Every Cervix Matters: LGBTQIA+ Voices in the Fight Against Cervical Cancer

For queer and trans people facing cervical cancer, the challenges go far beyond the diagnosis. They’re compounded by systemic bias, stigma, and a long history of being overlooked or mistreated in healthcare. These barriers are only growing amid ongoing threats to LGBTQIA+ health equity. (Learn more about these challenges—and the work to overcome them—in part two of our Pride Month series. Stay tuned for Monday).

As Dr. Scout, a trans man and Executive Director of the National LGBT Cancer Network, explains, “It’s getting more dangerous to be openly queer in this country right now.” For many, staying safe means staying silent, often at the cost of their health. 

That’s why this Pride Month, Cervivor is proud to uplift the voices of Karen North, Anjelica Butcher, Gilma Pereda, and Pixie Bruner—members of our community whose experiences reveal both the challenges and courage of queer cervical cancer survivors. Their stories remind us that behind every statistic is a person who deserves to be seen, heard, and cared for.

Challenging Assumptions: Karen’s Advocacy

Karen, a former nurse from Liberty, Missouri, lives with her longtime partner, who shares the same first name, Karen “Murph” Murphy. Their relationship grew gradually after Karen’s 10-year marriage ended in 2001—a union that brought her a son, Matthew, and helped her recognize her identity as a lesbian. But fear of judgment lingered. “When I was still dealing with custody issues,” she recalls, “I’d deny my relationship with Murph in public if I had to.”

Karen North

By the time she was diagnosed with breast cancer—and then cervical cancer 18 months later in January 2016—Karen had stopped worrying about court rulings or public opinion. Instead, she leaned on her medical background to stay focused on treatment, not judgment. “I didn’t care what anyone thought. If I felt judged, I’d call it out and find another provider,” she says, adding with a laugh, “I can be a KAREN, in all caps, if I need to be.”

Karen discovered Cervivor in 2017, but it was Cervivor School in 2019 that truly “lit a fire” in her. Today, she leads the Cervivor Pride group and is a vocal advocate for inclusive language. “One of my biggest pet peeves is when people assume everyone with a cervix identifies as a woman,” says Karen.

Conversations with her transgender friend Zeke—who navigates gynecological care as a male-identifying person—have shaped her approach. Karen now avoids euphemisms like “coochie cancer,” opting instead for medical terms or inclusive phrases like “below-the-belt cancer,” which more accurately encompass HPV-related cancers, including cervical, vaginal, vulvar, penile, and anal.

And she credits her Every Cervix Matters hoodie for sparking meaningful dialogue. “A woman came up to me at a restaurant and said, ‘That’s great. Every cervix does matter.’ I got goosebumps,” Karen recalls. “It doesn’t center gender—it centers anatomy and health.”

Transforming Trauma: Gilma’s Awakening

Cervivor Ambassador Gilma, a graphic designer in California, echoes Karen’s message: “It’s called the human papillomavirus—not the women’s papillomavirus,” she emphasizes. “It doesn’t matter your sexual orientation or your gender.” 

This perspective led her to vaccinate her then-12-year-old child—now a trans woman—shortly after her cervical cancer diagnosis in 2016. “At her annual checkup, the doctor mentioned the vaccine could prevent cervical cancer,” Gilma recalls. “I said, ‘I don’t care if it’s for girls or boys—whatever it is, my child needs it.’”

Gilma Pereda

Gilma’s cervical cancer journey unfolded alongside a profound personal awakening. Raised in a traditional Catholic household in 1970s Mexico, she followed expected norms—marrying and having a child—despite always feeling “different.” After divorcing at 36 and supporting her child through gender exploration, she began to reflect on her own identity. “Cervical cancer changes your sexual life—a lot. So I stopped worrying about that,” she says. “But it gave me the freedom to express my gender differently.”

A metastatic recurrence at 47, which led her to shave her head after a lifetime of long hair, marked a turning point. “I’ve seen so many women devastated by hair loss—hair carries so much of our identity,” she says. “But for me, I was so happy.” Soon after, she came out to her parents. “I was done trying to fit a mold. Now, I feel comfortable being androgynous.”

Gilma’s advocacy stems from a deeply traumatic experience. During a painful, anesthesia-free cryotherapy procedure to remove precancerous cervical cells, a doctor’s inappropriate touch triggered memories of childhood sexual abuse, causing her to delay treatment for a year. “By that time, it was cancer,” she states.

She credits Cervivor—and years of advocacy training and witnessing other survivors doing “very, very difficult things”—with helping her transform that pain into purpose. Gilma has since shared her story in Spanish-language publications and on a bilingual panel addressing sexual abuse in medical settings, an issue that disproportionately affects her community. “I don’t like the spotlight,” she confides. “But I’ll do it again and again to help prevent this from happening to others.”

Confronting Disparities: Anjelica’s Fight

Anjelica, a small business and nonprofit owner in Baltimore, faced her cervical cancer diagnosis already carrying the weight of multiple identities: Black, queer, caregiver—and often the only one like her in the room. “My cultural background gave me strength and resilience,” she says, “but it also came with silence around topics like sexuality and cancer.”

She quickly saw how deeply healthcare disparities run. “I thought I had great insurance—until I found out it didn’t qualify as catastrophic coverage,” she recalls. Denied care for over a month, she had to pay out-of-pocket to start treatment. “It broke my heart realizing the only reason I made it through was because I could afford to. What happens to the people who can’t?”

Anjelica Butcher

For Anjelica, who’s identified as queer since age 13, her cervical cancer diagnosis also brought a realization that “hit hard.” “I was never offered the HPV vaccine—likely because of assumptions about my sexuality,” she shares, referencing persistent stigma and misinformation that overlook how HPV is transmitted: through intimate skin-to-skin contact, not just penetrative sex.

While most of her care team was respectful, certain invasive treatments—like internal radiation—left her feeling unseen and violated. Although the plan was eventually adjusted, the damage had already been done. One provider, referred by her primary doctor, made a lasting difference. “They taught me how to advocate for myself as a Black woman. Most people don’t know how, and it shouldn’t fall solely on us.”

Her support system—her mom, dad, partner, and chosen family—kept her grounded. And with help from a “phenomenal” oncological therapist, she began processing the emotional toll that surfaced after remission. “I didn’t realize how badly I needed community until then.”

Now active in Cervivor and the Ulman Foundation, supporting young adults impacted by cancer, Anjelica shows up in survivor spaces not to seek answers, but to offer hope. “Healing is possible. Remission doesn’t mean going back—it can mean becoming someone even stronger.”

Poetic Resilience: Pixie’s Voice

Pixie, a poet and Cervivor Ambassador from Snellville, Georgia, knows firsthand how gaps in care impact LGBTQIA+ communities. At 26, she was treated for cervical dysplasia, but not tested for HPV. “I wish I had known then what I know now,” she says.

Living with Ehlers-Danlos syndrome and type 1 diabetes, Pixie had always been vigilant about her health. So when she was diagnosed with cervical cancer at 50—with no symptoms—it came as a shock. “I felt numb, contaminated,” she recalls, struggling with the stigma of an STI-related cancer. She underwent a radical hysterectomy and bilateral oophorectomy. “It was basically the ‘Everything must go! Going out of business sale’ surgery,” she’s described.

Pixie Bruner

Living in rural Georgia, Pixie chose not to disclose her sexual orientation. “When I asked a nurse, ‘What do you define as sex here?’ the answer didn’t reflect my lived experience,” she says. After treatment, a conservative therapist dismissed her concerns about sexuality and body image. “I was reduced to parts—told they were irrelevant because of chemopause and their loss. That I should be grateful to be single. But I was still a sexual being, still human,” she says. “I fired that therapist.” 

Cervivor became her lifeline—offering connection, care packages, and space to heal. Her “fairy godmothers,” a married couple, delivered warm meals and encouragement. “Friends are my chosen family and were with me during the long recovery,” she says.

Today, she advocates for inclusive HPV education through Cervivor’s LGBTQIA+ community, and her award-winning poetry—including “Her Kind” and “Medusa With Cancer”—explores how illness reshapes identity. “Cervical cancer took ‘femininity’ and gender away from me in some ways,” she writes. “But my words helped give something back.” 

A Call to Action for Equitable Care

While Karen, Gilma, Anjelica, and Pixie each have unique stories, they share a common goal: a more just and inclusive future.

“I want a world where cervical cancer isn’t common,” says Pixie. “Where HPV vaccination is standard, no one is judged for having the ‘wrong’ cancer, self-care is valued, and early detection is affordable and accessible.”

At Cervivor, that vision means making space for everyone. As Community Engagement Liaison Morgan Newman, MSW, shares: “We stand with our cervical cancer community to demand protection and empowerment through prevention. As someone who’s faced this disease, I know the power of vaccines and the importance of accessible healthcare.”

Cervivor Ambassadors, Ann Marie Hartung and Kellie Defelice, tabling at a Pride event in Massachusetts.

If you or someone you know is part of the LGBTQIA+ community and impacted by cervical cancer, join the Cervivor Pride group (for more information, contact Karen), attend Creating Connections virtual meetups, or take part in local or national outreach.

Support Cervivor’s mission to end cervical cancer by contributing to the ongoing Tell 20, Give 20 awareness and fundraising campaign—honoring 20 years of advocacy, education, and survivorship.

The Ladies in the White Shirts

Cervivor is committed to making a difference by working to close disparity gaps that continue to plague Communities of Color. This commitment led Cervivor’s Founder and Chief Visionary, Tamika Felder, and Cervivor’s Chief Diversity Equity and Inclusion Officer, Kimberly Williams to unite community members this past weekend from around the world—Honduras, St. Lucia, and U.S. states like Texas, Maryland, California, Alabama, New York, North Carolina, Iowa, and more—to Cleveland, Ohio, for the Cervical Cancer Patient Advocacy Retreat for Communities of Color. This retreat wasn’t just a local event; it was a global movement. We had community members participating via Zoom from Mexico, the Caribbean, and Africa, emphasizing our commitment to advocating for change worldwide.

Empowering Knowledge
Renowned experts from the Cleveland Clinic and Langston Hughes shared their insights on cervical cancer prevention, treatment, and advocacy. Attendees gained a deeper understanding of the importance of:

  • Routine screenings and HPV vaccination.
  • The need for cultural competency in healthcare.
  • Ways for them to engage in community outreach and education.

After an expert-led panel, Chief Diversity Equity and Inclusion Officer, Kimberly Williams recapped the powerful message, “An educated patient takes action.”

Participants also had the opportunity to discuss self-collection cervical cancer screening and participated in discussions that answered questions about self-collection and its importance in eliminating cervical cancer. This discussion aided the advocates in understanding and promoting self-collection as a viable option for early detection when they return to their communities.

A special session with Dr. Leeya Pinder, who practices both in the United States and Africa, provided a global perspective on the issue of access (not just screening and treatment, but also clinical trials). Dr. Pinder explained the dire need for advocacy to end the disease, highlighting that many individuals with a cervix in these countries lack access to essential screening materials, leading to detrimental results. Her insights allowed participants to see the full circle of need in cervical cancer prevention and treatment.

Turning Knowledge into Action
On Saturday, Cervivor launched Cervivor Cares, which is our initiative to raise awareness about cervical cancer in communities through education, volunteering, and active presence. We engaged in community outreach, raised funds, and supported the mission to eliminate cervical cancer by providing essential resources and promoting access to necessary screening and treatment for all. 

What better way to launch Cervivor Cares, than a Cervivor in Action day after a full day of classroom training? That’s right, our retreat participants increased their advocacy footprint by putting their knowledge into action. They volunteered their time at a clinic hosted by Medworks and the Cleveland Clinic that provided preventative screenings to the underserved community of Cleveland, Ohio. 

It was not only an opportunity for preventive screenings, it was an opportunity for our participants to bring education and empowerment to all those who attended and were touched by our volunteers. Without hesitation, our retreat participants assisted by sharing their stories and expressing the importance of our mission. Our Cervivor Español, attendees translated to and for patients in every facet including the exam room so patients understood the physician’s questions and requests. This group put the information they learned into action immediately. Our participants met people where they were, in their daily routines —urging them to schedule their cervical cancer screenings, attend follow-ups, and the importance of HPV vaccination. 

As they shared their stories and stressed the importance of cervical cancer screenings and HPV Vaccination, the clinic was buzzing with excitement. Patients and staff alike began referring to them as “The Ladies in the White Shirts,” urging others, “You need to go talk to the ladies in the white shirts.”  These Cervivors were educating patients before they even walked through the door, helping them understand that regardless of their past, getting screened and following up on any abnormalities now is crucial. The retreat participants’ presence underscored the importance of the Cervivor mission and served as a reminder that their story mattered, and was already making a difference.

Embracing the Spirit of the Ladies in the White Shirts
As we reflect on this transformative event, we celebrate the spirit of “The Ladies in the White Shirts”—the Cervivor community. Each of you embodies this spirit by wearing your shirt, sharing your story, and advocating for screening. Your dedication makes you a vital part of the movement to end cervical cancer. In the words of Gwendolyn Jackson, “You have prepared me to go out into my community.” If you don’t feel prepared, we have programs available for you!

We encourage everyone to grab your Cervivor Spark, use the hashtags #Screen4Me and #Cervivor, and continue advocating for cervical cancer screenings. By sharing your story and spreading awareness, you become a powerful advocate, helping others access the screenings they need and contributing to a future free from cervical cancer. Together, as a community working to eradicate cervical cancer, let’s continue to make our voices heard, drive change, and support each other in this crucial mission.

Cervivor would like to extend its sincerest gratitude to our sponsors, including Pfizer, Genmab, Roche, and The Marchetta Family (Vince, Amanda, & William in honor of their late wife and mother, Betsy), as well as our in-kind donors, La Roche-Posay, Kafela, Lepley & Co., and Kesh the Creative, for their generous support and contributions to our mission.