Cervivor Founder: A Voice for Cervical Cancer Survivors and Health Equity This Black Philanthropy Month

When Tamika Felder founded Cervivor, Inc., in 2005, she wasn’t trying to build a national nonprofit with global reach. She was simply navigating her own cervical cancer diagnosis and determined that no woman should feel as alone as she once did.

Today, as Founder and Chief Visionary of Cervivor, Tamika leads an international movement to eliminate cervical cancer and confront health disparities—especially those affecting women of color.

During Black Philanthropy Month—and on Give 8/28, a national day dedicated to uplifting Black-led and Black-benefiting nonprofits—Tamika’s story is a powerful reminder of how Black leaders are driving change in health equity and advocacy. For her, the day is rooted in pride and visibility. “I’ve always been a part of community service,” she says, reflecting on the example set by her parents. “There are so many Black organizations doing incredible work, but they don’t always get the recognition they deserve. Give 8/28 is a day to say we’re proud to lead these organizations.”

Here, Tamika shares her wisdom and advice for others—whether you’re launching a nonprofit or fighting for access to quality healthcare for all.

Finding Her ‘Why’ and Reclaiming Her Voice

One of Tamika’s guiding messages as a leader and survivor is the importance of finding your “why”—the driving force behind your advocacy work and passion. For her, that “why” was born during cancer treatment and its aftermath, as she grieved the sudden end of her career as an up-and-coming broadcast journalist in Washington, D.C., and the loss of her fertility. “Little by little, the trauma had less of a hold on my life, and I began to embrace the possibilities that life beyond cancer could hold,” she says.

A pivotal moment came when she was asked to testify in support of a Maryland law to safeguard parenthood for young adult cancer patients. “Through tears and shaky hands, I shared my story with legislators, and it made a difference,” she recalls. The Protect Parenthood law was ultimately passed in 2018. Since then, Tamika has continued to use her powerful voice—speaking on Presidential Panels and global stages, serving on national roundtables, and appearing in award-winning documentaries and major publications.

“Black Philanthropy Month is about increasing visibility for Black-led nonprofits,” she says. “Some people might look at Cervivor and think, ‘Well, it already has great visibility.’ But until cervical cancer is eliminated, it will always need more.”

Centering Health Equity

Tamika has always been clear: While the mission of Cervivor is universal—cervical cancer prevention and elimination—the path forward must address inequities that disproportionately affect Black and brown women. And she doesn’t mince words about why health equity is central to her work. “We know that there are disparity gaps in this space, and that people of color, especially Black and brown women, are falling through those gaps at a higher incidence,” she explains.

Cervical cancer is one of the most preventable cancers. With the HPV vaccine, Pap tests, HPV testing, and now self-collection options, the prevention tools exist to save lives. Yet Black women continue to face higher rates of diagnosis and death. Tamika believes part of the solution lies in representation: survivors telling their own stories and trusted messengers bringing information to their communities.

The image is a graphic featuring a quote and a photograph. The quote, displayed on the left side of the image, reads: "MY LEGACY WOULDN'T BE THE LIVES I BROUGHT INTO THE WORLD. IT WAS GOING TO BE THE LIVES THAT I SAVED." The text is presented in a large, bold font, with the words "MY LEGACY," "WAS GOING TO BE THE," and "LIVES THAT I SAVED" in teal, and "WOULDN'T BE THE," "LIVES I BROUGHT," and "IT" in red and orange.
To the right of the quote is a photograph of a group of eight women, all wearing white or light-colored shirts with the word "cervivor" printed on them. They are seated on two white couches, arranged in a conversational manner. The background of the photograph features a wood-paneled wall adorned with a large piece of artwork.
At the bottom-right corner of the image, three logos are visible. The first logo, situated closest to the photograph, reads "cervivor" in teal text, accompanied by the tagline "informed. empowered. alive." in smaller text below. The second logo, positioned to the right of the first, displays the name "Tamika Felder" in orange text. The overall design of the image suggests that it may be related to a campaign or organization focused on cervical cancer awareness or support.
Cervivor Noir community members at last year’s Cervical Cancer Patient Advocacy Retreat For Communities of Color in Cleveland, OH.

“When I first started sharing my story, I didn’t see anyone who looked like me,” she says. “Every time I see a Black woman sharing their story and sharing the correct scientific information behind cervical cancer, it makes me feel really, really proud.”

The Power of Patient Stories

Tamika has built Cervivor around the conviction that data alone is not enough. “We gave the data, but we didn’t tell the story,” a researcher once told her. That insight reshaped her advocacy.

“You hear all the time that patient stories are important, but I uniquely got it,” Tamika reflects. “My story makes a difference. The hard parts of my story that I may not want to talk about can make a difference. ”From Cleveland to Rwanda, Cervivor has seen an impact by uplifting patient voices. At a Cleveland Clinic event, Cervivor ensured that “no one was left out of the screening” by providing culturally specific support through Cervivor Español and Cervivor Noir.

These stories matter because they reveal the lived reality of surviving cervical cancer—the hysterectomies, infertility, ostomies, and lifelong side effects often invisible to the public. “If we just let the general population tell it, well, you survived it, you’re doing fine. But I don’t look like what I’ve been through,” Tamika says.

Building Trust and Representation

Trust is everything in underserved communities, and Tamika insists on meeting people where they are. “I go to those communities. If I don’t go myself, someone from my organization goes. We talk to them. We build trust,” she says.

Representation plays a central role in Cervivor’s impact. Tamika works to ensure that photos, videos, and programs reflect diverse survivors. “I never want anyone not to see themselves,” she explains. “There’s something special to be said by connecting with people who’ve gone through what you’ve gone through.”

Resilience and Self-Care in Leadership

Running a nonprofit rooted in lived trauma is deeply personal work, and Tamika is candid about the toll. “There are points where it’s going to be really hard, but when you’re really committed to this work, you’ll find a way to keep going,” she says.

The image is a collage of 84 headshots of women, arranged in six rows, with a light blue background that gradually darkens towards the top. The headshots are presented in white-bordered boxes, each containing a photo of a woman and her name, along with her birth and death years. The women depicted are diverse in terms of age, ethnicity, and attire. At the bottom of the image, the text "WITH CERVIVOR, THEY LIVE ON #ENDCERVICALCANCER" is displayed in white, accompanied by the Cervivor logo in the bottom-right corner. The overall tone of the image is somber, as it appears to be a tribute to women who have passed away from cervical cancer.

Tamika with Lisa Simms Booth, Executive Director of the Smith Center for Healing and the Arts

As a survivor herself, every death in the community is another wound. “It’s another person who’s died from a preventable disease, and so I have to really practice self-care around that,” she shares. Surrounding herself with other Black women nonprofit leaders helps her carry the weight. “It’s a very hard time, not only for nonprofits, but nonprofits run by Black women. Knowing that you’re not alone helps it be manageable.”

Standing Firm on Equity

Even as some organizations shy away from terms like “DEI” or “health equity” in response to political pressures, Tamika refuses to dilute Cervivor’s mission. “Just because we change and don’t call a thing a thing doesn’t mean that we don’t experience it,” she says. “We’ve already had a funder not fund us because of our Communities of Color retreat. And I’m not going to change the name of it. No one is going to die from cervical cancer on my watch.”

Her vision is clear: to leave behind a legacy of courage, visibility, and unrelenting advocacy.

A Legacy of Hope and Action

What began as one woman’s way to not feel alone has become a global movement of survivors, advocates, and educators. Tamika is proud of how Cervivor has connected patients, clinicians, community workers, and researchers. “We’ve inspired patients, educated clinicians, and shifted the narrative around cervical cancer,” she says.

On Black Philanthropy Day, her journey reminds us that philanthropy is not just about giving money—it’s about giving voice, visibility, and leadership. Tamika embodies all three, leading with resilience and purpose to ensure that no one falls through the gaps in the fight against cervical cancer.

Support the Mission

This Black Philanthropy Month, we invite you to support Tamika’s vision and Cervivor’s mission to end cervical cancer through advocacy, education, and community. Here’s how you can take action:  

  • Give $20 on 8/28: As part of Cervivor’s year-long Tell 20, Give 20 campaign, your $20 donation will directly support a Black-led nonprofit committed to health equity for all. 
  • Engage with Cervivor: Follow us on social media, share our posts, and help amplify the voices of cervical cancer survivors and advocates. Your engagement builds awareness, strengthens our community, and inspires action.
  • Attend Cervivor Events: From Cervivor School and monthly virtual meetups to the next Cervical Cancer Summit—your presence makes a difference. Show up, speak out, and stand with us.

National Cancer Prevention Month: How Cervical Cancer Early Detection and Vaccination Saves Lives

February is National Cancer Prevention Month, a time to raise awareness about the preventable causes of cancer and encourage healthy lifestyle choices to reduce cancer risk. When it comes to cervical cancer, the disease can be almost entirely prevented through effective measures such as the HPV vaccination and regular screenings.

Ready for a “wow” moment? According to the American Association for Cancer Research (AACR), the five-year survival rate for cervical cancer is approximately 92% when detected early, compared to just 17% in advanced stages. While the National Cancer Institute notes that prognosis statistics are based on large sample sizes and individual responses to treatment can vary, this stark difference – between early detection versus later – underscores the critical role of prevention in saving lives.

In honor of Cervical Cancer Awareness Month last month, the Prevent Cancer Foundation asked our founder, Tamika Felder, to create a video call to action to educate and empower others about cervical cancer. Check it out, then take a moment to learn about the best ways to prevent the disease.

4 Tips for Cervical Cancer Prevention

Here are some prevention tactics that can significantly reduce the risk of cervical cancer:

1. HPV Vaccination

The Human Papillomavirus (HPV) vaccine is a highly effective way to prevent cervical cancer, protecting against the HPV strains most commonly linked to the disease. Recent research search shows that cervical cancer deaths among young women up to age 25 have dropped significantly since the introduction of the HPV vaccine in the mid-2000s.

The recommended HPV vaccination schedule is as follows:

  • Ages 9–12: The vaccine can be started as early as age 9 and is routinely recommended at ages 11–12.
  • Ages 13–26: If not vaccinated earlier, individuals up to age 26 can receive the vaccine, with a catch-up schedule if needed.
  • Ages 27–45: The vaccine is FDA-approved for adults up to age 45. While the benefit is lower in this age group, those at risk can discuss vaccination with their healthcare provider.

For more information, check out our Partners in Purpose at the National HPV Roundtable. 

2. Healthy Lifestyle

Maintaining a healthy lifestyle can help reduce the risk of cervical cancer. This includes:

  • Avoiding Tobacco: Smoking tobacco and exposure to secondhand smoke can increase cancer risk.
  • Eating a Balanced Diet: Focus on a diet rich in fruits, vegetables, and fiber while ensuring adequate calcium intake. Limit processed meats and alcohol consumption.
  • Exercising Regularly: Staying active helps maintain a healthy weight, as obesity can contribute to cancer risk.

Even if you’re a cervical cancer survivor, maintaining a healthy lifestyle can support overall well-being and help reduce the risk of recurrence. Need motivation? Survivor Slimdown is an online space powered by Cervivor for all cancer survivors of all cancer types. By joining this community, you’ll get monthly fitness and diet challenges, daily motivation, accountability from others, and education from our Certified Wellness Instructor and Cervivor Ambassador, Patti Murillo-Casa.

3. Regular Screening

Regular screening is essential for early detection of cervical cancer. The Pap test and HPV test can help identify abnormal cell changes or HPV infections before they become cancerous. Now, there are even more options like an HPV Self-Collection test.

The current recommended screening guidelines by the U.S. Preventive Services Task Force (USPSTF) are as follows:

  • Women aged 21 to 29 years: Screen for cervical cancer every 3 years with cytology alone.
  • Women aged 30 to 65 years: Screen for cervical cancer every 3 years with cytology alone, every 5 years with hrHPV testing alone, or every 5 years with cotesting.
  • Women younger than 21 years, women older than 65 years with adequate prior screening, and women who have had a hysterectomy: Do not screen for cervical cancer.

Disclaimer: The guidelines are currently being updated.

4. Diagnostic and Treatment Options

If abnormal cell changes or high-risk HPV infections are detected, there are several diagnostic and treatment options available including:

  • Colposcopy: A procedure that uses a special microscope to examine the cervix for abnormal cell changes.
  • Cryotherapy: A treatment that uses freezing temperatures to destroy abnormal cells.
  • LEEP (Loop Electrosurgical Excision Procedure): A procedure that uses a special wire loop to remove abnormal cells.
  • Laser Therapy: A treatment that uses a laser to destroy abnormal cells.

By taking advantage of the prevention and early detection options outlined above, you can significantly reduce your risk of cervical cancer – not just during National Cancer Prevention Month, but all year long.

Join the Mission to Prevent Cervical Cancer

At the heart of cervical cancer prevention and awareness is Cervivor, a global community dedicated to educating and empowering those affected by cervical cancer. But we don’t stop there! Our community includes patients, survivors, loved ones, care teams, policymakers, and more – working together to drive meaningful change in their own backyards and beyond.

One of Cervivor’s key prevention initiatives, #Screen4Me, encourages individuals to prioritize cervical cancer screening and follow-up care, emphasizing that early detection saves lives. The concept behind it? If someone isn’t motivated to get screened for themselves, they’re encouraged to do it for someone who has experienced cervical cancer – as in, “get screened for me.”

Through #Screen4Me, Cervivor provides:

Cervivor is working to close the gap in cervical cancer screening and education, aiming to save lives by detecting cervical cancer early, when it is most treatable. By supporting programs like #Screen4Me, we can work together to create a cervical cancer-free future!

Interested in learning more? Sign up for updates here. Want to help fund our mission to end cervical cancer? All donations are gratefully accepted through our “Tell 20, Give 20” campaign. Find out more!