Eliminating Cervical Cancer: A Call to Action for Health Equity and Access

This April, as we mark both National Cancer Prevention and Early Detection Month and Minority Cancer Awareness Month, Cervivor, Inc. is doubling down on its pledge to dismantle barriers in cervical cancer care.

Rather than focusing on “minority” health, however, we’re shifting the focus to health equity. Our mission is to ensure that every individual – regardless of race, ethnicity, income, or zip code – has access to life-saving treatment, survivorship resources, and education. 

A Call to Action 

On Tuesday, March 26th, Cervivor’s Founder and Chief Visionary Tamika Felder addressed attendees at the American Cancer Society Cancer Action Network’s HPV Policy Symposium about the devastating impact cervical cancer has on us individually, nationally, and globally. This preventable disease has claimed too many lives and altered countless others.

But we have the power to change this narrative. The human papillomavirus (HPV) vaccine, along with screening and diagnostic tests, are groundbreaking tools in our mission to eliminate cervical cancer – and we’re committed to making them accessible to all.

“Every patient, every voice, and every cervix matters. Prevention is available, and we can make a difference,” Tamika said at the symposium. “Together, we can create a future where no one has to suffer from this preventable disease. It’s time to push the needle even further and end cervical cancer once and for all. We need to double down on safety, efficacy, and promotion of vaccination. Preserve access to screening, diagnostic, and treatment care – it’s the only way we can achieve elimination.”

The Road to Success

Achieving a future free from cervical cancer requires addressing systemic barriers that prevent marginalized communities from accessing life-saving care. At Cervivor, equity is a core value driving our purpose. We recognize that disparities in healthcare access and outcomes hinder progress against this preventable disease. What can we do to help?

  • Education and Awareness: Counter mis/disinformation and rumors surrounding HPV vaccination and cervical cancer prevention. Ensure that accurate and culturally sensitive information reaches all communities. Utilize trusted partners in purpose like the National HPV Roundtable, the National Foundation for Infectious Diseases (NFID), and Vaccinate for Your Family.
  • Access to Care: Advocate for policies that protect, preserve, and expand access to HPV cancer prevention care, including vaccination, screening, and early detection. Ensure that treatment and survivorship care services are available and affordable for all. Join nonpartisan organizations like the American Cancer Society Cancer Action Network (ACSCAN), Prevent Cancer Foundation, and the National Coalition for Cancer Survivorship
  • Making Screenings and Vaccinations Widely Available: Increase the availability of screenings and vaccinations in underserved areas, making it easier (not harder) for individuals to take control of their health through mobile clinics, community health centers, work and school-based programs, and pharmacies with expanded services. Addressing barriers such as transportation, finances, language, and cultural competence, plus increasing awareness and education through community outreach, too!

Remembering and Honoring those Impacted 

As we push toward the goal to eliminate cervical cancer, we remember the lives that have been lost and the voices who demand to be heard.

Laura Brennan: A Voice for HPV Vaccination

Laura Brennan‘s courage and resilience in the face of cervical cancer continue to inspire us. The young Irish woman’s life was tragically cut short, but her story serves as a poignant reminder of the urgent need for collective action to prevent others from the same fate.

Dr. Nina Rickenbacker Edwards: A Passionate Advocate for Awareness

Dr. Nina Rickenbacker Edwards‘ life was forever changed when her daughter, Teolita, was diagnosed with stage IV cervical cancer. Nina became a passionate advocate for cervical cancer awareness and dedicated herself to educating others about the importance of prevention. Through her tireless efforts, Nina honors Teolita’s memory and inspires others to take action to end cervical cancer.

Joey Feek: Country Singer Silenced by Cervical Cancer

The world mourned the loss of country music singer Joey Feek, who passed away from cervical cancer in 2016. Feek’s life and career serve as a testament to the profound impact cervical cancer can have on individuals, families, and communities. 

The Time is Now!

To eliminate cervical cancer, we must confront the systemic barriers, inequities, and injustices that have allowed this preventable disease to persist. In recognition of National Cancer Prevention and Early Detection Month and Minority Cancer Awareness Month – and as Cervivor marks its 20th year – we’re calling on our community to support our Tell 20, Give 20 awareness and fundraising campaign. A donation of just $20 can help us continue to “push the needle” toward ending cervical cancer once and for all.

Breaking the Silence: Cervical Cancer Awareness in the Hispanic Community

As Hispanic Heritage Month ends, I find myself reflecting not just on our vibrant culture and history but also on an issue that deeply affects our community—cervical cancer. This preventable disease continues to claim the lives of too many Latinas, both in the United States and across Latin America. As a survivor, advocate, and member of the Cervivor community, this is personal to me, and it’s personal to so many of us.

Cervivor Español members during the 2024 Communities of Color Cervivor Care’s community outreach day

Cervical cancer is one of the few cancers that can be prevented through vaccines and regular screenings like Pap tests and HPV tests. Yet, Hispanic women in the U.S. face alarming disparities when it comes to this disease. We are diagnosed with cervical cancer at higher rates than non-Hispanic women and are more likely to die from it. The reasons for these inequities are complex, but they are deeply rooted in unequal access to healthcare, language barriers, lack of information, and cultural stigmas.

The Disparities We Face

Did you know that Hispanic women in the U.S. are 40% more likely to be diagnosed with cervical cancer than non-Hispanic white women? And tragically, we are 26% more likely to die from it. This isn’t because the disease is more aggressive in our community—it’s because many of us aren’t getting the preventive care we need. Whether it’s due to lack of insurance, language barriers, or even the stigma surrounding gynecological health, too many Latinas are falling through the cracks.

Gilma Pereda, a fellow Cervivor Ambassador, puts it perfectly: “Cervical cancer affects many Latinxs in the U.S. This illness is pretty much preventable with vaccination and regular screenings. Still, many people don’t have enough information to care for their health properly.” 

Patti Murrillo-Casa, another Cervivor Ambassador, emphasizes the importance of advocacy: “It gives me the opportunity to give a voice to the voiceless, especially those who are underrepresented.” 

This lack of information and access to care is something we must change—not just for ourselves, but for future generations. Our community faces unique challenges, and many of us don’t feel comfortable talking about things like HPV or cervical cancer. But these conversations are crucial if we want to save lives. Our mission is clear: we need to bring education and awareness to every corner of our community, in every language, and through every platform.

The Power of Prevention

What makes this so heartbreaking is that cervical cancer is largely preventable. The HPV vaccine can protect against the virus that causes cervical cancer, and regular Pap tests and HPV tests can catch abnormal cells before they become cancerous. Yet, many women in our community don’t know this. The lack of education and language barriers are major issues that prevent the information from getting out, compounded by the stigma in our community.

Yvette Torres, shares: “I advocate because I’m still here!! After being diagnosed 11 years ago, I want to help end cervical cancer and educate others by sharing my story.” 

Dulcely Tavarez brings a different perspective to this: “I promote cervical cancer prevention to help ensure that other women can maintain their chances of motherhood.” 

This passion and determination reflect the heart of our advocacy. We are survivors, and we share our stories because we don’t want anyone else to feel alone on this journey. For many women, cervical cancer doesn’t just threaten their lives—it can also take away their ability to have children. These words remind us of what’s at stake.

Ending the Stigma

One of the biggest barriers we face in the Hispanic community is the stigma around cervical cancer and HPV. Many of us grew up in households where talking about sexual health was taboo, and for some, the idea of getting an HPV vaccine or a Pap test feels uncomfortable or even shameful. But here’s the truth: HPV is incredibly common, and getting tested or vaccinated isn’t something to be ashamed of—it’s a form of self-care, a way to protect yourself and your loved ones.

Karla Chavez

I’ve experienced this firsthand. As a survivor, I’ve seen the way stigma and fear can prevent women from getting the care they need. But I’ve also seen the power of community, of sharing our stories and breaking the silence. That’s why I advocate: because I don’t want my story to repeat itself in others. I don’t want anyone to feel alone.

A Call to Action

So, what can we do? First and foremost, if you have a cervix, make sure you’re getting your regular cervical cancer screenings. These screenings can literally save your life. The HPV vaccine is safe, effective, and a powerful tool in preventing cervical cancer. Talk to your doctor about getting vaccinated.

For healthcare providers, we need you to help break down the barriers that prevent our community from accessing care. Provide information in Spanish, offer culturally sensitive care, and work to make sure that every woman—regardless of her background—feels safe and empowered to take control of her health.

And for everyone else, let’s end the stigma. Talk about cervical cancer. Talk about HPV. Share your story or information with your friends, your family, and your community. The more we normalize these conversations, the more lives we can save.

KARLA CHÁVEZ, a civil engineer and amigurumi enthusiast from Honduras, is a seven-year cervical and thyroid cancer survivor and proud ostomate. As a Cervivor Ambassador and co-lead of the Cervivor Español community, Karla is dedicated to making a difference for women both in her country and globally. She was honored with the 2020 Brittany Wagner Social Media Advocacy Award and was named a Cervivor Champion in 2022. Karla represents Cervivor, Inc. on the World Health Organization (WHO)’s Advisory Panel for Living Recommendations and Systematic Reviews on Screening and Treatment to Prevent Cervical Cancer.