Cervivor Founder: A Voice for Cervical Cancer Survivors and Health Equity This Black Philanthropy Month

When Tamika Felder founded Cervivor, Inc., in 2005, she wasn’t trying to build a national nonprofit with global reach. She was simply navigating her own cervical cancer diagnosis and determined that no woman should feel as alone as she once did.

Today, as Founder and Chief Visionary of Cervivor, Tamika leads an international movement to eliminate cervical cancer and confront health disparities—especially those affecting women of color.

During Black Philanthropy Month—and on Give 8/28, a national day dedicated to uplifting Black-led and Black-benefiting nonprofits—Tamika’s story is a powerful reminder of how Black leaders are driving change in health equity and advocacy. For her, the day is rooted in pride and visibility. “I’ve always been a part of community service,” she says, reflecting on the example set by her parents. “There are so many Black organizations doing incredible work, but they don’t always get the recognition they deserve. Give 8/28 is a day to say we’re proud to lead these organizations.”

Here, Tamika shares her wisdom and advice for others—whether you’re launching a nonprofit or fighting for access to quality healthcare for all.

Finding Her ‘Why’ and Reclaiming Her Voice

One of Tamika’s guiding messages as a leader and survivor is the importance of finding your “why”—the driving force behind your advocacy work and passion. For her, that “why” was born during cancer treatment and its aftermath, as she grieved the sudden end of her career as an up-and-coming broadcast journalist in Washington, D.C., and the loss of her fertility. “Little by little, the trauma had less of a hold on my life, and I began to embrace the possibilities that life beyond cancer could hold,” she says.

A pivotal moment came when she was asked to testify in support of a Maryland law to safeguard parenthood for young adult cancer patients. “Through tears and shaky hands, I shared my story with legislators, and it made a difference,” she recalls. The Protect Parenthood law was ultimately passed in 2018. Since then, Tamika has continued to use her powerful voice—speaking on Presidential Panels and global stages, serving on national roundtables, and appearing in award-winning documentaries and major publications.

“Black Philanthropy Month is about increasing visibility for Black-led nonprofits,” she says. “Some people might look at Cervivor and think, ‘Well, it already has great visibility.’ But until cervical cancer is eliminated, it will always need more.”

Centering Health Equity

Tamika has always been clear: While the mission of Cervivor is universal—cervical cancer prevention and elimination—the path forward must address inequities that disproportionately affect Black and brown women. And she doesn’t mince words about why health equity is central to her work. “We know that there are disparity gaps in this space, and that people of color, especially Black and brown women, are falling through those gaps at a higher incidence,” she explains.

Cervical cancer is one of the most preventable cancers. With the HPV vaccine, Pap tests, HPV testing, and now self-collection options, the prevention tools exist to save lives. Yet Black women continue to face higher rates of diagnosis and death. Tamika believes part of the solution lies in representation: survivors telling their own stories and trusted messengers bringing information to their communities.

The image is a graphic featuring a quote and a photograph. The quote, displayed on the left side of the image, reads: "MY LEGACY WOULDN'T BE THE LIVES I BROUGHT INTO THE WORLD. IT WAS GOING TO BE THE LIVES THAT I SAVED." The text is presented in a large, bold font, with the words "MY LEGACY," "WAS GOING TO BE THE," and "LIVES THAT I SAVED" in teal, and "WOULDN'T BE THE," "LIVES I BROUGHT," and "IT" in red and orange.
To the right of the quote is a photograph of a group of eight women, all wearing white or light-colored shirts with the word "cervivor" printed on them. They are seated on two white couches, arranged in a conversational manner. The background of the photograph features a wood-paneled wall adorned with a large piece of artwork.
At the bottom-right corner of the image, three logos are visible. The first logo, situated closest to the photograph, reads "cervivor" in teal text, accompanied by the tagline "informed. empowered. alive." in smaller text below. The second logo, positioned to the right of the first, displays the name "Tamika Felder" in orange text. The overall design of the image suggests that it may be related to a campaign or organization focused on cervical cancer awareness or support.
Cervivor Noir community members at last year’s Cervical Cancer Patient Advocacy Retreat For Communities of Color in Cleveland, OH.

“When I first started sharing my story, I didn’t see anyone who looked like me,” she says. “Every time I see a Black woman sharing their story and sharing the correct scientific information behind cervical cancer, it makes me feel really, really proud.”

The Power of Patient Stories

Tamika has built Cervivor around the conviction that data alone is not enough. “We gave the data, but we didn’t tell the story,” a researcher once told her. That insight reshaped her advocacy.

“You hear all the time that patient stories are important, but I uniquely got it,” Tamika reflects. “My story makes a difference. The hard parts of my story that I may not want to talk about can make a difference. ”From Cleveland to Rwanda, Cervivor has seen an impact by uplifting patient voices. At a Cleveland Clinic event, Cervivor ensured that “no one was left out of the screening” by providing culturally specific support through Cervivor Español and Cervivor Noir.

These stories matter because they reveal the lived reality of surviving cervical cancer—the hysterectomies, infertility, ostomies, and lifelong side effects often invisible to the public. “If we just let the general population tell it, well, you survived it, you’re doing fine. But I don’t look like what I’ve been through,” Tamika says.

Building Trust and Representation

Trust is everything in underserved communities, and Tamika insists on meeting people where they are. “I go to those communities. If I don’t go myself, someone from my organization goes. We talk to them. We build trust,” she says.

Representation plays a central role in Cervivor’s impact. Tamika works to ensure that photos, videos, and programs reflect diverse survivors. “I never want anyone not to see themselves,” she explains. “There’s something special to be said by connecting with people who’ve gone through what you’ve gone through.”

Resilience and Self-Care in Leadership

Running a nonprofit rooted in lived trauma is deeply personal work, and Tamika is candid about the toll. “There are points where it’s going to be really hard, but when you’re really committed to this work, you’ll find a way to keep going,” she says.

The image is a collage of 84 headshots of women, arranged in six rows, with a light blue background that gradually darkens towards the top. The headshots are presented in white-bordered boxes, each containing a photo of a woman and her name, along with her birth and death years. The women depicted are diverse in terms of age, ethnicity, and attire. At the bottom of the image, the text "WITH CERVIVOR, THEY LIVE ON #ENDCERVICALCANCER" is displayed in white, accompanied by the Cervivor logo in the bottom-right corner. The overall tone of the image is somber, as it appears to be a tribute to women who have passed away from cervical cancer.

Tamika with Lisa Simms Booth, Executive Director of the Smith Center for Healing and the Arts

As a survivor herself, every death in the community is another wound. “It’s another person who’s died from a preventable disease, and so I have to really practice self-care around that,” she shares. Surrounding herself with other Black women nonprofit leaders helps her carry the weight. “It’s a very hard time, not only for nonprofits, but nonprofits run by Black women. Knowing that you’re not alone helps it be manageable.”

Standing Firm on Equity

Even as some organizations shy away from terms like “DEI” or “health equity” in response to political pressures, Tamika refuses to dilute Cervivor’s mission. “Just because we change and don’t call a thing a thing doesn’t mean that we don’t experience it,” she says. “We’ve already had a funder not fund us because of our Communities of Color retreat. And I’m not going to change the name of it. No one is going to die from cervical cancer on my watch.”

Her vision is clear: to leave behind a legacy of courage, visibility, and unrelenting advocacy.

A Legacy of Hope and Action

What began as one woman’s way to not feel alone has become a global movement of survivors, advocates, and educators. Tamika is proud of how Cervivor has connected patients, clinicians, community workers, and researchers. “We’ve inspired patients, educated clinicians, and shifted the narrative around cervical cancer,” she says.

On Black Philanthropy Day, her journey reminds us that philanthropy is not just about giving money—it’s about giving voice, visibility, and leadership. Tamika embodies all three, leading with resilience and purpose to ensure that no one falls through the gaps in the fight against cervical cancer.

Support the Mission

This Black Philanthropy Month, we invite you to support Tamika’s vision and Cervivor’s mission to end cervical cancer through advocacy, education, and community. Here’s how you can take action:  

  • Give $20 on 8/28: As part of Cervivor’s year-long Tell 20, Give 20 campaign, your $20 donation will directly support a Black-led nonprofit committed to health equity for all. 
  • Engage with Cervivor: Follow us on social media, share our posts, and help amplify the voices of cervical cancer survivors and advocates. Your engagement builds awareness, strengthens our community, and inspires action.
  • Attend Cervivor Events: From Cervivor School and monthly virtual meetups to the next Cervical Cancer Summit—your presence makes a difference. Show up, speak out, and stand with us.

What Happens After Survival? The Hidden Toll of Infertility After Cervical Cancer

According to a National Health Statistics Report by the Centers for Disease Control and Prevention (CDC), approximately 13.4% of women of reproductive age (15-49) in the United States have difficulty getting pregnant or carrying a pregnancy to term. For cervical cancer patients and survivors, the risk of infertility is significantly higher due to treatments such as surgery, chemotherapy, and radiation. Studies suggest that approximately 80% of cervical cancer patients and survivors are interested in parenthood, and up to 38% of them may experience infertility or difficulty conceiving after treatment.

That’s why, during Infertility Awareness Week (April 20 to 26), Cervivor is amplifying this critical conversation—talking openly about the often overlooked emotional and physical toll of infertility after cervical cancer.

The Silent Struggle of Infertility After Cervical Cancer

Infertility after cervical cancer is a harsh reality many survivors face, often in silence. The loss of fertility can be a profound grief that lingers long after treatment has ended, affecting relationships, sense of identity, and future plans in unimaginable ways. Feelings of isolation and loneliness can be overwhelming, especially for those who’ve already endured the trauma of a cancer diagnosis. Here, two members of the Cervivor community open up about the different ways infertility after cervical cancer has shaped their lives.

Heidi’s Story

Heidi Burgard’s journey with cervical cancer began when she was 29. In a long-term relationship and hoping to start a family, her diagnosis upended her plans and forced her to confront a double loss: her fertility and, eventually, her relationship.

Heidi Burgard

“Losing the ability to have children and experiencing the loss of relationships along the way was incredibly difficult,” says Heidi, who is from Northern Colorado. While fertility preservation was discussed at the time of her diagnosis, she chose to prioritize her health and begin treatment immediately. “I still reflect on that decision,” she shares. “And after experiencing three recurrences, I believe—though it was incredibly difficult—it was the right one for me.”

The emotional toll extended beyond her health. After her first recurrence, Heidi’s partner ended their relationship, telling her it was “too much” to handle. “It was heartbreaking and eye-opening—one of those moments that shows you not everyone is built to stand beside you when life gets hard. That chapter closed, but it helped shape who I am today,” says Heidi, who has worked in banking for the last 17 years.

Today, Heidi is passionate about helping others feel seen and heard. She finds strength in storytelling, advocacy, and shared experiences. “Survivorship is about both healing and rediscovery,” she says, crediting the Cervivor community for helping her recovery. “I’m grateful to be part of a community that embraces the full complexity of that journey.”

Cindy’s Story

At 35, Cindy Trice received a life-altering diagnosis: Stage II cervical cancer. This was in 2004, and she had just graduated from veterinary school and was three months into an internship in Tampa, Florida. While survival became her focus, the loss of fertility was a lasting consequence.

Cindy Trice

“I’m not even sure I wanted children… but over the years, the loss of the ability to have children has haunted me,” she shares. Her candid reflection captures the complex and often conflicting emotions that many cancer survivors face—grief not only for what was lost, but also for what might have been.

Now a 25-year survivor, Cindy has transformed adversity into advocacy. Her experience inspired her to co-found KickIt Pajamas, a company focused on creating stylish, dignified hospital and recovery wear for women—the kind she and other Cervivors longed for during treatment. What began as a personal need has evolved into a mission to uplift and support others facing similar challenges.

Through KickIt Pajamas and her ongoing involvement with Cervivor, Cindy helps others find strength in their own stories. Her journey is a testament to resilience, reinvention, and the healing power of shared experience.

How Cervivor Can Help

At Cervivor, we understand that survivorship is more than just making it through treatment. It’s about navigating the emotional aftermath, redefining your future, and finding hope again, like both Heidi and Cindy shared. Our community offers a safe space to process grief, share stories, and connect with others who truly understand.

Additionally, financial assistance is available for those pursuing parenthood, helping to ease the burdens of this often unpredictable journey. Read on about a special gift fund and keep reading for our latest list of trusted fertility resources and partners. 

The Virginia “Ginny” Marable Cervivor Baby Gift Fund: A Lifeline for Survivors

During an online seminar Cervivor hosted in April 2020, Cervivor Founder and Chief Visionary Tamika Felder met Ginny Marable, a fellow cervical cancer survivor and 36-year-old human resources director. As Tamika spoke about having to “bury” her hope of having children, Ginny was struck. “I was very moved by Tamika’s story,” she says. “She wasn’t really given the choice to preserve her fertility.”

Ginny, who married her husband Sean in November 2018, was thrilled when doctors thawed one of their frozen embryos. The embryo split, and their gestational carrier gave birth to identical twins in March 2021. With their family now complete, Ginny and Sean were left with four remaining embryos—and a big decision. It didn’t take long for Ginny to know what she wanted to do: she offered the embryos to her friend. 

Out of that generosity and connection, The Virginia “Ginny” Marable Cervivor Baby Gift Fund was born. This fund offers tangible support for cervical cancer survivors navigating fertility services and family-building options. 

Dulcely Tavarez, the first recipient of the Cervivor Baby Gift Fund, shares: “This grant has been such a meaningful part of my journey to parenthood. It’s not only helping to ease the financial burden of adoption, but it’s also a powerful reminder that I’m not alone. Knowing there’s a community standing beside me, cheering me on, gives me so much strength and hope.”

Dulcely Tavarez

Pathway to Parenthood: Helpful Resources

Access to the right resources can make all the difference. Cervivor’s Pathway to Parenthood Helpful Resources offers a comprehensive list of organizations, support groups, and services that support fertility preservation, family-building, emotional care, and financial assistance—providing a vital lifeline for survivors looking to start or grow their families. 

Whether you’re exploring adoption, surrogacy, or fertility treatments, these resources can provide valuable guidance, support, and hope as you navigate your path to parenthood.

How You Can Help

For many survivors, the journey doesn’t end with remission. Cancer treatments can leave lasting scars, including the pain of infertility. By acknowledging this often-overlooked struggle, we can build a more compassionate community that supports survivors in every part of their healing.

Here are some meaningful ways you can make a difference—within the Cervivor community and beyond:

  • Raise awareness about how cervical cancer treatments impact fertility
  • Share stories like Heidi’s and Cindy’s from the Cervivor website
  • Share your own story about infertility and cervical cancer
  • Advocate for fertility preservation and post-treatment support
  • Offer survivors a listening ear and a safe space to share
  • Donate to the Virginia “Ginny” Marable Cervivor Baby Gift Fund to help someone take one step closer to the family they’ve dreamed of

Infertility Awareness Week reminds us that the path to parenthood may look different for cervical cancer survivors—but different doesn’t mean impossible. Through shared stories, community support, and advocacy, we can bring hope and healing to those navigating this difficult road. Together, we can turn empathy into action. Every shared story, every act of support, and every donation brings us closer to a world where no one has to walk this journey alone.