Cervivor at SGO 2025: Amplifying the Survivor Voice in Gynecologic Cancer Care

On March 14th, 2025, Cervivor had the incredible opportunity to host a table at The Foundation for Women’s Cancer – Patient and Advocate Education Forum, part of the Society of Gynecologic Oncology (SGO) 2025 Annual Meeting on Women’s Cancer in Seattle. This event brought together patients, survivors, caregivers, and advocates for a powerful day of education, connection, and advocacy.

The forum featured leading medical professionals who shared the latest breakthroughs in gynecologic cancer care. One of the highlights of the day was the Patient Advocacy and Empowerment Panel, where national and local patient advocates shared their lived experiences, offering hope, support, and practical strategies for making an impact in the cancer community.

Among the panelists were Selena Rushton, National Cervical Cancer Coalition Pacific Northwest Chapter Leader, and Arlene Simpson, a dedicated Cervivor community member. Each brought a unique and powerful perspective to the discussion.

Selena Rushton shared her journey of living through stage 4 cervical cancer, a diagnosis with an often daunting five-year survival rate. She spoke about the incredible resilience it took to overcome the odds and how, after fighting for her life, she found a renewed sense of purpose through advocacy. Selena has since used the skills she gained in her corporate career to amplify awareness, educate others, and support fellow survivors. Her story is a testament to the strength and determination of cervical cancer survivors, proving that even in the face of the most challenging diagnosis, hope and impact are possible.

Arlene Simpson, also a dedicated member of the Cervivor community, shared her deeply personal journey. Despite growing up in a family filled with medical professionals, Arlene had never heard about HPV until she was diagnosed with cervical cancer. She spoke about the guilt and shame she initially felt—emotions many survivors experience due to the stigma surrounding this disease. However, through finding a supportive community like Cervivor, she was able to reclaim her voice, break the stigma, and turn her experience into advocacy.

Arlene’s Story:
Sharing my story was not easy coming from a very strict and disciplined family. Once my treatment was over, many questioned my decision to share my personal story in public. The reason I share my story is because of those who are afraid, unseen, or unheard. I want to be a familiar face and voice to someone who relates to me. Being one of the very few Asian Americans in Cervivor, I feel it’s very important for me to amplify my voice so others will know they are not alone in this fight. 

It was a humble experience being in a panel with other gynecologic cancer survivors. We all had our unique stories but, what brought us all together was being united in our mission to help other patients and medical professionals understand that the patient’s voice, the patient’s stories, and their cancer treatment choices and decisions are crucial in these types of medical conferences. 

It’s much more than being just a number in a report. We are living proof of the treatment, trials, and patient care that our cancer care teams provide. We provide the invaluable piece of the puzzle that one cannot get from a medical report alone. We are the HEART that beats or stops beating. Our voices matter!

At the Cervivor table, we had the privilege of connecting with survivors, caregivers, and advocates, sharing our mission of education and empowerment. The conversations we had reinforced the importance of sharing our stories, raising awareness, and advocating for better prevention, treatment, and survivorship care.

Mechal, Anna, and Arlene at the Cervivor exhibition table.

Beyond the panel discussions, attendees explored essential topics like managing treatment side effects, integrative medicine, and sexual health—critical issues that often go under-discussed but have a significant impact on quality of life.

A Powerful Story of Advocacy and Care

Another unforgettable moment at SGO 2025 was Aisha McClellan’s powerful speech, delivered on the main stage during the conference’s opening session—a moment that truly set the tone for an impactful and inspiring event.

Aisha took the stage alongside her oncologist, sharing her journey through diagnosis, the importance of finding an oncologist who truly cares, and the power of patient advocacy. She opened up about the challenges she faced early on, where she was met with dismissive care teams who assumed she would not survive. But Aisha refused to accept that fate. She fought tirelessly to be heard, advocating for herself across multiple hospitals until she finally found an oncologist who stood by her, fought for her, and ultimately saved her life.

Aisha’s story was raw, emotional, and deeply moving, highlighting the critical role of patient-centered care and the life-saving impact of advocacy. Her words resonated deeply with the audience, and by the time she finished speaking, the entire room was on its feet, giving her a standing ovation—a moment of recognition for her strength, resilience, and the powerful message she delivered.

The Power of Survivor Voices in Research & Clinical Care

One of the most powerful moments of the event was during the final session, where I was deeply moved by the recognition of patients and survivors as essential voices in clinical trials, research, and daily hospital operations. Seeing researchers, oncologists, and healthcare professionals actively listening and valuing the lived experiences of survivors reinforced the progress we are making in patient-centered care. It was a reminder that our voices matter—not just in advocacy spaces, but in shaping the future of gynecologic cancer care itself.

Why Events Like SGO Matter

Gynecologic cancers, including cervical cancer, don’t just affect individuals—they impact families, communities, and the healthcare landscape as a whole. The SGO Annual Meeting provides a vital platform for survivors and patient advocates to be at the table with researchers and clinicians, ensuring that the patient perspective is heard loud and clear.

As Cervivor continues to advocate for eliminating cervical cancer and improving survivorship care, we encourage all survivors to share their stories—because they truly matter. Every story has the power to inspire, educate, and spark change.

Were you at SGO 2025? We’d love to hear about your experience! Share your thoughts in the comments or reach out to us at [email protected]. Together, we are stronger.

About the Authors

Anna Ogo is a passionate cervical cancer survivor, and Cervivor Ambassador from Kent, Washington. Diagnosed with cervical cancer in 2021 after a routine health check, Anna faced her diagnosis with resilience, undergoing a radical hysterectomy, radiation therapy, and IVF for fertility preservation. Now a proud mother through surrogacy, as well as a loving dog and cat mom, Anna serves on the leadership team of the HPV Free Washington Taskforce. A 2022 graduate of Cervivor School, where she learned how to turn her experience into advocacy, Anna channels her journey into raising awareness about HPV, its vaccine, and the importance of early detection. Anna shares her story to inspire change, empower others, and promote accurate information about cervical health.

Arlene Simpson is a cervical cancer survivor and advocate residing in Bothell, Washington. She was diagnosed in September 2021 and underwent external radiation, chemotherapy, and Brachytherapy. She will be 3 years with no evidence of disease (NED) come March 2025. Arlene is a loving mom, a devoted wife, a Financial Services professional, and a dedicated leader in her church. She is very passionate about helping others and giving back to her community by volunteering in various ministries where she shares the importance of the HPV Vaccine, getting annual exams and pap tests, and sharing her story to raise awareness, especially in the Asian-American communities. She believes that being part of a community (like Cervivor) that understands and cares, along with having strong faith and a positive mindset, has gotten her through the many challenges in her cancer journey.

Thriving, Not Just Surviving: Inspiring Stories from Cervical Cancer Survivors

For many cervical cancer survivors, healing goes beyond remission, often leading to advocacy that raises awareness and offers strength. Here, Cervivor community members and cervical cancer advocates Christy Basa Chambers, Athena Porter, and Lorie Wallace share personal reflections on how their journey with cervical cancer has helped them thrive — not just survive.

If you’re in need of a pick-me-up, read on!

Christy’s Story: Living Her ‘Dash’

About Christy: An 18-month Stage IV cervical cancer survivor, Christy Basa Chambers lives in Monroe, NC, with her family. She’s a Cervivor Ambassador, 2023 Cervivor School graduate, and winner of the 2024 Brittany Wagner Social Media Advocacy Award.

This image shows cervical cancer survivor, Christy, who is from North Carolina. She has teal hair and glasses with a ruffled white shirt.
Christy Basa Chambers (photo by Molly Dockery Photography)

“I was given a second chance at living.”

When I first wrote that phrase in a blog post, I paused. Was it “a second chance at life,” or did I really mean living? Are they different? I think they are. Life is the span of time we are given, but living is what we do with that time.

The distinction became clear after my diagnosis of Stage IV metastatic cervical cancer. Facing my mortality forced me to ask hard questions: How would I be remembered? What legacy would I leave? These questions didn’t just make me reflect on my past; they became a wake-up call to reevaluate my present. Survival wasn’t enough for me — I wanted to thrive.

But thriving didn’t happen overnight. It was a choice I made every day, even when it felt impossible. I had to face my fears and let go of what didn’t serve me.

Now, I’m living my “dash.” What’s a dash? It’s that little line between the dates of our birth and death. It’s small, yet so powerful, because it represents everything we do while we’re here. Cancer taught me to live my dash with intention — to focus on love, kindness, generosity, and joy.

Advocacy has been one of the most transformative ways I’ve chosen to live my dash. As a Cervivor Ambassador, I’ve found healing through helping others. Sharing my story and empowering others to share theirs has given me a sense of purpose and a way to leave an impact.

Who am I? A Cervivor, a thriver, and an opti-mystic who sees the world through the eyes of possibility. That’s the legacy I want to leave.

Athena’s Story: Overcoming Survivor’s Guilt

About Athena: Athena Porter was diagnosed with cervical cancer in 2023. She lives in Iowa with her husband and two little girls. Since her diagnosis, Athena has served on a panel at the 2024 Cervical Cancer Summit and continues to advocate for cervical cancer awareness and prevention.

Athena Porter

To call myself a “cervical cancer survivor” used to feel like a fraud. My cancer was caught early, and my treatment was a radical hysterectomy. Diagnosed after having two children, I was spared the devastation of infertility and the physical toll of chemo, radiation, or brachytherapy. I got to keep my hair.

In contrast, many of the women in the Cervivor community I’ve been blessed to meet since my diagnosis have endured grueling treatments. They’ve shaved their heads, relocated for care, lost their fertility, and dealt with the lingering effects of treatment-induced trauma. Despite facing anxiety, depression, pain, and significant physical challenges, they continue to persevere and advocate for those without a voice. I am honored to know these women. Their strength, passion, and unwavering light inspire me.

Still, survivor’s guilt is real. My experience feels minimal in comparison because I “only” needed surgery to remove my cancer. Thankfully, the incredible women I admire have reminded me that it wasn’t “just” surgery or “just” stage 1A cancer. They’ve encouraged and supported me, helping me embrace my journey as valid. Their support has been instrumental in helping me thrive, not just survive.

I’ve been given a platform to advocate not only for those impacted by cervical cancer but also for its prevention. My hysterectomy was radical and represented the best-case treatment scenario for me, but the true best-case scenario is no cancer at all. Supporting the HPV vaccine, promoting early screenings, and advocating for proper treatment is the least I can do for all the women battling cervical cancer.

Lorie’s Story: Never Giving Up

About Lorie: Lorie Wallace, a Detroit resident, was diagnosed with invasive cervical adenocarcinoma in 2017. She underwent surgery, radiation, and chemotherapy, and later developed radiation-induced lumbosacral plexopathy (RILP), a debilitating condition with no cure. Today, as a Cervivor Ambassador and 2022 Cervivor Champion, she inspires others with her resilience.

This image shows Lorie, a cervical cancer survivor from Michigan wearing a black "Making Cancer Pay" t-shirt. She has blonde hair, blue eyes, and brownish pink lipstick.
Lorie Wallace during Cervivor School 2022

Sometimes, I wait until I’m alone to scream at the injustice of it all. But I refuse to let cervical cancer or my radiation-induced lumbosacral plexopathy (RILP) define me.  

I’ve learned that while I can’t control everything, everything cannot control me. I’ve found ways to adapt and thrive, not just survive. I’ve focused on strengthening the muscles not affected by plexopathy, embraced the support of my cane, and let go of the stigma I once felt about using a disabled parking pass. Learning to give myself grace and to see these tools not as symbols of weakness but of perseverance has been a profound part of my journey.

Through advocacy, I’ve reclaimed my purpose. As a Cervivor Ambassador, a cancer support coach, and a mentor with organizations like Imerman Angels, I use my voice to help others navigate life after cancer. This work has been as healing for me as it has been impactful for others. I’ve discovered that purpose can emerge even from the darkest times.

For me, advocacy is more than action — it’s a declaration: I am still here, I am still fighting, and I will never give up.

Interested in Patient Advocacy?

Christy, Athena, and Lorie’s stories show that surviving cancer is only the beginning. By turning their experiences into cervical cancer patient advocacy, they’ve found healing, hope, and a way to thrive. You can make a difference too! 

Here’s how you can get involved with Cervivor advocacy:

  • Attend Cervivor School: Gain training to become a leader in cervical cancer advocacy. Sign up to receive the latest updates!
  • Support Through Donations: Help fund programs that empower survivors.
  • Raise Awareness: Promote cervical cancer prevention and survivorship.

Together, we can thrive, not just survive — and make a difference!