Partner in Purpose

Be Your Own Advocate

As we begin this new year, Cervivor, Inc. wants to empower you to take control of your health and well-being by being your own advocate. Advocacy comes in many forms, from lobbying on Capitol Hill to raise awareness about cervical cancer to supporting research and education initiatives. While grand, large-scale advocacy efforts are crucial in creating systemic change, it’s essential to remember that not all advocacy has to be big and bold. 

In fact, some of the most powerful forms of advocacy start with small, everyday actions, such as asking questions, seeking second opinions, and ensuring you receive the care and answers you deserve. By being your own advocate, you can take charge of your health, make informed decisions, and inspire others to do the same. We’re inspired by the stories of individuals within our Cervivor community, such as Patty Larson from Minnesota, who embodies the spirit of self-advocacy in her journey into survivorship after cervical cancer. Here is her journey in her own words:

Patty Larson, Cervical Cancer Survivor

“I was diagnosed with 1B2 clear cell adenocarcinoma of the cervix in September 2018. I did two types of treatment followed by two years of maintenance chemotherapy as prevention. I am now 4.5 years with no evidence of disease (NED) and I wake up every single morning feeling very blessed, but there are still some days I am not ok!

I don’t suffer from too many physical side effects. Once in a while, I have neuropathy in my left foot. Taking L-glutamine has really helped keep that at bay. Walking and being active is the real key, though. I am grateful that I am able to get in many steps while working as a part-time hairstylist. Once in a blue moon, I have digestive issues if I eat something too rich and I pay for it later by using the bathroom more than usual.

The biggest thing that just recently hit me is the long-term side effect of weight gain! The chemotherapy damaged my thyroid pretty badly, so I take a prescription thyroid medication. The struggle is real and lately, it is starting to affect my self-image. While I feel good physically for the most part, my endocrinologist does not listen to me. I have asked her to change my dose but because my bloodwork falls in the normal range, she said I am fine. 

But I don’t feel fine! I am gaining weight for no other reason; now, I weigh about what I did when I was pregnant. I am active between work and working out and I also have good eating habits. I recently brought up these issues and feelings with my oncologist. She listened better and has referred me to a weight management center! I am so happy! 

My biggest piece of advice for cancer patients and survivors is to advocate for your health and keep doing it until you finally find that person who will listen to you. Never stop trying and never stop fighting, even on your bad days.”

Empowering a Community of Advocates

As we reflect on the power of individual advocacy, we invite you to join the Cervivor community in sharing your own story of resilience and determination. By sharing your written narrative on our website, you can help inspire others to take control of their health and become their own advocates.

We also encourage healthcare providers, organizations, and individuals to partner with us in sharing crucial resources for education and support. Together, we can create a ripple effect of empowerment, ensuring that every person affected by cervical cancer has access to the care and information they deserve. 

Whether through sharing your story, volunteering, or simply spreading the word about our mission, every action counts, and every voice matters. Join us in amplifying the message of self-advocacy and helping to create a world where no one faces cervical cancer alone.

Patty Larson lives in Minnesota. She is a self-employed hairstylist who works part-time. Her clients and team were a big part of staying positive during cancer treatment. Patty is excited to get involved with cervical cancer advocacy. 

Amplifying Our Cervivor Footprint on National Patient Advocacy Day

Today, we celebrate National Patient Advocacy Day, recognizing the profound impact of patient advocacy in improving healthcare outcomes and advancing policy and research. At Cervivor, we’re proud of our organization’s commitment to empowering patients and families affected by cervical cancer. Through our work, we’ve partnered with esteemed organizations like The National Cancer Institute and The National HPV Vaccination Roundtable, and hold positions on leading coalitions such as The American Cancer Society National Roundtable on Cervical Cancer (ACS NRTCC). 

We’re highlighting the remarkable work of our community members, who have shared their stories, volunteered their time, and mobilized their networks to drive change. Together, we’ve raised awareness, promoted education, and advocated for policies supporting cervical cancer prevention and treatment, as well as HPV vaccination access. Our collective efforts – our “Cervivor footprint” – have led to:

  • Influencing policy changes, such as advocating for expanded HPV vaccination access through the PREVENT HPV CANCERS ACT and ensuring sustained funding for cervical cancer screening services like Medicaid and CHIP funding for Pap tests and HPV testing plus increased support for The National Breast and Cervical Cancer Early Detection Program (NBCCEDP).
  • Contributing to research initiatives like providing patient perspective and expertise to studies focused on cervical cancer prevention, treatment, and survivorship; and supporting the development of new diagnostic tools and treatments, including participation in advisory boards for clinical trials and innovative technologies.
  • Providing trusted resources and support programming for patients and families through social media content, community outreach initiatives, virtual and in-person programming, and patient advocacy trainings. 

As we acknowledge the power of patient advocacy, we’re reminded that our work doesn’t stop here. We’re urging our community to take an essential step further with a simple call-to-action: share Cervivor with your local healthcare provider and cancer center. By doing so, you’ll help ensure that those affected by cervical cancer have access to our trusted resources, support programming, and advocacy efforts.

We also acknowledge the dedicated healthcare professionals who partner with us to amplify our mission. Together, we have achieved more. We invite professionals to join us in our purpose by:

  • Partnering with Cervivor on local initiatives, such as immunization coalitions, advisory boards, and research projects
  • Hosting a Cervivor speaker at a local event or virtual gathering
  • Collaborating on a fundraiser to support Cervivor’s mission
  • Sharing expertise through a guest blog post or being a featured guest on Cervivor platforms
  • Joining the Cervivor directory to become a potential speaker for upcoming events like the Cervical Cancer Summit Powered By Cervivor, Cervivor School, or the Cervical Cancer Patient Advocacy Retreat for Communities of Color

Simply submit your information by becoming a Partner in Purpose here. Together, we can accelerate progress toward our mission of ending cervical cancer. Join us in continuing to amplify patient voices, drive research, and support those impacted by this disease.