AANHPI Communities and Cervical Cancer: Breaking Cultural Silence to Save Lives

In the first of two blog posts for AANHPI Heritage Month, cervical cancer survivors and experts highlight the dangers of staying silent when a disproportionate number of lives are at risk.

Asian American and Native Hawaiian/Pacific Islander (AANHPI) communities are the fastest-growing racial group in the U.S., now totaling over 24 million people—about 8% of the population. This diverse group includes millions of Chinese, Filipino, Vietnamese, Japanese, and others, and is projected by the U.S. Census Bureau to double by 2060.

While “AANHPI” may be a useful acronym for these distinct communities, it’s not the only thing they have in common. They also share a serious health concern: Cancer is the leading cause of death among Asian Americans and the second-leading cause for Native Hawaiians and Pacific Islanders, according to the American Cancer Society (ACS).

Cervical cancer, in particular, demands urgent attention. At first glance, non-Hispanic Asian American and Pacific Islander women appear to have lower cervical cancer rates than other racial and ethnic groups: 6 cases per 100,000, compared to 10 for Hispanic women, 8.4 for non-Hispanic Black women, and 6.9 for non-Hispanic white women, according to the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program.

But a closer look at the numbers reveals stark disparities. Vietnamese women, for example, have a cervical cancer incidence rate of 18.9 per 100,000, while Laotian women face an even higher rate of 20.7 per 100,000—more than triple the overall AANHPI average.

[source: National Cancer Institute Division of Cancer Epidemiology & Genetics]

Mortality disparities are just as alarming. Native Hawaiian and Pacific Islander women experience death rates up to 3.3 times higher from cervical, stomach, and uterine cancers than white women—even though their overall cancer mortality is 7% lower.

These disproportionately high rates are often fueled by a mix of cultural beliefs and stigma about “below the belt” cancers, language barriers, lower general awareness of the human papillomavirus (HPV) and cervical cancer risks, and other factors. As a result, HPV vaccination and screening rates are lower—key tools in Cervivor, Inc.’s mission to eliminate cervical cancer

“Despite their growing number, Asian Americans have long been overlooked in health disparities research,” says Dr. Ha Ngan “Milkie” Vu, Assistant Professor at Northwestern University’s Feinberg School of Medicine. A Vietnamese immigrant, Dr. Vu leads Project HERO, which tests culturally tailored digital tools to increase HPV vaccination among Vietnamese Americans. She elaborates: “The ‘model minority’ stereotype (i.e., overemphasis on Asians’ ability to overcome hardship and succeed in America) masks real gaps in health equity, especially when it comes to issues like cervical cancer.” 

To understand the personal toll of cervical cancer on the AANHPI community—and what is needed to break the “culture of silence” many experience—let’s start with the story of Filipina-American survivor Arlene Simpson.

Arlene’s Story

Arlene and her father, who worked in the medical field like many in their family.

Arlene, a financial services professional and church leader in Bothell, Washington, grew up in a family of healthcare professionals—yet no one ever talked to her about HPV. “I didn’t even get my first Pap test until after I gave birth at 22,” she recalls.

Her crash course in cervical cancer began in August 2021. “During the pandemic, I missed all my annual exams and waited to see my doctors again,” she explains. At her eventual Pap and HPV test, her gynecologist discovered hemorrhaging and immediately performed a biopsy and ultrasound. Although she had a history of abnormal Pap results, her symptoms—chronic endometriosis, dysmenorrhea, heavy bleeding, and pelvic pain—had always been dismissed as “normal.” A week later, the doctor called with the diagnosis. Arlene was stunned. “I never thought I’d get cancer,” she says.

She underwent chemotherapy, radiation, and brachytherapy at Seattle Cancer Care Alliance (now Fred Hutch) and the University of Washington Medical Center. Now, three years in remission, she continues follow-up visits every six months.

For Arlene, surviving cancer wasn’t just a physical battle—it was emotional, too.

“In our Filipino community, especially among the older generation, anything ‘below the belt’ isn’t discussed—especially sex or reproductive health,” she says. And when it is discussed, there’s often a lack of understanding about the causes of disease. After her diagnosis, she recalls one of her aunts saying, “How did you get that cancer? You were so wild and rebellious growing up.” The comment only deepened the shame Arlene was already feeling.

Overcoming Stigma in AANHPI Populations

Arlene’s experience resonates with others in the Cervivor community, including Joslyn Chaiprasert-Paguio, who is of Chinese and Thai descent, and Anna Ogo, who is Japanese.

Joslyn, a medical journal publisher and mom from Menifee, CA, says, “The pressure to stay silent about reproductive health made it even harder to find my voice. Cervical cancer became even more taboo because it’s ‘below the belt.’”

Anna, who lives in Kent, WA, with her husband and their “Cervivor Baby,” 18-month-old Eito, adds, “Sharing my story became a source of healing. As an Asian woman, breaking the silence around reproductive health helped me process grief, connect with others, and inspire hope.”

Dr. Zhengchun Lu, a cancer pathologist and resident physician at Oregon Health & Science University, says stigma and misinformation about HPV remain common in many AANHPI communities. She recalls one Asian American patient’s reaction to an HPV diagnosis: “It must be my husband.” For Dr. Lu, this reinforced how shame and blame still surround HPV—a challenge she actively addresses in patient care and community outreach, where she emphasizes that HPV is extremely common and not a reflection of a person’s behavior or character. 

“By fostering open, judgment-free conversations, we can help people feel safe, informed, and empowered to take charge of their health,” she says. As part of her work, Dr. Lu introduces cervical cancer screening in relatable terms—comparing Pap and HPV tests to routine checks like blood pressure or cholesterol screenings.

Anh Le with her parents on her medical school graduation day.

While stigma is widespread, it is not universal across AANHPI communities. Anh Le, born in Vietnam and now living in Phoenix, Arizona, shares a different experience. Diagnosed at age 30 in 2018 while attending medical school in Chicago, she didn’t face judgment from her family—but she did hesitate to tell them.

“When it came to fertility goals, the hopeful anticipation of having grandchildren was a topic that my mother often talked about,” shares Anh, who is an only child. “I was afraid of disappointing them.”

To her relief, Anh received nothing but “immense love and support.” And she credits her parents’ self-sacrifice during her two-month recovery from a total pelvic exenteration—a major surgery removing all pelvic organs, as described in a recent Memorial Sloan Kettering Cancer Center article—and especially her mother’s cooking, which “single-handedly nourished me back to health.”

How Cervivor is Empowering AANHPI Survivors

Today, survivors like Arlene, Joslyn, and Anna are powerful Cervivor Ambassadors for change. Arlene and Anna recently represented Cervivor at the 2025 Society of Gynecologic Oncology (SGO) meeting, where Arlene was a panelist. Joslyn serves on the ACS National Roundtable on Cervical Cancer and hosts the Cervivor Podcast.

Soon-to-be surgeon Anh reflects: “Being part of Cervivor helped me understand what it means to be both a patient and a future doctor. As a young AAPI adult with cervical cancer, it was lonely.” Her advice: “Don’t blame yourself. Be proactive. Make sure your care team aligns with your goals. And remember—there’s a community here to support you.”

Arlene credits Cervivor founder and Chief Visionary Tamika Felder for helping her find her voice. “When Tamika encouraged me to share my story, I saw its impact. Someone in Bulgaria heard it and got help. My Filipino cousins—some of them doctors—are now talking about the HPV vaccine. Cervivor gave me a platform and a purpose.”

Join the Cervivor Movement

Stories like Arlene’s, Anh’s, Joslyn’s, and Anna’s remind us that silence can be deadly—but sharing our voices can be lifesaving. If you’re ready to break the stigma, build community, and be part of the movement to end cervical cancer, sign up for updates about our next Cervivor School or join our next virtual Creating Connections meetup this upcoming June 10. Your story matters, and together, we can save lives—one conversation at a time.

It’s a Family Affair: How Advocacy Begins at Home for Cervivor Community Members

Cervical cancer advocacy often starts with a personal story—but it doesn’t end there. For many in the Cervivor community, it begins at home, with children watching, learning, and eventually joining the mission to end cervical cancer.

For Anne Zajic, a Stage 1B2 cervical cancer survivor and mom of three, advocacy has become a true family affair. Diagnosed in 2016 when her daughters were still very young, Anne leaned into the Cervivor community for strength and purpose. Today, she’s a Cervivor Ambassador, and her daughters—Clara, 11, and twins Julia and Katie, 9—are right beside her as Junior Ambassadors.

A family’s love for baking inspired their summer-long fundraiser to benefit Cervivor.

“They’ve grown up with advocacy as part of their lives,” says Anne, whose efforts include volunteering with the American Cancer Society Cancer Action Network (ACS CAN) and helping secure gubernatorial proclamations in Kansas recognizing both HPV Awareness Day and Cervical Cancer Awareness Month. “They understand why we talk about HPV, screenings, and prevention—they’ve seen what this disease can do.”

Why It Matters

Family involvement in health education and advocacy can make a measurable impact.

According to the Community Preventive Services Task Force, family-based interventions can increase preventive screening rates by up to 35%. And when parents talk openly about HPV and cancer prevention, their children are significantly more likely to be vaccinated.

These conversations are critical—especially when so many still don’t realize cervical cancer is largely preventable. In 2024, more than 13,800 women in the U.S. were expected to be diagnosed with the disease, often without knowing the role HPV plays in causing it, according to the American Cancer Society (ACS) and the Centers for Disease Control and Prevention (CDC), respectively.

“We can’t keep letting people face this in silence,” says Anne. “The more families talk about it, the more lives we can save.”

Empowering the Next Generation

This summer, Anne and her daughters are turning cupcakes and cookies into action with a fundraiser benefiting Cervivor. Inspired by Julia’s idea to spend more time together while giving back, the family is popping up at local events, sharing their story—and plenty of sweet treats.

“Julia said, ‘Why don’t we do a bake sale?’ That was all I needed to hear,” Anne recalls with a laugh. “Baking has always been something we love doing together. Now, it’s become a way to raise awareness.”

Alongside the goodies, the girls will also be selling handmade jewelry crafted with love and purpose. “Every cookie, every cupcake, and every earring is a step toward supporting Cervivor’s mission to end cervical cancer,” says Anne.

For Cervivor Founder and Chief Visionary Tamika Felder, advocacy has long been a way of life—even before it became personal after surviving cervical cancer in her twenties. Raised in a family rooted in public service, she spent her childhood volunteering for causes and through her church. 

Cervivor founder Tamika (far left), her son, and Cervivor community members gathered in Cleveland last year to raise awareness. Kadiana, whose daughter also helped out, is third from left.

Now, her son Chayton often joins her at Cervivor events, learning the power of speaking up and giving back. At last year’s Communities of Color outreach effort in Cleveland, they were joined by one of her goddaughters, Ming, and Cervivor Ambassador Kadiana Vegee’s daughter, Aurianna—showcasing how the next generation is stepping into advocacy alongside their mothers and mentors.

“Children aren’t just watching us—they’re learning from us,” says Tamika, recalling how her goddaughter Kennedy, then in elementary school and now a college student, once held a Giving Tuesday bake sale to support Cervivor. “When a child sees you stand up for something that matters, it stays with them. That’s how movements grow—across generations.”

Tamika’s goddaughter, Kennedy, hosts a bake sale in 2019, donating a percentage of proceeds to Cervivor, Inc. to help women with cervical cancer.

One of Cervivor’s bright lights, Becky Wallace, tragically passed away in 2021—but her legacy continues to shine. In 2020, during the height of the pandemic, her tween daughters organized a heartfelt neighborhood bike-a-thon, raising over $2,000 in support of Cervivor. Their inspiring efforts, captured in this moving video, remind us that it’s never too early to stand up for a cause you believe in—especially when it’s your mom’s life on the line. (Warning: You might need tissues.)

Get Your Family Involved 

Whether it’s hosting a bake sale or a bike-a-thon, traveling to awareness events, or simply having honest conversations around the dinner table, Cervivors are teaching their children that advocacy is a shared responsibility—and a powerful gift.

“This isn’t just my story anymore,” says Anne. “It’s my daughters’ story, too. Our fundraiser is just one example of what advocacy can look like. You don’t have to start big—just start somewhere. Whether it’s baking cookies, creating art, or hosting a virtual event, your passion can fuel change.”

Support Cervivor’s Mission!

Want to get your family involved in cervical cancer advocacy? Have a fundraising idea? We’d love to hear from you! Email us at [email protected] and let’s turn your creativity into support for survivors.

And don’t forget to check out Tell 20, Give 20—Cervivor’s awareness and fundraising campaign celebrating 20 years of impact. We are grateful for every dollar donated that helps us get closer to ending cervical cancer.