Native American

Celebrating Native American Heritage Month: Honoring Resilience and Promoting Health Equity

November marks Native American Heritage Month, a celebration of the rich history, diverse cultures, and significant contributions of Native American communities. This month also serves as a poignant reminder of the disparities and challenges faced by these communities, including alarming rates of cervical cancer. 

Cervical Cancer Disparities in Native American Communities

Cervical cancer disproportionately affects Native American women. According to the Centers for Disease Control and Prevention (CDC), American Indian/Alaska Native women experience higher cervical cancer incidence rates compared to white women. Factors contributing to these disparities include:

  • Limited access to healthcare services, including cervical cancer screening and HPV vaccination
  • Cultural barriers and mistrust in healthcare systems
  • Higher rates of smoking and obesity
  • Limited health education and awareness

Empowering Native American Communities

Cervivor, Inc., a non-profit organization, works to eliminate cervical cancer disparities. Through education, advocacy, and community engagement, Cervivor promotes health equity and empowers Native American communities to take control of their health.

Let’s share some of our affected Cervivor community members’ personal stories during this important month…

Kristine

Kristine is half Native American and half Caucasian. When she was diagnosed with cervical cancer, she turned to her heritage for strength. It served as a reminder of those who came before her and what it meant to have their blood running through her veins. Kristine expresses, “I believe my strength comes from both sides of my family. We come from a long line of warriors. I was diagnosed with stage I cervical cancer in 2012 when I was 34 years old to which I received a radical hysterectomy. The decisions leading to that were difficult and heart-wrenching as I wasn’t sure our family was complete. I suffered from anxiety and depression for a few years after. Being diagnosed with cancer is difficult – it teaches you humility and vulnerability all the while showing you what strength you possess even years later.”

Nicole

Nicole’s journey with cervical cancer began unexpectedly. A hospital visit for a suspected UTI revealed a startling diagnosis: stage IIIC cervical cancer. Nicole’s life changed forever. The initial shock gave way to determination. Nicole refused to let cancer defeat her, driven by the desire to be there for her children. Having lost her mother at 16, she knew the pain of growing up without a parent. With newfound resolve, Nicole shared her diagnosis with loved ones, finding comfort in their unwavering support. Nicole’s experience has ignited a passion for advocacy. Through Cervivor, she shares her story to raise awareness and promote education. Nicole’s resilience inspires others to confront cervical cancer boldly. Her story embodies strength, inspiring others to confront cervical cancer head-on. And her unwavering spirit encourages open conversations, promotes health education, and honors the resilience of Native American communities during Native American Heritage Month.

Beverly 

Beverly’s courageous journey with stage IIIB cervical cancer began at 40. Amidst fear and uncertainty, Beverly found solace in traditional ceremonies, communal support, and determination. Embracing both spiritual practices and medical interventions, Beverly underwent chemotherapy, radiation, and surgical implantation of radioactive material. Despite community doubts and personal terror, she chose a path blending modern medicine with ancestral wisdom. Beverly faced judgment, whispering, and avoidance, but also kindness from supportive community members. Driving herself to treatments, exhausted and lonely, she persevered. “My song will continue until my last breath,” she says. Beverly embodies Native American resilience, inspiring others through Cervivor. Her spirit honors ancestral strength during Native American Heritage Month.

Get Involved

Native American Heritage Month celebrates resilience, strength, and cultural richness. Addressing cervical cancer disparities requires collective action. Organizations like Cervivor play a vital role in promoting health equity and empowering Native American communities. By sharing stories like Kristine’s, Nicole’s, and Beverly’s, we honor their experiences and amplify the call for change. 

  • Learn about cervical cancer prevention and disparities
  • Support patient advocacy organizations like Cervivor
  • Advocate for health equity and culturally sensitive care
  • Celebrate Native American Heritage Month by promoting awareness and understanding

We can eliminate cervical cancer disparities, honor the heritage, and build resilience in Native American communities.

Empowering Communities of Color: A Recap of the Fall Virtual Advocacy Retreat

The Fall Virtual Cervical Cancer Patient Advocacy Retreat for Communities of Color, held on October 28th, was an inspiring and informative event that brought together cervical cancer survivors and speakers dedicated to closing the gap in cervical cancer disparities. The retreat aimed to provide a platform for empowering and educating communities of color across the globe to become advocates in the mission to end cervical cancer. With a dynamic lineup of speakers, engaging and impactful conversations, and a clear advocacy action list, the retreat left attendees feeling empowered and equipped to make a difference in their communities and beyond.

The retreat’s success was undoubtedly due to the incredible speakers who graced the virtual stage. Each speaker brought unique insights and experiences to the table, making the event an unforgettable experience for all who attended:

  • Kimberly Williams, Cervivor’s Chief Diversity Equity and Inclusion Officer gave the opening remarks, shared how her personal journey has progressed over the last several years, and discussed the unwavering commitment Cervivor, Inc. has to diversity, equity, and inclusion in the mission to end cervical cancer.
  • Tamika Felder, Founder and Chief Visionary of Cervivor, Inc. inspired attendees to define their ‘why’ while sharing her personal experience of building what she didn’t have, the vision turned into a reality with the creation of the Cervivor, Inc. organization of nearly 19 years ago.
  • Nancy Peña, ONP-CG, CMI, BS, Director and Founder of Navegación de Pacientes Internacional, Inc. (NPI), was our morning keynote to share the important work to end cancer disparities by identifying and providing cancer patients support resources throughout the continuum of their care.
  • A Cervivor-filled panel moderated by Tiera Wade included the voices of Joslyn Paguio, Kadiana Vegee, and Karla Chavez to show their journeys from cervical cancer survivors to Cervivors.
  • Chicago-based duo, Dr. Nita Karnik Lee and Dr. Paris Thomas teamed up to share the importance or representation in clinical trials, how to access the opportunities available, and advocate for others to seek the care they deserve.
  • Dr. Jennifer Cunningham Erves, PhD, MPH, MAEd, MS, CHES, Director of Community Engaged Research at Vanderbilt-Ingram Cancer Center shared what attendees needed to know about the human papillomavirus (HPV) and the importance of cancer prevention through vaccination.
  • Dr. Jane Montealegre, Baylor College of Medicine, was the closing keynote to address the unique opportunities and challenges we face in eliminating cervical cancer.

Throughout the retreat, attendees from across the globe engaged in meaningful conversations and breakout discussions that shed light on various aspects of cervical cancer and advocacy. Several survivors logged in from islands in the Caribbean and a large group of survivors gathered together in Milicent Kagonga’s home, a Cervivor Africa Ambassador, to learn more about patient advocacy. 

But the retreat didn’t just stop at discussions; it moved the speakers and empowered attendees with a clear action list to ensure that the knowledge gained translated into impactful change:

  • Advocate for Improved Access to Healthcare: Support initiatives to increase access to cervical cancer screenings and vaccinations within communities of color.
    • Attendees expressed the importance of holding workshops to share screening and vaccination information not only for the public but to bridge the gap between patients and providers.
  • Education and Awareness Campaigns: Join Cervivor, inc. and participate in community-driven awareness campaigns to educate individuals on the importance of cervical cancer prevention, early detection, and self-advocacy.
    • Attendees expressed the need to bring men into the discussion as cervical cancer impacts the entire family structure and the very virus that causes 5 more cancers.
  • Community Engagement: Strengthen partnerships within their communities and collaborate with local organizations to promote cervical cancer awareness and advocate for accessible healthcare services.
    • Community outreach days with mobile screening and vaccination clinics are necessary to communities who do not have regular access.

In closing, the Fall Cervical Cancer virtual retreat has been a powerful journey of connection, support, and empowerment. As we reflect on the stories, insights, and shared strength of our attendees, we are reminded of the urgency to end cervical cancer once and for all. Together, we can make a difference. Whether you’re a cervical cancer patient, survivor, caregiver, or an ally in this fight, your voice and your actions matter. Join us in raising awareness, advocating for regular screenings and vaccinations, and supporting research for better treatments. Let’s unite to ensure that one day, cervical cancer is a thing of the past. Together, we can make this vision a reality. Join us in our mission by visiting cervivor.org, and together, we can help end cervical cancer.

Lastly, Cervivor, Inc. would like to thank our generous sponsors for supporting our mission of educating and empowering individuals impacted by cervical cancer to take action and create change in their local communities and beyond. Thank you to Seagen, Genmab, Roche Diagnostics, St. Jude Children’s Research Hospital HPV Cancer Prevention Program, and Genentech.