The Ladies in the White Shirts

Cervivor is committed to making a difference by working to close disparity gaps that continue to plague Communities of Color. This commitment led Cervivor’s Founder and Chief Visionary, Tamika Felder, and Cervivor’s Chief Diversity Equity and Inclusion Officer, Kimberly Williams to unite community members this past weekend from around the world—Honduras, St. Lucia, and U.S. states like Texas, Maryland, California, Alabama, New York, North Carolina, Iowa, and more—to Cleveland, Ohio, for the Cervical Cancer Patient Advocacy Retreat for Communities of Color. This retreat wasn’t just a local event; it was a global movement. We had community members participating via Zoom from Mexico, the Caribbean, and Africa, emphasizing our commitment to advocating for change worldwide.

Empowering Knowledge
Renowned experts from the Cleveland Clinic and Langston Hughes shared their insights on cervical cancer prevention, treatment, and advocacy. Attendees gained a deeper understanding of the importance of:

  • Routine screenings and HPV vaccination.
  • The need for cultural competency in healthcare.
  • Ways for them to engage in community outreach and education.

After an expert-led panel, Chief Diversity Equity and Inclusion Officer, Kimberly Williams recapped the powerful message, “An educated patient takes action.”

Participants also had the opportunity to discuss self-collection cervical cancer screening and participated in discussions that answered questions about self-collection and its importance in eliminating cervical cancer. This discussion aided the advocates in understanding and promoting self-collection as a viable option for early detection when they return to their communities.

A special session with Dr. Leeya Pinder, who practices both in the United States and Africa, provided a global perspective on the issue of access (not just screening and treatment, but also clinical trials). Dr. Pinder explained the dire need for advocacy to end the disease, highlighting that many individuals with a cervix in these countries lack access to essential screening materials, leading to detrimental results. Her insights allowed participants to see the full circle of need in cervical cancer prevention and treatment.

Turning Knowledge into Action
On Saturday, Cervivor launched Cervivor Cares, which is our initiative to raise awareness about cervical cancer in communities through education, volunteering, and active presence. We engaged in community outreach, raised funds, and supported the mission to eliminate cervical cancer by providing essential resources and promoting access to necessary screening and treatment for all. 

What better way to launch Cervivor Cares, than a Cervivor in Action day after a full day of classroom training? That’s right, our retreat participants increased their advocacy footprint by putting their knowledge into action. They volunteered their time at a clinic hosted by Medworks and the Cleveland Clinic that provided preventative screenings to the underserved community of Cleveland, Ohio. 

It was not only an opportunity for preventive screenings, it was an opportunity for our participants to bring education and empowerment to all those who attended and were touched by our volunteers. Without hesitation, our retreat participants assisted by sharing their stories and expressing the importance of our mission. Our Cervivor Español, attendees translated to and for patients in every facet including the exam room so patients understood the physician’s questions and requests. This group put the information they learned into action immediately. Our participants met people where they were, in their daily routines —urging them to schedule their cervical cancer screenings, attend follow-ups, and the importance of HPV vaccination. 

As they shared their stories and stressed the importance of cervical cancer screenings and HPV Vaccination, the clinic was buzzing with excitement. Patients and staff alike began referring to them as “The Ladies in the White Shirts,” urging others, “You need to go talk to the ladies in the white shirts.”  These Cervivors were educating patients before they even walked through the door, helping them understand that regardless of their past, getting screened and following up on any abnormalities now is crucial. The retreat participants’ presence underscored the importance of the Cervivor mission and served as a reminder that their story mattered, and was already making a difference.

Embracing the Spirit of the Ladies in the White Shirts
As we reflect on this transformative event, we celebrate the spirit of “The Ladies in the White Shirts”—the Cervivor community. Each of you embodies this spirit by wearing your shirt, sharing your story, and advocating for screening. Your dedication makes you a vital part of the movement to end cervical cancer. In the words of Gwendolyn Jackson, “You have prepared me to go out into my community.” If you don’t feel prepared, we have programs available for you!

We encourage everyone to grab your Cervivor Spark, use the hashtags #Screen4Me and #Cervivor, and continue advocating for cervical cancer screenings. By sharing your story and spreading awareness, you become a powerful advocate, helping others access the screenings they need and contributing to a future free from cervical cancer. Together, as a community working to eradicate cervical cancer, let’s continue to make our voices heard, drive change, and support each other in this crucial mission.

Cervivor would like to extend its sincerest gratitude to our sponsors, including Pfizer, Genmab, Roche, and The Marchetta Family (Vince, Amanda, & William in honor of their late wife and mother, Betsy), as well as our in-kind donors, La Roche-Posay, Kafela, Lepley & Co., and Kesh the Creative, for their generous support and contributions to our mission.

The Vital Role of Clinical Trials

May marks a significant occasion in the medical community: National Clinical Trials Month and National Clinical Trials Day [May 20th]. It’s a time to recognize the invaluable contributions of clinical research to the advancement of healthcare. This month, as we acknowledge the progress made in various fields, let’s focus our attention on the critical role clinical trials play in ending cervical cancer—a disease that affects thousands of individuals worldwide. 

The Importance of Clinical Trials in Ending Cervical Cancer
Cervical cancer remains a global health emergency, claiming hundreds of thousands of lives each year. Despite advancements in screening and prevention as well as through vaccines, many individuals still succumb to this preventable disease. Clinical trials serve as the cornerstone of progress in cervical cancer research. They provide a platform for testing new treatments, improving existing therapies, and enhancing our understanding of the disease’s biology.

In recent years, clinical trials have led to groundbreaking discoveries in cervical cancer treatment. From targeted therapies to immunotherapies, these trials have expanded treatment options, offering hope to patients who previously had limited choices. Moreover, clinical research has paved the way for personalized medicine approaches, allowing healthcare providers to tailor treatments based on individual patient characteristics, ultimately improving outcomes and reducing the various side effects.

The Role of Participation
Active participation in clinical trials is crucial for accelerating progress in cervical cancer research. Patients who enroll in trials not only gain access to cutting-edge treatments but also contribute to the collective knowledge that drives medical innovation. Each participant plays a vital role in advancing scientific understanding, ultimately benefiting future generations of patients.

Participating in a clinical trial can be a deeply personal decision, influenced by various factors such as medical history, treatment preferences, and access to care. However, it’s essential to recognize the potential impact of participation, both on an individual level and within the broader context of public health. By joining a trial, patients not only receive advanced care but also become partners in the quest to end cervical cancer once and for all.

Addressing Barriers to Participation
Despite the critical importance of clinical trials, several barriers exist that hinder participation. These may include lack of awareness, logistical challenges, concerns about safety, and disparities in access to healthcare. Overcoming these barriers requires efforts from healthcare providers, researchers, policymakers, patient advocates, and the community at large.

Education and outreach efforts are essential for raising awareness about clinical trials and dispelling misconceptions. Providing clear information about the purpose, risks, and benefits of trials empowers patients to make informed decisions about their participation. Moreover, initiatives to address logistical barriers, such as transportation assistance, financial support, and flexible scheduling, can enhance access to trials for diverse populations.

As we observe National Clinical Trials Month and National Clinical Trials Day, let’s reaffirm our commitment to advancing cervical cancer research through participation in clinical trials. Together, we can drive innovation, improve treatment options, and ultimately work towards the elimination of this devastating disease. Every contribution, no matter how small, brings us closer to our shared goal of a world free from cervical cancer. Let us stand united in the mission, embracing the hope that clinical trials offer for a brighter, healthier future.

Have you been on or are currently on a clinical trial? Are you willing to share your personal experience? We would love to hear from you! Email us today at [email protected].