World Health Organization

What Is Patient Advocacy? And Why It’s Critical in Cervical Cancer Care

By Kyle Minnis, Cervivor Communications Assistant

Peer-led advocacy isn’t just powerful—it’s transformative. According to the National Library of Medicine, programs like Cervivor School—Cervivor’s highly regarded ambassador training program—have quadrupled cervical cancer screening rates in some underserved communities.

Peer and patient advocates provide support to those undergoing treatment, help reduce the stigma of cervical cancer and other conditions, and educate people about prevention and early detection. Perhaps most importantly, they improve survival outcomes. Their work ensures patients are seen and heard while also making the healthcare system more effective and equitable.

To mark National Patient Advocacy Day (August 19), we’re diving into what patient advocacy is, its various forms, and how it has shaped cancer care since the 1950s, when patients and families first began speaking out.

We’ll also celebrate the impact of advocates in our Cervivor community—from everyday actions to global initiatives—and share ways you can get involved in this life-saving work. 

The image is a collage of four photos of women, with a logo in the middle. The logo is white with a teal border and says "NATIONAL PATIENT ADVOCACY DAY" in teal letters. Below that, it says "cervivor" in bigger teal letters, and "informed. empowered. alive." in smaller black letters. Here's what's in the image: Top Left Photo: A woman with long black hair and glasses is shown from the chest up. She's wearing a green jacket over a white shirt and has a name tag on her left lapel. The background is a brick wall. Top Right Photo: A woman with short pink hair is shown from the chest up. She's wearing a dark blue shirt and a thin gold necklace. The background is blurry, but it looks like she's outside. Bottom Left Photo: A woman with medium-length brown hair and red glasses is shown from the chest up. She's wearing a black and white patterned top and has a colorful lei around her neck. The background is a gray wall. Bottom Right Photo: A woman with curly black hair is shown from the chest up. She's wearing a maroon shirt and a silver necklace. The background is white. The image is likely promoting National Patient Advocacy Day, which might be related to cervical cancer awareness because of the "cervivor" logo.

What Is Patient Advocacy in Cancer Care?

First, let’s define what patient advocates do. 

Clinical patient advocates—also called navigators or representatives—help patients understand their diagnosis and options, schedule and keep appointments, navigate insurance, secure resources like transportation or childcare, and coordinate care among multiple providers. Their core principle is to listen to, inform, and empower patients to actively participate in their care.

“A patient navigator is the person who makes the healthcare system accessible,” explains certified navigator Nancy Peña, OPN-CG, CMI, BA, who spent more than a decade in gynecologic oncology clinics at Dana-Farber Cancer Institute (DFCI) and Brigham and Women’s Hospital (BWH). “We keep the care plan on track, the information clear, and the patient’s goals at the center. The navigator is the bridge between the patient and the medical team.”

The image shows a woman standing in front of a large sign that reads "RADIO DABANG 99.5 FM." Here's what's in the image: The woman is wearing: A black graphic t-shirt with a colorful design and the word "HOPE" in teal letters White pants Teal sneakers Her hair is styled in a short, curly updo with red highlights She's smiling and has her left hand on her hip The sign behind her features: A cityscape at night with many lit-up buildings The words "RADIO DABANG 99.5 FM" in large letters, with "RADIO" in red and the rest in white and gray The floor is made of gray carpeting with a striped pattern The image appears to be a promotional photo for a radio station, possibly taken in a studio or office. The woman may be a DJ, host, or representative of the station.
Sharica at the cervical cancer walk she organized with local radio support.

Meanwhile, nonclinical advocates—often survivors themselves—focus on building trust, hope, and community connection. Cervivor community member Sharica Lewis, diagnosed with Stage IB2 cervical cancer at age 35 in 2015, shares her journey publicly on Facebook to inspire others.

“Advocacy gives me the opportunity to share my story and support someone who may be struggling to ask questions or speak up,” says Sharica, who graduated from Cervivor School Minneapolis last year and launched her advocacy work by organizing a local cervical cancer awareness walk in her Texas town.

Nancy, who is also the Founder and Director of Navegación de Pacientes Internacional (NPI)—which trains clinical and nonclinical patient advocates in Spanish across the U.S. and Latin America—says the two types of advocates complement each other. Their goal: helping patients navigate the healthcare system while addressing emotional, cultural, and financial barriers to ensure high-quality care for all.

How Patient Advocacy Improves Cervical Cancer Outcomes

Recent studies and national summits have shown that peer and patient advocates significantly increase cervical cancer awareness and prevention—as noted above, sometimes increasing screening rates by up to four times. 

Why does this matter? Regular cervical cancer screenings have cut incidence and mortality by more than 50% over the past several decades, largely thanks to the Pap test, according to the American Cancer Society Cancer Action Network (ACSCAN). Yet diagnoses in women aged 30 to 44 rose about 1.7% annually from 2012 to 2019, likely due to lower screening rates and gaps in prevention outreach, reports the American Cancer Society (ACS). These numbers make one thing clear: Screening saves lives—and advocates are essential to keeping it top of mind.

Effective hospital patient navigation programs can also have a measurable impact. “At DFCI/BWH, we reduced the no-show rate [for appointments] from 49% to 29% in the first five years,” says Nancy. “This success was possible through staff collaboration, consistent patient education, and multi-lingual resources that ensure every woman knows her next step.”

How Patient Advocacy Helps Close Healthcare Disparities

Here are some sobering facts: In the U.S., Black women are twice as likely—and women living in poverty four times as likely—to die from cervical cancer compared to white women. American Indian and Alaska Native women face two to three times higher mortality, while rural women are more likely to be diagnosed late and die from the disease. 

These disparities underscore the vital role patient advocates play in closing gaps in care and ensuring prevention and treatment reach those who need it most.

Patient advocacy organizations like Cervivor and Nancy’s multilingual, multinational NPI respond to these challenges by offering localized, culturally competent support, adapted education, and strong policy engagement. They earn trust by meeting women where they are and truly listening to their needs—something clinics alone can’t always do.

The image depicts a woman standing at a podium on a stage, addressing an audience. The stage is set with a large screen behind her, displaying a presentation slide titled "Speaker Spotlight" in blue text. Below the title, a circular photo of the speaker, Nancy Peña, is accompanied by her name and credentials in blue text, as well as her title and organization in smaller blue text. The slide's subtitle, "Rising Above Cultural Stigmas and Health Equity," is written in red text.
Certified patient advocate Nancy speaks to the audience at the 2024 Cervical Cancer Summit Powered by Cervivor, Inc.

Both clinical and nonclinical are irreplaceable for designing inclusive cancer care. As Nancy explains: “Native-language navigation improves informed consent, adherence, and satisfaction; reduces errors and no-shows; and honors dignity. When a woman can understand her options and feel supported, outcomes improve—and families and communities feel the difference.”

Advocacy in Action: Sharing Cervical Cancer Survivor Stories

Honduran native Karla Chavez—a Cervivor Ambassador and co-leader of the Cervivor Español community—was diagnosed with Stage II cervical cancer at age 34 in 2017. After completing treatment, she says Cervivor was a “lifeline.”

“Attending Cervivor School in 2019 gave me the knowledge, confidence, and community I needed to take my advocacy to another level,” says Karla. “They provided training, resources, and a network of incredible survivors who inspire me daily.”

Since then, the award-winning advocate has participated in outreach through the 2024 Communities of Color Advocacy Training Retreat and delivered remarks during last year’s Cervical Cancer Elimination Day of Action (November 17) at a World Health Organization–hosted webinar.

The image depicts a group of people gathered outside a storefront, with one woman prominently wearing a white t-shirt featuring the text "cervivor Cares" in blue and red. The scene appears to be a promotional or awareness event, possibly related to cervical cancer or women's health. Key Elements: A woman in the center of the image is wearing a white t-shirt with the text "cervivor Cares" printed on it. She is holding a pamphlet and engaging in conversation with another woman. The surrounding individuals are also dressed casually, suggesting an informal gathering. The storefront behind them features a sign reading "SALLY Beauty," indicating that the event is taking place outside a beauty supply store.
Karla in action during community outreach in Cleveland, OH, at last year’s Communities of Color Advocacy Training Retreat.

Similarly, Cervivor Ambassador Emily Hoffman—diagnosed with Stage II cervical cancer and treated in 2013—has made advocacy a central part of her life. Her “airplane advocacy”—simple, one-on-one conversations, often sparked by the HPV button she wears—can be just as impactful as speaking at larger events, like her home state’s Iowa Vaccination Summit, where she presented last September.

Emily also champions cancer registries, which are essential for improving patient outcomes and securing public health funding. In 2020, she became a certified cancer registrar, sharing, “Knowing my work could impact cancer advocacy, policy, and research—that’s the fulfillment I was looking for.”

The image depicts a group of women seated in a conference room, with five women prominently featured on the right side of the frame. They are all wearing name tags and appear to be engaged in a discussion or presentation. The women are dressed in casual attire, with some wearing blazers or cardigans over their shirts. The woman on the far left has short gray hair and is wearing a black blazer over a white blouse with a floral pattern. The second woman from the left has short blonde hair and is wearing a black blazer over a white t-shirt with blue and red writing. The third woman from the left has short blonde hair with multicolored highlights and is wearing a gray cardigan over a dark blue shirt. The fourth woman from the left has dark hair pulled back and is wearing a gray cardigan over a gray t-shirt with red writing that reads "IOWA NEEDS VACCINES." The woman on the far right has dark hair pulled back and is wearing a black hoodie over a gray shirt. In the foreground, several other women are seated at tables, facing the five women on the right. The background of the image features large windows that allow natural light to enter the room and provide a view of the outside environment. The overall atmosphere of the image suggests a professional or educational setting, possibly a conference or workshop.
Emily (center) shared her lived experience and advocacy insights at the 2024 Iowa Immunization Summit alongside Cervivor’s Community Engagement Liaison, fellow Iowan Morgan Newman (second from left).

How to Get Involved in Patient Advocacy

Patient advocacy is more important than ever. Public health initiatives—including the CDC’s National Program of Cancer Registries (NPCR), which has helped reduce U.S. cancer death rates by 34% since 1991—face increasing threats.

If getting into patient or survivor advocacy feels overwhelming, take inspiration and advice from these Cervivor community members. 

“Start small and start from the heart,” says Karla. “At first, I didn’t know how to share my story—I was still processing everything I had gone through. What motivated me was the feeling of isolation. I didn’t know anyone else who had experienced what I had. I wanted to talk to someone and not feel alone.”

Sharica takes a similar approach: “My tag line is, ‘Let’s start the conversation!’” she says. “Cervivor has empowered me by giving me a community that understands me and everything that I’ve been through. Any opportunity I get to advocate, I’m grateful for it. I get excited when I post on social media and a parent comments that they had their child vaccinated.”

The image depicts a group of five women standing together, posing for a photograph in front of a vibrant balloon backdrop. The women are dressed in various outfits, with the central figure holding a certificate. The woman on the far left is attired in a black cardigan and blue jeans. The second woman from the left wears a white dress. The third woman, positioned centrally, holds a certificate and is dressed in a patterned dress. The fourth woman from the left is wearing a black top and patterned pants. The woman on the far right is dressed in a teal dress. The background features a wall adorned with balloons in shades of white, blue, and silver, accompanied by white flowers. A projector screen is visible on the right side of the image, displaying a logo and the text "IT'S GRADUATION TIME!" in blue letters. The floor is composed of dark tiles arranged in a geometric pattern. The overall atmosphere of the image suggests that the women are celebrating a special occasion or achievement, as indicated by the certificate being held by the central figure.
Sharica proudly displays her 2024 Cervivor School certificate of completion, surrounded by Team Cervivor, including Founder and Chief Visionary Tamika Felder (far right).

Ready to get involved? Here’s how: 

  • Join a support group or peer network like Cervivor, which hosts monthly virtual meetups and other opportunities to connect with fellow survivors.
  • Attend advocacy trainings through programs like Cervivor School. (Applications sign up Friday, August 22, so sign up now for next month’s Kansas City training!)
  • Share your Cervivor Story—on social media, in your community, or at local events.
  • Volunteer for patient- or survivor-led initiatives.
  • Donate to organizations like Cervivor that empower patient advocates. (Our Tell 20, Give 20 fundraising campaign is ongoing—learn how to join and help save lives!)
  • Contact policymakers and lend your voice to legislative efforts that expand access to prevention, treatment, and care.

As patient navigation and advocacy continue to grow—with expanded training, certification programs, multilingual initiatives, and recognition by hospitals and public agencies—there’s hope that equitable care will become the norm, not the exception.

Nancy sums up the work well: “Navigation is a practical expression of equity.”

Together—by sharing stories, showing up for each other, and pushing for change—patient advocates are leading the way toward ending cervical cancer and building a future defined by equity, support, and survivor strength.

Honor National Patient Advocacy Day by sharing this post and joining the mission to end cervical cancer!

About the Author

The image is a portrait of a young man with dark skin and short, curly black hair. He is wearing a blue collared shirt and black-framed glasses, and is smiling at the camera. The man has dark skin and short, curly black hair. His hair is cut close to his head, with a slight fade at the sides. His eyebrows are thick and well-groomed. He is wearing a blue collared shirt. The shirt is a medium blue color and appears to be made of a lightweight material. It has a relaxed fit and is buttoned up to the top. He is also wearing black-framed glasses. The frames are rectangular in shape and have a subtle curve at the temples. The lenses are clear and do not appear to have any tint or coating. The man is smiling at the camera. His smile is wide and genuine, showing off his white teeth. His eyes are crinkled at the corners, giving him a friendly and approachable appearance. The background of the image is a plain gray color. The gray is a medium tone, neither too light nor too dark. It provides a neutral backdrop that allows the subject to stand out. Overall, the image presents a friendly and approachable young man who appears to be confident and comfortable in front of the camera

Kyle Minnis is a senior studying Strategic Communications at the University of Kansas. He is currently serving as Cervivor’s Communications Assistant.

Global Cervical Cancer Awareness: Survivors’ Stories from Every Corner of the World

As we celebrate International Women’s Day on March 8 and Women’s History Month throughout March, Cervivor, Inc. is proud to share the unique perspectives and experiences of cervical cancer survivors worldwide. These courageous women have bravely shared their stories, highlighting the diverse challenges and triumphs in the mission to end cervical cancer – one of the world’s most preventable cancers. 

Learn about the state of global cervical cancer awareness and support services in each country and be inspired by the patients and survivors who live there. Sadly, one of the women featured is no longer with us, but her legacy continues to make an impact.

United States of America

The State of Cervical Cancer 

In the United States, cervical cancer remains a significant health concern, with 13,360 new cases diagnosed annually, resulting in 4,320 deaths (ACS). According to MedPage Today,  despite the importance of early detection, cervical cancer screening rates have been declining, dropping from 46.8% in 2019 to 40.4% in 2021 before slightly increasing to 40.9% in 2023. 

There are some promising trends: Among women ages 20 to 24 who were screened from 2008 to2022, cervical precancer rates decreased by about 80%. HPV vaccination efforts are also paying off, with 61.4% of adolescents aged 13 to 17 being up-to-date on their vaccinations. Notably, HPV vaccination rates vary significantly by state, ranging from 39% in Mississippi to 85% in Rhode Island. Some states, including Hawaii, Rhode Island, Virginia, and D.C., have implemented laws requiring HPV vaccination for school entry, while others, like California, have enacted laws promoting vaccine education and recommendations (KFF).

Marlene’s Story

Marlene, a cervical cancer survivor from California, shares how her life was forever changed when she was diagnosed with stage IB2 cervical cancer at the age of 33. With a family history of cervical cancer, Marlene was already on high alert, but nothing could have prepared her for the shock and fear that came with her own diagnosis. Throughout her journey, Marlene found strength in her faith, family, and friends, and underwent a radical hysterectomy, external radiation, and chemotherapy. Today, Marlene is passionate about using her experience to help others, emphasizing the importance of regular Pap tests and self-care. Her message to other women is one we all need to hear: “You did nothing wrong… focus on yourself and on what you need.” Read Marlene’s full story.

Support for Survivors

Cervical cancer patients and survivors have access to a range of support resources. The National Cervical Cancer Coalition (NCCC) provides education, advocacy, and support through online forums, local chapters, and a helpline. The American Cancer Society (ACS) offers free resources, including transportation to treatment, lodging, and emotional support. Cervivor focuses on advocacy, education, and support for those impacted by cervical cancer and their families. Additionally, the National Cancer Institute’s (NCI) Cancer Information Service provides information and support via phone, email, and online chat. These organizations, along with others, provide a comprehensive network of support for cervical cancer patients and survivors.

Kenya

The State of Cervical Cancer

According to the World Health Organization, Sub-Saharan Africa, where Kenya is located, bears a disproportionate burden of cervical cancer, with 34.8 cases per 100,000 women diagnosed annually, and 22.5 deaths per 100,000 women. In Kenya, it remains the second most common cancer in women (HPV Information Centre). The region’s low screening rates exacerbate this issue, with only 10 to 12% of women in sub-Saharan Africa accessing screening services (Djibril et al.). HPV vaccination rates vary widely across countries. Some nations like Eritrea, Rwanda, Ethiopia, Mauritius, and Mozambique have made significant strides, achieving vaccination rates of over 70% (Kenya’s is about 44%). However, other countries, such as South Africa and Nigeria, still struggle with vaccination rates as low as 3% (World Bank).

Jane’s Story

Jane, a cervical cancer survivor from Nairobi, Kenya, shares her powerful story of resilience and advocacy. Diagnosed with stage IB2 cervical cancer in 2014 at age 41, Jane’s life was forever changed. After a hysterectomy and 25 sessions of radiotherapy, Jane remained optimistic and prayerful, despite facing challenges like severe diarrhea, lymphedema, and high blood pressure. Now an 11-year cancer survivor, Jane advocates for cervical cancer awareness, emphasizing the importance of regular screening and encouraging women to take control of their health. She believes cancer is treatable if diagnosed early and spreads this message through speaking engagements and advocacy work. Read Jane’s full story.

Support for Survivors

In Africa, support for cervical cancer patients and survivors is primarily driven by initiatives focused on increasing access to screening, early detection, and treatment. Organizations like the World Health Organization, national resources like the Kenyan Network of Cancer Organizations (KENCO), , local Non-Governmental Organizations (NGOs), as well as Cervivor Africa offer a range of services, including patient education, counseling, support groups, and access to affordable treatment options.

Scotland

The State of Cervical Cancer 

In Scotland, cervical cancer affects a significant number of women, with 326 new cases diagnosed each year, translating to approximately 11.7 cases per 100,000 women (Cancer Research UK). Fortunately, the country has made notable progress in cervical cancer prevention, with 68.7% of eligible women aged 25 to 64 up-to-date on their screening (Public Health Scotland). Additionally, Scotland’s HPV vaccination program has shown promising results, with 71.5% of first-year secondary school students receiving at least one dose of the HPV vaccine in the 2023-2024 school year (Public Health Scotland).

Cara’s Story

At 33, Cara was diagnosed with stage II cervical cancer after experiencing symptoms like excessive bloating and abdominal pain.  Initially in shock and afraid, Cara underwent fertility treatment to preserve her eggs, followed by 25 rounds of radiotherapy, six chemotherapies, and three rounds of brachytherapy. Throughout her treatment, Cara practiced self-care, exploring mindfulness, meditation, and other calming activities to cope with the emotional and physical challenges. Now, Cara is out of treatment and shares her message to other women: “You are powerful. You have got this. You matter. Keep up with your routine check-ups. Put your health first.” Read Cara’s full story.

Support for Survivors

In Scotland, organizations offer a range of support services to help recently diagnosed patients navigate their journey. Macmillan Cancer Support provides dedicated nurses, a support line, online forums, and information regarding the disease. Cancer Research UK also has a helpline with specialist nurses to discuss concerns and access information about cervical cancer. Additionally, The Eve Appeal, a UK-based charity, provides specialist support and information for anyone affected by gynecological cancers, including cervical cancer. Their expert nurses and information team are available to answer questions, offer emotional support, and provide guidance on treatment options and living with the disease.

Philippines

The State of Cervical Cancer 

The Philippines faces significant challenges in combating cervical cancer, with 8,549 new cases and 4,380 deaths reported annually (International Agency for Research on Cancer). A major contributor to these alarming numbers is the country’s low cervical cancer screening rate, with fewer than 1 in 10 women screened in the last five years (Philippine Institute for Development Studies). Efforts to vaccinate girls against HPV are underway, but coverage remains limited, with only 60% of provinces participating in a school-based program. This lack of access has led to the Philippines ranking last in HPV program coverage among low-middle-income countries (BMJ Global Health).

Hazel’s Story

Diagnosed with stage IV cervical and ovarian cancer at 37, Hazel’s life was forever changed. Despite the initial shock, fear, and pain, Hazel underwent surgery, homeopathic and alternative treatments, and one session of chemotherapy. Throughout her journey, Hazel found strength in prayer, adopting the mantra “P.U.S.H. – Pray Until Something Happens.” Now, Hazel lives a stress-free life, prioritizing a healthy lifestyle, organic living, and her faith. Her message to other women is one of caution and empowerment: “Cervical cancer is a silent killer… Visit your doctors regularly, be cautious, eat right, exercise daily, and pray always for a stress-free life.” Read Hazel’s full story.

Support for Survivors

In the Philippines, cervical cancer patients and survivors can access support through various organizations. The Philippine Cancer Society (PCS) provides education, screening, and support services, while the Cancer Warriors Foundation offers support, education, and advocacy. International organizations with Philippine chapters, such as the International Union Against Cancer (UICC), also provide support and resources for cervical cancer patients and survivors in the Philippines.

Italy

The State of Cervical Cancer 

In Italy, cervical cancer affects a significant number of women, with 3,105 new cases and 1,011 deaths reported annually (HPV Information Centre). However, the country has made notable strides in cervical cancer screening, with 77.5% of women aged 25-64 undergoing screening within the past three years (Statista). Additionally, Italy has implemented HPV vaccination programs, with 38.8% of 12-year-old girls and 31.81% of 12-year-old boys receiving the vaccine in 2022 (Statista).

Stefania’s Story 

Diagnosed with stage I adenocarcinoma at 33, Stefania’s life was turned upside down. After undergoing a trachelectomy, chemotherapy, radiotherapy, and brachytherapy, Stefania faced numerous challenges, including exhaustion, fear, and a painful breakup with her boyfriend. Despite these obstacles, Stefania found strength in writing, psychological support, and healthy eating. Afterwards, Stefania started rebuilding her life, including a new job, and advocating for cervical cancer awareness, particularly among young adult women. Her message is one of hope and support: “I am here for any kind of support I can give… I want to spread the word about HPV, cervical cancer, and the importance of knowing your rights during and after cancer.” Read Stefania’s full story.

Support for Survivors

In Italy, cervical cancer patients and survivors can access support through various organizations. The Italian Cancer Society (Associazione Italiana per la Ricerca sul Cancro, AIRC) and the Italian Association for Cancer Research (AIRC) provide information, resources, and support for cancer patients, including those with cervical cancer. The Italian League Against Cancer (Lega Italiana per la Lotta contro i Tumori, LILT) also offers support services, including counseling, financial assistance, and access to screening programs.

Japan

The State of Cervical Cancer 

Cervical cancer remains a public health concern in Japan, with 12,785 new cases and 4,213 deaths reported annually (HPV Information Centre) – comparable to U.S. rates, but with a much smaller population. One reason: The country’s cervical cancer screening rate is relatively low, at around 43% for women aged 20 to 69, compared to other developed countries. However, efforts to prevent cervical cancer through HPV vaccination are underway, with 30.1% of eligible individuals having received at least one dose of the HPV vaccine as of April 2022 (Global Health & Medicine).

Ryoko’s Story

At 38, Ryoko was diagnosed with cervical cancer after experiencing watery discharge with blood.  Having to navigate the diagnosis and treatment alone because her mother was in a nursing home and Ryoko lived alone, she underwent a total hysterectomy and lymph node removal. Fortunately, there were no remaining cancer cells, and Ryoko was able to recover without further treatment. She highlights the cultural challenges in discussing cervical cancer. “I do not want any other woman to have this kind of hardship,” Ryoko explains. “I want to get rid of the stigma surrounding this disease. I hope one day, no women suffer from cervical cancer.” Read Ryoko’s full story.

Support for Survivors

In Japan, cervical cancer patients and survivors can access support through various organizations. The Japan Cancer Society and the Japanese Cancer Association provide information, resources, and support for cancer patients, including those with cervical cancer. NGOs like Cancer Support Community Japan provide emotional support and counseling for women with gynecologic cancers, including cervical cancer.

Qatar

The State of Cervical Cancer 

According to the HPV Information Centre, Qatar has only 23 new cases and 11 deaths reported annually. However, the country’s cervical cancer screening rate is also relatively low, at 17.2%, according to Sidra Medicine. Additionally, Qatar has a current HPV vaccination rate of 5.8% as of October 2024. This rate lags behind neighboring countries like the UAE, which boasts a vaccination rate of 18.9%. Currently, the vaccine is available upon request, but Qatar’s Supreme Immunization Committee is reviewing the incorporation of the HPV vaccine into the country’s childhood immunization schedule (BMC Public Health).

Valerie’s Story

Valerie was no stranger to gynecologic issues such as abdominal pain and a history of ovarian cysts, but when she was diagnosed with stage IB2 adenocarcinoma at 38, her life was turned upside down. She underwent chemotherapy, radiotherapy, and brachytherapy. She is now NED (no evidence of disease). Throughout her journey, Valerie has emphasized the importance of self-advocacy, persistence, and seeking medical attention when something feels off. Her message to other women is one of empowerment: “Never ignore your symptoms. Get your kids vaccinated against HPV, and find a gynecologist that listens to you.” Valerie continues to share her story, support others, and advocate for women’s health, inspiring countless individuals along the way. Read Valerie’s full story.

Support for Survivors

Individuals affected by cervical cancer can find support through the Qatar Cancer Society (QCS), a charity dedicated to providing care and resources for those living with cancer. The QCS has launched the “Women’s Cancer Support Groups” program in collaboration with the Women’s Health and Research Centre and the National Centre for Cancer Care and Research. This initiative offers psychosocial and community support specifically tailored for women with cancer, including those with cervical cancer, providing a safe space for connection, sharing, and healing.

Canada

The State of Cervical Cancer 

In Canada, cervical cancer is still a concern, with approximately 1,550 new diagnoses and 400 deaths reported in 2023. Despite the importance of early detection, screening rates fall short, ranging from 60% to 75% in 2022, with about 37% of diagnosed individuals having never been screened or not screened in the previous five years. To combat this, Canada aims to have 90% of eligible individuals up-to-date with cervical screening by 2030. While HPV vaccination rates vary from 57% to 91% across provinces, there is a focus on continued awareness, education, and advocacy efforts to create a future where cervical cancer is rare and manageable (Canadian Partnership Against Cancer).

Grace’s Story

Unlike the other global survivors featured here, Grace is no longer alive, but she left a lasting mark on the lives of those who knew her. Diagnosed with stage II adenocarcinoma at 40, Grace faced her journey with resilience and determination. During the challenges posed by the COVID-19 pandemic, Grace underwent radiation therapy, chemotherapy, and brachytherapy, all while sharing her story to raise awareness about cervical cancer and the importance of screening. Through her blog, Gracie’s Cancer Journey, she inspired countless individuals with her courage, humor, and advocacy. Her legacy reminds us that cervical cancer is preventable through screening and that sharing our stories can make a profound difference. Read Grace’s full story.

Support for Survivors

The Canadian Cancer Society offers a comprehensive support system, including a helpline, online community, and community services locator. Additionally, CancerCare Ontario provides valuable resources for individuals with cancer, their families, and their caregivers. The Canadian Foundation for Women’s Health also plays a vital role in supporting women’s health, funding research that improves sexual and reproductive health, backing international women’s health programs, and advocating for increased funding for women’s health research. These organizations provide a safety net of care, guidance, and community for those navigating cervical cancer.

Guyana

The State of Cervical Cancer 

In Guyana, cervical cancer is the second leading cause of cancer deaths among women, with 121 new cases and 63 deaths annually. To combat this, Guyana has implemented a national program aiming to eliminate cervical cancer by 2030. The Ministry of Health’s Package of Essential Health Services includes cervical cancer prevention, screening, and treatment. Guyana was a pioneer in the Caribbean in introducing the HPV vaccine in 2012 and expanding it to both males and females aged 9 to 16 in 2017. Unfortunately, COVID-19 disruptions, including school closures, hindered efforts to sustain and increase HPV vaccination rates, which are now lower than desired (PanAmerican Health Organization).

Davina’s Story

Davina, who lives in  Georgetown, Guyana, was a radiation therapist when she was diagnosed with stage II cervical cancer at age 39. Struggling with the initial shock and anger, Davina underwent 25 sessions of external beam radiation, 5 cycles of chemotherapy, and 3 sessions of brachytherapy. Throughout her journey, Davina found strength in her faith, family, and positive thinking. Today, Davina is a dedicated advocate, raising awareness about cervical cancer and the importance of early detection, screening, and vaccination. Her message is clear: “Get informed, get tested, get vaccinated. Early detection will save your life.” Read Davina’s full story.

Support for Survivors

Cervical cancer patients and survivors can access various support services in Guyana to aid in their journey. Cervivor offers a virtual support group, Cervivor Caribbean, for cervical cancer patients and survivors throughout the region to connect and gain support. The Guyana Cancer Institute offers medical treatment, counseling, and support services. Additionally, organizations like the Guyana Cancer Foundation and The Guyana Cancer Prevention Society also promote cancer awareness, public health education, early detection, and palliative care.

Turn Experience into Action

As the stories of Marlene, Jane, Cara, Hazel, Stefania, Ryoko, Valerie, Grace, and Davina show, each journey with cervical cancer is uniquely personal yet universally impactful. But one pressing issue remains: We must end cervical cancer both in America and around the world. The good news? We have the tools to do it. With increased awareness, improved access to screening and vaccination, and continued advocacy, we can create a future where no woman has to face this disease. 

Let the experiences of these global cervical cancer patients and survivors inspire us to take action, educate ourselves and others, and demand a world where cervical cancer is a thing of the past. 

Get involved by:

  • Sharing these stories on social media using the hashtags #Cervivor #EndCervicalCancer #CervicalCancer #InternationalWomensDay #WeAreCervivor.
  • Learning more about cervical cancer and its impact around the world, and advocating for policies and programs that prioritize women’s health and well-being.
  • Supporting organizations, like Cervivor, who are working to improve access to cervical cancer screening, treatment, and survivorship. It’s as simple as giving a one-time donation or becoming a monthly donor at your preferred amount. Remember, every dollar matters!

We can make this vision a reality.
We can ensure that no one with a cervix dies from cervical cancer.
We can make a difference.