National Patient Advocacy Day Recap

Last week presented to be a busy week for patient advocacy. Wednesday was recognized as National Nonprofit Day where Cervivor was chosen as a nonprofit partner of choice through the Kendra Gives Back program through Kendra Scott. The Tampa store location hosted Avi Grant-Noonan, a cervical cancer survivor and patient advocate. Together, we fundraised around $250 for Cervivor in honor of the national awareness day. Avi states, “It was amazing! We had such a great time.”

And this past Saturday was recognized as National Patient Advocacy Day. Our Cervivor community was in action painting coast-to-coast teal and white. The event blended a collaborative approach to cervical cancer patient advocacy including patients, survivors, medical professionals, and industry partners. This day was meaningful for the Cervivor community as it allowed for them to discuss patient advocacy and its importance, along with understanding the impact of sharing their stories in their communities. Attendees were encouraged to spark the conversation surrounding cervical cancer and create change in their local communities.

Community members from Cervivor Caribbean and Cervivor Africa tuned in via the virtual meet-up. This brought about awareness of disparities that members face even in the global community. This open discussion of disparities helped attendees work together to encourage, develop, and plan in adding to our mission to eliminate cervical cancer. Cervivors and industry partners left this event (in-person and virtual) with a reminder that no one fights alone. 

Phyllis Adams (NY Event Attendee): “What a great event meeting with other Cervivors and sharing our unique stories!!! It was a pleasure meeting you in person and allowing me to share my story! Awesome day!”

Anna Ogo (WA Event Co-Host): “We had a blast We covered so many important topics – scanxiety, mental health, dilators, support for caregivers, cervical cancer screening guidelines, HPV, stigma, vaccination, education, ADVOCACY, and the list goes on…”

Sara Johney (VA Event Co-Host): “What a great day! We had an amazing time meeting Cervivor sisters in Fairfax Va! What a perfect way to celebrate National Patient Advocacy Day: Fairfax, VA! Thank you to Caboose Commons for hosting us!”

Lorie Wallace (MI Event Host): “What a wonderful event. Considering there are over a million people right now who are attending the world’s largest car cruise just down the street from this event, I’m very thankful that I got a wonderful group together. Thank you. Happy National Patient Advocacy Day: Metro Detroit, Michigan!”

Check out more event photos below!

Cervivor Takes Manhattan!

As we wrapped up the last weekend of Cervical Cancer Awareness Month (CCAM), we headed to New York for a monumental event that started off this year’s Cervical Cancer Summit powered by Cervivor.

Founder Tamika Felder, along with members from the Cervivor community, were invited to ring the closing bell on Nasdaq. Tamika’s call to action to the world, “Join us in this mission because no one should die from cervical cancer.” And the world is listening!

We kicked off the 2023 Cervical Cancer Summit in partnership with Jacobs Technion-Cornell Institute, it was truly an inspired and innovated conversation with Eve McDavid, a cervical cancer survivor and Fem Tech entrepreneur, along with the brilliant Dr. Onyinye Balogun and Fernando Gomez-Baquero. By using the patient voice, they are developing a revolutionary new device that will transform Brachytherapy, which still uses the same barbaric process that was developed in the 1970’s, with no regard for the actual female anatomy. We are excited to see more innovations like this happening in treatment altogether!

We continued with the patient voice perspective with members of the Cervivor community speaking on the Power in Patient Voices with Arlene Simpson, Yvette Torres, Kadiana Vegee and Kate Weissman. They shared how the collective Cervivor voice can bring more visibility and influence change, working towards our common goal of ending cervical cancer.

Dr. Rebecca Perkins joined us for Expert Hour on all things cervical cancer and HPV. You can tell that Dr. Perkins is very passionate about educating others to understand the importance of HPV vaccination and cancer prevention. “HPV vaccination is cancer prevention!”

The day continued with a session on Emotional Resilience: Survivorship & Support. Community members Anna Ogo, Tina Vetreno and Tiera Wade joined presenter Danielle Modlo, who is a Certified Nurse Practitioner at Cleveland Clinic, really brought to the surface what cervical cancer patients and survivors face from a mental health and wellness perspective during and after treatment.

Joslyn Paguio, Cervivor Podcast host, lead a conversation on Sexual Health with Dr. Rosemary Basson on how we navigate our ‘new groove’ through our physical and emotional changes that cancer brings to our sexual desires.

Our last panel discussion was on Navigating a Cervical Cancer Diagnosis and Treatment Options – What’s Best for Ourselves with Ayanna Bass, Karla Chavez, Carol Lacey, Jenn Myers, Karen North, Selena Ruston and Kimberly Williams. We discussed how we make sense of everything we go through from diagnosis and beyond, and choosing the best treatment plan for you which may include clinical trials, more surgeries, or second opinions.

Just as the day began, we ended with an exhilarating bang as Dr. Cindy Trice shared her personal cervical cancer journey and how years later that journey helped create and fuel KickIt Pajamas. She truly turned her pain into purpose and we just love her company’s mantra, “Friends don’t let friends have hospital butt.” Her inspirational talk left us laughing and crying.

Last but not least, we celebrated five new Cervivor Champion Award recipients for going above and beyond with the mission of Cervivor being their driving force. Join us in congratulating these outstanding individuals as our 2023 Cervivor Champions!