A May To Remember

As May unfolds its vibrant colors and warmer days, it brings with it a variety of celebrations, honoring rich cultures and invaluable professions. It’s a month of recognition, reflection, and appreciation. In this blog post, we recognize the significance of Asian American and Pacific Islander Heritage Month, culminating in the heartfelt acknowledgment of National Nurses Week and National Oncology Nurses Month.

Asian American and Pacific Islander Heritage Month
May marks a special time to celebrate the diverse cultures, traditions, and contributions of Asian Americans and Pacific Islanders (AAPI) in the United States. It’s a time to honor the resilience, achievements, and rich heritage of these communities that have shaped the very fabric of American society. 

From the vibrant festivals and cuisines to the profound contributions in arts, science, technology, and beyond, the AAPI community has left a mark on every aspect of American life. It’s a moment to reflect on their journeys, triumphs, and ongoing struggles, cultivating understanding, respect, and unity.

Sharing cervical cancer stories among Asian American and Pacific Islanders (AAPI) is vital for creating an open dialogue that transcends generations. By sharing their experiences, AAPI individuals not only break the silence surrounding cervical cancer within their communities but also dismantle cultural taboos and stigmas associated with discussing health issues openly. 

Through storytelling, they can address unique challenges, such as language barriers, cultural beliefs, and access to healthcare, which may affect prevention, diagnosis, and treatment. By amplifying their voices, AAPI individuals empower others to prioritize their health, seek preventive care, and engage in informed discussions with healthcare providers. This open dialogue not only raises awareness but also paves the way for improved support networks, advocacy efforts, and healthcare policies tailored to the needs of AAPI communities, ultimately contributing to better health outcomes for future generations. 

National Nurses Week
Amidst the celebration of cultural diversity, May also holds a special place to honor those who epitomize compassion, care, and resilience – nurses. National Nurses Week, celebrated annually from May 6th to May 12th, pays tribute to the remarkable contributions of nurses to the healthcare sector and society at large.

Nurses are the heart and soul of healthcare, providing comfort, healing, and support to patients and families during their most vulnerable moments. Their dedication, sacrifice, and commitment often go unrecognized, yet their impact reverberates profoundly in the lives they touch. If you would like to honor your nurse this month, send us an email at [email protected] with a photo and/or a written shoutout.

National Oncology Nurses Month
In the same vein, May also shines a spotlight on a group of healthcare professionals who provide exceptional care to individuals enduring cancer. National Oncology Nurses Month recognizes the invaluable role of oncology nurses in delivering comprehensive, compassionate, and personalized care to cancer patients.

These dedicated professionals navigate the complex terrain of cancer treatment with grace, empathy, and expertise, offering not just medical support but also emotional and psychological solace to patients and their loved ones. Their tireless efforts and boundless compassion make a tangible difference in the lives of those affected by cancer.

As we traverse through May, let us embrace the spirit of celebration, gratitude, and solidarity. Let us honor the rich tapestry of Asian American and Pacific Islander heritage, celebrating diversity and cultivating a community rooted in inclusivity. Simultaneously, let us extend our deepest appreciation to the nurses – the unsung heroes of healthcare, whose selflessness and dedication inspire us all. Whether it’s through cultural appreciation or healthcare acknowledgment, May offers us all the opportunity to reflect on how diversity and dedication enrich our lives and communities.

My Story as a Traditional Asian Daughter

Both my parents immigrated from Thailand at a young age; met, fell in love, and had me. My grandmother and aunt moved from Thailand to Southern California, a completely foreign land, to help raise me while my parents strived to obtain their American Dream. Even though I was an American kid who listened to News Kids on the Block on the radio, I was still a traditional Asian daughter removing my shoes before entering my home and eating delicious home-cooked Chinese meals. Not only was I physically raised in the Asian culture, but I also absorbed all the traditional Asian characteristics as well.

I was taught to follow strict directions, strive for perfection, and above all conceal my emotions. When you are fortunate enough to be born with the “crying mole”, a beauty mark beneath my right eye, you are taught always to withhold your emotions and tears.  No matter how large the cut, or how much disappointment I felt for failing a test I was taught not to display any emotion. I know this might sound like a harsh way to raise a child, but crying and showing emotion was a sign of weakness in my family. My family wanted me to grow up to be a strong, independent woman while honoring my heritage and culture. 

My strength was first tested when I was diagnosed with HPV at 18. I was a confused hormonal teenager and couldn’t comprehend what was happening. My world was turned upside down and the worse part was I was alone. I couldn’t tell my parents for fear that I would disappoint them. I couldn’t call my friends because I didn’t know what to say. I sat in my truck alone, with the phone in my hand, listening to the dial tone and suddenly tears came gushing out. But somehow, the memory of when I fell off my bike and the sound of my aunt’s voice telling me, “You can choose to sit here and cry or you can clean yourself off and do something about it.” I chose to do something. I quickly started to research HPV at the university library. I needed to understand what was IN me, how did I get it and what could I do about it. I was shocked to learn what my doctor told me was a “minor instance” of HPV could be linked to cervical cancer. I immediately called my doctor and started the process of advocating for myself. I called and called until I got a second opinion from another OBGYN who confirmed that I had cervical dysplasia (CIN III). 

Life seemed to continue for me. I fell in love, graduated with a degree in English Literature, and got in engaged. A few weeks before walking down the aisle I received a call from my OBGYN that tested my strength yet again. My stubborn HPV decided to come back to life and I was diagnosed with 1A1 cervical cancer. In her calming voice, she said “You’re going to be ok. You did everything right, and we caught this very early.” I cried and through my tears explained that I was getting married in a few weeks. I remember the long pause in her voice as she took a deep breath and said “This is not going to take away your happiness, you go walk down that aisle and get married. Go on your honeymoon, and when you get back, we’re going to take care of you. Don’t let this stop you from living your life.” I got off the phone and cried as my fiancé held me until I fell asleep. I followed my doctor’s orders, hid the pain and fears, and got married on August 19th, 2006. And she was right, it was one of the happiest days of my life. 

I truly thought that I overcame the biggest obstacle in my life, surviving cancer, but I was wrong. My husband and I tried for years to have a child. We suffered miscarriages after miscarriages and failed infertility treatments. It was painful every time we got a pregnancy announcement from friends and family. I remember hiding my pain as I congratulated all my friends when I held their newborn children. I wanted a family of my own, but because of the various surgical procedures due to the HPV and cervical cancer, it was difficult. Finally, after years of trying we found out that we were pregnant. I was overjoyed! I knew from the start that even though I got pregnant carrying my baby to full-term was the ultimate battle.

At the start of the second trimester, my cervix (which was nearly gone) was “shrinking” and I was rushed into surgery to insert a cerclage to help keep my cervix closed. I was terrified. I could lose the baby I had wanted for so long. After the surgery, I was placed on modified bed rest, which consisted of coming downstairs once a day, only getting up to go to the bathroom and get food, but mainly off my feet. I told the doctor I would do whatever it took to keep my baby safe. I was hopeful that by restricting my movement for the second trimester I would be rewarded with the freedom in the third trimester.

Unfortunately, that was not the case. At the start of the third trimester, I was placed on full bed rest, only allowed to get up to go to the bathroom and shower once a day, and back to laying down on the bed. For two months I laid on my bed, holding back all the emotions I was feeling, in fear that I would lose the only strength I had left to keep my daughter safe. Finally, at the 30th week, the doctors felt that it was safe to remove the cerclage and release me from bed rest. I was FREE! I could finally see and feel my toes, I could feel the sunlight on my face and see the world again. But the best news, my daughter was safe. My daughter, Samantha Reagan Paguio was born on January 15th, 2013 in style, three days after her due date. 

I know my upbringing to some, might seem cold, restrictive, and harsh, but I am thankful for the matriarchs in my family: my mom, my Ama (grandmother), and my aunt. Their wisdom and traditional ways taught me how to harness my strength when I desperately needed it. Without them and their lessons, I would not be who I am today: a book editor, a mom, a friend, a wife, a daughter, and a Cervivor.

Joslyn Paguio graduated from the University of California, Riverside with a BA in Literature. She is currently a Senior Acquisitions Editor at Elsevier, overseeing the Neuroscience and Psychology book list. Since being diagnosed at 18 with HPV and then cervical cancer, with multiple recurrences, she has dedicated herself to educating others and advocating for the HPV vaccine. She is currently hosting a monthly podcast for Cervivor, interviewing cervical cancer patients and survivors, and addressing issues they face. During her spare time, she enjoys reading, cooking, and traveling with her family.