cervivor school

Celebrating Breast Cancer Awareness Month as a Cervivor

As cervical cancer survivors, we advocate to bring more awareness to cervical cancer and all gynecologic cancers. Our cancers do not have the same visibility as breast cancer but there was a time when breast cancer was not talked about, let alone celebrated.

It was the work of Nancy G. Brinker, founder of Susan G. Komen® who really changed the narrative of breast cancer and started the ‘pink revolution’. When Ms. Brinker spoke to our 2018 Cervivor School attendees, she shared with us how it was an uphill battle to bring visibility to a ‘woman’s cancer’, a taboo subject that was only whispered about. She persisted and today we see the positive outcome of her work; the glass ceiling she broke through for others to follow.

We know that we still have so much work to do to bring this kind of recognition to cervical cancer but what’s important to remember is that above and below the belt cancers all take so much away from us – breasts, reproductive organs, cervixes, vaginas, and so much more. We may struggle with redefining our womanhood and we carry our physical and emotional scars with us beyond our cancer diagnosis and treatment.

These cancers change us forever.

As women, we fight hard every day for equality; to have a seat at the table, to be heard. We should be able to look to each other for support, especially when it comes to our bodies.

We are all in the cancer club regardless of what color our awareness ribbon reflects.

Today, more than ever, is the time to come together and advocate for women’s health. Every month. Every day. We can support our breast cancer friends this month and come January, just like in September, these friends will be sharing and supporting our message of cervical cancer prevention, helping us paint the world teal and white.

Reaching That First Big Milestone

Five years? How is it possible?

Five years. It seems like much longer yet it’s still so fresh in my mind. I have spent so much time processing through what happened to me – the good and the bad. Where there was darkness, there was so much beauty to equal it out. Cue the universe’s synchronicities and all the cardinal sightings.

Six years ago, I was diagnosed with cervical cancer for the first time at age 24. They found spots in my lungs after only being six months into remission. It was truly devastating! I was back in school full-time, working full-time, and trying to regain some normalcy.

But life had other plans for me.

I went through diagnostic test after diagnostic test to confirm it was cancer. Indeed, I would be facing my mortality once again. I will never forget the words my oncologist spoke to me after I received my first three treatments, “There are 7-9% of women who experience a complete interval response to treatment. You are one of those 7-9%. You don’t have any evidence of disease.”

I knew I had been given such an incredible gift and that I must not waste this second chance at life. What I didn’t expect was to find my voice as loud as I’ve made it. I stumbled across Cervivor through a hashtag on Instagram – I didn’t see this as a coincidence. I fundraised my way to Cervivor School in 2017 where I flew out to Delray Beach, Florida and learned how to use my voice in advocacy. The rest is history.

I’m still processing through many of accomplishments that I’ve experienced over the last five years including the idea that I’ve graduated three times despite my diagnosis and treatments, and that I’ve reached my first big cancerversary milestone. I’ve jumped at every Cervivor opportunity to be a part of change from cancer panel speaking opportunities to proclamation signings with Iowa’s governor for Cervical Cancer Awareness Month (January) to volunteering with the American Cancer Society Cancer Action Network (ACSCAN) to protect or improve policies related to cancer care. I also serve as a leader with Above and Beyond Cancer to make the Adolescent and Young Adult (AYA) community visible locally. Because of this work, I’ve been given three awards from Cervivor, ACSCAN, and Above and Beyond Cancer.

I know I wouldn’t be able to do this work alone, it takes a village to make a difference – to make change happen. It is exhausting and it can take a toll but it is also truly rewarding to see our impact taking place across the globe. I’ve met so many resilient and passionate advocates (along with their family members) – some are still with us while others have succumbed to their diagnoses. As a survivor and patient advocate, I had to accept and understand that this was going to be a common occurrence in our community but it didn’t make it suck any less.

However challenging this work may be, I wouldn’t trade this personal and professional growth for anything. Here’s to 5 years cancer free!

Morgan is a metastatic recurrent cervical cancer survivor, a 3x award winning patient advocate, and our Community Manager for Cervivor. She resides in Iowa with her boyfriend, Tony, their cat, Jeezy, and dachshund, Sassy. Morgan continues to advocate tirelessly in hopes her story can help others.