patient advocate

Pushing Beyond Hispanic Heritage Month

Patti’s Mother, Tia (who would have been 94 on 10/22/22), & Abuelita

I was born in the US in the late 1950s. Both of my parents were born in Nicaragua, Central America. Even though I was born in the US, my grandparents raised me in Nicaragua until the age of eight. At that time, I returned to live with my parents in New York City. Making my first language Spanish. Growing up, we never spoke about menstruation, sex, or anything related to reproductive health at home. It was taboo. Schools did not teach sex education in those days either. I learned as I went along, hearing bits and pieces from my friends. 

Even though I am educated and well-rounded, sex education was a subject that I did not know much about. I only knew the basics. You might be thinking this is sad – Perhaps– but this is the way Latino parents have raised their kids for many generations. I wish someone had taught me about bodily development, and the broad variety of topics related to sex and sexuality, to have gained the skills needed to manage my sexual health.

Even today, in Latino households we do not have parents talking enough about sex education with their children.  There has been improvement, but there is a lot more we can do.

Unfortunately, cervical cancer in some cultures, including the Hispanic culture, is perceived to be a cancer of sexually promiscuous people. I believe this causes great stigma and shame. We can change this perception by first knowing the facts of cervical cancer, and educating others and ourselves. Educating the next generation properly is important. Teaching them about all the risks that exist, besides getting pregnant at an early age.

At the time of my diagnosis, I felt ashamed of having this type of cancer. I did not know too much about it nor did I know how I got cervical cancer.  I had to educate myself so I could properly explain it to my family. My shame resilience came with time. You need to remember that a particular belief passed from generation to generation is hard to change and hard to let go.

Patti Murillo-Casa, Dr. Jason Wright, & Tamika Felder at a Pap Rally & Run by Cervivor, Inc.

Today, I am an advocate and an educator on cervical cancer. I educate women, especially Latinas, on the tools we have to prevent this type of cancer. Latinas are the demographic most diagnosed with cervical cancer. The two main reasons why are a lack of knowledge about the disease, and a lack of screening. However, we can take steps to change the fate of many.

Over the past 10 years, I have teamed up with my oncologist to provide free cervical cancer screenings for women in NYC who may not have medical insurance.

I was declared cancer free in 2009, and I use to visit my oncologist every three months for check-ups after that. In 2010 when I became an advocate, I use to come in and tell my doctor about all the work and advocacy I was doing in NYC.  

We developed an awesome patient/doctor relationship; he saw my enthusiasm and passion for the mission of eliminating cervical cancer. One day, during one of those visits, he said, “Patti I want to help you and the Cervivor organization with your mission. Let’s offer FREE screenings to uninsured women.” I looked at him, smiled, and the only thing that came out of my mouth was, “Are you serious?” He smiled back and said, “Yes, let’s make it happen.” 

However, before we set up a date, he needed to put everything together. He needed to make sure that the lab was on the same page to not charge patients for processing the Pap/HPV test.  He also needed to gather medical staff to come in on their day off, and donate their time.  

This was amazing. I could not have asked for a better offer. On May 19, 2012, we held our first FREE screening event. It was a huge success. We have been offering this program annually since that first day and this year marks our 10-year anniversary.

We have also collaborated with other departments within the hospital, and for the past four years, in addition to cervical cancer screenings, we have offered FREE mammograms and FREE colon cancer screenings for uninsured men and women in the community.  

Dr. Jason Wright and his staff at the Division of Gynecologic Oncology at Columbia University/NY Presbyterian Hospital are committed to this mission. Dr. Wright has always been supportive to the Cervivor organization and my advocacy work. I am so thankful to him and his staff for putting these events together. Because of them, hundreds of women have been screened throughout the years, and many lives have been saved.

Patient advocates and their oncologists can create a partnership together to reach more women in the community, and offer education, screenings, support, or mentorship to women that need these services.  


Patti Murillo-Casa, Cervivor Wellness Instructor

Cervivor is grateful to Patti for bringing her passion and talents for wellness and cancer prevention to our mission. She is a vital part of what makes us #CervivorStrong. Thank you, Patti!

Hispanic Heritage Month: Beyond the Taboo

Karla Chavez, Cervivor Ambassador & 2022 Cervivor Champion Award Recipient

In the months of September and October, we are celebrating our Hispanic heritage.

History supports our struggle and power to overcome difficulties. We are brave, passionate, and colorful people. We also come from many beliefs and cultures, some of which can be obstacles.

It is a reality that many Latinas die from a disease that can be prevented. The lack of education, the lack of specialization of our doctors, and the HPV taboo are our challenges to overcome in order to win the war against cervical cancer and other cancers caused by the Human Papillomavirus.

I was 34 years old when I was diagnosed and in a country where our sex education is given in science and biology classes, but discussed little outside the parameters of our classrooms. Being able to accept and share that my cancer was caused by HPV gave me freedom. I talked about it with my family, and I remember having the feeling of, “What are they going to think of me?“ They really didn’t care. Their only concern was my health.

Being diagnosed with a cancer caused by HPV carries with it a taboo in my culture. We often do not discuss this with anyone because we do not want them to judge us, much less reject us. Many times we struggle alone with feeling guilty. This stigma must be overcome. We must trust that we will find support, in our family, in our friends, and/or in faith. The way to overcome this issue is to talk about it without fear, so that the next time we hear about cervical cancer, it’s because it is being prevented. We want our communities getting vaccinated and that we don’t wait ages for our doctor appointments.

A doctor told me, “the vast majority of us will have an HPV infection at some point, what we need is to remove the stigma behind those three letters and attack it.” 

This resonated with me. It made me feel that even though I didn’t know much about what was happening to me, it wasn’t my fault. It is something that I had to go through, and I must overcome it.

Karla with her Madre & Abuela

Once I took away the power that guilt had over me, I began to fight. I have had the joy of having my family as my support team. We have fought with a lot of faith and love. Which is one of the characteristics of our Hispanic culture, keeping us together as a family no matter the situation.

I am also sure that my doctors were the answer to my prayers in my moments of fear. I received 8 chemotherapies and 35 internal radiation treatments. After a total hysterectomy and colostomy surgery, I have made it my mission to never shut up about what I went through. Because to someone out there, something in my story will resonate and they will act. Either getting vaccinated, scheduling their cancer screenings, or vaccinating their children.

I’m still here to celebrate life and the month of Hispanic heritage. I’m still here to tell you that cervical cancer can be prevented. That there is a vaccine that can save the lives of hundreds of thousands. I’m still here to talk to everyone about the vaccine and prevention.

When I was diagnosed, I wanted to fight and win. Now that I celebrate 5 years without evidence of disease, I want to fight and overcome the stigma, the lack of education about HPV, and its relationship with various types of cancer.

After attending Cervivor School I learned how to share my story, how to speak up, and be the voice that can resonate with someone else.

I have had the opportunity to participate in talks at universities, high schools, religious groups in my country, and in workplace meetings, and always that I can to each person that wants to listen.

I want everyone to get the HPV vaccine, to make their cancer screening appointments so that together we can dream of a Honduras and a world free of cervical cancer.

Fellow cervical cancer survivors/patients, I leave you with a mission: Share your story, because your story will resonate with someone.

Visit Cervivor.org to share your story with an easy-to-follow template!

Karla Chavez is from Honduras and she is a civil engineer and amigurumi enthusiast. Karla is a 5-year cervical and thyroid cancer survivor and a proud ostomate. She is a Cervivor Ambassador, a 2019 Cervivor School graduate, a Cervivor Champion Award recipient, and is a key support to our growing Cervivor Espanol community.