Indiana

National Patient Advocacy Day Recap

Last week presented to be a busy week for patient advocacy. Wednesday was recognized as National Nonprofit Day where Cervivor was chosen as a nonprofit partner of choice through the Kendra Gives Back program through Kendra Scott. The Tampa store location hosted Avi Grant-Noonan, a cervical cancer survivor and patient advocate. Together, we fundraised around $250 for Cervivor in honor of the national awareness day. Avi states, “It was amazing! We had such a great time.”

And this past Saturday was recognized as National Patient Advocacy Day. Our Cervivor community was in action painting coast-to-coast teal and white. The event blended a collaborative approach to cervical cancer patient advocacy including patients, survivors, medical professionals, and industry partners. This day was meaningful for the Cervivor community as it allowed for them to discuss patient advocacy and its importance, along with understanding the impact of sharing their stories in their communities. Attendees were encouraged to spark the conversation surrounding cervical cancer and create change in their local communities.

Community members from Cervivor Caribbean and Cervivor Africa tuned in via the virtual meet-up. This brought about awareness of disparities that members face even in the global community. This open discussion of disparities helped attendees work together to encourage, develop, and plan in adding to our mission to eliminate cervical cancer. Cervivors and industry partners left this event (in-person and virtual) with a reminder that no one fights alone. 

Phyllis Adams (NY Event Attendee): “What a great event meeting with other Cervivors and sharing our unique stories!!! It was a pleasure meeting you in person and allowing me to share my story! Awesome day!”

Anna Ogo (WA Event Co-Host): “We had a blast We covered so many important topics – scanxiety, mental health, dilators, support for caregivers, cervical cancer screening guidelines, HPV, stigma, vaccination, education, ADVOCACY, and the list goes on…”

Sara Johney (VA Event Co-Host): “What a great day! We had an amazing time meeting Cervivor sisters in Fairfax Va! What a perfect way to celebrate National Patient Advocacy Day: Fairfax, VA! Thank you to Caboose Commons for hosting us!”

Lorie Wallace (MI Event Host): “What a wonderful event. Considering there are over a million people right now who are attending the world’s largest car cruise just down the street from this event, I’m very thankful that I got a wonderful group together. Thank you. Happy National Patient Advocacy Day: Metro Detroit, Michigan!”

Check out more event photos below!


I Get To: A Journey of Resiliency

The lotus flower, in addition to being beautiful, grows in bodies of water from the bottom. Through mud and water, the flower leaves float on the surface in hues of pink or white. The concept of resiliency was not new to me. Though young in age, I have felt I have gone through many challenges. None as hard as the year 2021. 

The year of misery began with my thirtieth birthday. Not only did I turn the dreaded 3-0 but that same day my car broke down. Not a great start to the year. Shortly after that, I began showing bizarre symptoms I couldn’t explain. Becoming concerned as they continued a few months later, I began seeing doctors. And more doctors. And more doctors. Ultimately leading to the diagnosis of stage II cervical cancer in May. 

 It is weird to believe that it was not the worst thing to happen that year. A few weeks after my diagnosis I celebrated my son’s second birthday at my house which lead to the bursting of a pipe in my walls that flooded not only my kitchen but my bathroom as well. This led to the deconstruction of the area to get rid of the mold. I was left with no counters, no flooring, and missing half a wall between the bathroom and kitchen. 

I had never felt stress like that. And I had not even begun treatment yet. I was worried about construction, my treatment, and my son. I started my chemo and radiation in July and a week later my beloved dog, Cookie, passed away due to her own battle with cancer. 

Cookie

To give a short background, Cookie was the dog I got in college and who had been with me for a decade through many challenging mental health battles. After she passed, I got low. I didn’t want to fight. I wanted to end it all. But then I remembered I was a mom to a beautiful toddler who needed me. I could not give up. 

I muddled through treatments with low spirits. The construction finished and my home was put back together. My treatments ended and everything looked ok. But my moods had not improved. 

It wasn’t until I attended a conference with a keynote speaker who hit on the concept of changing the words “I have to” into “I get to”. He used examples of “getting to wash the dishes” and so on. His words struck something inside me. In a follow-up meeting with my team after the talk we went around the table saying things we get to do. Most of my colleagues spoke about getting to do laundry because that means they had clothes and other great things. When it got to me I very quietly said “I get to be with my son because the cancer did not win”. 

Silence filled the room followed by light applause. I wasn’t exactly looking for that type of response but suddenly my mood clicked. I get to continue my life. I get to continue learning and sharing precious moments with my son. I get to give another lonely dog in a shelter a happy life. I get to live! 

And since that conference, every time I feel that I am hitting a wall especially when dealing with doctor follow-ups and tests, I just silently tell myself “I get to do this”. 

Rachel Rump lives in South Bend, Indiana. She is a mother of one and a stage II cervical cancer survivor. New to Cervivor, Rachel hopes to connect with others as well as serve as an advocate in the ongoing battle against cancer.