh Le! Diagnosed as a medical student in 2018 with a rare, aggressive form of cervical cancer, Anh underwent lifesaving surgery at Memorial Sloan Kettering, which motivated her to become an OB/GYN oncologist to help cancer patients. She’s now cancer-free and doing her OB/GYN residency.

Donate to Eliminate, Too!

On this Cervical Cancer Elimination Day of Action, let’s honor those who continue to fight the good fight – like Samina, Pamela, Karla, and Anh Le – and those who lost the battle, like my friend Heather. While it’s heartbreaking to think that today’s prevention tools could have saved her life, the fact that we have them now is the best reason to make this day count.

At Cervivor, we’re asking our community to commemorate the day by donating $17 on November 17 to support our critical work in regions most affected by cervical cancer. Donations will help fund Cervivor School Kenya (2025) and a Cervivor Cares community awareness event in Honduras, where Karla lives, among other initiatives.

We’re also amplifying the WHO’s goal with our November 2024 podcast featuring Dr. Trisha L. Amboree, a public health expert at MUSC Hollings Cancer Center, who discusses the importance of the Elimination Day of Action. The episode airs on Sunday, November 17.

Check out our many other resources on Cervivor.org and learn how you can get involved or share your cervical cancer experience on Elimination Day and every day. 

SARA LYLE-INGERSOLL is a seasoned content and communications expert dedicated to transforming lived experiences into impactful stories. Her award-winning magazine feature about a close friend who passed from cervical cancer in their twenties led her to connect with Cervivor’s founder, Tamika Felder, and solidified her commitment to cervical cancer awareness and prevention. Now, as Cervivor’s Communications Director, Sara brings this mission full circle. Her previous roles include Editor-in-Chief of The Finder in Singapore, Deputy Editor at Woman’s Day, Lifestyle Director at Good Housekeeping, and Senior Editor at Jane Magazine. Based in Denver, she is a boy mom of a blended family and enjoys good food, travel, and all the sunsets.