Breaking the Silence: Cervical Cancer Awareness in the Hispanic Community

As Hispanic Heritage Month ends, I find myself reflecting not just on our vibrant culture and history but also on an issue that deeply affects our community—cervical cancer. This preventable disease continues to claim the lives of too many Latinas, both in the United States and across Latin America. As a survivor, advocate, and member of the Cervivor community, this is personal to me, and it’s personal to so many of us.

Cervivor Español members during the 2024 Communities of Color Cervivor Care’s community outreach day

Cervical cancer is one of the few cancers that can be prevented through vaccines and regular screenings like Pap tests and HPV tests. Yet, Hispanic women in the U.S. face alarming disparities when it comes to this disease. We are diagnosed with cervical cancer at higher rates than non-Hispanic women and are more likely to die from it. The reasons for these inequities are complex, but they are deeply rooted in unequal access to healthcare, language barriers, lack of information, and cultural stigmas.

The Disparities We Face

Did you know that Hispanic women in the U.S. are 40% more likely to be diagnosed with cervical cancer than non-Hispanic white women? And tragically, we are 26% more likely to die from it. This isn’t because the disease is more aggressive in our community—it’s because many of us aren’t getting the preventive care we need. Whether it’s due to lack of insurance, language barriers, or even the stigma surrounding gynecological health, too many Latinas are falling through the cracks.

Gilma Pereda, a fellow Cervivor Ambassador, puts it perfectly: “Cervical cancer affects many Latinxs in the U.S. This illness is pretty much preventable with vaccination and regular screenings. Still, many people don’t have enough information to care for their health properly.” 

Patti Murrillo-Casa, another Cervivor Ambassador, emphasizes the importance of advocacy: “It gives me the opportunity to give a voice to the voiceless, especially those who are underrepresented.” 

This lack of information and access to care is something we must change—not just for ourselves, but for future generations. Our community faces unique challenges, and many of us don’t feel comfortable talking about things like HPV or cervical cancer. But these conversations are crucial if we want to save lives. Our mission is clear: we need to bring education and awareness to every corner of our community, in every language, and through every platform.

The Power of Prevention

What makes this so heartbreaking is that cervical cancer is largely preventable. The HPV vaccine can protect against the virus that causes cervical cancer, and regular Pap tests and HPV tests can catch abnormal cells before they become cancerous. Yet, many women in our community don’t know this. The lack of education and language barriers are major issues that prevent the information from getting out, compounded by the stigma in our community.

Yvette Torres, shares: “I advocate because I’m still here!! After being diagnosed 11 years ago, I want to help end cervical cancer and educate others by sharing my story.” 

Dulcely Tavarez brings a different perspective to this: “I promote cervical cancer prevention to help ensure that other women can maintain their chances of motherhood.” 

This passion and determination reflect the heart of our advocacy. We are survivors, and we share our stories because we don’t want anyone else to feel alone on this journey. For many women, cervical cancer doesn’t just threaten their lives—it can also take away their ability to have children. These words remind us of what’s at stake.

Ending the Stigma

One of the biggest barriers we face in the Hispanic community is the stigma around cervical cancer and HPV. Many of us grew up in households where talking about sexual health was taboo, and for some, the idea of getting an HPV vaccine or a Pap test feels uncomfortable or even shameful. But here’s the truth: HPV is incredibly common, and getting tested or vaccinated isn’t something to be ashamed of—it’s a form of self-care, a way to protect yourself and your loved ones.

Karla Chavez

I’ve experienced this firsthand. As a survivor, I’ve seen the way stigma and fear can prevent women from getting the care they need. But I’ve also seen the power of community, of sharing our stories and breaking the silence. That’s why I advocate: because I don’t want my story to repeat itself in others. I don’t want anyone to feel alone.

A Call to Action

So, what can we do? First and foremost, if you have a cervix, make sure you’re getting your regular cervical cancer screenings. These screenings can literally save your life. The HPV vaccine is safe, effective, and a powerful tool in preventing cervical cancer. Talk to your doctor about getting vaccinated.

For healthcare providers, we need you to help break down the barriers that prevent our community from accessing care. Provide information in Spanish, offer culturally sensitive care, and work to make sure that every woman—regardless of her background—feels safe and empowered to take control of her health.

And for everyone else, let’s end the stigma. Talk about cervical cancer. Talk about HPV. Share your story or information with your friends, your family, and your community. The more we normalize these conversations, the more lives we can save.

KARLA CHÁVEZ, a civil engineer and amigurumi enthusiast from Honduras, is a seven-year cervical and thyroid cancer survivor and proud ostomate. As a Cervivor Ambassador and co-lead of the Cervivor Español community, Karla is dedicated to making a difference for women both in her country and globally. She was honored with the 2020 Brittany Wagner Social Media Advocacy Award and was named a Cervivor Champion in 2022. Karla represents Cervivor, Inc. on the World Health Organization (WHO)’s Advisory Panel for Living Recommendations and Systematic Reviews on Screening and Treatment to Prevent Cervical Cancer.

Reflections From World Health Day: Bridging The Gap in Cancer Across The Globe

On World Health Day, April 7th, we came together under the banner of “My Health, My Right,” echoing a fundamental truth: access to quality healthcare is a basic human right. However, as we reflect on the day’s theme, it’s clear that this right is far from being universally realized, as disparities persist not only on a global scale but also within communities, even in countries like the United States, Canada, Scotland, and across Central America and Africa.

The fight against cervical cancer serves as a poignant example of the multifaceted challenges in healthcare accessibility. In Africa, the lack of resources, including broken machines and long waits for vital screenings, creates barriers to early detection and treatment. Despite the personal choices individuals may make regarding their health, they are often hindered by the absence of necessary tools and infrastructure. Jane was a patient seeking care for a routine physical. She happened to find a free screening clinic being offered at her local hospital. Her cervical cancer was detected and treated early due to access and timely screening. 

In the Caribbean, where the scenery is picturesque, the reality is harsh: limited access to comprehensive treatment options forces individuals to endure costly and emotionally draining journeys for essential treatments like radiation therapy. Countries like St. Lucia face the added burden of relying solely on chemotherapy, necessitating patients like Nymphia to seek radiation treatment abroad, adding layers of complexity to an already challenging situation.

Even in countries like Canada, where universal healthcare is a cornerstone, significant barriers persist, particularly for marginalized communities. Poverty, homelessness, and racism contribute to late-stage cancer diagnoses, resulting in poorer outcomes. Addressing modifiable barriers such as housing instability and limited health literacy is essential to ensure timely access to treatment for all Canadians.

Similarly, in Central America, including countries like Honduras, World Health Day serves as a reminder of the inherent right to healthcare. Despite recent progress, many barriers continue to hinder vulnerable groups and rural communities from accessing essential cervical cancer screenings. Challenges such as lack of awareness, stigma, financial constraints, and inadequate family support contribute to low screening rates, highlighting the need for targeted interventions. Karla is a cervical cancer survivor and patient advocate working to change the narrative.

Even in Scotland, a country with a robust healthcare system, cancer inequalities persist, with higher incidence and mortality rates in deprived areas. The disparity is stark, with cancer death rates being 74% higher in the most deprived populations compared to the least deprived. Urgent action is needed to dismantle barriers to early diagnosis and ensure equitable access to high-quality care across all communities. Cara was diagnosed with stage II cervical cancer after several doctors appointments originally addressing gastrointestinal and stress-related symptoms.   

As we reflect on World Health Day 2024, it’s evident that the journey towards equitable healthcare is ongoing and multifaceted. It requires not only addressing systemic issues but also dismantling barriers rooted in social determinants of health. Together, we must continue to advocate for universal access to quality healthcare, ensuring that “My Health, My Right” is a reality for all, regardless of geography or socioeconomic status.

To get involved and make a difference, community members and allies can:

  1. Advocate for policy changes that prioritize healthcare equity and address social determinants of health.
  2. Support organizations like Cervivor and initiatives working to improve access to healthcare services for underserved communities.
  3. Educate others about the importance of health equity and the impact of social determinants on health outcomes.
  4. Engage in community outreach and support initiatives that address healthcare disparities and promote wellness.
  5. Stay informed and involved in local and global health issues, amplifying the voices of marginalized communities.

Together, we can create a future where everyone has equal access to the healthcare they need and deserve. Let’s work towards a healthier, more equitable world for all.