Hispanic Heritage Month: Beyond the Taboo

Karla Chavez, Cervivor Ambassador & 2022 Cervivor Champion Award Recipient

In the months of September and October, we are celebrating our Hispanic heritage.

History supports our struggle and power to overcome difficulties. We are brave, passionate, and colorful people. We also come from many beliefs and cultures, some of which can be obstacles.

It is a reality that many Latinas die from a disease that can be prevented. The lack of education, the lack of specialization of our doctors, and the HPV taboo are our challenges to overcome in order to win the war against cervical cancer and other cancers caused by the Human Papillomavirus.

I was 34 years old when I was diagnosed and in a country where our sex education is given in science and biology classes, but discussed little outside the parameters of our classrooms. Being able to accept and share that my cancer was caused by HPV gave me freedom. I talked about it with my family, and I remember having the feeling of, “What are they going to think of me?“ They really didn’t care. Their only concern was my health.

Being diagnosed with a cancer caused by HPV carries with it a taboo in my culture. We often do not discuss this with anyone because we do not want them to judge us, much less reject us. Many times we struggle alone with feeling guilty. This stigma must be overcome. We must trust that we will find support, in our family, in our friends, and/or in faith. The way to overcome this issue is to talk about it without fear, so that the next time we hear about cervical cancer, it’s because it is being prevented. We want our communities getting vaccinated and that we don’t wait ages for our doctor appointments.

A doctor told me, “the vast majority of us will have an HPV infection at some point, what we need is to remove the stigma behind those three letters and attack it.” 

This resonated with me. It made me feel that even though I didn’t know much about what was happening to me, it wasn’t my fault. It is something that I had to go through, and I must overcome it.

Karla with her Madre & Abuela

Once I took away the power that guilt had over me, I began to fight. I have had the joy of having my family as my support team. We have fought with a lot of faith and love. Which is one of the characteristics of our Hispanic culture, keeping us together as a family no matter the situation.

I am also sure that my doctors were the answer to my prayers in my moments of fear. I received 8 chemotherapies and 35 internal radiation treatments. After a total hysterectomy and colostomy surgery, I have made it my mission to never shut up about what I went through. Because to someone out there, something in my story will resonate and they will act. Either getting vaccinated, scheduling their cancer screenings, or vaccinating their children.

I’m still here to celebrate life and the month of Hispanic heritage. I’m still here to tell you that cervical cancer can be prevented. That there is a vaccine that can save the lives of hundreds of thousands. I’m still here to talk to everyone about the vaccine and prevention.

When I was diagnosed, I wanted to fight and win. Now that I celebrate 5 years without evidence of disease, I want to fight and overcome the stigma, the lack of education about HPV, and its relationship with various types of cancer.

After attending Cervivor School I learned how to share my story, how to speak up, and be the voice that can resonate with someone else.

I have had the opportunity to participate in talks at universities, high schools, religious groups in my country, and in workplace meetings, and always that I can to each person that wants to listen.

I want everyone to get the HPV vaccine, to make their cancer screening appointments so that together we can dream of a Honduras and a world free of cervical cancer.

Fellow cervical cancer survivors/patients, I leave you with a mission: Share your story, because your story will resonate with someone.

Visit Cervivor.org to share your story with an easy-to-follow template!

Karla Chavez is from Honduras and she is a civil engineer and amigurumi enthusiast. Karla is a 5-year cervical and thyroid cancer survivor and a proud ostomate. She is a Cervivor Ambassador, a 2019 Cervivor School graduate, a Cervivor Champion Award recipient, and is a key support to our growing Cervivor Espanol community.

2019 Cervivor Champion Maria Franklin infuses her work with passion & fun

Cervical cancer survivor Maria Franklin, recipient of the 2019 Cervivor Champion Award, is BUSY – during Cervical Cancer Awareness Month, and all year long!

She embodies everything Cervivor and the “Cervivor Spark” stands for. Informed. Empowered. Alive.

She mentors other cervical cancer survivors. She hosts MeetUps. She fundraises – via social media, in her community, wherever and whenever she can. She runs the Cervivor Español Facebook group. She helped organize and co-facilitate a Spanish-language Cervivor School in Puerto Rico. She leads initiatives to help ensure that cervical cancer screening, vaccination and prevention messages reach the Latina community in the U.S., and in Central and South America.

Maria, and fellow Latina Cervivor Karla

She even used her birthday as an opportunity for education and fundraising by creating a campaign and rallying her friends to “Help celebrate my 48th birthday by joining me in walking, running or cycling a total of 48 miles during the month of October!#48MilesToEndCervicalCancer

She embodies support and advocacy. She brings her passion to everything she does. She is making her survivorship count, day in and day out. Mobilizing. Advocating. Educating.

Initially diagnosed with cervical cancer in 1999, Maria is a 20+ year survivor who started advocating for cervical cancer prevention and helping to forge a cervical cancer community of women “before there was social media” and before there was Cervivor. She has never slowed down.

Maria has a particularly busy January planned to support and harness Cervical Cancer Awareness Month in her home state of Wisconsin. She’s planned:

  • A “proclamation” from the Governor’s office to officially recognize the importance of January as Cervical Cancer Awareness Month in Wisconsin.
  • Interviews with Telemundo Wisconsin and radio stations in Puerto Rico to talk about cervical cancer awareness and prevention
  • “Teal & White Days” at work
  • A patient reception for Cervical Cancer Awareness Month, in partnership with a local  gynecologic oncology clinic
  • A Cervivor MeetUp to connect in-person with women in her community who are battling cervical cancer or dealing with the after-effects

“Every single one of us has to do our part. We have to do our part so we can make this a reality for the next generation. Nobody else should have to go through what we went through,” says Maria.

What is your part? What are you doing over CCAM in your local community?

Let us know in the comments below. We’d love to feature you and your work on our blog, if you are interested!

Watch Maria’s powerful Cervivor Champion Award acceptance speech at the 2019 Cervivor School awards ceremony, or read her remarks below.

Maria’s Award Acceptance Speech:

I truly believe in Cervivor. I truly believe in what we do here. I know we can end cervical cancer. This is why we are here. Every single one of us has to do our part. We have to do our part so we can make this a reality for the next generation. Nobody else should have to go through what we went through.

The story is different for every single one of us. It wasn’t easy for any of us. No one else should have to go through what we went through. So we are here today to take this responsibility seriously. Because ending cervical cancer is our job. We have to do it because we have to honor what we went through, and also because of the people we have lost.

Today when you leave here [Cervivor School], you start your work and you start your mission. And if and when you’re feeling you may be a little burnt out, you reach out to one of us and we will help you. We will support you. Because we need to do this for the next generation!

Thanks, Maria, for all that you do for Cervivor, for women today and for the next generation who  – with your help – may live in a world free from cervical cancer.

Maria Franklin is a 20-year cervical cancer survivor who heads Cervivor’s Latina advocacy efforts.

Read her original Cervivor story and her blog post reflecting on 21 years post-cancer.

Watch her story and advice on Cervivor TV.