Hispanic Heritage Month: Beyond the Taboo

Karla Chavez, Cervivor Ambassador & 2022 Cervivor Champion Award Recipient

In the months of September and October, we are celebrating our Hispanic heritage.

History supports our struggle and power to overcome difficulties. We are brave, passionate, and colorful people. We also come from many beliefs and cultures, some of which can be obstacles.

It is a reality that many Latinas die from a disease that can be prevented. The lack of education, the lack of specialization of our doctors, and the HPV taboo are our challenges to overcome in order to win the war against cervical cancer and other cancers caused by the Human Papillomavirus.

I was 34 years old when I was diagnosed and in a country where our sex education is given in science and biology classes, but discussed little outside the parameters of our classrooms. Being able to accept and share that my cancer was caused by HPV gave me freedom. I talked about it with my family, and I remember having the feeling of, “What are they going to think of me?“ They really didn’t care. Their only concern was my health.

Being diagnosed with a cancer caused by HPV carries with it a taboo in my culture. We often do not discuss this with anyone because we do not want them to judge us, much less reject us. Many times we struggle alone with feeling guilty. This stigma must be overcome. We must trust that we will find support, in our family, in our friends, and/or in faith. The way to overcome this issue is to talk about it without fear, so that the next time we hear about cervical cancer, it’s because it is being prevented. We want our communities getting vaccinated and that we don’t wait ages for our doctor appointments.

A doctor told me, “the vast majority of us will have an HPV infection at some point, what we need is to remove the stigma behind those three letters and attack it.” 

This resonated with me. It made me feel that even though I didn’t know much about what was happening to me, it wasn’t my fault. It is something that I had to go through, and I must overcome it.

Karla with her Madre & Abuela

Once I took away the power that guilt had over me, I began to fight. I have had the joy of having my family as my support team. We have fought with a lot of faith and love. Which is one of the characteristics of our Hispanic culture, keeping us together as a family no matter the situation.

I am also sure that my doctors were the answer to my prayers in my moments of fear. I received 8 chemotherapies and 35 internal radiation treatments. After a total hysterectomy and colostomy surgery, I have made it my mission to never shut up about what I went through. Because to someone out there, something in my story will resonate and they will act. Either getting vaccinated, scheduling their cancer screenings, or vaccinating their children.

I’m still here to celebrate life and the month of Hispanic heritage. I’m still here to tell you that cervical cancer can be prevented. That there is a vaccine that can save the lives of hundreds of thousands. I’m still here to talk to everyone about the vaccine and prevention.

When I was diagnosed, I wanted to fight and win. Now that I celebrate 5 years without evidence of disease, I want to fight and overcome the stigma, the lack of education about HPV, and its relationship with various types of cancer.

After attending Cervivor School I learned how to share my story, how to speak up, and be the voice that can resonate with someone else.

I have had the opportunity to participate in talks at universities, high schools, religious groups in my country, and in workplace meetings, and always that I can to each person that wants to listen.

I want everyone to get the HPV vaccine, to make their cancer screening appointments so that together we can dream of a Honduras and a world free of cervical cancer.

Fellow cervical cancer survivors/patients, I leave you with a mission: Share your story, because your story will resonate with someone.

Visit Cervivor.org to share your story with an easy-to-follow template!

Karla Chavez is from Honduras and she is a civil engineer and amigurumi enthusiast. Karla is a 5-year cervical and thyroid cancer survivor and a proud ostomate. She is a Cervivor Ambassador, a 2019 Cervivor School graduate, a Cervivor Champion Award recipient, and is a key support to our growing Cervivor Espanol community.

From One Young Mom to Another, I See You.

Just as different as all of our cancer journeys are, so are our parenting styles and choices. My children were ages four and seven when I wrote this letter. They did not know their mommy had battled cancer twice during their short time on Earth. One day I will tell them the whole story and I hope they draw strength from it. But for now, I am so very thankful I was able to attempt to preserve their innocence throughout my treatments. They knew I had to go to the doctor often for my “tummy.” They were six months and three years old at the time of my original diagnosis and ages three and six at the time of my recurrence.

They knew they had to be careful with my arm because of my PICC line. Upon reflection, I know I drew, and continue to draw, my strength from knowing they need me. They are the very reason I managed to smile through it all. Now that they are a few years older, they have some understanding and knowledge simply because of my cervical cancer advocacy efforts and fundraising events. They both enjoy sporting their teal and white and proudly bring me drawings or things they find that remind them of cervical cancer awareness ribbons.

Dear Young Mom Going Through Treatments, 

You are their safe place; their steady fortress of love, their ever-present cheerleader. Your kisses make all of their boo boos better and your hugs melt away all of their cares. A glance from you can make them feel as though they can conquer the world.

Though they haven’t a clue, they are your total source of strength during these days.

I see you, and you are doing an amazing job. 

I see your brow wrinkled with worry for them. Worrying if you are handling this season of life the right way, worrying about them overhearing adults at school talking about their mommy’s cancer, worrying about what their tiny lives could be without you.

I see you grabbing your wig or hat, lathering concealer over your chemo-ridden raccoon eyes, and mustering up a smile to appear normal in the eyes of your children. 

I see you planning your appointments strategically so as not to miss a baseball game or dance class. I see you insisting the doctor’s office squeeze your weekly chemo session in on their jam packed Wednesdays because there are no after school extras to be missed. I see you biting your tongue and fighting back tears while the unknowing tell you how great you ‘look’ to be going through treatments and how wonderful it is that you ‘feel’ like being out at that ballfield and dance studio.

I see you soaking up as much rest as you can during their school hours and timing your medicines just right so you can make a futile attempt to be present during homework, dinner, baths, and story time. 

You just want to make sure they get every ounce of the’ normal you’ there is.

Though you don’t believe it now, your tiny sources of strength could never see you as anything less than their beautiful source of unfailing love.

Though they don’t know it now, one day they will. One day they will look back, and realize just how beautifully and courageously strong you were for them. 

You can do this. 

Strength & Love from A Mom That’s Been There 

Tracie is a mother of two amazing boys, and along with her husband, they spend their time enjoying the beauty of Alabama. Tracie is a Cervivor School graduate, Cervivor Ambassador and a well-seasoned Lobby Day advocate.